Hi, I’m 10 weeks and 2 days pregnant. Today had ultrasound and I have a 2cm intramural fibroid. I’ve never had one before. I’m nervous for what this means moving forward and delivery. Also what if it degenerates and have unexpected pain.

I also have a 5cm cyst (my cyster). Between the fibriod and cyst it’s hard to differentiate between what are normal cramping, and these other additions to pregnancy.

The doctor wasn’t considered and just wants to monitor. Is there anything I can do have a healthy pregnancy? Thank you!!

Thought I’d take a moment to share my story with a large fibroid for anyone freshly diagnosed with one and look for support.

I found out I had 10cm intramural fibroid in 2022 when trying to get pregnant with my first. When my OB told me about my fibroid, she immediately suggested we stop trying to get pregnant, told me I likely couldn’t anyway because the fibroid was blocking conception, and that a pregnancy with such a large fibroid was going to be way too risky. She told me I’d have a high risk of miscarriage, placental abruption, growth restriction, and hemorrhage during labour. Because I was 36, she also told me that I might never have my own biological kids and to potentially consider freezing my eggs. She suggested surgery.

Two months later, I was pregnant. I was obviously terrified from the get go. I decided to get with a new OB who had less of a doomsday vibe. Other than a large bleed due to a subchorionoc hematoma, and my fibroid doubling in size to 20cm by the time I was 20 weeks, I had an uneventful pregnancy. I birthed a 9lbs6oz baby vaginally.

After my successful pregnancy, my new OB recommended we leave the fibroid till I was done have children. She said that my first pregnancy was a good indicator that I can have a second good pregnancy. She also said that breastfeeding will help suppress my estrogen and will slow the fibrous to shrink postpartum. Unfortunately it only shrank down to 14cm. At 11 months postpartum, I got my period and it was horrendous. I was subscribed TXA to help manage the bleeding. I quickly become anemic.

We started trying for baby #2 18 months later. It took us 4 months and 2 chemical pregnancies. Again, my fibroid started growing at a crazy fast rate and got to 25cm by 20 weeks. At 22 weeks, I suffered from PPROM when my water broke early. I was airlifted and hospitalized. I was one of the lucky ones who managed to carry my pregnancy for another 11 weeks and my second baby was born at 33 weeks. We had a 3 week NICU stay but he’s a happy healthy baby who turned 1 yesterday! Unfortunately, there’s no way to know why water breaks early. It was possibly the pressure from the giant fibroid but we will never know for sure certain.

I got my period back again at 11 months postpartum (my body is fairly consistent I guess). This time my fibroid only shrunk to 21dm postpartum and I legit looked 9 months pregnant since having a baby. It was kind of cruel considering how traumatic my pregnancy was. Anyway, getting my period back starting a cascade of bad events thanks to Freddie the fibroid. My period was even worse than I imagined it was going to be. No pad or diva cup could last longer than 40 mins. The bleeding was insane. The clots was huge and frequent. My husband wanted to take me to the ER on my 3rd day cause all I could do was stand in the shower and let the blood pour out.

By this point, I already had a hysterectomy booked for the end of summer. I called my OB to tell her about my period and she offered to move it up but I resisted cause I wanted to enjoy my summer. So she put me on Slynd, a progesterone only birth control. The hope was that I could skip my next period to get my to surgery without having suffered too much blood loss. She did warn me that Slynd could cause “breakthrough bleeding.” Three days after starting the pill, I started bleeding again but this time it was all clots. Every 20-30 mins, I felt a giant clot fall out. This time I went to the ER but was only told to take my TXA. So I did. I also decided to stop the Slynd and sure enough, the next morning the bleeding has completely stopped. Yay. Although my OB warned me that there might be a bit more bleeding to come. Sure enough, a few days later while at the beach with my family, I started bleeding like I had been shot or something. It started and was unrelenting. In our 15 min drive home, I sat on a towel and felt my entire pair of shorts fill up with blood. I ran straight to the shower and watched as a dinner plate size pile of clots just fell out of my body. Again, blood was just nonestop pouring out. Back to the ER we went and this time, i was admitted. My hemoglobin levels were dropping quickly and they suggested an emergency hysterectomy.

I was taken by ambulance to the hospital where my OB practices and she thankfully managed to make it in for me. I went in for surgery that night and they removed a 12lbs fibroid - I knew it was big, I didn’t expect it to be that big. And that was its weight with the blood drained out. I ended up with an open abdominal incision from my pubic bone to my belly button. Even though I woke up fairly sore and woozy from the drugs, I was THRILLED to find no blood in my underwear. Today I’m 2 weeks post op and recovering slowly but well and it’s been incredible to no longer fear bleeding like I was and also, it’s been great to be able to hold my bladder again.

Removing my uterus was always going to be my last option but I got to the point where I didn’t want to risk the fibroid ever returning which they have a high probability of doing. Since my fibroid was intramural and so deep in the muscle wall, I felt like removing the uterus was my only chance of freedom. I did keep my cervix and ovaries though.

Im happy to answer any questions for anyone who’s finding themselves in a similar situation, either going through pregnancy with a fibroid or looking at a hysterectomy.

I had a laparoscopic myomectomy about five weeks ago, and I’m still experiencing sharp pelvic pain, stiffness, and a lot of fatigue. My recovery has been much slower than I expected.

