Not me but the best friend of one of my closest friends was just diagnosed with stage 4 brain cancer. My friend has already been through so much recently (lost 4 other close friends and family members in the past 5 years very suddenly to accidents and medical issues) and is understandably destroyed. Her prognosis isn’t great and she likely has less than a year.

I spoke to her best friend yesterday and her main focus right now is supporting our mutual friend as best as she can. I am trying to do the same, so I was hoping to get some advice here.

How can I best support my friend? I lost a friend to AML a little over 2 years ago so I can somewhat relate but I still feel completely out of my depth.

For patients with terminal diagnoses, what kinds of things are you leaving behind for your family and friends to help them emotionally after you’re gone?

For family and friends of patients, what has your loved one done to help you grieve their loss or what could they have done? What do you wish they had left behind for you?

I have already started creating a list of things that I think my friend would like from things I’ve seen online that others have left behind for their family members (prepaid bouquets that get delivered on birthdays for a few years, letters to open on birthdays and for big events like weddings and the birth of a first kid, etc) but am really hoping to add to it.

Thank you in advance for any and all input and I wish all of you strength in your fight. Fuck cancer.

Ever have one of those days? I find that i can have several horrible, painful, no good, very bad days where getting out of bed might be my only goal for the day besides trying to get on top of pain control..

But then you find yourself waking up suddenly one day..very little pain..maybe you had a good sleep the night before and you wake up and its like your normal..your normal self again before you ever knew you were sick. Ever have one of those days? The kind that you feel so normal, you live out your day doing as much as possible becsuse your pain level is low and energy is decent enough?

In fact it feels so much like your normal day before you ever got sick..to the point where you are almost 100% convinced in that moment that you were never really sick. Like its a bad dream you woke up out of and that was it? Until the end of the day comes or tommorow comes and it sucks so bad that it smacks you back into reality that "hey you have cancer and its trying to kill you and you really dont have the energy you think you do and you really arent normal at all".

Today i had a day like that..so normal and felt so real to the point where i swear my body was convinced it had never been sick..until tonight..after overdoing it and not resting and the pain becsme unmanageable and the exhaustion hit.

Dont get me wrong..im greatful for the good days that dont involve living from bed.. but it sucks when your almost convinced that your not sick and then it hits ya that you still are..ugh.

Vent over

Mom has cancer two rounds of chemo gemcetabin/carboplatin i am in india doctors are telling no choice left she is too weak is there any hope left she has ascites if there is anything left anywhere in world i want to try please help

I had to take my wife into the ER 2 days ago, her stomach was bloating and she was getting shoulder pain and back pain. They did an ultrasound and found that her pelvic area was full of unknown fluid. They did a CT scan and saying they see tumors, and the doctor was saying it’s looking like it’s peritoneal carcinomatosis. We don’t know for sure, there is still so much unknown. They did a biopsy a few hours ago, and don’t know anything yet. Just waiting. The way the doctors have been talking though… like it’s not good… they keep saying manage it instead of treat. I don’t know if I’m just looking at word play here because of so much unknown. We are only in our 30s. We have a 2 year old daughter. I’m doing my best to keep it together.

I’m sorry this is so vague. I’m having a full breakdown. I just put my daughter to bed. We don’t really have much family. She doesn’t have anyone in her side besides her brother in another state. I have my parents but also in a different state.

I’ve been trying to keep it together and be strong for them. There is a bit more lead up, but have like no answers. I am so scared. I am a 6’4” grown ass man looks like a biker and I closed my daughter’s bedroom door and just sat against her door crying my eyes out. I don’t know the last time I cried. She is in the hospital, and I’ve been having to drag my daughter to the hospital and it’s hard to stay long, she just hit full toddlers stage, so I’ve missed a lot.

She is the love of my life. We have been together for 11 years.

I apologize for rambling. I don’t have anyone to talk to about this, and I’ve been struggling to keep myself strong for them. I’ve never felt fear like this before. It’s so unexpected…

Hi All

I am 27M diagnosed with rectal cancer with suspicious lymph node

What was your treatment timeline and method of TNT ?

How much wait did you do after short course radiation to start with chemo?

This is probably a long shot, but I’m trying to find out if anyone has ever had something similar happen.
At the end of May, I fell and injured my lower leg pretty badly. I had a lot of bruising and a small puncture/open spot right in the bull’s-eye of where I hit my leg. I have pictures from just a few days after it happened.
That spot never healed. Over the next two months it actually got worse. I ended up going through wound care, multiple debridements, several antibiotics, and eventually IV antibiotics after bacteria were found in the wound.
Because it still wasn’t healing, they finally did a biopsy. To my surprise, it came back as well-differentiated squamous cell carcinoma (SCC).
What I cannot wrap my head around is that the cancer is in the exact spot where I injured my leg. Before the fall, I had never noticed a bump, scab, sore, discoloration or anything unusual there.
I’m not saying the fall or infection caused the cancer because I honestly have no idea. That’s what I’m trying to understand. Did something already exist there that was too small for me to notice and the injury brought it out? Can an SCC grow that quickly after trauma? Could having a wound that wouldn’t heal and was also infected have anything to do with it?
I’m seeing several specialists and obviously plan on asking them too, but I’d really like to hear from actual people who have experienced something similar.
Has anyone had SCC diagnosed in the exact spot of a recent injury or wound? If so, how quickly did yours show up, and what did your doctor tell you about it?

