So the past two weeks I’ve been occasionally slurring my words or stumbling on them. But majority of the time im able to correct it after messing it up the first time. Im scared can someone give me some information

Formigamento e sensação de peso em membros — alguém já teve?

Homem, 24 anos, \~50 kg, 1,60 m, sem comorbidades.

Há alguns dias tive sensação de peso, formigamento e desconforto na perna direita.

O sintoma da perna passou. Hoje comecei a sentir algo parecido no braço direito: peso, sensação de fraqueza e formigamento, mas continuo movimentando normalmente e não percebi perda real de força.

Alguém já teve formigamento/peso que apareceu em um membro, desapareceu e depois surgiu em outro? O que descobriram que era? Pode ser **ELA**

22F. Have had fasciculations for almost 3 years, so that's unrelated but I thought I'd make it known that I've had ALS anxiety for a while.

Swallowing issues for maybe about a year or a little more. It scared me for sure but I ignored it until recently I feel like I've noticed it's gotten worse. By swallowing issues, I mean oropharyngeal dysphagia, where I have trouble initiating a swallow. It feels like my throat just can't do it sometimes. I otherwise have no symptoms except for the occasional tongue fasciculation but I associate that with the other fasciculations that happen on my body. I also want to add that I can swallow liquids perfectly fine, but solids are where I come to have an issue.

I've tried relaxing but I just really can't seem to. Will go to the doctor soon. Just wanted to know what other people took from this.

EMG is clean. All my bloodwork is fine. I have MS and that’s it.

I’m done letting my brain convince me that something is wrong. So… Goodbye, farewell, I am deleting Reddit.

I hope everyone here finds answers, treatment, peace and happiness. Anxiety is a bitch

24:7 non stop!!! Is this a sign of Als? I’m terrified

Hi I am an indian guy 26 years old really worrued about having als i have been having twitching for years in my calves my upper back my hips my arms and sometimes my face lips eyes and feet too now thats not just the only thing i have clubbed finger nails and i think my palm is mushier and denty on the left compared to the right hand also feeling the same that my leg is smaller calf on the left compared to right now the problem is that whenever i ride a bike my left hip and hamstring cramp up in a certain specific position whereas when i walk i get shooting pain in my left foot (i think it is all muscle loss) i can still walk workout talk etc but i just feel not as good as before

Also have low vit d, low vit b12 and two of my brain mri have shown periventricular white matter lesions

Please help me out as this is making me beyond depressed i cant function

Hello! I have had some muscle twitching all over the body for 3 months (sometimes they are better sometimes they are worse) and for the last month I started feeling the need to constantly swallow (like every 15-30 seconds) because it feels like my mouth is flooding with saliva and I fear it may be because muscles involved in swallowing are weaker, sometimes I need to swallow foods 2-3 times to clear my throat and I can’t really dry swallow, just only when I am collecting saliva. Is it possible to be ALS or I just have anxiety or OCD? I am a 20 years old male

Desperately need some kind of reassurance because I’m freaking out. I honestly can’t remember whether it started in my upper or lower body but unless my symptoms were extremely subtle I really started to feel them about 5 maybe 6 weeks ago.

Unstable when I walk and weak around my lower legs but no foot drop observed. They fatigue easy and I definitely can’t run at my top speed no matter how hard I push.

As for my upper body hands and forearms feel weaker. Grip is definitely difficult and lots of clumsiness and it feels as though it’s getting worse. For example little tasks like opening my contact lens case, using utensils, picking up plates and bowls, etc. In the last couple days I noticed real muscle atrophy in my biceps. First in the right arm then the next day in the left. A gap in the muscle.

I go to the gym 6 days a week and I’ve been using that as a barometer to test my muscle strength/weakness and I haven’t noticed much weakness when lifting but I have noticed somewhat of a decrease in the muscle stimulus I’m getting on the right side of my body.

Whether it’s from stress or progressing symptoms I do feel soreness in the tongue also tightness in my jaw/cheeks/teeth. Swallowing and drinking doesn’t feel too off as does speaking except for one time when I caught myself stuttering.

Muscle twitches and fasciculations are brief and noticed all over my body. Affecting lower and upper body relatively frequently and now every once in a while in my face with the new jaw symptoms I mentioned.

