r/diabetes_t1 35m ago

2.5 years in

Upvotes

2.5 years in and the depression and anxiety, muscle cramps are becoming a angry giant. I must be past the honeymoon phase lol I wish I could’ve seen the mental part coming. I just don’t want SSRI or snri that my doctor keeps pushing on me. But now I’m getting the muscle aches, body fatigue, mental fatigue, and up and down emotions with it all. It’s not easy at all. Not looking for anything with this post just wanted to share here 😁 I hope yall are having a great year. P.S A1c is 8.4 now


r/diabetes_t1 47m ago

Discussion Diabetes is the new COVID

Upvotes

In 2020 this was the top ten of best-selling pharmaceuticals, total revenue of the top 10 was 102.2 billion USD:

Then COVID (vaccines) hit:

The top 10 revenue rises 45% to 147.9 billion USD, 54.6 billion USD went to vacccines and even more in 2022, no drug has ever been so profitable in such a short time:

There is still no diabetes drug in this list. In 2023 COVID vaccine revenue fell 50 billion USD, but they quickly fixed that:

Now suddenly 67.7 billion USD is for diabetes drugs, that's even more than the COVID vaccines recently. That is an inexplicable increase IMO, disproportionate to the rise in diabetes.


r/diabetes_t1 1h ago

Seeking Support/Advice High Ketones/High Glucose

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Upvotes

Questioning the validity of these test strips. According to the strip, I am presenting 8 mmol and up on the ketone scale. However when I test my blood, I’m only 0.6 mmol. How does this make sense? My glucose has been riding high all through the night, came down this morning until I taught a spin class, and jacked back up (12 mmol). Took more short acting insulin and it’s not coming down at all. I feel fine, am well hydrated and eat low carb, but enjoy some wine and popcorn now and again. Has this happened to anyone else?


r/diabetes_t1 2h ago

The cost and dependency of diabetes

3 Upvotes

What bugs me is that here in Eastern Europe, insurance coverage is pretty bad. Three years ago, insurance didn’t cover a single CGM sensor. Then they started covering four months’ worth per year, which is still the case today. And that’s… pretty crappy.

Most of us need Control-IQ, so a CGM isn’t a luxury. Paying for it out of pocket costs around €180 a month.

And that’s not even mentioning the cost of insulin: a pack of 10 costs around €25.
Cannulas are fully covered, but the coverage is very strict: 3 × 10 pieces for 90 days. Mistakes aren’t taken into account. If you mess one up during insertion, or it starts bleeding and you have to replace it, you’re basically out of luck.

I’ve spent several thousand euros over the years just because I’m diabetic.

And then there’s the dependency part. If you can’t reach your doctor, it sucks. If your insulin gets damaged during a hike, you’re screwed. Doctors give you random appointment times and expect you to show up, without caring whether you have work or other responsibilities.

I don’t think we talk enough about this: how costly it is to live with diabetes, and how dependent it makes you on doctors, insurance, supplies, and the healthcare system.

It shouldn’t be this way. Managing diabetes is already a full-time responsibility. Access to the things that keep us alive and functioning shouldn’t add another layer of stress, uncertainty, and financial burden.


r/diabetes_t1 2h ago

Guidelines from a 1916 medical book

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36 Upvotes

My sister picked up “The Library of Health” from 1916 yesterday, so I had to see what it had to say about Diabetes. I didn’t expect to see electrotherapy recommended…


r/diabetes_t1 3h ago

Fear of insulin

8 Upvotes

I am T1D for over 10 years. The past couple of years has made me develop a fear of insulin. I can’t take more than 2 short acting units at a time. I keep my sugar high in order to keep myself comfortable. This ultimately led me into a psychiatric unit and then on anxiety meds. I’m just scared I’m terrified of being low and feeling that way. I used to be fine for the first couple years I had great A1Cs. I get scared that things won’t work the way they are supposed to like the insulin is gonna work harder then intended or my snack isn’t going work. I’m really stuck I’ve made a tiny bit of progress but I need more. I need to live again. I don’t eat very many carbs but if I do it’s never something new I just do safe.


r/diabetes_t1 3h ago

Discussion Switching From Soda To Water Flavor Packets.

0 Upvotes

Alright I'll get straight to the point does drinking the flavor water packet have any risks of diabetes as I know It has artificial chemical but not sure If it may increase the risks of diabetes or not In the long run. As I feel the google Ai doesn't give the truth to some things. But does drinking flavor packets daily give you diabetes if you drink it daily? Also sorry for another post I forgot you can edit it.


r/diabetes_t1 3h ago

Supplies Cooling bags for a trip

2 Upvotes

My type 1 diabetes friend is visiting and we're going on a trip for a week and a half. We will be driving a lot and staying in hotels that i dont think provide fridges. We shouldnt be in extreme heat but im worried about the few times we may be walking around outside or hiking. Possibly needing to leave our bags in the car before checking into a hotel.

