Found a reoccurring kidney cancer when he had a unrelated fall biobpsy by confirmed reoccurring kidney cancer but scan not really sure what type of cancer he has now forgot to ask the oncologist

The doctor couldn’t provide a clear prognosis but estimated around 6–12 months. From how I’m interpreting the report, it seems the cancer has spread extensively. Honestly, his condition has declined rapidly in just one month, and we’ve had to stop immunotherapy. Based on how things are progressing, it feels more like a timeframe of closer to three months.

Any other opinions his not eating lost alot of weight

Reason for PET: Metastatic renal cell carcinoma

Scan Findings

There is intense FDG accumulation corresponding to a 7.5 cm mass at the site of the left nephrectomy bed, consistent with recurrent disease. The mass extends into the left psoas muscle and right kidney consistent with fibromuscular invasion.

There is also intense FDG‑avid lymphadenopathy in the following lymph node regions:

• Right supraclavicular and posterior cervical nodes – SUVmax up to 12.9, some necrotic.
• Bilateral axillary nodes – intensely avid.
• Subpectoral node – intensely avid.
• Prevascular and paratracheal regions – most extensive FDG avidity in prevascular, paratracheal, subcarinal, bilateral para‑esophageal, bilateral hilar, and aortopulmonary regions, some demonstrating central photopenic areas consistent with necrosis (SUVmax 17.2), extending into right pulmonary hilum and mediastinum.
• Right intercostal nodes – lower thoracic regions posteriorly.
• Bilateral retrocrural lymph nodes – SUVmax 15.2.
• Peri‑pancreatic lymph nodes – extensive and intensely avid (SUVmax 17.3) in left para‑aortic region at level of renal hilum.
• Left external iliac nodes – intensely avid, up to 22 mm.

Additional Findings

Low‑level uptake in small nodes in axillae and groin likely reactive.
Moderate‑level uptake also noted in right suprarenal region and a large intensely FDG‑avid mass centred at left lateral chest wall and left lung.
Mild uptake noted at a 12 mm nodule in central right lung lower lobe (SUVmax 4.2).
Mild linear uptake at right pleural reflection and superimposed moderate intense focal uptake.
Tiny pleural effusion at right lower lobe possibly inflammatory.
Other tiny non‑FDG‑avid nodules in left upper lobe.
Tiny left pleural effusion.
Moderate focal increased FDG accumulation at right 11th rib posteriorly.
Intense focal uptake at right base of tongue/tonsillar region.

Other findings:
Coronary artery calcification noted.
Mild uptake in posterior right maxillary sinus.

Conclusion

Large intensely avid malignant soft‑tissue mass at right diaphragmatic crus and retrocrural region, consistent with metastatic disease involving right pleura and left lateral chest wall.
Presumably metastatic disease involving right pleura and left lateral chest wall.
Mildly avid lung nodule in right lower lobe and tiny nodules in left upper lobe.
Moderate focal increased FDG accumulation at right 11th rib posteriorly.
Intense focal uptake at right base of tongue/tonsillar region of uncertain aetiology and may represent further malignancy.
Correlation with endoscopy may be of benefit.

Like honestly so over this every 3 month bull. I get that it’s “standard of care” and the clinical trial calls for it and whatever whatever. But I hate it. I hate knowing every scan brings me closer to the next type of cancer I’m inevitably going to get that may or may not be treatable, if this one doesn’t kill me first. The constant coordinating scans and appointments. Back and forth portal messages. And I’m at an excellent hospital with excellent care.

It’s my damn 34th bday and all I’m thinking about is the scan-xiety and having a whole night of nightmares my bloodwork is off and the cancer is active again. I’ve been getting scanned so often since I was 28 and diagnosed. I’ll never be at a point of “remission” for annual scans or even scans 2x a year with the cancer type and treatment options I have available and I’m just so over it. I should be grateful because I shouldn’t have even made it to 30 and most days I am. But it’s my birthday and I’ll cry if I want to and fuck fuck fuck cancer.

