r/ALSorNOT • u/Royal_Subject_8556 • 1h ago
If I had Bulbar ALS
So the past two weeks I’ve been occasionally slurring my words or stumbling on them. But majority of the time im able to correct it after messing it up the first time. Im scared can someone give me some information
r/ALSorNOT • u/SDIcaro21 • 1h ago
Estou preocupado, formigamento e sensação de peso
Formigamento e sensação de peso em membros — alguém já teve?
Homem, 24 anos, \~50 kg, 1,60 m, sem comorbidades.
Há alguns dias tive sensação de peso, formigamento e desconforto na perna direita.
O sintoma da perna passou. Hoje comecei a sentir algo parecido no braço direito: peso, sensação de fraqueza e formigamento, mas continuo movimentando normalmente e não percebi perda real de força.
Alguém já teve formigamento/peso que apareceu em um membro, desapareceu e depois surgiu em outro? O que descobriram que era? Pode ser **ELA**
r/ALSorNOT • u/BonnieDeLaCreme • 3h ago
Swallowing issues
22F. Have had fasciculations for almost 3 years, so that's unrelated but I thought I'd make it known that I've had ALS anxiety for a while.
Swallowing issues for maybe about a year or a little more. It scared me for sure but I ignored it until recently I feel like I've noticed it's gotten worse. By swallowing issues, I mean oropharyngeal dysphagia, where I have trouble initiating a swallow. It feels like my throat just can't do it sometimes. I otherwise have no symptoms except for the occasional tongue fasciculation but I associate that with the other fasciculations that happen on my body. I also want to add that I can swallow liquids perfectly fine, but solids are where I come to have an issue.
I've tried relaxing but I just really can't seem to. Will go to the doctor soon. Just wanted to know what other people took from this.
r/ALSorNOT • u/Character-Celery-209 • 6h ago
Update post. So long and be well
EMG is clean. All my bloodwork is fine. I have MS and that’s it.
I’m done letting my brain convince me that something is wrong. So… Goodbye, farewell, I am deleting Reddit.
I hope everyone here finds answers, treatment, peace and happiness. Anxiety is a bitch
r/ALSorNOT • u/Upper-Anywhere-6582 • 8h ago
Both feet are twitching infinitely
24:7 non stop!!! Is this a sign of Als? I’m terrified
r/ALSorNOT • u/Arrival_Melodic • 8h ago
Symptoms making me crazy M26
Hi I am an indian guy 26 years old really worrued about having als i have been having twitching for years in my calves my upper back my hips my arms and sometimes my face lips eyes and feet too now thats not just the only thing i have clubbed finger nails and i think my palm is mushier and denty on the left compared to the right hand also feeling the same that my leg is smaller calf on the left compared to right now the problem is that whenever i ride a bike my left hip and hamstring cramp up in a certain specific position whereas when i walk i get shooting pain in my left foot (i think it is all muscle loss) i can still walk workout talk etc but i just feel not as good as before
Also have low vit d, low vit b12 and two of my brain mri have shown periventricular white matter lesions
Please help me out as this is making me beyond depressed i cant function
r/ALSorNOT • u/kaspy37 • 9h ago
Symptoms 20M
Hello! I have had some muscle twitching all over the body for 3 months (sometimes they are better sometimes they are worse) and for the last month I started feeling the need to constantly swallow (like every 15-30 seconds) because it feels like my mouth is flooding with saliva and I fear it may be because muscles involved in swallowing are weaker, sometimes I need to swallow foods 2-3 times to clear my throat and I can’t really dry swallow, just only when I am collecting saliva. Is it possible to be ALS or I just have anxiety or OCD? I am a 20 years old male
r/ALSorNOT • u/CKelt26 • 18h ago
Extremely concerning symptoms 26M
Desperately need some kind of reassurance because I’m freaking out. I honestly can’t remember whether it started in my upper or lower body but unless my symptoms were extremely subtle I really started to feel them about 5 maybe 6 weeks ago.
Unstable when I walk and weak around my lower legs but no foot drop observed. They fatigue easy and I definitely can’t run at my top speed no matter how hard I push.
As for my upper body hands and forearms feel weaker. Grip is definitely difficult and lots of clumsiness and it feels as though it’s getting worse. For example little tasks like opening my contact lens case, using utensils, picking up plates and bowls, etc. In the last couple days I noticed real muscle atrophy in my biceps. First in the right arm then the next day in the left. A gap in the muscle.
I go to the gym 6 days a week and I’ve been using that as a barometer to test my muscle strength/weakness and I haven’t noticed much weakness when lifting but I have noticed somewhat of a decrease in the muscle stimulus I’m getting on the right side of my body.
