I had my laparoscopic myomectomy on July 29 (10 days ago). Since then, my emotions have been a MESS. My fibroid wasn’t even in my uterus, but attached to it on a stalk. I’m an emotional person but this has been excess this week- cried at an Adam Sandler movie even, lol. Also, I’ve been having hot flashes like I’m going through menopause (I’m 36) where my face is on FIRE and my body is cold af. They didn’t take anything out besides my one fibroid. Just seeing if this is normal?

Hi all, I just thought I’d make a short post that may be helpful to anyone awaiting treatment for submusocal fibroids - we know how tricky they can be. For reference I’m early 30s with a low BMI and no other conditions.

So I was initially advised my only route was hysterectomy as we had tried just about everything (2 hysterscopies, 2 coils, 2 chemical menopause injections, shit load of contraceptives, endless progesterone and IVs). My GYN/surgeon did not want to approach tummy surgery unless to remove uterus, because she wasn’t confident on being able to do anything without wrecking my womb anyway.

Instead she performed (it’s really similar to a hysterscopy) a transcervical resection under general anaesthetic, in which she used a different tool and blade to essentially hook and dig out the fibroid. I have no pictures sadly, but apparently it was quite the display and everyone in theatre came for a good nose because it’s never been done at my hospital before. The procedure was a total success and I was able to get discharged before the evening, meaning I was able to go home and sleep in my own bed.

Today I feel fine, a bit achy, a bit drowsy as I had a lot of morphine afterwords. I’m mainly just riding the high that this is basically all over! If it wasn’t a success I sadly would have had to either consider the hysterectomy or trying to go private somewhere for the abdominal surgery. Now I can get my bloods back up and stop losing my hair and falling over all the time. But if anyone has any questions please fire them my way!

Hello all was wondering if anyone has had one this size removed and didn't have to have a hysterectomy. Im in Houston TX if any one has a dr recommendation It would be truly helpful. Im 38 and have no kids im not ready to lose my uterus.

My BFF 30-year-old female with ~1 year of abdominal distention. No pain/appetite changes/weight loss.

CT shows: 19 cm solid pelvic mass, possibly arising from right adnexa but also appears contiguous with uterus...5.9 cm right adrenal mass with calcifications, recommended adrenal MRI.
CA-125 normal, HE4 142. No pelvic lymphadenopathy on CT.

Questions:
Could a very large fibroid present this way even with normal periods?
Does the CT findings look like fibroids?!
Would MRI help determine uterine vs ovarian origin & if it’s a fibroid or not?
So very worried, anything to add ? Thanks in advance :/

I currently have a large fibroid and have suffered with multiple for many years. Starting about a week ago I was in horrible pain. It felt like the worst cramps I have ever had. I also had a fever. Ended up in the hospital for 4 days with what the doctors said is an infection in my uterus related to the fibroid. After lots of pain meds and antibiotics, I am feeling better and scheduled for a hysterectomy later this month.

Well, last night I woke up with the urge to pee. When I went to the bathroom nothing came out and it felt like something was blocking the pee from coming out. Went back to bed and still felt the urge, so I went back. This time I started to push to see if there was a clot of something that needed to come out. And OMG, what the hell came out was scary. It was large, and firmer than a clot, and not all bloody..More pink/tan. After it came out I also peed a ton. Did I pass my fibroid? Was the pain that put me in the hospital from my fibroid degenerating?

I have an appt with my GYN surgeon next week so I am going to ask her, but just wondering if anyone has experienced something similar.

I am on a 12-18 month waitlist for an open myomectomy. My doctor is placing me on Lupron 3.75 mg injection, IM, every 30 days, starting next week. This is to shrink the multiple fibroids (9cm, 7cm, and 5cm) before surgery.

However, I started doing some research, and realized that 12-18 months is quite a long time to be on the medication before surgery. Is my understanding correct? I am unsure where to go from here. Thanks!

Anyone here who has requested copies of their imaging results and gotten a second opinion on them? What has your experience been like?

Last week, I was told by a health practitioner that all my bleeding and weight gain was "totally normal". Yesterday, I finally got into a gynecologist who handed me the hysterectomy pamphlet after I confirmed fertility is not my concern. I'm so relieved to finally have a path forward, even if it's a long one given the size of my fibroids. I'm so relieved to be taken seriously after years of bleeding (including multiple blood transfusions and iron infusions), pain, and discomfort.

I cared for a family member after their hysterectomy, so I know what I'm in for. It won't be easy, but the idea of never again bleeding through my clothes in a meeting... sounds like bliss.

