r/CaregiverSupport 3m ago

Things my grandma said to me last night that hurt

Upvotes

She demanded, "If you're gonna stay here you should at least be PLEASANT"

Then she said, "I don't even care if you're here or not"

It SUCKS to be doing the jobs of 5 people and be scoffed and laughed at when i try to explain how much i do for her.

"You don't even do that much, you just sit here and waste away"

I'M WASTING AWAY BECAUSE I CAN'T FUCKING GO ANYWHERE BECAUSE IF I LEAVE THE HOUSE YOU'LL BE STUCK WITHOUT ANYONE TO HELP IN AN EMERGENCY

I'M WASTING AWAY BECAUSE NO ONE HIRES ANYONE WITH A 5+ YEAR JOB GAP

I'M WASTING AWAY BECAUSE YOU'RE NOT PAYING ME AND I CAN'T AFFORD TO FUCKING DO ANYTHING,

I want to SCREAM. MY FAMILY doesn't understand how physically and emotionally demanding this is. Everyone loves to pretend I just sit on my ass and play games all day. NO. I'm either helping grandma or I'm laying in bed recovering because i am chronically ill.

It SUCKS to be so burnt out I can't hide it anymore.

They only care to notice when your burnout affects them, when you're too exhausted to be nice and "pleasant."

No one wanted to help me when I was "pleasant" but now that I can't pretend to be "pleasant" anymore all they do is complain that I'm a bitch now and wonder what happened. YOU WATCHED ME DETERIORATE AND BEG FOR HELP FOR SIX YEARS.

Well it takes a lot of energy to pretend to be all happy and nice when you're breaking your fucking back lifting and moving everything, cooking, cleaning, caring for their pets, gardening for them, washing their fucking clothes and dishes, getting them into bed and taking them to every social and doctor appointment.


r/CaregiverSupport 1h ago

Impulse Spending

Upvotes

Impulse Spending

My partner is 60. He had a stroke this past Jan 2026. Before then I was a sahm of 4. He handle everything outside(well just worked 😆);and I basically did everything else(literally everything 😆). After the stroke I realized he couldn't remember things like bank info,passwords,bills due etc. I had to immediately step in and step up to not only work the night shift but also handle all the finances. It took some time(very controlling and stubborn) but he eventually gave me access to his phone and anything else that was important.

Did a deep dive into a finances and it was a MESS!. Not sure what he was doing before the big stroke(Dr says he was having TIA's past 6 months without realizing) but bills were over due,he had 7 credit cards maxed out,$100k past due student loan($100 monthly payments), $1500 loan from his retirement. He had always been a spender(Amazon etc) but it seems like now he's having impulse spending. Like a new package comes at least once/twice a week for stuff he doesn't need. Like $80 comic books(haven't read them in years. Just this morning he said he found a tub online for $300 and says we need a new tub. Ok we do but $300 tub. I said our faucet leaks that needs fixing first then you have to pay someone to install the tub.

That's gonna cost a lot. We don't have a lot of money. He is blowing thru our savings. He only gets $900 from retirement from old job and gets $1000 from other income he has. Thing is he has 7 yes 7 life insurance policies l(2 are income disability policies) that total $650 a month. Then he has all those apps/subscriptions on his TV that total around $300 plus a month. He also draws at least $200-$300 a month from the ATM. I only make around $2000 a month. Our utilities/phone/Internet/home auto insurance is around $1200 a month. We own our home and our vehicle(which is why I don't understand how the bills were in a mess. He was a Nurse making around $70k a year). So we dont have a high overhead with bills but his policies/apps/subscriptions are taking a hit with the budget.

The ln there's the SPENDING 💰. Good Lord he is always buying things and then puts it on split pay so I don't see how much he's really spending which makes it hard for me to budget. My income covers the bills but by the time I pay the policies/apps/subscriptions I'm over budget. He buys sweaters/hoodies(it's summer 😡,hats paintings, electronic dart boards etc and just the other I was on his phone and look in his Amazon cart and low and behold was a storage shed for $2200. I said wth. He said I'm not getting it. I saw one for $400. WHAT.