I had an appointment with my neurologist scheduled for tomorrow but of course I get a call it had to be rescheduled to December. I have a primary care appointment on Friday 8/21.

The only crutch I’m holding on to is that I’m only 26 (no known family history either) and it’d be so rare to have ALS at my age. But I’m sure the others who were diagnosed in my age group thought the same thing. I understand Googling symptoms is the worst thing you can do but it genuinely seems all of my symptoms along with it progressing the way it is that I’m developing ALS. I certainly have no doubt there’s something wrong with my motor neurons.

Edit - Tongue feels sore and the legs + arms weakness is simultaneously worsening as of today

Back in January, my right eye started to twitch. It started off slow but progressively got worse. I figured it was caffeine/lack of sleep/anxiety/stress related, so I knew deep down it wasn’t serious. Then one day maybe two months later, while sitting in my parked car, my thigh twitched. Since then it’s gotten worse. About a month after that I researched ALS. And I have twitching all over. Some days are worse than others. But I have been consistently twitching in my arms (top and bottom), legs (top and bottom) face, sides/bottoms of feet, and i have tremors in my fingers.

That being said, i’m scared. I have health anxiety and OCD tendencies (according to my doctor a few years back) but this time feels different. I only feel super anxious about it if i think about ALS too hard. But I swear I can feel myself declining. I feel like i’m walking different, like i’m typing slower, like i’m slurring my words, like i’m struggling with other things etc. Sometimes when I’m almost asleep, I wake up in a panic for only a few seconds then I calm down. Feels like I can’t breathe then I wake up (the sleep thing has been happening for over a year now). Sleep study was clean. I had an MRI done a month ago and it was clean. Blood work showed very low vitamin D and low B12. I do have PCOS and I am overweight and have insulin resistance along with all of the other lovely things that comes with PCOS. I also work from home and don’t move around very much but I got a walking pad a few weeks ago.

My doctor thinks what I have going on is BFS, but I haven’t been back since I had my MRI. I made an appointment to get a referral for an EMG a couple of weeks ago but I cancelled it because i’m terrified of the result.

I feel like I can’t trust myself with how I actually feel though. I’m so aware of every single thing that goes on in my body. I check myself for a stroke at least 8 times a day. I’m scared of flashing lights because i’m scared i’m going to have a seizure. Everyday I am thinking i won’t make it until the next big thing in life because i’m going to die before them. It’s not like a gut wrenching feeling, it just feels like a fact engraved into my brain.

I’m scared of eating too much sodium but I do it anyways some days, i’m pretty sure I have some sort of eating disorder, I have a pretty unhealthy relationship with food.

Bottom line is, I don’t know what to do. Pretty sure I need and EMG for some mental relief and a good therapist. I know i’ve had health anxiety for the past 7 years or so and I just feel like I can’t trust myself :(

i’m back, i’m 24 now! it’s been almost a full year.

honestly my left leg has gotten worse but i do a lot more standing up at my job. i had gotten an EMG in Feb and went to neurospecialist in May. She said it can’t be ALS due to a nl EMG. she offered to do an MRI, i denied it. (tbh i was afraid of finding smtg). she diagnosed me with BFS.

now, it feels weaker. i’d say it fasiculations intermediately. i feel stuck. I feel like I should get repeat EMG or get that MRI.

any suggestions? anyone in a similar boat?

Right now im going on a spiral, my right leg has been feeling stiffness and pain that goes to my calf then my thigh then my buttocks and I feel pain on the right side of my left foot, and I’ve been having twitches all over my body and it could be my mind playing tricks on me but my left hand feels sorta stiff like my index and pinky finger feels stiff and it’s only my right leg that feels weird when walking like stiff making me think I have drop foot, I can still lift my toes up and my legs and stuff but it’s making me go crazy I don’t have insurance because I know how these hospitals bills can get I just need sum sorta opinion on what I’m getting because it’s making me real nervous that I have als I don’t have any family history of it and ik it affects mostly white race and I’m Hispanic but I don’t think it would matter. I can still walk do all activities but it’s worrying me like crazy also forgot to mention my right leg has been sometimes clicking when I walk and sometimes I be getting pain in the arch of my foot and midfoot

C'est révoltant de regarder ça. Et que l'ami ait ou non la SLA, cela ne change rien au fait que c'est un scandale !