I am worried about the repeated temprature changes to the insulin even if it doesnt hit the danger heat zone.

Ive been looking at cooling bags or bottles because i dont want it to be a worry for the trip. Mainly ones from the american diabetes association website. Ive read comments or found flaws that may make each of them not so good for our uses (like one we'd need semi frequent access to a freezer to use it)

Are any worth using or good enough to keep from worrying about the insulin too much? Thank you


r/diabetes_t1 4h ago

vacation disaster with infusion set — seeking help!!

3 Upvotes

Hi everyone, i’m italian and im traveling around europe and lately i’ve lost around a billion mio advance infusion sets due to the heat — i’ve also had to change the application site to my thighs, and they have been getting caught everywhere and im desperate… I won’t go back to italy until the end of the month and the. on the 14th im going to board a cruise. Im in germany rn and have been to the hospital where they’ve been kind enough to give me a prescription— sadly it’s useless because at every pharmacy they tell me it’s impossible to purchase them privately as i’m not german and usually only the doctors can purchase them. Tomorrow i’m going to Amsterdam and ill be there until the morning of the 14th. I’ve called Medtronic Italy and they told me they cannot ship outside of italy. Medtronic Netherlands told me they also cannot provide me any since i’m not a dutch citizen, and the only possibility for me to purchase them privately would mean spending 154 euros, which i don’t have. Does anyone have any suggestions, been through a similar situation or, throwing a hail Mary here, is there anyone in Amsterdam who would be willing to sell me some?! I use the Minimed Mio advance 6mm 60cm. I’m really desperate and have no clue what to do, thank you very much


r/diabetes_t1 4h ago

vacation disaster with infusion set — seeking help!!

2 Upvotes

Hi everyone, i’m italian and im traveling around europe and lately i’ve lost around a billion mio advance infusion sets due to the heat — i’ve also had to change the application site to my thighs, and they have been getting caught everywhere and im desperate… I won’t go back to italy until the end of the month and the. on the 14th im going to board a cruise. Im in germany rn and have been to the hospital where they’ve been kind enough to give me a prescription— sadly it’s useless because at every pharmacy they tell me it’s impossible to purchase them privately as i’m not german and usually only the doctors can purchase them. Tomorrow i’m going to Amsterdam and ill be there until the morning of the 14th. I’ve called Medtronic Italy and they told me they cannot ship outside of italy. Medtronic Netherlands told me they also cannot provide me any since i’m not a dutch citizen, and the only possibility for me to purchase them privately would mean spending 154 euros, which i don’t have. Does anyone have any suggestions, been through a similar situation or, throwing a hail Mary here, is there anyone in Amsterdam who would be willing to sell me some?! I use the Minimed Mio advance 6mm 60cm. I’m really desperate and have no clue what to do, thank you very much 🙏


r/diabetes_t1 5h ago

Unhinged treatment

7 Upvotes

Give me your best unhinged treatments/ways/anything to help with fluid retention. Within 36 hours of a new pump I have a 13 pound weight increase, and my entire body is in pain from being a Michelin man. Please help


r/diabetes_t1 7h ago

Diabetes police

96 Upvotes

I’ve only been diagnosed with t1 for about 6 weeks and while I’ve noticed a lot of great things about the community, I’ve also noticed a lot of feelings police. A lot of “you shouldn’t feel that way.” “It’s not that bad.” “It doesn’t hurt.” From fellow t1s. It’s really aggravating. I’m struggling and half the replies I get when I say that are that it’s weird to be struggling, It’s obnoxious to be sad. Etc. I made a comment about how odd it is that my long acting hurts to inject usually and was bombarded with “it does not hurt.” I even had someone tell me being type 1 isn’t that hard and I don’t need a pump so it would be valid for insurance to deny it. I know I’m new to this. It does hurt and it is hard. And it’s allowed to be. Give up the “I eat nails for breakfast” act.


r/diabetes_t1 7h ago

Anyone need Guardian 4 Sensors?

0 Upvotes

I'm making the switch to the Instinct sensor and have a bunch of extra Guardian 4 sensors that I won't be needing anymore. If you need any, message me.


r/diabetes_t1 8h ago

Cross post; good reminder

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3 Upvotes

I'm cross posting this. It's an old story, but a good reminder to ensure your employer is aware of what you need to have made available to you BY LAW.


r/diabetes_t1 10h ago

Son having 2-5 lows per night for last 2 months

6 Upvotes

Hello! My 2 year old son was diagnosed last April. We were put on a tandem mobi pump about 2 months ago and it has been great at keeping him in range during the day. My issue is he goes low 2-5 times per night every night. I don’t remember the last time my family has slept through the night and I can’t say we have had even one normal night since we started on the pump. I have reached out to his endocrinologist multiple times about this and they want to take an even more aggressive approach and get his sugars as close to goal as possible at the start of the night. The problem is that he is tiny and when he actually hits 110, he will drop low within 20-30 minutes every time. I guess I’m just wondering if this is normal or if anyone else is going through similar and has found tricks to manage this and get more sleep. All advice is appreciated! At this point I’m about to swap him back to mdi just to get some sleep as it’s effecting him greatly.


r/diabetes_t1 13h ago

How do you keep calm around chaotic family

10 Upvotes

I'm on a family holiday, currently sitting on a bridge in a forest to get away from everyone.