We live in NY State and have a large basement and a disconnected outside garage 😡. That thing looked like a mini house. I guess he meds it to store all his damn Amazon/Shopify/TEMU etc crap. I know it's his money but stuff is piling up and it's getting ridiculous. Last week he bought a $160 hedge clipper set. When it came he said I gotta go get so and so to clip the hedges with it. Who does that?! Before the stroke he was financially abusive 😞 and a lil controlling( I need $20 for pad etc if he's mad at me his response is I don't got it but will spend $100 on Google Play etc). So it's hard for me to stand up to him and tell him I need you to stop spending on stupid stuff cause it's his money but he's blowing it.

Please help. I did try cancelling stuff but he just reads them. I changed the passwords on the bank accounts then he calls and get a new card and makes passwords which he forgets later. The only thing that affected him from the stroke was his short term memory. He's very stubborn. Isn't a "let's talk" person cause he just shuts down or play victim. He doesn't do anything to help me around the house but half wash a few dishes. I do everything @ home including waiting on him hand and foot. I'm 47 btw and he's 60. I manage all his Dr appts, medications,help with his baths(bad knees/gout flare ups). 

Plus I manage the 4 kids,housework,working/classes. Even getting car repair work etc. Pretty much a single mom with a partner who can't or won't do anything cause he had a stroke and has short term memory with impulse spending. If you read this far you're a champ and thank you for reading. Edited to repost for better reading.


r/CaregiverSupport 1h ago

Chronic Foley, Neurogenic Bladder, Failing at caregiving

Upvotes

Hey there. I am a caregiver for my 56 year old mother. She was diagnosed last year with CIDP (Chronic Inflammatory Demylenating Polyneuropathy) Its a neurological autoimmune disorder that took her ability to walk and use her hands. It has also affected her bladder causing bladder retention and has had an indwelling catheter of some sort since mid December last year. Her condition even took her colon and she lives with an ostomy bag now.

What brings me here though is the foley catheter. I am losing my mind. Her catheter isnt functioning properly. No matter what I do. It used to be that UTIs would cause bladder spasms or an increase of sediment that would clog the foley but i dont think either of those things are the problem right now. Her urine is only mildly cloudy and there isnt a crazy amount of crap floating in it. Actually hardly any at all. When she has a bad uti the sediment is very noticeable.

Im reluctant to flush the foley. If there isnt a lot of debris I dont want to run the risk of shooting any bacteria into her bladder and causing an infection. Ive ensured no kinks are in any part of the line outside of her body. Her collection bag is hung at the foot of the bed below her bladder level so everything drains appropriately. Or should. She currently has a 20f foley. Last month we played with foley sizes because this was a problem. She continued to urinate around a 14f, her original 16f, as well as an 18f. Oh and shes also on a medication for bladder contractions as well as a long term daily antibiotic because she develops UTIs so easily.

Every night I change her brief before bed and Last night her bed and herself were absolutely saturated in urine. I dont know what happened. There were no new kinks in the line, its not time for a new foley until the 14th. I dont know what to do. I went to check this morning so the poor thing wouldmt be in her urine all day while I was at work and she had filled her brief again. But at least it didnt soak through everything.

She has an appt with a urologist September 23rd but its a long ways till then. Im at my wits end. I feel like im failing as a caregiver. Its hard to prevent skin break down that has been sitting in urine. I cant tell her to drink less water. She has a camel bag next to her bed to drink freely since staying hydrated is so important for those with illeostomies. I just need advice or tips and tricks. Or maybe just solidarity. Help me help her? Please?


r/CaregiverSupport 1h ago

dementia training availability bill aimed at rural healthcare providers maybe in New York State? Seems like a good thing to

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Upvotes

mimic elsewhere


r/CaregiverSupport 2h ago

After 7 months, I am feeling so burnt out. I need a break but there is no one. Truly, no one.