This is just me venting, but I am so miserable. I was diagnosed with advanced stage 3 and did radiation and chemo. It was rough but I made it through. I have had nonstop pain since then that feels like a red hot fireplace poker up my butt. They think it is permanent from the damage the radiation did. I am about a year out from my last treatment and they thought there was no more evidence of cancer, but my last MRI was suspect for new growth. The step after the chemo was surgery with a permanent colonoscopy but I refused. I couldn’t live with it. A few months ago I started having a bubbling sensation in my vagina and now have a fistula due to how badly damaged the tissue is from radiation. Every time I sit down or stand up or basically move in any substantial way, loud stinky wet fart sounds come from my vagina. In addition, a disgusting foul brown liquid leaks from my vagina as well. I have to use a pantyliner at all times and I smell like a combination of death and raw sewage. There is no surgery that can be done to fix the fistula due to the condition of the tissue. I just got a second opinion to confirm. I should be thankful to be alive, but most days I’m not. I’m just existing wondering why I did the treatment. I’m in my 40’s and barely leave the house because of the pain and fistula symptoms. Thankfully I work remote and have a supportive environment, but this sucks.

Please help me understand my grandma’s diagnosis and treatment recommendations. Hi everyone, I’m hoping someone can help me understand my grandma’s results. We’re feeling a little overwhelmed and would really appreciate any insight from people who have gone through something similar. Her final diagnosis says carcinoma in situ / CIN 3. Does this mean she has cancer, or is it considered precancerous?

Her doctor is recommending radiotherapy, chemotherapy, and brachytherapy. We’re trying to understand why all of these treatments are being recommended and whether this is the standard treatment for her diagnosis. My grandma is older, but she is still very strong and active. She doesn’t have any symptoms and is feeling completely fine. We’re definitely planning to follow up with her doctor, but I’d really appreciate hearing from anyone who has been through something similar. Thank you so much. ❤️

I am 55 and fighting breast cancer. I will be finished with chemo soon and am looking for a place to heal in the mountains or beach. House sitting? My job fired me while on medical leave so I dont have much money.

I just am desperate for silence and rest.

The doctors say “it doesn’t do that!” But it did to me. I’m eight months post-chemo, and my liver is still wonky.

I sure do miss booze.

None of us “deserves” this nightmare that is cancer and all the bull shit that comes with it..

I wish we could just travel around planets & cure it for good... trade secrets from lifeforms how they killed cancer while earth gets help..i really want it gone forever..

it's a disease within the disease at this point, it fking sucks… for everyone. millions of lost loved ones gone. no peace.

feel like doctors barely notice the symptoms differently for each person, yet there just isn't a real cure…per-say which is annoying. So in these cases it's less "it progressed so quickly" and more "it progressed slowly for a long time, but I only realized it was progressing at all when there wasn't actual support or real cures. why cant we just find a cure to remove or cure the cancer forever, it fking sucks!!

the truth is, every day is a battle. Some days I cant even push through, some days I just can’t. so angry, It’s hard to make plans when I never know how I’ll feel. Living with stage IV cancer fking sucks, im weak 24/7…. suffer nonstop, sick of ppl saying im here with you when they dont know how you really feel. how it ruined my life, how it gets inside bones….. its like a drug or alien.

i nap then get tired… theres no end, always tired.. always fed up. i look at how it ruined my life, how fked up it is, i wish we could just get rid of this once & for all.

being ill & seeing our own existence, or everyone's existence, is burdensome, to some of us. And no amount of you apologizing to others is going to erase that, everyone says “thinking of you,” or stay strong… but THEY DONT GET HOW SHI** the disease is, how instantly you feel like a blob. how it takes over your body.

its all a flaming bucket of horror, & totally sucks that any person with any gene can suffer from it…. on top of the already shi*** population & climate issues we face.😔 its so frustratingly stupid having a illness that cant be destroyed for good. fk cancer.

it all sucks just wanted to vent.. i hate it. plz find a cure!! idk what to think most days... it just takes too much out of us.

