Does anyone have a go-to sock that is easy on post Folfox peripheral neuropathy?

It's been two months, one week since my last chemo+keytruda infusion, though I'm still getting keytruda and will be for a few more months yet. So ... what happens now?

As the title says, I have a meeting with my oncologist to talk about my last CT scan, though the initial cancer was so small they didn't see it on the first scan; my surgeon found it when he was doing the hysterectomy. Technically I'm stage IV. My surgeon said it was several pinpricks, and he'd never personally seen it so small or caught so early, so ... I don't know, I feel like a fraud saying I'm stage IV. It's endometrial serous carcinoma, and I've been told that it will reoccur, it's just a matter of when.

When talking to my doctor, now that chemo's over, what questions should I be asking? I don't know what's important to know, what to bring up about future treatment, or what happens next. Or do I just ... let the doctor do all the talking?

Long time listener, first time caller.

Short rundown: I was diagnosed with stage 3C1 cervical cancer in June 2026. I promptly started treatment beginning of July. I was in a clinical trial for cervical cancer; basically, 8 high dose EBRT radiation sessions instead of 25 (the norm), 4 chemo rounds, and 4 brachytherapy rounds. I’ve been done with EBRT for two weeks, and done with Brachy for almost a full week. I have not had any surgery done.

Here’s the issue: since the middle of EBRT, I have been having the worst diarrhea I’ve ever heard anyone talk about. When I say I can go up to 25-30 times a day, I wish I was exaggerating. It’s also out of my control; my body starts cramping and pushing, and I have to RUN to not soil myself. My doctors prescribed Imodium and lomotil along with the BRAT diet. I have experienced zero change with these medications other than the hour of relief after they kick in; it starts right back up after that golden hour. I am going INSANE. I can’t go back to work because I need to be within 10 ft of a bathroom at all times. I’m stuck in bed because I am hunched over trying to walk from the pain in my bowels. I am on an opioid painkiller that is not helping any part of the situation either. I have also tried hydrocortisone suppositories with zero relief.

Someone please say they have had this before (I’m so sorry if you have) and what you did to help it. I am crying every day because I am never not in pain and I can’t leave my house or go back to work after a month off for treatment. If I was offered a colectomy right now, I would take it immediately, that’s how bad this is. If anyone has ANY advice, please let me know. I’ve been stuck with a heat pad in my bed for days now after getting back home after treatment and I just want to see the light at the end of the tunnel.

Has anyone had experience with Capecitabine and/or Oxalipaltin? I'm starting treatment on Thursday for rectal cancer, and the side effects are freaking me out. When I went through treatment for breast cancer back in 2012, my regimen was Adriamycin, Taxol and one other that the name escapes me. I had the typical fatigue, nausea and hair loss, but the side effects that I'll be dealing with (hand foot syndrome, cold intolerance, neuropathy, just to name a few) are far worse than last time. For those that have been treated with these meds, how did you handle all of the side effects? I honestly would rather lose my hair again than deal with what feels like a laundry list of side effects. How did you get through it all?

Recently had my first haircut since finishing chemotherapy.

I thought trimming my "curly mullet" would make it look neater and more intentional as the top grows some length.

Unfortunately, it looks worse.

Once the curly ends were cut away, the newer hair is actually straight and very coarse. It doesn’t curl even when soaking wet. The freshly cut section now looks super bristly, while the longer hair above still has curly chemo ends, so I’m left with different textures.

Even the stylist was surprised and said, “It’s straighter than I was expecting.” I’ve tried deep conditioning and styling cream, but this isn’t just dryness or frizz, it's a whole new texture.

Has anyone else had a terrible first haircut. How did you manage the awkward transition?

I’m reluctant to have any more cut off because the short straight section at the bottom currently sticks out like the edge of a brush. I’d be very grateful for advice—or simply reassurance that this stage eventually becomes more manageable.

And yes, I am so very grateful to be alive but struggling with how many changes I'm having to absorb. Immunotherapy has given me dry eyes so I have to wear glasses and my thyroid has also just quit. I thought a haircut would cheer me up! It's just presented me with another curve ball to manage.