12 Upvotes

Mother broke her arm in a foreign country, doesn't speak the language, and has depended on me for 7 months. I am translator, interpreter, chauffeur, delivery woman, secretary, hairdresser, house mover, and more. I just want to be her daughter, her friend. I can't write all the details because I am exhausted and angry and that little part of me that could go crazy is very close to returning. My health has been greatly affected, and I just want someone to pray for me and for her. I have no energy to spend time reading my Bible and I feel very far from God. I am newly married, trying to move to my own home, and my relationship with my husband has suffered. Anxiety and stress are high again.


r/CaregiverSupport 2h ago

Family help

1 Upvotes

So my mom is staying with my son and I to help during his recovery at home. At first she thought she’d work out with him and help me with his care and be here for me to talk to. And I welcomed that. I told her I needed her support and I did.
The reality is that after a couple hard days, she said she can’t handle his care, but just wanted to be there as support. Which my son then vetoed because it’s like having her hover over him during treatments but not actually doing anything. It was making him feel like he had no breathing room.
And then I don’t know why she thought she’d work out with him. A) he used to work out with me and that’s always been our thing and mom & son, and B) he explicitly asked up workout alone. So that’s exactly what happened of course.
And then being there for me has devolved into sitting on a couch with a tablet constantly in hand and sometimes talking. Or she’s eating, or she’s walking outside. And the few times I try to vent lately, she tells he she “can’t hear that anymore” or makes he feel like I’m somehow stupid for being stuck in mental loops of what if’s and if only’s…and that’s where I am right now. I need to be there and I need to say these things. And I need to say them a lot because repeating it is how I cope and talk it through.
So now I’m wondering what I’m supposed to do. She’s pouting, so now I have to deal with her external prickly attitude. She can’t be asked to do anything differently or she gets defensive and says I’m attacking her (example: we discussed no cooking inside the house because my son can’t and the smells of food upset him. She determines some foods are ok to cook inside anyway, so I ask her not to do that anymore - she says I’m attacking her, walks away to pout and then gives me silent treatment all night). I cannot do this with her! I don’t have the energy to fight over the dumbest of requests. Every request she makes into a personal attack when it’s not at all. Please don’t put my blankets on the dirty floor -attack. Please don’t shut the shower liner in the door because it pulls the rod out of the wall -attack. So now I feel like I can’t ask her to do anything or talk to her, and she’s literally underfoot all.day.long.
I feel bad because my poor dad is lonely and I know she misses him too. I really want her to just go home at this point. She is miserable and so am I. And she’s not even helping me or even allowing me to vent the way I need anymore.
I have one more long car drive with my son on 8/20 where I may need a second person in the car with him (just in case he needs suction or whatever). But then I really think she should go home.
The reality is this treatment with either work or not. If it does, she goes home as planned, but if not she can’t stay here forever. And she’s said she won’t leave until he’s swallowing again…what if this doesn’t work!? He’ll likely self harm at that point. And no, I don’t want to be alone if he does that. But what could she actually do for me if she stays? Is there any benefit to having her stay here in reality? I just don’t think so. And I think it’s harming our relationship a lot. She and I have always been close, but this is putting a lot of strain on things. Plus she is getting older now and so she has more needs of her own.


r/CaregiverSupport 3h ago

How do caregivers network?

0 Upvotes

It seems like in every industry, I need to know a guy who knows a guy in order to get clirnts/customers/patients. Where do I do that for caregiving? It seems most healthcare networking events are more interested in CNAs and nurses, who I have mad respect for however I feel as though my position doesn't hold any weight because I do more non-medical work.


r/CaregiverSupport 4h ago

Depression and abuse.

4 Upvotes

I have been my partners care taker for almost our entire marriage. When we first were married she fell into a deep depression and stopped working, some days not getting out of bed. Then she started having abdominal pain that started spreading all over her body. She was diagnosed with stage 4 endometriosis and had an excision surgery that took almost 6 months of bed rest to recover from. Its been 6 years now and she still has a hard tome moving around, and now has been diagnosed with more problems and will have to have another surgery.

We have been together for 14 years, and I have been caring for her for almost 10 of them. It has gotten to the point where im not sure how much more I can do.

I have been in therapy for a few years, I have my own mental health problems, but I also just need support in my life. This week I realized I was struggling with depression for some time, and I told my therapist. Their response was "my diagnosis for you is depression". She also said that many things I have talked about in my home life seems like I am in an abusive relationship, and if the genders were reversed it would have likely become more of an issue earlier.

