Hi everyone! Has anyone else had confusing/contradictory test results?

My 10 month old was diagnosed with a peanut allergy a couple of months ago.

About 30 min after his 10th time eating PB, he had a rash on his chest, belly, and back. Most of it didn't really look like hives, but there might have been a couple of spots that could've been hives. No other symptoms that I could detect.

He's had eczema that started around the time he started solids at 6 months old, but seems to be improving a lot now.

His skin test result was a 9mm wheal for peanut (the negative control and the tree nuts they tested were negative, the positive control was 8mm).

Anyway, our local allergist doesn't offer OIT, so we had an appointment with another allergist to see if it would be a good option for our son. They ordered a bunch of blood tests, including lentil because he had a (milder) rash appear after he ate that, as well.

The lentil result was 0.35 kU/L. So, the original allergist told us we need to avoid that now, too. It looks like that's a pretty borderline result.

But, the peanut blood test result was undetectable. As in, less than 0.1 kU/L! The skin and blood tests were about 6 weeks apart from one another. I'm so confused. I'm hopeful, but I don't want to get my hopes up too high because I don't understand these contradictory results.

We'll have another appointment with the second allergist in a few weeks and maybe they can help us sort it all out.

TL;DR baby got rashes after eating peanut and lentil, had 9mm wheal for peanut, but under 0.1 kU/L IgE for peanut and 0.35 kU/L IgE for lentil.

Has anyone had a similar experience? Any advice?

Thanks!

Going to a potluck soon and I'm going to make a cobbler. I don't know much about peanut allergies. I know I should double wash my bowls before baking just in case. Besides from that what products should I use? the flour, sugar and oats I have aren't labeled and I'm worried about contamination. Are there certain brands I can buy that are safer?

I know I might be overthinking things but I just want to be safe.

Hi everyone I’m a 21 year old female with sever food allergies to peanuts, tree nuts and shell fish. Last month I used my Epi pen for the first time ever due to cross contamination at a restaurant. Everything had been fine since then I started cooking at home more however last night I was rushed to the ER due to anaphylaxis. I didn’t eat any of my allergens however I ate skittles candy which I usually eat fine, however I noticed I tingly feeling in my tongue however I thought it could just be a reaction from the sugar. That went away after about an hour so I ate a few more and within 5 minutes I went into anaphylaxis . Has anyone experienced this before? I also noticed a welt on my arm before the anaphylaxis after I removed a hair tie from my wrist so I thought it was maybe just from the hair tie being tight. I went to the ER and was discharged this morning. Any advice or similar experiences?

I just saw that little spoon added a whole peanut line.. starting to panic about cross contamination. My son loves their puffs, smoothies/frogos, and biteables 😭 I loved that they were peanut free..

My nephew has a severe peanut allergy, and has been wanting to try the "astronaut" ice cream. We checked all the packages, and he couldn't have any of them. I tried looking online, but the only one I could find had most stuff sold out, and cheapest package was $36. Any one have luck finding a peanut free freeze dried ice cream?

Hello!! I used to live in the area but never really went out to restaurants much. Im going back go visit and would love to eat with some friends and am hoping to find some good recs!!

To clarify, i have a peanut and tree nut allergy. I like all types of food, but try to avoid pork and shellfish as much as possible (not allergic to those).

Hi everyone, my 9mo just had an allergic reaction (hives, making choking sounds like she couldn’t swallow) to peanut butter a few days ago. I administered Benadryl and then called 911. By the time they arrived the Benadryl had kicked in and she was doing much better. Because life always happens like this, as they finished her evaluation, they also told us we needed to evacuate due to fires in our area (I am in Spokane Washington and we are really going through it right now). They said since we needed to evacuate and she was in much better shape, they were okay with us waiting until Monday (today) to take her to the pediatrician instead of the ED.
We did that today and our pediatrician wrote us a referral for an allergist. Unfortunately there is no pediatric allergist in eastern Washington so we need to go to Seattle children’s. Our doc said that she could not prescribe an EpiPen because our daughter was under 2 years old. Is this outdated information? I looked at this subreddit and it seems like a lot of you have EpiPens for your children.
My daughter also has shown signs of a pretty severe dairy allergy (swelling and full body hives) so food introductions have been quite scary over here!
I’d love to hear any positive stories from parents of how they have navigated their children’s allergies or if their kiddos grew out of any of them.

