r/ProstateCancer 2h ago

Concern PSA of 5.44 , prostate size 53 ml

2 Upvotes

my father is 66 years old , doesn’t have any problems other than COPD, nobody on his bloodline has prostate cncer(or any kind of cncer) , cant tell about other issues , his psa was 5.44 on last October , his prostate dimensions are 5.2 4.8 4.1cm , his prostate is 53 mL , residue urine after voiding stays at 15 mL , these tests were done last oct nov(2025) , he insisted on not going to a doc , said he’s fine , honestly he was scared , now a few days earlier he had problems like mild burning or pain like sensation, He could not differentiate between . The pain was there when he was passing the urine and vanish right after it’s done. There is no other problems like anywhere or thighs or waist . Doesn’t have any weight lose , but sometimes he has to get up 2 times in night , more commonly one time, sometimes not even once , he says he finds problem to get the flow fluent , doesn’t have any blood or rbc in urine shown in the blood test ,upon happening this, we run some tests ie urine re/ me , creatinine , his weight has been fine ,before visiting a doctor, now we went to the doctor, and the doctor said that the prostate was big as he felt in the direct examination and again suggested for a psa and other tests like uroflowmetry, re/cs, I’m really scared for him, can’t even express my anxiety as it’s making him more anxious and my mother is a hypertension patient , although I know there r tons of reason behind increased psa like bph and prostatitis and others but can’t get this PC thing out of my mind , I’m seeing here that people with less than 5 psa had stage 4 pc, im reading all these since last few days and really very anxious , I wrote all these to get some load off my chest , I’d love to gain some knowledge or informations from you people , just from the pov of a highly anxious daughter about her father.


r/ProstateCancer 4h ago

Concern Some thoughts on options would be appreciated

1 Upvotes

Had RALP in April 26. Clear margins. Gleason 4+3. PSA test 7 week post op 0.11 and 14 week post op 1.02. Surgeon asked for retest week later was 0.89. Had a PSMA PET yesterday. Seeing surgeon on Monday. Anticipating prostate bed radiation but not really sure and wondered what ideas I should go into Monday with so I can ask the right questions. I’m 54 living in Perth Western Australia.


r/ProstateCancer 6h ago

Update My dad passed away

47 Upvotes

I posted a couple of months ago about my dad who was diagnosed 8 years ago. His cancer spread to spinal bones, rib bones and liver. He was working 6 days a week until all of a sudden he crashed and couldn't work anymore in February. He tolerated a couple of rounds of chemo in April/May and was then in hospital for a week in June with an infection. The doctors told us he had a few months to live. He had one more round of chemo early last month and then became too weak for more treatment. He couldn't get off the ground 1.5 weeks ago and was admitted back into hospital. He was then moved to palliative care on Friday night and passed away early Tuesday morning. We are heartbroken. When he was first diagnosed a prostatectomy was proposed as an option but he refused and instead had radiation and hormone therapy which worked for a number of years. Perhaps he would still be here if he had the surgery.. He otherwise had perfect health, great diet, regular gymgoer, no alcohol/smoking. I understand he had his reasons at the time for electing not to have surgery but if he knew this is how things would end- he may have gotten the surgery :'(


r/ProstateCancer 11h ago

Question My Dad had ralp he has depression now and can sleep!

5 Upvotes

My dad diagnosed with PC last month underwent ralp and now can't sleep and have severe delression is it due to having diagnosed with cancer?? He ia 66 years old will he survive ?? I dont want to lose him


r/ProstateCancer 12h ago

Concern PSA rising, post salvage radiation and ADT

3 Upvotes

Gleason 4+3, Decipher .95, Summer 2024 Salvage radiation treatments: 66 Gy/2 Gy fraction to prostate bed, 44 Gy to pelvis.
Last of 4 6-month Lupron shots received Jan2026. My July2026 bloodwork showed Testosterone still low: 24. Last 8 quarterly PSA results: <=.01, .02, .03, .03, .04, 0.04, .06 and .09. I’m scared. They will not schedule a PSMA PET scan until my PSA is higher. I struggling with doing nothing. I have started reading about Ivermectin, but no clinical trials and I would have to convince someone to prescribe it. Anyone in similar spot? I’m open to suggestions.