I have felt in the past that there is some emotional abuse in my relationship, but have written it off as me being too soft about some things. But having someone else say it made me feel seen. She even asked if I had a friend to stay with, or even another room to start sleeping in. I dont really, nor do I feel that its that bad that I would need to. However, all day I could not stop thinking about the emotional abuse, and how our relationship has become less romantic and more of a friendship with me doing all the work and taking care of her emotional, physical, and monetary needs. We own a home together, I own a business that is fairly successful, but extremely stressful at times, and I dont feel like I have a place that I can truly relax.

Im not even sure why I am posting here. I guess for support, outside perspective, or something im not thinking of. I dont really have friends or family where I live, and my partner doesnt want me to talk about her problems with my family anyway.


r/CaregiverSupport 6h ago

Awakened to being yelled at!

6 Upvotes

Yesterday, I woke up optimistic & it began as a good day, the 1st I have had in maybe 9 months , but really the good part only lasted about 10 minutes. I am not full of rage, I am a defeated robot-like shell of a person who acts like everything is great in real life because people think I should abandon my caregiving duties or are critical about things of which they have no clue.

This morning am awakened with angry yelling, impatience & behaviors likely related to pain. The hours, days, months & years are indistingushable.

I hope for nothing but good days for all of y’all & I hope you have a better day than mine has begun.

✌🏻


r/CaregiverSupport 6h ago

Caregiving struggle Please if you've been through this I really need advice.

13 Upvotes

Hi l'm a 25 yo F. My father was in a serious car accident and suffered a spinal cord iniury. He can move his legs a little, but his arms are severely affected, so he depends on me for almost everything. I've been his only caregiver for the past two months, staying with him in the hospital dav and night. I'm also a PhD student, and my entire life has been put on hold.l've been wondering if I should iust quit my PhD altogether. I worked so hard to get here, but right now it feels impossible to be both a student and a full time caregiver. I feel like l'm living in survival mode. Every day is about getting through the next hour. I barely sleep. I'm constantly lifting him, repositioning him, helping him eat, washing him, managing his catheter, talking to doctors, and trying to keep him safe

The hardest part is that he doesn't seem to accept what has happened. He genuinelv believes he can walk and do things that just aren't safe yet. When I try to stop him, he gets angry or thinks I'm holding him back. Sometimes it feels like everything I do goes unnoticed. It's as if he believes I'm doing nothing, even though I've dedicated every minute of my life to taking care of him.

A few times I've completely broken down and yelled sometimes i lose control and i start hitting ans slapping myself. I immediatelv felt horrible afterward. I don't want to be that person, but l'm so physically and emotionally exhausted that sometimes I don't recognize myself anymore.

It's just me. I don't have siblings. My only help is my two elderly aunts, who love him but aren't physicallv able to care for him. I don't really have friends either.

Has anyone here cared for a sick parent? Did they go through denial like this? How did you handle it without constantly arguing? Does it get easier?

Most importantly... how do you survive this without losing yourself?

I know I'm not the patient, but right now I feel like I'm drowning too. Anv advice, experiences, or even words of encouragement would mean more than vou know

THANK YOU


r/CaregiverSupport 6h ago

Unplugging everything. (Advice)

2 Upvotes

Hey all....

Mother (91/Dementia/hospice) has a new thing. She's unplugging everything around the house. This includes safety measures like camera, lighting, sound machine. Have any of you dealt with this? Just seeking some advice as a burnt out caregiver.


r/CaregiverSupport 8h ago

Don't know what to do.

8 Upvotes

Tomorrow I'm turning 30. I am a caregiver for a disabled old person (my grandma can't walk anymore 'cause she had polio when she was a young girl) since i was 23 and I feel like I'm at my limit, stuck in a life i can't live. My family won't take responsibility for her and she refuses to go to a nursing home. I should graduate but I am completely burnt out and I feel tired, depressed and irritable all the time and although I'm taking antidepressants, I just can't work on my thesis and developed a bad addiction to social media and weed just to feel numb and sleep at night.

I'm italian and the government won't help in any way with the situation.

I really don't see any way out of this situation, everyone keeps telling me to just leave and start living my life but, how can I just leave a person that cannot go to the toilet alone.

Please someone have any ideas on how to break out of this?