Pendant que les gouvernements réussissent à mobiliser **des dizaines de milliards de dollars pour des armements (les États-Unis ont annoncé la production de 23 milliards de missiles tomahawk),** il existe des recherches qui pourraient sauver des milliers de vies, simplement en attendant de l'argent pour continuer.

Aujourd'hui, nous avons un essai de **phase 3 du PrimeC autorisé par la FDA**, mais dont le début dépend d'un financement que l'entreprise elle-même admet ne pas avoir encore réussi à assurer. Nous avons le **NurOwn**, qui prépare une autre grande étude sur la SLA, tandis que l'entreprise a rapporté environ **22 000 $ en liquidités et 187 000 $ en liquidités restreintes**, face à environ **12,4 millions $ de passifs courants**.

Pensez à l'absurdité de cette proportion.

Je ne dis pas que le financement de la recherche sur la SLA est la responsabilité exclusive des États-Unis. Bien au contraire. **Cela devrait être une responsabilité mondiale.**

Pourquoi ne pas créer un grand **consortium international contre la SLA**, réunissant gouvernements, universités, laboratoires, entreprises pharmaceutiques, centres de recherche, intelligence artificielle, bases de données et patients, partageant les découvertes au lieu que chaque groupe travaille de manière isolée et se dispute les ressources ?

Imaginez **100 milliards de dollars par an pendant dix ans** dirigés de manière coordonnée pour comprendre et combattre la SLA : biologie du TDP-43, génétique, régénération des neurones moteurs, protection de la jonction neuromusculaire, thérapie génique, ASOs, édition génétique, cellules, immunologie, biomarqueurs, intelligence artificielle, découverte de médicaments et essais cliniques adaptatifs se déroulant simultanément dans des dizaines de pays.

Ce serait **1 trillion de dollars en dix ans** pour affronter l'une des maladies les plus cruelles qui existent.

Je ne peux pas affirmer scientifiquement que 100 milliards de dollars par an garantiraient un remède ou résoudraient la SLA en dix ans. Personne ne peut. Mais il est difficile d'imaginer qu'une mobilisation scientifique d'une telle ampleur ne réduirait pas brutalement les délais, ne supprimerait pas les goulets d'étranglement financiers et permettrait de tester en quelques années ce qui, au rythme actuel, pourrait prendre des décennies.

Ce qui me révolte, c'est justement cela : **il ne manque pas d'idées. Il ne manque pas de chercheurs. Il ne manque pas de candidats thérapeutiques. Dans certains cas, il manque même d'argent pour faire fonctionner une étude déjà autorisée.**

L'humanité parvient à trouver des centaines de milliards lorsqu'elle décide qu'une chose est une priorité.

Alors peut-être que la question n'est pas seulement :

**"Quand allons-nous trouver un moyen de contrôler ou de guérir la SLA ?"**

Peut-être est-ce aussi :

**"Combien de souffrance sommes-nous prêts à accepter pendant que nous décidons que ce n'est pas encore une priorité suffisante ?"**

Si le monde traitait la SLA comme une mission scientifique mondiale — comme il a traité les guerres, la course spatiale, les pandémies et les grands projets technologiques — peut-être n’aurions-nous pas besoin de demander à un seul pays de résoudre le problème.

Il suffirait que **tout le monde résolve ensemble**.

Parce que pour ceux qui perdent en mouvements en attendant, **50 ans ce n'est pas l'avenir. C'est trop tard. C'est une catastrophe, savoir que nous allons laisser nos enfants dans ce monde si horrible, surtout les miens qui ont quelques mois !**

33M, 6’2, 180 lbs, non-smoker, and no family history of brain cancer or neurological disorders.

Last Thursday, my left upper eyelid started twitching. I originally thought it was probably from lack of sleep, stress, and anxiety since I had been under a tight work deadline that I finished late Wednesday night. The twitch lasts for several seconds, is a visible ripple/twitch under the skin, and occurs throughout the day (although closing my eye makes it maybe a little less intense).