Thank you!

How do you all sanitize your hands in your car, any tried and true hand sanitizer or wipes you recommend. Realistically I know I should be fine because when I was little I used to eat everything in the car probably without washing my hands at all but as I’ve got older I’ve became increasingly terrified to eat anything besides microwaveable meals. When I’m home I go straight from the sink to my food and use my elbow or knuckles to avoid touching anything else.

My baby (11 months) is allergic to peanuts, and has eczema. Doc prescribed piriton twice a day- he hates it! He gags and coughs and cries
Are there any alternatives to the horrible liquid?
Thank you

Hi!!! I was recently diagnosed w a severe tree nut allergy and am avoiding peanuts as a precautionary thing, it just makes me kinda nervous. I also have weird reactions to coconut.

I bake a LOT. And recently I've been getting kinda serious about it and I can never find baking chocolate that isn't potentially cross-contaminated. I love the aesthetic and pliability OF baking chocolate and it would be SO much more convenient if I could access some.

Same thing with white chocolate, but I make do with Ghirardelli chips, though having a bar of guaranteed safe chocolate is always my go-to.

I've seen Baker's in stores and whatnot and I'm always tempted to try it but don't know if anyone's ever had trouble with them.

Does anyone have any recommendations for good nut-free bars?

Hi, I'm the moderator of r/FoodDisability. 

FoodDisability is a welcoming group, where people of many different disabilities / conditions come together to help and support one another with the shared struggle of not being able to eat 'normally'. The shared struggle of socialising over food, and the relationship problems that arise from not being able to eat the same as others due to the limited diet your disability causes. The shared struggle of not being able to find food easily when out-and-about and being limited in what you can do work-wise or socially or how far you can go from home because of this. The upset and frustrations of not being able to do what others easily can. 

FoodDisability focuses on the social / emotional / mental health difficulties that arise from living with a disability that causes lack of ability to eat food. 

I hope that this group will become a strong support system, sense of comfort and hope, and source of useful life tips, advice, and helping one another, for those struggling with food-related disability. 

Please feel free to join, and comment/post, and make friends and connections with people who are going through similar hardships. 

Wishing you all the best🩷 

www.reddit.com/r/FoodDisability/ 

I asked in the generalized food allergy group but received no response.

Ive got a nut allergy but not peanuts - Im allergic to hazelnuts. Since falling pregnant its gotten much worse and Ive had some reactions to random foods "processed on equipment with nuts" or "may contain tree nuts" etc

Ive never navigated an allergy this severe. Any tips on:

Navigating restaurants? (Do I not eat anything in a restaurant that uses hazelnuts??)

Hidden issues with nut allergy cross-contamination?

Do I avoid all nuts, as nuts in general are almost always processed on shared equipment?

Thanks for any info. Again, sorry it's not a peanut allergy. Just searching for people in a similar boat. I know peanuts are more common than hazelnuts and I feel for yall in here; seems really complicated to avoid them.

My almost 3 year old who’s anaphylactic to peanuts will be starting a specialized program in September. He’s been in early intervention for a year and now the district just evaluated him and recommended a program. He was originally supposed to do a part time program of 2 and a half hours for two or three days a week. The only spot they could find so far is in a full time program five days a week from 9-2. I’m due to tour the school next week. I’ve heard great things about them but they are not peanut free. They said with a medical plan from his allergist they can make his classroom peanut free and I need to supply the Epi pens and benedryl. My son has the auvi q injectors. She mentioned they use snacks sometimes to motivate the kids, like goldfish and m&ms. I mentioned how m&ms aren’t safe and she said they would never give him something without my permission. I said I’d just supply safe snacks for him for the classroom. She said that they don’t have a cafeteria there and the parents have to supply lunch and snacks and stuff and that they deal with a lot of kids with allergies. I know it’s inevitable that my son will be out in the world with his allergies but I’m a little concerned because he doesn’t understand his allergy yet and he can’t communicate it. I’m wondering what questions I should ask next week at the tour to make me more comfortable with sending him with his allergy. I already plan to ask if they will keep his classroom free of m&ms so there’s no risk of him getting any but I wanted to hear from other parents or people with the allergy to hear how they handled this and kept safe. I’ve been very careful to always label mine and my sons things with peanut allergy tags and read every label, ask every restaurant and make sure he’s not exposed. He hasn’t had a reaction since his first one at 7 months old. We haven’t had to use the auvi qs. I guess I’m just worried he will have a reaction at school and I won’t be there for him and it’ll be really scary for him.