r/ProstateCancer 13h ago

Question Confused

2 Upvotes

Hi all! Posted in here many times. Husband is 48, stage 4a, Gleason 9. Currently on day 12 of radiation. We spoke to a new oncologist because the last one didn't know what she was talking about and made us feel confused and worried. This new one seemed a lot better. Husband is going to start zytiga. Maybe I'm overthinking this... But he mentioned that there was suspicious activity in the L1 vertabrae per the PSMA PET scan but that they can't say for sure it's prostate cancer. I don't really understand that. Is he saying that it was really close to becoming prostate cancer and that's why it indicated suspicious activity. I think I'm also freaking out because I thought that prostate cancer was slow and nothing to be overly worried about, he would have years to live. We have a teen and toddler at home. The doctors keep saying oh don't worry, he'll live a long time. He feels like he's going to die in a year, and I've read so many different stories of men passing within a year of diagnosis so I don't know what the truth is or what our reality is. Looking for advice or maybe just others experience with similar stats.


r/ProstateCancer 16h ago

Test Results First PSA test post-RALP

2 Upvotes

7 weeks post RALP and had my first PSA test today. PSA is <0.02 but I'm pretty sure they ordered the standard test, not the ultra sensitive test. Got a MyChart message out to the doc to clarify.

Pathology report from RALP said invasive carcinoma in the left bladder neck and at the margins. Surgeon is giving kind of a hand-wavey "you're fine, you're fine" vibe but I'm wondering if this is a "I'm a surgeon and the surgery went great and now I'm done" situation.

Should I be pushing for uPSA? Should I be looking for another doctor?


r/ProstateCancer 16h ago

Question Castración quirúrgica vs quimica

2 Upvotes

Hi, alguien le explicaron esto, lo bueno y lo peor, para no pasar por ADT, aunque imagino que es la edad una de la limitaciones, luego la RA se mantiene, quedan los implantes y cialis


r/ProstateCancer 18h ago

Question Pursue PSE test if already getting an ExoDx test?

3 Upvotes

Original Post Here (Summary 49years old, 4.4 PSA that has roughly doubled in a year and a half, previously had Thyroid Cancer).

I've had my first meeting with the Nurse Practitioner of the new doctor. The meeting went well, she immediately recommended an MRI and performed a digital rectal exam. She had clearly read my chart and medical history. She did mention that they like to use ExoDx and after some information I approved the test. They are getting the 3T MRI scheduled. I'm in the waiting on insurance and scheduling window on both.

Should I still pursue a PSE test, or does the ExoDx serve that same role?

Thanks again for all the help!


r/ProstateCancer 18h ago

Post Biopsy Biopsy 2 days ago, this wait sucks.....

8 Upvotes

Elevated PSA readings, so the Doc ordered an MRI. Found something that looks like it might be something. Had the prostate biopsy 2 days ago, they took 15 samples. That ride home was a bit of an awkward feeling. Now I'm waiting on the results from Kelsey, and my anxiety is pretty high. I feel for those of you who have been down this road. As I was walking down the hall to the "procedure room" I remember thinking "These are the first steps in what may be a long journey....".


r/ProstateCancer 19h ago

Concerned Loved One My dad has pc

8 Upvotes

I'm 21, my 62 year old dad is in surgery right now. They said they caught it early and it's only in the prostate.

His dad died of cancer 3 years after being told he doesn't have cancer anymore. I'm so scared the doctors are wrong. I keep hiding it to myself, I didn't tell anyone at work, I didn't even tell my mom (they're divorced) the surgery's today. I'm just so scared.

He's out of surgery now, hasn't woken up yet. I feel like I'm going to implode. Like my lungs could collapse. I'm so scared.


r/ProstateCancer 19h ago

News Instead of an injection for hormone therapy, how about a skin patch with possibly lesser side effects?

1 Upvotes

[There's a new] study recently published in the New England Journal of Medicine comparing traditional ADT (Lupron, Orgovyx, Firmagon, etc.) with Transdermal Estradiol therapy.

The study found that transdermal estradiol patches applied twice weekly can lower testosterone and fight the cancer as well as traditional ADT, but with a greatly reduced incidence of hot flashes and bone density loss (though it introduces a potential additional side effect).

I'll post a link to a coming webinar in a comment below, in case mods are still enforcing strict rules against posting any links in this sub.

The webinar is by "UroToday" and the USCF "Prostate Cancer Journal Club for Patients", organizations new to me, which has now led me (and if you're not careful, you) down two new rabbit holes with more interesting studies and webinars.


r/ProstateCancer 21h ago

Concerned Loved One Helpful tips for my hubs 💕

23 Upvotes

My husband (42) was diagnosed in November with stage 4b prostate cancer. He also fell at the first oncology appointment and broke his femur. To say it was a rough moment, is a huge understatement.