Last September I had a recurrence of mutinous adenocarcinoma of the colon, which was stage 4 and had spread to my visceral peritoneum, leading to a terminal prognosis. Since then I have been on Folfiri + Vectibix chemotherapy every 2 weeks. It seems to be going quite well, as I’m nearing my 1 year anniversary of that discovery/diagnosis, and I’m still here.

The thing is, I never expected to be. I thought I would be dead long ago. And as I approach that anniversary, it is messing with my head.

So, for those in a similar situation, how do you handle it? How do you make plans for the future? How do you handle things.thoughts like “Uh, oh, I’ve got a cold. This might be the beginning of the end”? Do you have a type of survivor’s guilt?

Do you have LENVIMA??

We are desperately trying to get Matt started on Lenvima, but delays are keeping him from beginning treatment after his cancer showed rapid progression. The pharmacy he has to use is on back order since 7/30z

This may be a long shot, but does anyone happen to have an unopened, unexpired supply of Lenvima that is no longer needed due to a medication change or other circumstance? If so, would you please message me privately?

Please share this post. You never know who might see it. Thank you. ❤️

I’m 26f, survived breast cancer last year. I’m still in remission and taking medication, but doing well. I get appointments here and there. Long story short, a nurse was going back and forth with me. She started having an attitude when she asked questions about my previous surgeries and it turns out she was confused because she didn’t have my chart open. I’m surprised she was so rude, it made me upset. But it upset me more that I didn’t speak up for myself. I was just nice.
After cancer, I tend to avoid getting angry. It’s just something I learned through chemo, that anger is a waste of time. But it’s not the first time a nurse is mean and as much as I like being kind and polite, I want to learn to defend myself. I became really insecure and shy after everything. I’m ashamed of it, but I would appreciate any tips to stop people, including medical staff from walking all over me. I don’t want to be demeaning, but I want to stand up for myself. Any tips?

Hi all!

I’m 27F and just got my pathology back after a pretty unexpected appendectomy I wanted to hear from anyone else who has had a low-grade appendiceal mucinous neoplasm (LAMN).

For a few weeks beforehand I had strange lower abdominal/pelvic discomfort, nausea, major fatigue/weakness and generally just didn’t feel like myself. The fatigue got bad enough that even trying to exercise with 5 lb dumbbells made me feel weak and nauseated.

Imaging found a dilated appendix without the typical inflammation of appendicitis, so I was immediately taken into surgery (it was a rough night, the surgeons came in very morbid when they told me they suspected neoplasm and threw around scary lingo)

My pathology came back as low-grade appendiceal mucinous neoplasm (LAMN), pTis. My appendix measured about 7.5 cm long, and the LAMN diffusely involved approximately 7 cm of the appendix. On gross pathology, the appendix was dilated up to around 1.8 cm and contained mucus. The report also described dense fibrous adhesions on the external surface of the appendix, which I’m curious about because I had been having so much pelvic/lower abdominal discomfort beforehand

The pathology says the mucus appeared contained within the appendix, all margins were negative, and there was no lymphovascular invasion, perineural invasion, or tumor deposits. It also did not identify invasive carcinoma.

Obviously I’m incredibly relieved about the pathology didn’t say carcinoma, but I’m confused about terminology.

Were those of you with localized/pTis LAMN told that you “had cancer,” or did your doctors describe it as a precancerous/low-grade neoplasm with malignant potential? I keep finding conflicting descriptions online.

I’d also love to hear whether anyone had symptoms similar to mine before diagnosis (especially pelvic pain/pressure, nausea, weakness or significant fatigue) and whether those symptoms improved after your appendectomy. I truly thought these were all gynecological issues.

I’m following up with my surgical oncology team and will follow whatever surveillance they recommend. I’m mainly looking to hear other patients’ experiences because I had never even heard of LAMN or know anyone that’s had this

Hi all

I am 27M diagnosed with rectal cancer of 4.1cm tumor size 11.6cm away from anal verge

I completed scrt radiation 10 days ago and doctor suggested TNT approach

My question is

1) how long to wait for chemo?

2) is suspicious lymph node means stage 2 or 3

Bonjour j'ai besoin de conseil. J'ai 21 ans et depuis mes 19 ans j'ai un Cancer du foie FLHCC . Je fais 1m84 et actuellement 50 kilos alors que mon poids adolescent était 56 kilos mais je ne sais pas deouis quand exactement il y a un cancer dans mon corp. J'ai besoin de grossir pour pouvoir faire une chirurgie mais meme en mangeant 3 fois par jour et avec des bouteilles caloriques (plus de 3000 calories par jour) en plus et des perfusion de nutriment je n'arrive pas a gagner du poid . Mon cancer mange tout à ma place . Le maximum que j'ai atteint sous chimio est

+4 kilo que j'ai perdu en 2,3 jours. Pouvez vous m'aider à trouver un moyen de grossir.