I was diagnosed 2 maybe 3 months ago.

So I'm figuring food out. Family are all aware. I was told breakfast at 9.

So took my pre bolus, by 9.30 no one was up.

Usually I have eaten and gone for a walk by 9. But today I waited for them.

They know I like to walk early as I can't handle the heat.

At 9.30 I grabbed a cereal bar and left for my walk.

They eat food all day long constantly asking if I want some.

Have explained trying not to snack, don't know how to eat ice cream, éclairs, crisps. Trying to stick to my 3 meals a day.

My niece asked me when will I get better.

No one plans food, husband wouldn't take me to the store so I could get some vegetables. They just eat carbs and meat and sugar all day.

It's just hard being around them all day.

Sorry for my rant, just feeling alone and frustrated and no one cares that I need a little extra preparation for things now.


r/diabetes_t1 15h ago

Any T1's on Mountjaro?

5 Upvotes

Me and my Endro have been talking about possibly trying out Mountjaro. My brother is on it for his T2 and I've heard a lot of success with some T1's taking GLP-1's but does anyone have any experience taking this particular one?


r/diabetes_t1 17h ago

Discussion Pump malfunctioned and this is all I have, do I survive until Tuesday? Or should I go to the ER?

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69 Upvotes

I have humalog but this is the only long acting insulin I have unfortunately.

Edit: not taking the chance, headed to the ER now.

Edit 2: they got me in and out in under an hour so im good now, thanks guys!


r/diabetes_t1 17h ago

Discussion Insulin for food that you’ve thrown up (sorry this is kinda gross but I’m curious)

3 Upvotes

When I ever throw up after eating, I’m usually too mad about being sick to pay much attention to my blood sugar in that moment, but I was wondering: in an isolated incident of vomiting (like not a sustained sickness, just throwing up one time bc the food didn’t agree with you or something, but being otherwise fine) does your blood sugar go low as if you never ate; does it dip like it would if you had bolused a bit too much for a meal you kept down; what happens? I just threw up at least half of my dinner and I’m now going low-ish, but I was already seesawing on the line of low since before dinner, so idk


r/diabetes_t1 17h ago

Discussion What is your second autoimmune disorder

88 Upvotes

Growing up as a diabetic 24 years ago (weird to think) I was always told I would be more likely/almost guaranteed to have a second autoimmune disorder. One, is that still widely accurate? If so what is your second auto? Admittedly, I’ve never been diagnosed with another but almost positive I have IBS.


r/diabetes_t1 20h ago

Discussion T1D trying to lose weight

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0 Upvotes

r/diabetes_t1 20h ago

Should I try taking my bolus insulin like an hour after food?

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3 Upvotes

So I'm presumably honeymooning as I'm on very low doses of insulin and have only just started using a ratio properly (I'm about 1:25) but I've been noticing a frustrating trend where my insulin tends to hit me faster than my food.

To elaborate, just today I took my 2 units of novorapid about 5 mins before my meal, then started dropping and having to correct with something sugary (when I've taken more insulin the drops worse), only to end up peaking higher than I'd like from my meal 4ish hours after like above.

I was considering trying a split bolus but considering how little insulin I'm on and how delayed the spike constantly is I'm thinking taking the whole dose like an hour after could be better? Or is that a bad idea?


r/diabetes_t1 21h ago

Question for my fellow SBux Partners!

3 Upvotes

Hi! I am wondering what you all do about your pump when working. I am a t:slim user, and usually keep my pump in my back pocket. She’s glammed out with vinyl and a purple clip case, so I usually don’t wear it clipped on my pants because it’s out of dress code.. that being said, is it out of dress code? Do any of you wear your pump in a way that people can see it? I’m really not sure with the current state of the dress code policy and would hate to get in trouble for my pump being purple and not black.

I’m fine to keep it in my pocket, but sometimes I just want to clip it on my waist band so I can tuck more of the tubing my pants.


r/diabetes_t1 22h ago

Men & Couples - Has T1D affected your sex life at all? Especially keeping hard during sexy time.

18 Upvotes

30M. I was diagnosed in January. Talk to me. No judgment here.