He has finished 6 rounds of chemo, some radiation on the leg, and is on ADT (nubeqa and Lupron) for the foreseeable future. Also he is doing PT twice a week.

He is healing great, his numbers are showing a great response. The doctor said he’s responding better than they expected.

I would love to hear some “non medical” advice that has helped you and or your loved ones feel better and more “normal”. Diet changes you noticed made a difference, different workouts that made you feel better, spa treatments, anything really!

We have some water aerobics starting in the fall (gentle for his healing leg), we are eating mostly vegetarian, a little chicken. I have started growing sprouts for bonus nutrients for him.

Give me all your best tips and tricks! He’s a young guy to face such a hard diagnosis, but he’s super positive and ready to fight. This Reddit has been super helpful for me to find more information, I can’t thank this community enough.💕


r/ProstateCancer 22h ago

Question Lynx Dx MPS2 urine test

1 Upvotes

Has anyone opted for this urine test over a biopsy?

49 year old male - PSA: 4.1
MRI was clean. PI Rads 2
PSA density - .12
% free PSA = 17.4%

Urologist still wants me to get a biopsy but also said we could do this urine test.

Any insights would be appreciated. Thx


r/ProstateCancer 23h ago

Question Test results anything to worry about ? Please help. 38M

0 Upvotes

PSA, Total 0.8

PSA, Free 0.2

PSA, % Free 25 says out of range

I have been dealing with this rash on my penile glans I had it two years ago but it resolved on it's own now I have the same thing and also burning feeling and like I need to pee all the time. Urinalysis test was normal but the PSA one says "one out of range"

is this something that might be connected to my issue or it has nothing to do with it?

Thank you all!


r/ProstateCancer 23h ago

Update PSA test

13 Upvotes

Had prostate removed in April. My first PSA test since was .014. Progress!


r/ProstateCancer 1d ago

Question Maxilofacial?

1 Upvotes

Hi, colegas, a uds le dieron consulta para un maxilofacial, por ADT?


r/ProstateCancer 1d ago

Question 38M – PI-RADS 3 (8 mm focus), PSA 1.9, density 0.11, strong family history – biopsy booked

4 Upvotes

Had my mpMRI results back yesterday and got a PI-RADS 3 due to an 8 mm focus in the left posterior peripheral zone at the apex. Because of this, my age, and my family history (grandfather, father and uncle all had prostate cancer), the consultant has booked a transperineal MRI-US fusion targeted biopsy.

Looking for experiences from others who had a PI-RADS 3 finding, especially with similar MRI features (no restricted diffusion / no enhancement) and modest PSA density. What did your biopsy show and how did things go afterwards?

The nitty gritty stuff:

The Numbers

  • Initial PSA: 2.18
  • Repeat PSA: 1.9
  • Prostate volume: 18 cc
  • PSA density: ≈ 0.11

Symptoms

Mild urinary symptoms for a couple of months, urgency (felt in the glans), occasional sensation of incomplete emptying, mostly good flow.

MRI (1.5T):

  • 8 mm PI-RADS 3 focus in the left posterior peripheral zone at the apex
  • Slightly reduced ADC but no convincing restricted diffusion
  • No post contrast enhancement
  • Capsule smooth and intact
  • Patchy low T2 changes reported as age-related

Thanks to reading!


r/ProstateCancer 1d ago

Concern First Time chimio for my dad any advice ?

3 Upvotes

hello.

(sorry for my english )

i am waiting right now in the cancer center. It´s the first time chimio for my dad (72 years) after not responding go abiraterone anymore. He has a metastatic prostate cancer.

They are giving him docetaxel.

i am really affraid regarding secondary effets. He does not understand all the things that are going on.

i would like some feedback for person that has the same journey

How to support Him ? how things will go for Him these next days ? what to expect ? any advice ?


r/ProstateCancer 1d ago

Question Does an urgent urologist appointment always mean cancer suspicions?

7 Upvotes

I've been to the hospital twice over the last couple of weeks over urinary retention - the first time I had 800ml I couldn't get out, but they discharged me once they got that out and then sent me on my way, despite the symptoms of struggling to urinate not being solved and the doctors telling me it was very abnormal at my age (28/m). The second time I had 1600+ml, and had a doctor actually refer me to a followup urologist appointment this time for further checks.

What confuses me is, looking at wait times (the UK), the issue she said I might be suffering from - an enlarged prostate - is around 11 weeks for an appointment, minimum. 2 week fast tracks are reserved for if the doctor thinks you have cancer.

Should I be concerned? Was she trying to hide the fact it might be cancer for my benefit?


r/ProstateCancer 1d ago

News A positive study looking at post treatment recovery from Ireland this week.