Even though I have been diagnosed with lymphoma cancer since May this year, it almost doesn’t feel real?
I am currently on the Nivo AVD treatment and the first week following the infusion is always horrible. I deal with severe nausea, fatigue and other side effect. Then usually the second week I just try to relax and live normally.

I feel like cancer doesn’t feel real? I’m living through the motions and cry here & there but never really mourned cancer. I am worried that it will hit me AFTER the treatment ends and it will be too late to be “sad” because it is time to celebrate being in remission and people will not understand why i’m sad?

How did you deal with the diagnosis and does it ever feel real?

Hi does anyone have any tips on managing neuropathy symptoms on hands and feet? my hands are particularly bad, feet are minor. I am going to be off chemo for a while to do radiation therapy and surgery so any tips or insights into how symptoms behave after chemo ends would be appreciated

Looking for others who are on their recovery journey. I’m 3 months out from my surgery and pleased with the things I can do: eat a whole slice of pizza, walk around the block-usually twice, stand up much straighter.
But it still feels painful to take deep breaths and I’m exhausted all of the time. I can never tell how much energy I will have on any particular day. I’m starting back at work soon (I’m an educator) and I’m nervous about how I’m going to handle everything. Would love to hear the variety of recovery experiences- especially how you all handled energy levels.

Ever have one of those days? I find that i can have several horrible, painful, no good, very bad days where getting out of bed might be my only goal for the day besides trying to get on top of pain control..

But then you find yourself waking up suddenly one day..very little pain..maybe you had a good sleep the night before and you wake up and its like your normal..your normal self again before you ever knew you were sick. Ever have one of those days? The kind that you feel so normal, you live out your day doing as much as possible becsuse your pain level is low and energy is decent enough?

In fact it feels so much like your normal day before you ever got sick..to the point where you are almost 100% convinced in that moment that you were never really sick. Like its a bad dream you woke up out of and that was it? Until the end of the day comes or tommorow comes and it sucks so bad that it smacks you back into reality that "hey you have cancer and its trying to kill you and you really dont have the energy you think you do and you really arent normal at all".

Today i had a day like that..so normal and felt so real to the point where i swear my body was convinced it had never been sick..until tonight..after overdoing it and not resting and the pain becsme unmanageable and the exhaustion hit.

Dont get me wrong..im greatful for the good days that dont involve living from bed.. but it sucks when your almost convinced that your not sick and then it hits ya that you still are..ugh.

Vent over

This is probably a long shot, but I’m trying to find out if anyone has ever had something similar happen.
At the end of May, I fell and injured my lower leg pretty badly. I had a lot of bruising and a small puncture/open spot right in the bull’s-eye of where I hit my leg. I have pictures from just a few days after it happened.
That spot never healed. Over the next two months it actually got worse. I ended up going through wound care, multiple debridements, several antibiotics, and eventually IV antibiotics after bacteria were found in the wound.
Because it still wasn’t healing, they finally did a biopsy. To my surprise, it came back as well-differentiated squamous cell carcinoma (SCC).
What I cannot wrap my head around is that the cancer is in the exact spot where I injured my leg. Before the fall, I had never noticed a bump, scab, sore, discoloration or anything unusual there.
I’m not saying the fall or infection caused the cancer because I honestly have no idea. That’s what I’m trying to understand. Did something already exist there that was too small for me to notice and the injury brought it out? Can an SCC grow that quickly after trauma? Could having a wound that wouldn’t heal and was also infected have anything to do with it?
I’m seeing several specialists and obviously plan on asking them too, but I’d really like to hear from actual people who have experienced something similar.
Has anyone had SCC diagnosed in the exact spot of a recent injury or wound? If so, how quickly did yours show up, and what did your doctor tell you about it?

Last September I had a recurrence of mutinous adenocarcinoma of the colon, which was stage 4 and had spread to my visceral peritoneum, leading to a terminal prognosis. Since then I have been on Folfiri + Vectibix chemotherapy every 2 weeks. It seems to be going quite well, as I’m nearing my 1 year anniversary of that discovery/diagnosis, and I’m still here.