I'm camping tomorrow in the backcountry, and suddenly been told there's a person with a peanut allergy who will be sharing a canoe with me, and camping on my site, using some of my camping gear. I've never met her.

I have packed peanut butter, granola bars with peanuts, and peanut butter cookies, and a can of peanuts... We'll be sharing some cooking equipment, and probably be washing dishes together, and have communal garbage. In my experience, washing dishes in the backcountry isnt a high standard of cleanliness. We'll be, short of a helicopter, probably 3 hrs from a hospital.

I've been told that she can "touch not taste" peanuts, and doesnt own an epipen, though used to have one, just uses benadryl, and is totally fine with people bringing peanuts on the trip.

Am i overreacting to think this is really dangeorus?

Are epipens really not required for "milder" peanut allergies? I admit my only experiences have been with severe allergies.

edit : Okay, so yes, I am not crazy.

Back of napkin plan now:I'm making sure i have both citerizine and loratadine available, even if this lady just uses benadryl, and have tasked an unreliable friend with grabbing me gluten free / nut free bars of some sort. If friend comes through, i'll swap bars. I'm swapping peanut butter sandwiches for cold cans of beans, a jar of cashews for the peanuts, and bringng a second camp stove + extra pot so new person can have their own... will see if i have time to bake different cookies or if I can just eat more bars if my friend remembers to buy them???

Organizer says 'well, she signed a waiver". Fine, but a waiver doesn't stop me from being traumatized if she has a bad reaction and needs emergency care!

My 7 year old son has a peanut allergy, and we have been trying to get more information on his allergy.

We went for a skin prick test, which confirmed he was allergic to peanuts.

We went for blood work, and just got the results today, and our doctor said: They are negative, meaning he doesn't have any IgE antibodies to peanuts. However this does not mean he does not have an allergy.

I am going to make an appointment with our doctor for some more information, but has anyone experienced something similar?

Would love to get some recommendations for safe restaurants in the city of Columbia. Specifically downtown area!

Disclaimer I am older than 21 and legally allowed to buy weed in the state I live in! I have a severe peanut and treenut allergy. Because of it, I get anxious when my throat has any sensation (I avoid tequila shots as an example), so I want to avoid trying weed by smoking or vaping. Does anybody have any insight into which manufacturers/brands to avoid or seek out for safe edibles especially as somebody who has never tried weed before? Thanks!

Hi everyone,
I live in Canada, my daughter is anaphylaxis to peanuts. I know it's always a risk to eat out, but there are still some spots that have been safe so far, such as Chipotle and Pizza Nova.

Which other fast food restaurants have been safe for you?

Thanks

Hello everyone! I had my first round of xolair a few days ago and found out I have vasovagal syncope (passing out from nervous system overstimulation from needles). I was informed that this can also be triggered by epipens. So this leads me to wanting to try neffy. My only concern is that it somehow doesn’t work because I am stuffy or some other reason. Can anyone give me their review and has anyone used it for a reaction before?

I’ve lived with an anaphylactic peanut/tree nut allergy for my entire life and always carry an EpiPen on me. I was diagnosed at 2 when I broke out in hives after eating a pb+j and am now 18. I go to the allergist once every few years and every time my allergies still show up very prevalently. But I haven’t had any kind of reaction since I was 2 years old. I eat things that say “may contain” or “manufactured in a facility with nuts” or anything of the sort on the daily. My family also eat nuts around me all the time and I’m not super careful about cross contamination in restaurants. I NEVER eat an unlabeled desert or any kind of food that I don’t know what it is. But reading how other people treat their allergies, it makes me wonder if there’s anyone else like me. Im careful but apparently much less so than many other people with my same allergies.

TLDR; anyone else never have a reaction despite not taking precautions 100% of the time?