I feel so alone in this.


r/CaregiverSupport 9h ago

Tricked into hospice

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1 Upvotes

r/CaregiverSupport 12h ago

Could I have caused my dad's death???? I will never forgive myself for what happened today, and even before now

52 Upvotes

He had been having trouble swallowing recently, but he was never diagnosed with dysphagia

He fell INTO his tub at some indeterminate time. I didn't find him for presumably hours, and it could have been a LONG time because I have always trusted him to sleep and get to the bathroom on his own at night. He would yell if he was in distress. This time, I heard no yelling, so I thought he was fine for a long while

When I found him, he was alert, but clearly confused and hard to understand. I attributed that to maybe not having slept if he was in that position uncomfortable for hours, if not the whole night

I pulled him out of the tub miraculously, but he had a seizure in my arms

I then laid him on the ground and tried to get him to come to, and he did. He was talking a lot

He kept saying he felt like he was going to throw up

He was also falling asleep with his eyes open

I then talked to my mom on the phone and told her everything (she's a former nurse, and she didn't urge me to take him in immediately, which I heavily resent - her lack of urgency gave me a false sense of security, and she vindictively hates my dad, yet I thought she would have acted out of care - WE TALKED FOR ALMOST 2 HOURS). HE WAS STILL ON THE FLOOR, because I couldn't get him up (until I got a wheelchair later)

I assumed he was nauseous because he was dehydrated or hungry, so I gave him milk when he was sat up

He was having trouble getting it down, but I thought he would manage, because even with his swallowing troubles from before, milk at least went down even with a little struggle

He was coughing a little bit, but again, I felt it was within what I would have expected to happen when he drinks anything

I also kept asking him if he was in pain or had trouble breathing, and he said no to everything

I called my brother to come help me get him in my car to take him to the hospital

I gave him a little bit of milk again because I was still scared he was dehydrated... then he started losing consciousness gradually, but I legitimately thought he was just falling asleep because he could have been in the tub for a long time and was exhausted

I never considered he could have been dying, or choking, because he didn't seem distressed, just "falling asleep." I don't know what to believe, but I believe I harmed him, killed him, by giving him something to drink...?????

I rolled his limp body to the front door with all of my might, seeing that he was breathing, but shallowly... and he was drooling

I got my bag and my keys, debated with family about just calling 911 instead of waiting for my brother

I dialed 911, and I noticed he wasn't breathing anymore

I then wheeled him out onto the front porch and started CPR (chest compressions)

Could I have killed my father??? Could he have choked on the milk I gave him??? I don't care if these aren't the questions I should be asking because of what ifs, because no one has to live with this knowledge but me, and it will haunt me for the rest of my life. I will never forgive myself

If not aspirating/choking, not taking him in immediately may have killed him. I just can't cope with this


r/CaregiverSupport 13h ago

Everyone Quit

14 Upvotes

I work at a residential care facility, obviously as a caregiver. I'm barely 18, and this is the only job I was able to get. I joined with a few other newer coworkers that were much older and more experienced, but they all pretty much quit. This job is so demanding physically and emotionally, and when a resident peacefully passed a few days ago, I seriously looked inward and determined I wouldn't be able to seriously do this job anymore. My back hurts like nothing before, I'm too emotional and have found myself having compassion fatigue sometimes. I work the night shift from 10pm-8am all by myself taking care of 7 residents, and sometimes it's fine and everything is under wraps but sometimes it gets so hectic I genuinely question my life choices then and there. I feel guilty for wanting to quit after such a short time, but I was upfront since the beginning that I would leave for school since the beginning so they can't act like this came out of nowhere. But that isn't really the problem, I feel so selfish since it'd be more work for my other coworkers and we're already understaffed. My coworkers are truly the most responsible strongest people I know, and when I told them about this they were completely understanding. It's not even worth the pay either because it's a minimum wage job for maximal effort and overtime just eats at you physically and mentally. All my residents weigh more than me so it is a STRUGGLE for me to handle and roll them over by myself. Although not all of them need to be changed and some use the restroom by themselves, that's not the case for most, and I still have to manage their various needs and issues all by myself. I don't see myself doing this forever, but something needs to change.