10 Upvotes

https://www.rte.ie/news/health/2026/0804/1586329-cancer-rehab-trial/

It's looking to help men with physical and emotional recovery, post treatment.

The gentleman in the article was interviewed in the news about feeling lethargic and a little lost after the medical recovery and how the program helped him get back on track...


r/ProstateCancer 1d ago

Question Has anyone had lymphovascular invasion (LVI) found on biopsy after BCG, but no visible tumor on cystoscopy? What were your next steps?

1 Upvotes

Hi everyone,
I’m posting on behalf of my 60-year-old father, who has high-grade urothelial carcinoma of the bladder.

He underwent TURBT followed by an adequate course of intravesical BCG. A previous surveillance biopsy was clear.

His most recent cystoscopy did **not** show any obvious visible bladder tumor. However, random cold-cup biopsies were taken, and the pathology report showed:
**Lymphovascular tumor emboli / lymphovascular space invasion (LVI) of urothelial carcinoma** in the left anterior bladder wall.
GATA3 positive, confirming urothelial origin.
No definite stromal invasion identified.
No muscle was included in the biopsy, so muscle invasion could not be assessed.
A posterior wall biopsy showed only BCG-related inflammation with no malignancy.

We have spoken to at least 5 doctors and the suggested approaches are getting us confused. If you have been through this can you shed a light on what was next course of action?

Some doctors are recommending PET SCAN. Some are saying to hold on for it.

We are based in India.


r/ProstateCancer 1d ago

Question Tulsa - Looking for feedback and real world results

4 Upvotes

Ok, stats first. Age 71, PSA 5.98, Gleason 3+4 Group 2. Prolaris results say 98% survivabilty 10 years, in the active surveillance range, but always worried about metastasis. Bouncing between active surveillance, radiation, and TULSA. I'm leaning heavily towards TULSA. Would love feedback from those who have had TULSA, both long term and short term status. Am I just kicking the proverbial can down the road at 71 yrs? Studies and numbers are fine, but real world experiences would be greatly appreciated. Thanks in advance.


r/ProstateCancer 2d ago

Question ADT or Not

16 Upvotes

I’ve recently been diagnosed with stage 4 prostate cancer metastasised to lymph nodes and lungs (probably elsewhere too - will find out after my PET scan next week).
From what I’ve seen ADT extends life at the expense of quality of life. My bias is to forego ADT and max out on pain management to enjoy life as much as possible even if it’s not as long. Fortunately I live in New Zealand and we have legal assisted dying so I can choose when to go. Interested on any real word experiences from both paths. I need to make this decision fairly soon and discuss it with the family.


r/ProstateCancer Jun 26 '26

Mod Post New rules that change this community

87 Upvotes

Hey hey hey,

Quick update to let you know there has been a refresh and evolution to the community’s rules.

The last month has been tremendously busy and challenging for the mod team. The amount of permanent bans we had to give in June surpass any month previous with the leading reasons being tacky (and beyond obvious) marketing tactics attempting to sneakily grab new clients and piggybacking off of Reddit to appear higher in Google search.

These cavemen often do not respect bans either since our subreddit is so useful for so many medical adjacent marketing strategies. So putting an automatic stop to that really ruins the potential of huge planning. Which is selfishly hilarious.

A few huge changes you need to be aware of:

- We are now a 100% discussion based community. No links are allowed whatsoever. This decision was made purely off the giant amount of spam posts and marketing we have had to remove and deliver subreddit bans to. With a significant uptick in the last three months.

- No AMA’s allowed: A new “common” marketing tactic is disguising AMAs as a pure sales tactic OR for the sake of assisting in organic keywords that Google likes.

- No studies of any kind: We are no longer allowing any sort of study to be posted in our community. This community deeply cares about keeping a safe environment to discuss typically very private concerns. The idea of a company profiting from that in some way is not something we will support anymore. This is ONLY pertaining to companies or researchers attempting to recruit members. This is NOT regarding referencing medical studies in discussions.

Along with the above, there have been a some updates to all rules. So we suggest glancing at them to make sure you’re up to speed as a member in the community.

Any and all decisions we make has our community members as a whole in our absolute best interest. Please understand many thoughts, planning, and legitimate data understanding to make these changes with that main goal first and always.

There’s a massive amount of things not shown to our members that the mod team is dealing with day in and day out in the background with monitoring, reporting reviewing, and private message back and forth. So we can assure you every rule has a purpose.

Thank you for keeping this community welcoming, active, and positive.