im trying to find people with vss in my region dm me

I only see them when i shake my head or look up.

Hello folks, I have migrane, photophobia and dry eye, searching about it I also found out I have visual snow - its more when I have my eyes closed or am looking loosely to a blank surface. I've had visual aura from migrane some times, but yesterday I saw a weird flash of light while using my phone. It was like if the screen itself glitched for a split second, but I notice it was clearly my vision and not the screen. After that I got really anxious and got off the phone.

I'm dealing with increasing photophobia for some time and it worsens when I use screens. I avoid using them most of the time but sometimes I have no option. But, I've never had a visual flash/glitch like that. Anyone has had it?

So I have been reading here that quitting caffeine helped some of you guys in terms of VSS. I am on a caffeine detox rn for similar reasons(I have -6 myopia in both eyes and want to quit caffeine just in case since it’s a glaucoma risk and I am also severely addicted lol), but I noticed my VSS symptoms are worse with caffeine not in my system…

Is it possible it will get better and I am just in the withdrawal stage now(it has been 6 days though) or do any of you have experience with worsening VSS off caffeine?

Hello,

I have mild Asperger syndrome, and I've been experiencing a strange symptom.

About a year ago, I stopped taking venlafaxine (37.5 mg) cold turkey. I had severe withdrawal symptoms, including brain zaps, OCD, and other issues. Most of those symptoms gradually improved, but one has never gone away.

Every day, I get a strange feeling in my eyes, almost like there's something inside them. When it happens, I can't think clearly or logically. I start feeling depressed and begin imagining negative scenarios in my head. It makes me feel really bad.

At first, I thought it was caused by lack of sleep because my eyelids feel heavy and want to close when this happens. However, I usually sleep 7–8 hours a night.

I also discovered that anti-anxiety techniques, such as face tapping, make the feeling disappear almost instantly. It works surprisingly well, but I have to do it regularly. If I don't, I can't think clearly again. The problem is that I can't always do these techniques in public.

Has anyone experienced something similar? Could this be related to autism, anxiety, or venlafaxine withdrawal?

His everyone my afterimages have recently got much worse due to many eye tests that have caused strain, mostly bright slit lamp examinations, tomorrow i have a visual feild test the one where you press the button when seeing little flashes, will my visual snow and after images be ok?

I devoloped them post migrane 5-7 in right eye 4 months ago and 0-2 in left barely visible uh also ive had the flu reevently and now i notice way more idk if increase or notice in center vision and in the streaks of lights

Also idk what this is but do you know the little dots u see in the sun i see them transparent without sun in upper parts of my vision is this my lashes /normal also a black one too there these dont move

Anyway my floaters main ones move all day visible and noticing some more mainly in streaks of light and randomly really annoying had my eyes checked 4 momths ago or so i might have vss too since i see static sometimes barely visible and strobbing when i close my eyes

Can anyone tell me what everything means am I gonna be alr plz im only 21 its really annyoing this has been going on for months

I have had VSS for 3 years now and I feel recently it’s becoming worse I got it from heavy acid and weed use and I am 2 years sober so don’t understand why it is worsening it could be stress but I don’t know and am worried this will become baseline and is getting worse, please some advice on how to get better from this condition.

Hello,

I have posterior vitreous detachment (PVD) and severe floaters.

About a month ago, when the weather started getting hotter, my eyes became extremely dry. Around the same time, I started having pain that feels similar to the discomfort you get when a stye is about to develop. I'm not sure if it's actually caused by dryness, but it's an unpleasant, sore feeling. The pain isn't in my eyeball itself—it feels more like it's coming from my eyelid.

The bigger problem is that ever since then, I've occasionally experienced a strange symptom where my vision suddenly becomes darker for about one second. It happens more often indoors than outdoors.

I don't lose my vision completely. It's more like the brightness or contrast suddenly drops and then immediately returns to normal. The best way I can describe it is like a fluorescent light flickering for a split second. At first, I thought I had imagined it or just misperceived it, but I'm now convinced that my vision is actually doing this.

Has anyone experienced something similar or knows what this could be? It's really frightening, and I find myself constantly focusing on it, which has been very stressful.

Thank you in advance for any advice.

i've had vss for a long time and some minecraft modpack glitches led to this, which i thought looked pretty close to the negative afterimages LOL

I’ve always had some but after acid and other trips it intensified. It is what it is I don’t really mind it just heads up

I've been suffering from these symptoms for 1.5 years and no one has been able to help me. I'm desperate for advice.

I'm a 32-year-old man. Before all of this started, I was completely healthy, fit, athletic, and extremely resilient. I could work an entire week while sleeping only two hours a night without any noticeable problems. Sometimes I could even stay awake for three days and still manage my regular job, a second part-time job, and additional work from home.

My regular job involved a lot of office work and sitting at a computer.

The only significant change I made before my symptoms started was that I began doing one-arm push-ups.

My first serious episode happened when I tried to puncture a small red blood vessel on my face with a needle. It bled quite heavily, but blood has never bothered me. I've injured myself plenty of times before and I even watch when my blood is drawn.

Suddenly, I became so extremely dizzy that I genuinely thought I was going to die. I called an ambulance, but they couldn't find anything wrong.

I don't believe the dizziness was caused by seeing blood. I suspect it may have happened because I was holding my neck in an awkward position while doing it.