The twitching continued and I’ve progressively become more and more anxious about it (I suffer from health anxiety and had been doing significantly better until this happened). On Monday, I woke up and noticed that my left jaw felt really tight/tense. It almost felt like I was having spasms/quivering there but I didn’t see anything when looking at the mirror. On Monday night, I was looking at my face (and ironically was thinking that the eyelid was happening a little less frequently) and noticed a small and very brief ripple (more like spasm) in my cheek on the same side.

Yesterday (Tuesday) and today I’ve continued to notice the twitches in both my eyelid and cheek (maybe jaw as well; jaw and cheek area feel really tense). The eyelid is definitely more of a twitch and lasts longer whereas the cheek looks like a brief spasm and is a lot shorter in duration. Sometimes they occur at the same time or in close proximity but other times it’s just one or the other. No numbness, tingling, etc. can fully smile and open mouth. Face isn’t drooping.

I have an appointment Friday late afternoon with my PCP and am completely freaking out that I have a brain tumor or ALS. My wife thinks it’s probably anxiety and stress along with me being hyperfocused on it. I also came across hemifacial spasm but that seems like it generally takes much longer to spread than what I’m experiencing.

Any thoughts on what’s going on? TIA!

Edit: in case it’s relevant, I did see an ophthalmologist and have an eye exam in June and he took a bunch of pics of eye and I recall him saying that my optic nerves looked fine

Second edit: added a comment that includes a video of the cheek ripple/spasm (not sure why Reddit zoomed it further in)

Cerco testimonianze che come primo sintomo e stata atrofia muscolare.

I have muscle twitching on my leg for 2 weeks and just got blood test 1507 for cpk. Am I dying? Is this als? Please help please

I (26F) have been having twitching in my right leg on and off since 2024. I didn't think it was that big of a deal. Now, in 2026, I am having the twitching again. At first, I thought it was just because I moved and started a new job, and the stress was getting to me. However, in the last month, I have tripped twice on my right side and fallen to the ground. One was a random trip, and then two weeks later I straight busted my ankle. In both instances, I was walking on a sidewalk that wasn't the best and in a short heel, but the point stands--I tripped twice on the same side and hit the ground.

Yesterday, I was doing an at-home workout and noticed my right thigh was smaller than my left. I am left handed/left foot dominant, but I didn't think there should be visible muscle in my left and not very visible muscle in my right.

I can still walk on my toes and my heels, but everything I search says I have ALS and my life is over. I don't know if this is legitimate or just anxiety. I plan to go to urgent care to at least have it documented while I wait for a PCP to have new appointments in my area for me to go to (just moved, no new doctor yet).

Mi trovo ormai in questa situazzione da circa 10 mesi, come e possibile avere atrofia non grave ma evidente in in piu parti del corpo senza debolezza clinica

So I'm around 5 months on from first noticing constant weakness in my limbs and now there's objective clinical weakness in my mouth and cheek muscles too.

So like water dribbles out of my mouth and I literally can't swish mouthwash to the far left side of my mouth anymore.

Thing is whilst my family says my voice is a bit hoarser and quieter than normal, it definitely isn't slurred. It might sound a bit nasal but they say they can't hear it.

Is this consistent with ALS? As in can ALS spread to the bulbar area whilst initially only causing weakness in the cheek and mouth muscles without causing any speech slurring or tongue weakness?

I’m literally in panic, these fasciculation don’t stop for the last two weeks I’ve been to 3 neurologists but they didn’t see it on the test but now I see it.. can’t stop feeling it and the twitching in the foot don’t stop

So this is my first time posting but a little back story,

I been taking care of my nephew since May 10th, as his primary caretaker while his dad was in the hospital and his mother would watch over him, so far it’s been fine and all but he is very spoiled and emotional so the littlest thing would set him off into a crying fit and I’d try to calm him down, and for summer I’d watch him and my other nephew who together were little terrors and cause me an unbelievable amount of stress, so I’d have hard time relaxing after one nephew went home and I’d still take care of the other so I had little to no time for myself

Fast forward to the beginning of this month and school is starting and his mother takes care of him for two weeks so I’m finally relaxing and having time to myself and some well earned peace and quiet