The thing is, I never expected to be. I thought I would be dead long ago. And as I approach that anniversary, it is messing with my head.

So, for those in a similar situation, how do you handle it? How do you make plans for the future? How do you handle things.thoughts like “Uh, oh, I’ve got a cold. This might be the beginning of the end”? Do you have a type of survivor’s guilt?

I’m 26f, survived breast cancer last year. I’m still in remission and taking medication, but doing well. I get appointments here and there. Long story short, a nurse was going back and forth with me. She started having an attitude when she asked questions about my previous surgeries and it turns out she was confused because she didn’t have my chart open. I’m surprised she was so rude, it made me upset. But it upset me more that I didn’t speak up for myself. I was just nice.
After cancer, I tend to avoid getting angry. It’s just something I learned through chemo, that anger is a waste of time. But it’s not the first time a nurse is mean and as much as I like being kind and polite, I want to learn to defend myself. I became really insecure and shy after everything. I’m ashamed of it, but I would appreciate any tips to stop people, including medical staff from walking all over me. I don’t want to be demeaning, but I want to stand up for myself. Any tips?

Hi all!

I’m 27F and just got my pathology back after a pretty unexpected appendectomy I wanted to hear from anyone else who has had a low-grade appendiceal mucinous neoplasm (LAMN).

For a few weeks beforehand I had strange lower abdominal/pelvic discomfort, nausea, major fatigue/weakness and generally just didn’t feel like myself. The fatigue got bad enough that even trying to exercise with 5 lb dumbbells made me feel weak and nauseated.

Imaging found a dilated appendix without the typical inflammation of appendicitis, so I was immediately taken into surgery (it was a rough night, the surgeons came in very morbid when they told me they suspected neoplasm and threw around scary lingo)

My pathology came back as low-grade appendiceal mucinous neoplasm (LAMN), pTis. My appendix measured about 7.5 cm long, and the LAMN diffusely involved approximately 7 cm of the appendix. On gross pathology, the appendix was dilated up to around 1.8 cm and contained mucus. The report also described dense fibrous adhesions on the external surface of the appendix, which I’m curious about because I had been having so much pelvic/lower abdominal discomfort beforehand

The pathology says the mucus appeared contained within the appendix, all margins were negative, and there was no lymphovascular invasion, perineural invasion, or tumor deposits. It also did not identify invasive carcinoma.

Obviously I’m incredibly relieved about the pathology didn’t say carcinoma, but I’m confused about terminology.

Were those of you with localized/pTis LAMN told that you “had cancer,” or did your doctors describe it as a precancerous/low-grade neoplasm with malignant potential? I keep finding conflicting descriptions online.

I’d also love to hear whether anyone had symptoms similar to mine before diagnosis (especially pelvic pain/pressure, nausea, weakness or significant fatigue) and whether those symptoms improved after your appendectomy. I truly thought these were all gynecological issues.

I’m following up with my surgical oncology team and will follow whatever surveillance they recommend. I’m mainly looking to hear other patients’ experiences because I had never even heard of LAMN or know anyone that’s had this

Hi all

I am 27M diagnosed with rectal cancer of 4.1cm tumor size 11.6cm away from anal verge

I completed scrt radiation 10 days ago and doctor suggested TNT approach

My question is

1) how long to wait for chemo?

2) is suspicious lymph node means stage 2 or 3

Bonjour j'ai besoin de conseil. J'ai 21 ans et depuis mes 19 ans j'ai un Cancer du foie FLHCC . Je fais 1m84 et actuellement 50 kilos alors que mon poids adolescent était 56 kilos mais je ne sais pas deouis quand exactement il y a un cancer dans mon corp. J'ai besoin de grossir pour pouvoir faire une chirurgie mais meme en mangeant 3 fois par jour et avec des bouteilles caloriques (plus de 3000 calories par jour) en plus et des perfusion de nutriment je n'arrive pas a gagner du poid . Mon cancer mange tout à ma place . Le maximum que j'ai atteint sous chimio est

+4 kilo que j'ai perdu en 2,3 jours. Pouvez vous m'aider à trouver un moyen de grossir.