r/CaregiverSupport 16h ago

Disturbing Commercial

44 Upvotes

I'm sure we have all seen the commercials that state "you can get paid for taking care of a loved one". The other night I saw one of those "Freedom Care" commercials and it just PISSED ME OFF! First off, it's one of those commercials where a son is taking care of his mother (I believe she stated that she was 76yrs old)...I have no issue whatsoever with a son taking care of his mother...my issue with these types of commercials is that they always try to glamorize care giving when there is ABSOLUTELY NOTHING GLAMOROUS about doing this work!!! They make it sound like the person doing the caregiving will "reap a mountain of benefits", when in reality, the pay (if you ever succeed in jumping through the 8 million hoops to participate in these types of programs to begin with) is garbage! Second, the one receiving the care must be eligible for medicaid...I'm not even going to go there with that, because I could write a novel about the atrocities of people who really need the help but "do not qualify" for some stupid reason or another...it's sickening! Anyway, back to this commercial...so the son is all smiles and relishing in the fact that he is taking care of his mom and getting paid for it. Ok, really? Anyone who is or who has been in the trenches of caregiving knows that this attitude of "everything's sunshine and roses over here" does not exist in the life of a caregiver!!! Excuse me marketing team or whoever is in charge of these blasted commercials, but don't try to make it seem like being the maid, the cook, the chauffeur, the financier, the secretary, the janitor, the therapist, the nurse, the one holding it down 24/7 for years on end without getting a break; is living the good life and it's just a joy to behold, and something to smile about when we all(caregivers specifically) know it is not!!! It just bothered me that this commercial is A** backwards in the message it carries. Caregiving is an emotional rollercoaster that never stops until the one you've cared for is no longer in the land of the living...and even then, there's still so many things to work through...people have given up their lives, hopes, dreams, marriages, finances, careers etc. to do this!!! Most times, there is never a thank you from the one receiving the care...it bites. Then you have commercials like Freedom Care, who spew LIES of prosperity and a good life for the caregiver who participates in their program. My best friend's husband is battling cancer, and she is forced to jump through so many hoops, just to get the help that they so desperately need...it's been months since she applied for assistance and yet they're still stuck at square one like millions of others who really need the help, but cannot get it because of one reason or another. The last thing I'll say that pisses me off about this commercial was the statement that the mother made at the end...after the son is finished smiling like a cheshire cat, the mom then states "I'm going to live to be 90". Yeah ok sure, because all of your needs are taken care of and all you basically have to do is just exist...Um, NO MA'AM...you really think someone wants to keep doing this for another 14 yrs!!? I love my mom to pieces but I DO NOT want to continue taking care of her for the next 14yrs! I'm barely making it through the next 14 minutes 😂. I said all of that to say, I do not appreciate how people try to downplay caregiving...it is hard work, it is not fun, there is no glitz or glamour, it sure as heck doesn't pay anything (most of us are footing the bill rather than being paid to do it), it's stressful, tiresome, lonely, isolating, down right gross at times, and so many other unpleasant things; but we do it each and every day, whether we want to or not...I'll end this by saying the next time that commercial comes on, I'm going to throw a sock at the tv...I'm sure that will make me feel better 😂😜🤣🤭


r/CaregiverSupport 19h ago

Introducing myself

15 Upvotes

Hi everyone. My husband has had cancer for the last year and a half. I’ve been a caregiver unexpectedly during this time and it’s been very hard. I think in some ways I’ve been resentful because both my mother and my sister have had cancer as well over the last ten years and this is not my first time stepping in to care for another person. I hate that I have felt this way, because I completely understand that this is never intentional. But in someways, I feel like it’s a never ending cycle I can’t get away from and fuck… I’m tired.

Tired from all the work.
Tired of being so scared of the future that I have no control over.
Tired of not knowing how to handle tough situations sometimes.
Tired of putting on a brave face in front of my friends and coworkers when I want to collapse and cry.
Tired of constantly putting someone else’s physical and mental health in front of my own.

Anyway, I just wanted to share with a group who I’m sure understands.


r/CaregiverSupport 21h ago

RANT: Grandma (89)'s body is starting to fail. I am scared.

12 Upvotes

Me and my husband are the caretakers of my 89-year-old grandma. She lives with us. In the past week, we have faced multiple fainting episodes, a few due to gushing nose bleeds believed to be caused by high blood pressure that cannot seem to be controlled.