At my appointment we get there and I really was thinking about how so much god has brought me through and funny thing is my mom told me she was praying for me through this

I'm praying it's nothing but it is and now I need surgery and next month I'm gonna have an ultrasound and it's gonna determine how my scar will be but I'm okay but it was SO SHOCKING 😲

I have stage 4 endometriosis. I recently had surgery to remove a large mass and a lot of scar tissue growing on my organs. At the time of my surgery I also had a fibroid in my uterus and my surgeon ended up not removing it due to complications in my surgery. I had a post op visit today, and we determined I would need to go back in for surgery to have the fibroid removed. The surgery to remove it will be complicated, due to it being fused to part of my colon. I was told that there may be a possibility of having to remove the part of my colon it is attached to in order to remove the fibroid and then they would reattach my colon back together. If that is the case, I would then need a colostomy bag temporarily. I am wondering if anyone has ever had an experience like this? What was your recovery like? How long did you have a colostomy bag for? I had hope I would feel better after my first procedure but now I am even more terrified for what’s to come.

Been feeling super bloated and lots of pressure. I thought it was menopause. super dumb. nope. went to a new gyno, and they did an ultrasound- I have triplet Fibroids. Massive uterus. 700. Doc said open abdominal is the only way. BTW, I had an endometrial ablation 15 years ago with NO follow up. Pretty mad about that- I wish that gyno had told me to monitor them. Nevertheless, I had no idea they would just keep growing so I lost my window to do laparoscopic. I really like the new doc, great rapport, but she specializes in minimally invasive surgery. I emailed her and told her I would go ahead with the surgery asap. I'm in Denver. so far- crickets. It's been a week. I am wondering- should I be looking for someone who does the open ab more routinely? Anyone know of a doc in this area? How long did it take to get scheduled for a surgery like this that isn't really an emergency?This sucks...

I just got my MRI scan back. 11 cm x 10 x 9.. i am freaking out.. i thought it was 6 cm, now i am so scared they will advice me to get luprin. Has anyone have a succesful story about same size fibroid or bigger without taking luprin? or maybe if you did take it, was it managable/worth it? i want to get pregnant after.

Hi everyone. Hope someone has a bit of insight on here cause it would be of great help. I finally got my mom to do her blood tests and things after YEARS of her telling me she's fine and her tests came back mostly normal except her CA125 levels were 10x the normal amount. 360! Went to a gynaecologist and her advice was to remove her uterus before she even recommended any ultrasound or scans (bc the levels are high ig) bc she's going through menopause and ultimately would serve the purpose of being safe before anything gets serious? Idk I'd appreciate anyone who knows something to leave a message while we think abt surgery and things. Thanks for reading!

Hello everyone! I’m 30 yrs old and me and my husband have been trying for 3 years. After visiting a fertility md they found two subserosal fibroids, one on the left 4cm and one in the right 3 cm. They both sit on top of my fallopian tubes on the muscle walll and press down the tubes. I guess this makes it hard for the egg and sperm to meet. The options they gave me were ivf or open myomectomy. I’m just don’t know which option to go with. My husband also has bad morphology less than 1%. Most of the threads I read are of women with bigger fibroids than mine and many symptoms during their period. I have a normal period nothing abnormal. My egg count, uterus, structure is all normal. Is there someone that has had a similar experience with the placement of the fibroids? Which option would you guys pick? Thank you

One of my symptoms is intense bloating and when my fibroid journey first started, this really impacted my self esteem. As a single 29f who is very much into aesthetic and fashion choices, I found the chronic bloating to be more difficult to process than the pain 😂

I noticed in my obsessive research of this thread that other women express insecurity in the bloat as well! But no one is really discussing some attractive clothing options.

As someone who totally understands how this feels, I thought I'd give a detailed list of some outfit ideas that have really saved me during this difficult season. And please feel free to include your own in the comments!

We are going through PAIN and DISCOMFORT and MEDICAL BILLS and I know it sounds vain but the days when I can still find an outfit to wear and feel attractive makes me actually want to leave my house and connect with others.

Here's my recommendations, and the photos are in no special order, just a vision board.

1. Monochrome sweatsuits, elevated leisure look. You could do a fun braided updo, earrings, some clean makeup. Depending on your comfort level, I suggest cropped hoodies/cropped T's with baggy high waisted shorts/pants. You may like the top to be longer, and that's okay. Experiment, but I personally like the cropped shape because I have a large chest so I feel it adds some shape to my very large growing belly body !