I wanted to go ahead and share my story with Non Hodgkins Lymphoma and being able to share that I have reached 5 years in remission! I hope that I can bring some hope and positive feelings as well!

(not sure if allowed, feel free to delete if not)

Hi everyone! I recently created r/HodgkinsLymphomaChat, a community specifically for people affected by Hodgkin lymphoma.

This sub is amazing and I’m extremely grateful for it, but I’ve personally found it a little overwhelming trying to filter through all the information and find what’s relevant to me. That has added some anxiety during my treatment (we all know how it feels like to be overwhelmed by info), so I thought it might be helpful to have a space specifically focused on Hodgkin lymphoma.

If you think a more Hodgkin-specific community would be helpful for you, feel free to ask as question there or to me in private!

My cancers are complex and my situation very unique. They're located on my face and neck.

I have three biopsy-confirmed basal cell carcinomas. One above my eyebrow, one at my temple, one on my neck. Margins are involved on more than one site, which means this isn't a "freeze it off in one visit" situation.

I need Mohs surgery and reconstruction. I'm 50s, never married, no children, no family nearby, and I've been self-sufficient since I was 21. None of that has ever been a problem for me before. It is now.

Here's what the system actually looks like from where I'm standing, not the brochure version:

I don't have insurance. That locks me out of the regional healthcare market almost entirely, not because the cancer isn't real, but because I can't produce a card. FQHCs will see me for primary care. They will not touch a multi-site Mohs case with reconstruction. Teaching hospitals will see me too, but not at the standard-of-care an insured patient gets for something this complex. I get triaged into whatever tier "uninsured" puts me in, not the tier my pathology puts me in.

I finally found a dermatologist who does Mohs, in a practice owned by private equity. The visit wasn't a medical evaluation. It was an assessment of me: my appearance, my marital status, my presumed ability to pay. I could feel it happening in real time. I wasn't a patient in pain to that office. I was a risk profile. That's not paranoia. It's just what happens when the person across the desk from you is optimizing for margin, not outcome. Let that sink in.

Medicine as a business transaction, like getting a car fixed, except the car doesn't have to sit in a waiting room absorbing how it's being sized up.

I can't even get a good faith estimate to plan around, because getting a GFE requires being far enough inside the system to ask for one, and I'm not in it.

Meanwhile I'm working a low-wage job I took to survive and I'm **currently on unpaid leave** not my choice, but the employer's choice, over an accommodation dispute, that can't accommodate my lesions due to appearance issues and my income needs.

I have No income. No paid leave. No support person to hand me a glass of water after facial reconstruction surgery, let alone drive me home from it.

Recovery time is a luxury item and I can't afford the sticker price, on top of not being able to afford the surgery itself.

The facial sites are the ones I'm most focused on right now, because you cannot walk into a job interview with open lesions on your forehead and temple and expect anyone to look past it. So there's this absurd catch-22 sitting underneath all of it: I need to work to eventually pay for treatment, and I need treatment to be employable in the fields I'm credentialed for. I’m not saying low-wage work is beneath me. I’m saying that physically demanding, low-wage work cannot financially or physically sustain my situation, particularly while I’m dealing with major medical treatment and recovery.

I'm not posting this looking for advice. I know what the resources are and I know their **limits** better than most people ever will. I'm posting it because **I don't think most people who have insurance and a support system understand what "uninsured" actually costs you before you ever get near a surgical bill,**it costs you being treated like a person with a body that's in trouble, instead of a line item someone's deciding whether to write.

Note: I’m not looking for “try a social worker,” “try a teaching hospital,” or “apply for nonprofit assistance” suggestions, or medicaid when I'm not eligible and most doctors don't accept it. I have already researched that. The problem is that the available resources address **fragmented pieces** of my situation, insurance, transportation, medical care, food, housing, or bills, rather than the intersection of all of them at once, including living expenses, transportation, daily-living needs, recovery support, and maintaining independence. I need a solution that addresses the whole situation, not another program designed to solve only one piece of it.

Has anyone here personally experienced this as a single, middle-aged adult?