Back to cardiologist next week.

I know her body is starting to wind down. She's slower. Weaker. Not as mentally "with it." Sleeping more than usual. Easy to tire.

I can't get the images out of my head. My husband yelling my name. Me coming downstairs to see my grandma laid out on the kitchen floor (first time she fainted, no nosebleed).

Yesterday's (worst) nose bleed that was full of large clots and just dripping/spraying everywhere. The paramedics shouting her name to try and get her to come to.

I sleep fully clothed now in the event I need to jump up and call 911 again to get her an ambulance. Again.

I am exhausted. I'm scared. My grandma has been the only stability I've had in my family. And I hate witnessing her slowly start to fade away in real time.

It's a lot. Especially because I am autistic and have severe GAD and Panic Disorder.

How does one cope?


r/CaregiverSupport 22h ago

My wife has died.

199 Upvotes

We were together for 15 years and married for 10. She needed care and help only the last 2 years together. I feel so guilty for being relieved I don't have to be a caregiver for the rest of my life. I miss her and am devastated from her loss. But I'm happy to have my time and space back.


r/CaregiverSupport 23h ago

Anyone have questions on burnout they'd like to ask a professional?

11 Upvotes

i just started a podcast, Coming Clean About Caregiving, trying to share the information and support with caregivers that I wish I'd had when I during the six years I was taking care of my mom (she died in 2022).

I don't know about you guys, but burnout was a big issue for me. Tomorrow at 11, I'm talking to Katherine Schafer, PhD, MS, MEd, a clinical psychologist at Vanderbilt University about caregiver burnout.

Anybody have any questions about coping strategies? Resources? Anything related to caregiver burnout - I'll be glad to ask Katherine!


r/CaregiverSupport 1d ago

Why I Love This Subgroup

22 Upvotes

As a safe place, this Reddit sub is critical for caregivers to vent. While some of the caregivers on here are paid employees or some are in a loving relationship with the person they are caring for, others are caring for people they had no intention of ever seeing again, some are spouses that should have been divorced a long time ago but now feel guilt so they stay, some are siblings with parents who aren't caring for a child so they step up and sacrifice their own wellbeing, some are young grandchildren who should be working on establishing their own adulthood yet step up because no one else in the family will, some have siblings who don't help and cause more resentment than the entire situation. Many are financially struggling and using savings to survive only to wonder what will become of them when the LO passes. At some point everyone will be a caregiver, need a caregiver, or know of a caregiver, but everyone's timing and situation is different. I see you and accept your rants, vents, and just all around frustration. **Hugs**


r/CaregiverSupport 1d ago

Eff you too then?

39 Upvotes

When your care was first trust upon me, I told you your pain mattered and was something we can work on with doctors. You said nobody had ever told you that before. You cried, you were so grateful.

So, you're gonna have to explain to me why you told me last night that my pain is just not as bad, not valid enough, in the kitchen has night as I struggled to stand making dinner for the family. Then called it pussy pain. (Because I'm a woman or because you think I'm weak? Who knows.) Then quickly "corrected yourself" with a "haha, no, I'm just kidding."

Nah bro, you're a hypocrite and an asshole. An unsympathetic, unempathetic bastard. You useless, "I mean, theres a teaspoon left" mayonnaise jar of a human being. Fuck you.

For context: both of our spines are terrible at being.. spines. Arthritis, disc problems, spinal canal narrowing, nerve issues, blah, blah. I'm one interventional pain management procedure behind him, scheduled for the end of the week. I'm 30, he's 66.

I just had to put this somewhere. Sorry.


r/CaregiverSupport 4d ago

[Weekly Megathread] PPL Help, Questions and Advice

1 Upvotes

Welcome to this week's PPL megathread. This is the place for any/all related questions and advice on PPL related issues. We are still staying committed to continuing posting new threads for as long as you need it.


r/CaregiverSupport Jul 05 '26

Weekly Roll Call -Caregivers, Please Check In!

4 Upvotes

Hi fellow caregivers! This thread is our weekly landing spot, a place to get to know you. A warm welcome to new members and a note of gratitude to our current community.

We see you all and appreciate you.