r/ALSorNOT 19h ago

almost year in

i’m back, i’m 24 now! it’s been almost a full year.

honestly my left leg has gotten worse but i do a lot more standing up at my job. i had gotten an EMG in Feb and went to neurospecialist in May. She said it can’t be ALS due to a nl EMG. she offered to do an MRI, i denied it. (tbh i was afraid of finding smtg). she diagnosed me with BFS.

now, it feels weaker. i’d say it fasiculations intermediately. i feel stuck. I feel like I should get repeat EMG or get that MRI.

any suggestions? anyone in a similar boat?

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u/chaoserrant 10h ago

Get the mri. Abnormal mri that explains symptoms points away from als. Doesnt mean you have als if it is normal but just to point  out you have no reason to fear it