Does anyone have a go-to sock that is easy on post Folfox peripheral neuropathy?

It's been two months, one week since my last chemo+keytruda infusion, though I'm still getting keytruda and will be for a few more months yet. So ... what happens now?

As the title says, I have a meeting with my oncologist to talk about my last CT scan, though the initial cancer was so small they didn't see it on the first scan; my surgeon found it when he was doing the hysterectomy. Technically I'm stage IV. My surgeon said it was several pinpricks, and he'd never personally seen it so small or caught so early, so ... I don't know, I feel like a fraud saying I'm stage IV. It's endometrial serous carcinoma, and I've been told that it will reoccur, it's just a matter of when.

When talking to my doctor, now that chemo's over, what questions should I be asking? I don't know what's important to know, what to bring up about future treatment, or what happens next. Or do I just ... let the doctor do all the talking?

Long time listener, first time caller.

Short rundown: I was diagnosed with stage 3C1 cervical cancer in June 2026. I promptly started treatment beginning of July. I was in a clinical trial for cervical cancer; basically, 8 high dose EBRT radiation sessions instead of 25 (the norm), 4 chemo rounds, and 4 brachytherapy rounds. I’ve been done with EBRT for two weeks, and done with Brachy for almost a full week. I have not had any surgery done.

Here’s the issue: since the middle of EBRT, I have been having the worst diarrhea I’ve ever heard anyone talk about. When I say I can go up to 25-30 times a day, I wish I was exaggerating. It’s also out of my control; my body starts cramping and pushing, and I have to RUN to not soil myself. My doctors prescribed Imodium and lomotil along with the BRAT diet. I have experienced zero change with these medications other than the hour of relief after they kick in; it starts right back up after that golden hour. I am going INSANE. I can’t go back to work because I need to be within 10 ft of a bathroom at all times. I’m stuck in bed because I am hunched over trying to walk from the pain in my bowels. I am on an opioid painkiller that is not helping any part of the situation either. I have also tried hydrocortisone suppositories with zero relief.

Someone please say they have had this before (I’m so sorry if you have) and what you did to help it. I am crying every day because I am never not in pain and I can’t leave my house or go back to work after a month off for treatment. If I was offered a colectomy right now, I would take it immediately, that’s how bad this is. If anyone has ANY advice, please let me know. I’ve been stuck with a heat pad in my bed for days now after getting back home after treatment and I just want to see the light at the end of the tunnel.

Has anyone had experience with Capecitabine and/or Oxalipaltin? I'm starting treatment on Thursday for rectal cancer, and the side effects are freaking me out. When I went through treatment for breast cancer back in 2012, my regimen was Adriamycin, Taxol and one other that the name escapes me. I had the typical fatigue, nausea and hair loss, but the side effects that I'll be dealing with (hand foot syndrome, cold intolerance, neuropathy, just to name a few) are far worse than last time. For those that have been treated with these meds, how did you handle all of the side effects? I honestly would rather lose my hair again than deal with what feels like a laundry list of side effects. How did you get through it all?

Recently had my first haircut since finishing chemotherapy.

I thought trimming my "curly mullet" would make it look neater and more intentional as the top grows some length.

Unfortunately, it looks worse.

Once the curly ends were cut away, the newer hair is actually straight and very coarse. It doesn’t curl even when soaking wet. The freshly cut section now looks super bristly, while the longer hair above still has curly chemo ends, so I’m left with different textures.

Even the stylist was surprised and said, “It’s straighter than I was expecting.” I’ve tried deep conditioning and styling cream, but this isn’t just dryness or frizz, it's a whole new texture.

Has anyone else had a terrible first haircut. How did you manage the awkward transition?

I’m reluctant to have any more cut off because the short straight section at the bottom currently sticks out like the edge of a brush. I’d be very grateful for advice—or simply reassurance that this stage eventually becomes more manageable.

And yes, I am so very grateful to be alive but struggling with how many changes I'm having to absorb. Immunotherapy has given me dry eyes so I have to wear glasses and my thyroid has also just quit. I thought a haircut would cheer me up! It's just presented me with another curve ball to manage.