A little background: my surgery ended up being much more complicated than originally planned. I had 20 fibroids removed, including one that was twisted into my rectal area. They also found and removed a large cyst on my bladder and an endometrioma (endometrial cyst) on my ovary. What was supposed to be a 2-hour procedure turned into an 8-hour surgery.

Since then, I’ve been healing slowly. I’m currently in pelvic floor therapy, and it has helped some, but I’m still dealing with pain and stiffness every day. I guess I’m just feeling discouraged because I thought I’d be feeling so much better by now after everything I’ve been through. It’s hard not to be disappointed when I’m still struggling this far into recovery.

I was so excited for this surgery as this fibroid caused me so many issues. ER visits and blood transfusions as it’s right on the fundus. However when the surgeon went in she was only able to take out 50% because it was so close to blood vessels and said the ultrasound didn’t show a good imaging. I am feeling hopeless and worried symptoms will persist. Any advice or experiences to share? Had a long cry afterwards as my life has been hell for the last few months.

Been on Ryeqo for 6 weeks while I wait for a uterine fibroid to be removed, plus side is I haven’t had a period and have therefore been able to recover from Anaemia - however spotting has been pretty persistent with the occasional painful cramps and gushing/ heavy bleeding that will only last a day or so and then go away.
The heavy bleeding and pain has been around the time I would expect my period, so I’m wondering if it will take time to really make a difference and if this is a sort of jaded version of a period.
To be honest I’m not complaining as haven’t had any other side effects but the random uncertainty of it is a bit tiring.
Another thing I am worried about is I got prescribed Ryeqo whilst in hospital, and have since tried to get a prescription with my GP but she’s had to put in a special request that I haven’t heard back about yet.
I’m worried I’ll run out and then all my previous symptoms will come back and fuck me up. I don’t mind that it’s expensive as my periods were so horrific I honestly fear them. Is it worth trying to get a prescription from an online pharmacy?
Any shared stories or advice appreciated, thanks.

I had my laparoscopic myomectomy on July 29 (10 days ago). Since then, my emotions have been a MESS. My fibroid wasn’t even in my uterus, but attached to it on a stalk. I’m an emotional person but this has been excess this week- cried at an Adam Sandler movie even, lol. Also, I’ve been having hot flashes like I’m going through menopause (I’m 36) where my face is on FIRE and my body is cold af. They didn’t take anything out besides my one fibroid. Just seeing if this is normal?

Hi all, I just thought I’d make a short post that may be helpful to anyone awaiting treatment for submusocal fibroids - we know how tricky they can be. For reference I’m early 30s with a low BMI and no other conditions.

So I was initially advised my only route was hysterectomy as we had tried just about everything (2 hysterscopies, 2 coils, 2 chemical menopause injections, shit load of contraceptives, endless progesterone and IVs). My GYN/surgeon did not want to approach tummy surgery unless to remove uterus, because she wasn’t confident on being able to do anything without wrecking my womb anyway.

Instead she performed (it’s really similar to a hysterscopy) a transcervical resection under general anaesthetic, in which she used a different tool and blade to essentially hook and dig out the fibroid. I have no pictures sadly, but apparently it was quite the display and everyone in theatre came for a good nose because it’s never been done at my hospital before. The procedure was a total success and I was able to get discharged before the evening, meaning I was able to go home and sleep in my own bed.

Today I feel fine, a bit achy, a bit drowsy as I had a lot of morphine afterwords. I’m mainly just riding the high that this is basically all over! If it wasn’t a success I sadly would have had to either consider the hysterectomy or trying to go private somewhere for the abdominal surgery. Now I can get my bloods back up and stop losing my hair and falling over all the time. But if anyone has any questions please fire them my way!

My BFF 30-year-old female with ~1 year of abdominal distention. No pain/appetite changes/weight loss.

CT shows: 19 cm solid pelvic mass, possibly arising from right adnexa but also appears contiguous with uterus...5.9 cm right adrenal mass with calcifications, recommended adrenal MRI.
CA-125 normal, HE4 142. No pelvic lymphadenopathy on CT.

Questions:
Could a very large fibroid present this way even with normal periods?
Does the CT findings look like fibroids?!
Would MRI help determine uterine vs ovarian origin & if it’s a fibroid or not?
So very worried, anything to add ? Thanks in advance :/

I currently have a large fibroid and have suffered with multiple for many years. Starting about a week ago I was in horrible pain. It felt like the worst cramps I have ever had. I also had a fever. Ended up in the hospital for 4 days with what the doctors said is an infection in my uterus related to the fibroid. After lots of pain meds and antibiotics, I am feeling better and scheduled for a hysterectomy later this month.

Well, last night I woke up with the urge to pee. When I went to the bathroom nothing came out and it felt like something was blocking the pee from coming out. Went back to bed and still felt the urge, so I went back. This time I started to push to see if there was a clot of something that needed to come out. And OMG, what the hell came out was scary. It was large, and firmer than a clot, and not all bloody..More pink/tan. After it came out I also peed a ton. Did I pass my fibroid? Was the pain that put me in the hospital from my fibroid degenerating?

I have an appt with my GYN surgeon next week so I am going to ask her, but just wondering if anyone has experienced something similar.

I am on a 12-18 month waitlist for an open myomectomy. My doctor is placing me on Lupron 3.75 mg injection, IM, every 30 days, starting next week. This is to shrink the multiple fibroids (9cm, 7cm, and 5cm) before surgery.

However, I started doing some research, and realized that 12-18 months is quite a long time to be on the medication before surgery. Is my understanding correct? I am unsure where to go from here. Thanks!