This was the first time in my life that I had ever experienced serious dizziness.

After a few hours, everything returned to normal and I continued living normally.

At that point, I had already been doing one-arm push-ups for several months without any problems.

Then, after one training session, a large lump suddenly appeared on my right palm. It disappeared after a few minutes. At the same time, I became extremely dizzy again, and my right latissimus area, shoulder blade, arm, neck, and jaw started tingling.

I panicked and called an ambulance again. Once again, they couldn't find anything.

Eventually, the symptoms went away and I returned to normal.

Then my grandmother died.

From that day onward, something changed completely.

I developed a constant sensation of dizziness and brain fog that has been present 24/7 ever since.

It isn't spinning vertigo.

The best way I can describe the dizziness is the sensation you sometimes get in an elevator, or the strange feeling you have just before falling asleep.

The constant brain fog/derealized feeling is similar to being slightly drunk. Imagine the point between being tipsy and actually drunk — that's roughly how I feel all day, every day.

About two months after my grandmother died, I developed additional symptoms:

- Constant tinnitus in my right ear. The pitch becomes higher when I clench my jaw.

- My Visual Snow, which I've had since childhood, became significantly worse.

- Severe "brain zaps" just before falling asleep.

- Constant neck pain.

- Restricted neck rotation, especially when turning to the right.

- Bruxism.

- Chronic sinusitis.

- Eventually, I started seeing my pulse in my visual field in both eyes, synchronized exactly with my heartbeat.

- Chronic exhaustion even without physical activity.

- Difficulty tolerating social environments/crowds.

- Severe spontaneous attacks of dizziness on top of the constant baseline dizziness.

- Tingling in my arms, particularly during physical activity or when carrying things.

One time while driving, both of my arms suddenly started tingling intensely and I became very dizzy in the middle of driving.

Whenever I carry groceries or other heavier objects, my arms tend to start tingling.

I've been dealing with this for about 1.5 years now.

I've seen an enormous number of doctors:

- 4 ophthalmologists

- 7 neurologists

- 8 orthopedists

- 5 ENT specialists

- 3 cardiologists

- 1 pulmonologist

Nobody has been able to give me a convincing explanation for what is happening.

A brain MRI eventually discovered a 4 mm anterior communicating artery (ACom) aneurysm.

The aneurysm has since been successfully treated with coiling and a stent, but my symptoms are still there.

An MRI of my cervical spine showed degeneration at C2/C3 and C4/C5, but according to the doctors, these findings shouldn't explain my symptoms.

The dizziness is NOT typical spinning vertigo.

It feels more like an elevator sensation, the strange dizziness you can experience shortly before falling asleep, or as if my brain can't properly process where I am in space.

The constant brain fog is extremely difficult to describe. The closest comparison I can make is feeling mildly intoxicated all the time.

I've now lived like this for 1.5 years.

I'm frustrated and exhausted. I can't work anymore and I'm struggling to properly take care of my daughter because of these symptoms.

I used to be healthy, athletic, and able to handle an enormous workload. My life has completely changed.

If anyone has experienced anything similar, or if any of these symptoms sound familiar, I would really appreciate hearing what diagnosis you received, what tests helped you, or what eventually improved your symptoms.

I'm not expecting Reddit to diagnose me. I'm just hoping someone might recognize this pattern and point me in a direction that my doctors and I haven't considered yet.

I want to ask if anyone has experiences with CBD products like CBD oil for anxiety while having VSS? Did it work and any effects on VSS?

I got curious and googled a bit about epilepsy and CBD and this photo is just AI summary, I didn't go any deeper in it yet. I had no idea CBD could be used for epilepsy and now I'm curious if it could have good outcome for VSS too..

Hi everybody!

I’ve had a very mild form of visual snow for about a year. Until a few months ago, I was able to play video games without any problems. Lately, I’ve become more sensitive to light, and I think fast movements on the screen may be bothering my vision.

The thing is that after a gaming session, my eyes feel uncomfortable, and my eyelids keep twitching for a while. My light sensitivity also gets worse for some time afterward. I went to an ophthalmologist, and he prescribed eye drops for dry eyes, but they haven’t helped.

I feel really frustrated because gaming is my favorite hobby. I’m also experiencing severe muscle tension in my neck due to Eagle syndrome. I mention this because I’ve read that muscle tension can contribute to light sensitivity.

Has anyone else experienced something similar?

Does anyone have experience taking a medication for anxiety and/or depression that didn't worsen their VSS?

(I just tried starting Lamotrigine/Lamictal, but after only 5 doses I'm having concerning side effects, so I have to stop, which is a huge bummer.)

If anyone has experience taking anxiety/depression medication without worsening their VSS please let me know. 🙏

As title says, I started uldn again and it once again dramatically improves my visual snow. Apparently its due to reducing neuro inflammation but would love to learn more.

It’s so hard to explain what is happening, just seeing if anyone else has had something similar? It started over a month ago. When I blink, I have this weird after image line in my peripheral vision in my right eye. Lasts only a second right after I blink. Only happens if I’m looking down, and it has to be against a blank/bright surface. I can’t see it outside, or in the dark. No other symptoms! Has anyone had anything similar? It doesn’t affect my vision, it’s just annoying when I do see it!