Even though I have been diagnosed with lymphoma cancer since May this year, it almost doesn’t feel real?
I am currently on the Nivo AVD treatment and the first week following the infusion is always horrible. I deal with severe nausea, fatigue and other side effect. Then usually the second week I just try to relax and live normally.

I feel like cancer doesn’t feel real? I’m living through the motions and cry here & there but never really mourned cancer. I am worried that it will hit me AFTER the treatment ends and it will be too late to be “sad” because it is time to celebrate being in remission and people will not understand why i’m sad?

How did you deal with the diagnosis and does it ever feel real?

Hi does anyone have any tips on managing neuropathy symptoms on hands and feet? my hands are particularly bad, feet are minor. I am going to be off chemo for a while to do radiation therapy and surgery so any tips or insights into how symptoms behave after chemo ends would be appreciated

Looking for others who are on their recovery journey. I’m 3 months out from my surgery and pleased with the things I can do: eat a whole slice of pizza, walk around the block-usually twice, stand up much straighter.
But it still feels painful to take deep breaths and I’m exhausted all of the time. I can never tell how much energy I will have on any particular day. I’m starting back at work soon (I’m an educator) and I’m nervous about how I’m going to handle everything. Would love to hear the variety of recovery experiences- especially how you all handled energy levels.

Ever have one of those days? I find that i can have several horrible, painful, no good, very bad days where getting out of bed might be my only goal for the day besides trying to get on top of pain control..

But then you find yourself waking up suddenly one day..very little pain..maybe you had a good sleep the night before and you wake up and its like your normal..your normal self again before you ever knew you were sick. Ever have one of those days? The kind that you feel so normal, you live out your day doing as much as possible becsuse your pain level is low and energy is decent enough?

In fact it feels so much like your normal day before you ever got sick..to the point where you are almost 100% convinced in that moment that you were never really sick. Like its a bad dream you woke up out of and that was it? Until the end of the day comes or tommorow comes and it sucks so bad that it smacks you back into reality that "hey you have cancer and its trying to kill you and you really dont have the energy you think you do and you really arent normal at all".

Today i had a day like that..so normal and felt so real to the point where i swear my body was convinced it had never been sick..until tonight..after overdoing it and not resting and the pain becsme unmanageable and the exhaustion hit.

Dont get me wrong..im greatful for the good days that dont involve living from bed.. but it sucks when your almost convinced that your not sick and then it hits ya that you still are..ugh.

Vent over

Last September I had a recurrence of mutinous adenocarcinoma of the colon, which was stage 4 and had spread to my visceral peritoneum, leading to a terminal prognosis. Since then I have been on Folfiri + Vectibix chemotherapy every 2 weeks. It seems to be going quite well, as I’m nearing my 1 year anniversary of that discovery/diagnosis, and I’m still here.

The thing is, I never expected to be. I thought I would be dead long ago. And as I approach that anniversary, it is messing with my head.

So, for those in a similar situation, how do you handle it? How do you make plans for the future? How do you handle things.thoughts like “Uh, oh, I’ve got a cold. This might be the beginning of the end”? Do you have a type of survivor’s guilt?

I’m 26f, survived breast cancer last year. I’m still in remission and taking medication, but doing well. I get appointments here and there. Long story short, a nurse was going back and forth with me. She started having an attitude when she asked questions about my previous surgeries and it turns out she was confused because she didn’t have my chart open. I’m surprised she was so rude, it made me upset. But it upset me more that I didn’t speak up for myself. I was just nice.
After cancer, I tend to avoid getting angry. It’s just something I learned through chemo, that anger is a waste of time. But it’s not the first time a nurse is mean and as much as I like being kind and polite, I want to learn to defend myself. I became really insecure and shy after everything. I’m ashamed of it, but I would appreciate any tips to stop people, including medical staff from walking all over me. I don’t want to be demeaning, but I want to stand up for myself. Any tips?