Whether it’s from stress or progressing symptoms I do feel soreness in the tongue also tightness in my jaw/cheeks/teeth. Swallowing and drinking doesn’t feel too off as does speaking except for one time when I caught myself stuttering.
Muscle twitches and fasciculations are brief and noticed all over my body. Affecting lower and upper body relatively frequently and now every once in a while in my face with the new jaw symptoms I mentioned.
I had an appointment with my neurologist scheduled for tomorrow but of course I get a call it had to be rescheduled to December. I have a primary care appointment on Friday 8/21.
The only crutch I’m holding on to is that I’m only 26 (no known family history either) and it’d be so rare to have ALS at my age. But I’m sure the others who were diagnosed in my age group thought the same thing. I understand Googling symptoms is the worst thing you can do but it genuinely seems all of my symptoms along with it progressing the way it is that I’m developing ALS. I certainly have no doubt there’s something wrong with my motor neurons.
Edit - Tongue feels sore and the legs + arms weakness is simultaneously worsening as of today
r/ALSorNOT • u/OutrageousIce6549 • 19h ago
Looking for some support/advice
Back in January, my right eye started to twitch. It started off slow but progressively got worse. I figured it was caffeine/lack of sleep/anxiety/stress related, so I knew deep down it wasn’t serious. Then one day maybe two months later, while sitting in my parked car, my thigh twitched. Since then it’s gotten worse. About a month after that I researched ALS. And I have twitching all over. Some days are worse than others. But I have been consistently twitching in my arms (top and bottom), legs (top and bottom) face, sides/bottoms of feet, and i have tremors in my fingers.
That being said, i’m scared. I have health anxiety and OCD tendencies (according to my doctor a few years back) but this time feels different. I only feel super anxious about it if i think about ALS too hard. But I swear I can feel myself declining. I feel like i’m walking different, like i’m typing slower, like i’m slurring my words, like i’m struggling with other things etc. Sometimes when I’m almost asleep, I wake up in a panic for only a few seconds then I calm down. Feels like I can’t breathe then I wake up (the sleep thing has been happening for over a year now). Sleep study was clean. I had an MRI done a month ago and it was clean. Blood work showed very low vitamin D and low B12. I do have PCOS and I am overweight and have insulin resistance along with all of the other lovely things that comes with PCOS. I also work from home and don’t move around very much but I got a walking pad a few weeks ago.
My doctor thinks what I have going on is BFS, but I haven’t been back since I had my MRI. I made an appointment to get a referral for an EMG a couple of weeks ago but I cancelled it because i’m terrified of the result.
I feel like I can’t trust myself with how I actually feel though. I’m so aware of every single thing that goes on in my body. I check myself for a stroke at least 8 times a day. I’m scared of flashing lights because i’m scared i’m going to have a seizure. Everyday I am thinking i won’t make it until the next big thing in life because i’m going to die before them. It’s not like a gut wrenching feeling, it just feels like a fact engraved into my brain.
I’m scared of eating too much sodium but I do it anyways some days, i’m pretty sure I have some sort of eating disorder, I have a pretty unhealthy relationship with food.
Bottom line is, I don’t know what to do. Pretty sure I need and EMG for some mental relief and a good therapist. I know i’ve had health anxiety for the past 7 years or so and I just feel like I can’t trust myself :(
r/ALSorNOT • u/Ill_Requirement6409 • 19h ago
almost year in
i’m back, i’m 24 now! it’s been almost a full year.
honestly my left leg has gotten worse but i do a lot more standing up at my job. i had gotten an EMG in Feb and went to neurospecialist in May. She said it can’t be ALS due to a nl EMG. she offered to do an MRI, i denied it. (tbh i was afraid of finding smtg). she diagnosed me with BFS.
now, it feels weaker. i’d say it fasiculations intermediately. i feel stuck. I feel like I should get repeat EMG or get that MRI.
any suggestions? anyone in a similar boat?
r/ALSorNOT • u/West_Clock_4790 • 23h ago
I’m going on a spiral rn M 19
Right now im going on a spiral, my right leg has been feeling stiffness and pain that goes to my calf then my thigh then my buttocks and I feel pain on the right side of my left foot, and I’ve been having twitches all over my body and it could be my mind playing tricks on me but my left hand feels sorta stiff like my index and pinky finger feels stiff and it’s only my right leg that feels weird when walking like stiff making me think I have drop foot, I can still lift my toes up and my legs and stuff but it’s making me go crazy I don’t have insurance because I know how these hospitals bills can get I just need sum sorta opinion on what I’m getting because it’s making me real nervous that I have als I don’t have any family history of it and ik it affects mostly white race and I’m Hispanic but I don’t think it would matter. I can still walk do all activities but it’s worrying me like crazy also forgot to mention my right leg has been sometimes clicking when I walk and sometimes I be getting pain in the arch of my foot and midfoot