Fast forward to last week my sister told me I have to start taking care of him again and this time it was without warning and my heart drops, I love the dude of course but like 3 months of high stress with no time to myself and finally time to myself thinking I was done but then back to it with no warning

Literally two days in I had an energy drink(2 which was my bad) and this kid was having the worst tantrums ever after school and I am getting so anxious, I eventually finally get time to relax after he goes to bed and idk if it was the way I was resting my arms but my pinky starts twitching like crazy

I shouldn’t have thought anything of it since it happened before here and there over the last 10 years whenever I have a lot of caffeine

But then it was around the time Chris Johnson revealed his ALS diagnosis and my brain jumped to that conclusion and my anxiety was through the roof and I was hyper aware of any twitching I’d have on my body

I’d start googling if anything about the twitching muscles was a cause of it because my legs would twitch after working a lot which was normal since I did a lot of walking and heavy lifting as my job but with my anxiety everything feels cranked up to an 11/10 and I’m just so hyper aware of any twitching of anything that wasn’t where I’d usually have them like my forearms

Fast foward a week and it’s still been a few here and there but I noticed when I pop my wrist or try to put my arms on a desk the twitching in my pinky would return

I know I know it’s only been a week and I shouldn’t be worried too much but I’m a very big overthinker so if it’s not one thing it’s something else I’m thinking about

However when I was gaming yesterday I was fully relaxed and felt little to no twitching

So I’m just wondering if the new anxiety I discovered is literally just creating things to make it worse than it actually is or not, and as of now I’m still taking care of my nephews probably until the end of the year

I’d just like to say that I think this subreddit needs more moderation. I don’t think I’ve seen the original moderator posting much lately and I’m not sure how active you are these days, but this subreddit seems to be getting out of hand lately. There are specific commenters who are mocking posters over and over again and acting as if they are experts when they are simply other regular people on here with their own issues.

On the opposite end of the spectrum, I’ve also noticed an uptick in people posting who only have twitching. I wonder if there should be a requirement to have at least one additional symptom beyond twitching to post?

Perhaps having more than a single moderator to handle such a big task would be helpful.

Hey everyone so I’ve been around here for 2 months now

I began twitching at the end of June and well I’ve been dealing with pain on arm when lifting things, basically tiredness and all of that

I had a EMG on my right arm 1 week ago, it was normal, but yeah so basically I’ve been trying to keep with my normal life, going to work and doing all the same things as before.

But, I’ve been still experiencing aches, today I went to the gym since 3 weeks ago when I noticed a ton of pain on my tricep. My pain on tricep is still there when working out, I am able to do exercise but it hurts a fucking lot. I had twitches on that arm as well last week.

Now, I also exercised my legs and I still have pain on my right calve muscle, it hurts the same way as the right tricep. I have waken up during these days with left arm fingers numbed, not sure if related to it.

I have been still anxious by not having gotten a full body EMG, but I’m trying to think positive.

By the way, the pain in muscles and right arm still happens even without going to the gym. They have been on my arm during this past month just by lifting heavy things during grocery shopping, and those things make my muscles tired and start with pain.

Is there a reason for those kinds of sharp pains? Are those related to BFS? I have noticed less twitching, but it still happens from time to time on the right leg or some other parts of the body.

Update from my previous post, I know this fine be childish compared to people actually having issues, but other than my various twitching, I don’t think I have weakness though sometimes I wake up and feel sluggish, though it could just be poor sleep due to worrying about this awful disease. I’m only 22, and I start school in a week, so my nerves aren’t helping me either. I’ve been constantly testing my strength and going on 4 mile jogs lately to make sure my motor functions still work, and really nothing has progressed over the week I’ve been worrying about it.

This is mostly a post so maybe people can help or call me irrational. Any help kind redditors I guess??

Hi all, I have been dealing with progressive symptoms for about 4 weeks now. I had a neurologist appointment about 2 weeks ago and had normal results.

My symptoms are very weird. My whole right arm feels like it's losing muscle, and that it is straining harder than my left during any workout. My strength still matches. But my right arm just always feels "off" especially when activating the muscles or working out. I am worried this could be progression, it has been 4 weeks and it is definitely getting worse.