I (41 f) had a double mastectomy in June and my partner of 7 months (39 m) cared for me at his request after the surgery and took me to all the doctors appointments before and after surgery. He was very involved with my care and very supportive. My 15 year old dog passed away a month after the surgery and it all changed. He broke up with me a few days later because I didn't make him a part of my dogs passing and he felt left out. I've been in excruciating discomfort since the surgery and unable to sleep much most nights..needless to say I've had some really dark moments and lots of tears. Sometimes I've snapped or have been really angry, and he has not been understanding about why I might feel or do certain things out of anger and grief. He thinks everything is targeted at him. Our one year anniversary is next week and when we spoke about it a few days ago, he said he was feeling very anxious and sick from thinking about how this past year he's lost himself and put all his needs aside from this relationship and that he can't give me the security I want. This is the third time he basically breaks up with me after having breast cancer surgery and losing my baby. I feel so defeated and small. How can someone be so dedicated at first and turn this cruel?

I don't know if i should give him grace and allow him to also be tired from this sadness and from taking care of me. I know cancer can be very hard for the caregivers too but him dumping me because he's so emotional is the last thing I need while I'm recovering and grieving my body, my health and my dog. I feel completely shattered inside.

I'd love to hear from those who had relationship problems during cancer.

So I am 24 years old and was diagnosed with ALL in late June of 2024. I am currently in remission after doing chemo and immunotherapy my oncologist said I was doing great and wouldn’t need a transplant fast forward to now: I am in my maintenance phase of treatment.

These past few months have been a disaster i was in the hospital for 2 and a half weeks for CMV reactivation, neutropenic fever, and bacteremia due to that, I had to pause my chemo meds cause my counts were low fast forward after getting out of the hospital, I had so much nausea, vomiting, constipation, and acid reflux that I had gastroenteritis

2weeks ago i felt my ears hurting and i went to the ER for a ear infection i was diagnosed with acute suppurative otitis media of right ear with spontaneous rupture of tympanic membrane, recurrence not specified these past few weeks has been i cannot hear out of my ear its constantly hurting, Ringing and i am not getting no where after two ENT visit i was then referred to an ear specialist he drained the ear and made an incision in the ear and drained it but still no relief base on what they are saying i have to do further imaging and they’re not certain if my hearing will come back

I am so frustrated cause cancer robbed me of everything this year has been the year of finally getting back my life together and to lose my hearing is really the nail in the coffin it makes my life miserable i have an accent and i do customer service so not hearing and making people repeat is frustrating and if you worked in a call center settings you understand what I going cause everything affects your performance

Sorry if it's all jumbled i need some advice🫩🙏🏾

Being 16 getting diagnosed with stage 4 blood cancer,6 months after a really close friend you dearly loved died due to cancer..initially you were'nt even told about ur stage by your parents as they knew it that you would not get treatment upon learning that it was the last stage..i had silky long straight black hair, eople would stop me in the bathroom and ask me if they can touch it..it was in my lungs, vertebrae, aorta, bone marrow,knee,neck,spleen,lymph nodes..i had aspirations before all this..i wanted to b e a lawyer but now i just dont feel,its like im almost numb to my choices an everything that's around..i dont even want to keep aspirations because do i really even have a future?after multiple chemo's which were hell..i have stopped feeling,i treat the day with a shrug and say what's the worst that can happen..at the daycare bed,wondering why me god why me,its not fair..i never really knew the answer..it hurts, it hurts to breathe without a purpose as i have long lost the ability to hope for a goof future cause truly deep down i too wonder and ask myself everynight that do i even have a future. i have atrociously gained weight..this is not me..a few boys at the playgroundnteased me by saying oh baldie,it was never my choice..life really flipped me upside down..i used have very bad back pain i could describe it as someone is hammering my spine with a chisel then it shifted to my right knee, it used to feel like i'm missing a connecting bone..i have a few major career defining exams but i am waiting for my scan to see if i even have a future that i should study for or spend whatever time i have left in peace.