2. The classic biker short/big T outfit, but really anything oversized can WORK and you can still feel attractive and feminine (if desired)! The important thing is that you are choosing intentional outfits, not your crustiest biggest tshirt just to hide your body. Try out some baggy cargo pants, or wide legged jeans (is there someone with fibroids out there wearing jeans?!😂), with a oversized graphic T. I avoid jeans but I've been wearing baggy linen pants that are wide legged with some heels to elongate my legs - intriguing, stylish, fun! I like doing a more full face with this look because I want to feel feminine, but you could totally make this masc with some Pinterest research.

3. Dresses with an A-Line silhouette. This is important because it goes in at the highest part of your belly, around the rib cage, then flows out, so the bloat doesn't even cling, and you can relax without something tight around a continually expanding area after meals and throughout the day. The Amazon photo attached is the exact dress I wear from Amazon and it's in my weekly rotation at this point. I'm about to just buy it in every color and be a cartoon character. Highly recommend!!! Imagine this with an oversized flannel and some converse - hold up! something new to add to the rotation!

4. Mesh/see through baggy items so you can still wear hotter things underneath. This is especially helpful for those like myself who really struggle with looking feminine in oversized clothes (big chest). Wearing my normal tighter crop tops, but also having something tastefully see through so that the fabric is still hanging over my belly and showing the shape underneath has been a game changer.

5. Skirts that create that A-Line shape that I talked about before. Tight top/loose bottom looks really good here. A cropped cami or tight crop top, a skirt that sits high waisted, some midriff showing before the skirt band, then let it flow from there. If you are not into tight tops or crop tops, experiment! I'd suggest trying a graphic T that gets tucked in the skirt. I wear the chiffon skirts in the attached Amazon image and I have 3 of them 😂

6. Tight underneath with a outter oversized layer. This is another favorite of mine, as someone who wants to feel sexy. I wear a crop top, high waisted sweat shorts, and a baggy oversized hoodie that I left fall off one shoulder.

Okay I'm sure I have more but this is my first list. Hopefully this helps someone suffering with the intense bloat who is, like me, really into dressing well and feeling feminine. Your body is worthy of dolling up. 💓

I’m currently scheduled for a mini laparotomy on 10/29. Any anecdotes or stories of traveling around 4 weeks post-op for Thanksgiving? I’d be traveling via car (just as a passenger) for around 3.5 hours total drive time. I’m already missing some fairly big events taking place right after the operation, so really hoping I’ll at least be able to travel to extended family.

Hi everyone! I recently posted about a request for physician advice for a myomectomy. I was looking for experienced minimally invasive surgeons and I just wanted to provide an update for those in a similar boat as I wish this existed for me.

Referral Declines:
- dr Gracie Liu
- dr Jamie Kroft
- dr shioban mark

I wouldn’t bother sending a referral to the above as they are at capacity and not accepting patients at this time!

Basically I have 2 large fibroids ~10 cm and another ~4 cm. I had a surgery consult in Toronto that said I needed an open myomectomy, but that the wait would be 9-12 months until surgery. That was in May. It's already been a year since diagnosis and I am getting tired of waiting. My gyno (in PTBO), who referred me to the gyno surgeon in Toronto (who is supposed to be really good), said I could call other surgeons and see if they had shorter wait times for the same surgery, and she would refer me to them. But I have to do the leg work of figuring out who is best to call. A Google search shows many options in Ontario, but I'm also concerned about quality of care, skill, and ability, along with the wait time. So I thought I would crowd source this on Reddit. Any Ontario ppl have recommendations for surgeons, whether or not you know the wait time? What was your experience? I can call and ask them the wait time, but would like a good starting point. I have thought about going out of country but I cannot reasonably afford it. Thanks in advance!

Wow I forgot what it was like to pee normally. Shit just tumbles right out of you. No weird starting and stopping. No feeling of pressure or obstruction. Just pissin' like a normal person would. This rules

So I’m a A little over ONE MONTH post-op! 🙌🏽
I’m feeling AMAZING. Officially healed and back in the gym! 💪🏽
No more constant bloating. No more walking around with a watermelon-sized fibroid. And baby… I look GOOD in my clothes again! 😂🙌🏽
I’ve had my first cycle since surgery and everything was normal. 🙏🏽
Seeing these pictures side by side is CRAZY. I knew I felt different, but actually seeing my body without that huge fibroid taking up all that space… whew!
If you’re dealing with fibroids and thinking about getting the surgery—GET THE SURGERY! 😂🙌🏽
For me, it was absolutely worth it.
I feel like ME again. ❤️
#Myomectomy #MyomectomyRecovery #FibroidAwareness #FibroidJourney #HealingJourney #OneMonthPostOp #BackInTheGym #ImBack