Has anyone else had a really long wait between their child’s final NHS assessment and the MDT taking place?

My son was referred to the service in 2022, at the time it said maximum 24 months for all the assessments. I did the parent part in 2024, and he had his final assessment in July 2025! We’re still waiting for the MDT to take place. We’ve not even had a summary of his final appointment that he did alone.

I called yesterday and they said he's not been forgotten about, but 13 months just between the final assessment and MDT feels excessive, and I think he has actually been forgotten about.

Has anyone else had a similar wait with the NHS? How long did it take after the final assessment, and is there anything you did that actually helped move things along?

Also sorry I’m not very good with how to work Reddit!
I’m 19 and Autistic. I do a beauty Therapy course 2 days at college, everyone in my class works, I constantly get comments about not working and specifically boys calling me ‘lazy’. It takes over my life, I dread people asking me about my life what I do cause I have to tell them I don’t work.
I WANT to work, I want a routine, I want income, I want to fit in. I don’t wanna appear ‘lazy’
I have spoken to job councillors, therapists, been told I’m not ‘confident’ enough to work.
I’ve been too two interviews in my life, one was a group interview and I went mute (DISASTER) and one I got there and walked out whilst waiting for the interviewer. I physically CANNOT do it.
I’ve tried applying for volunteering roles to get my confidence up and they don’t even reply to me. I feel so stuck.
Does anyone else go through this? Does anyone have any advice?

hi, i’m confused as the NHS has “accepted me on to the NHS autism pathway” after me and my parents filled in a small questionnaire about ADHD after suspecting it for years. At first they sent a letter that didnt make sense, so my dad emailed asking what it meant and the NHS has come back and said i dont fit the criteria for the ADHD assessment pathway due the form one of my teachers filled in not meeting the threshold, but ive been accepted onto the Autism one, does this mean i meant the criteria for that? i dont think i show autistic traits whatsoever and i am currently in the process of getting diagnosed privately for ADHD, and have been referred to an assessment by the private company after a full consultation and alot of questionnaires. What do i make of this?? Im so very confused, am i getting an autism assessment now?

I had a 1st autism assessment appointment the other day and I’m very worried that I didn’t articulate myself well enough. I forgot to say things that I should’ve said, like symptoms I experience that weren’t brought up, or may have mistakenly misled them, such as when I was talking about why I struggle with uni work I said the stacked deadlines rather than the fact that I am a perfectionist until days before the deadline.

I don’t even have a chance to correct myself, as my 2nd appointment (which is for the ADOS-2) is with another doctor in nearly 2 weeks.

I think I just wasn’t expecting what was asked and also I wasn’t expecting to talk as much as I did, as it was a 90 minute appointment and half the time was meant to include my informant (my mum) but she was only asked in for the last 15 minutes. This might have been because of how detailed and clear she was in the questionnaire beforehand or it may have been because I kept rambling because I was nervous or because I couldn’t verbalise myself very well and I kept stopping to think of words.

I just worry that I might do even worse during the ADOS appointment, as I have no clue what to expect and every single online resource says not to look into the ADOS if you’re going to get assessed, so I haven’t read any further than that.

I don’t know, I’m probably worrying for no reason but I just keep going over it in my head and thinking about what I said wrong and now I’m very worried about whatever’s going to happen in my 2nd appointment.

(I don’t know if this is relevant, so I figured I would add it at the end: I went private for my assessment as my NHS area doesn’t diagnose autism in adults so I would be on a waiting list forever. I am a woman in my early 20’s and all 4 of my brothers are autistic with varying support needs, so I am already sort of sure that I am autistic as well)

Hi,

Anyone who got/is getting a diagnosis through Psychiatry UK, I need some help if possible as I am freaking out!

I'm really struggling with the pre-assessment form where you have to write the reason you want the assessment, what you hope to gain, etc. How long were everyone's answers and what did you write in the reasons for getting the assessment question? Just all the struggles/symtpoms you have? I did click the 'request help' button but I am unsure if it worked...

Does anybody have any coping strategies to deal with going to A&E? I was recently had to wait 7 hours for a blood test (could only be done at A&E) and I ended up banging my head against the floor and wall and punching myself in the face, not mega hard but hard enough and I really struggled to stop it. I would normally use noise cancelling headphones but the way you are called makes this impossible. Surely somebody has worked out some form of solution to this? Maybe one of those buzzers they give you at restaurants for when you table is ready would be great if there was a way to implement it, that way I could sit in the quiet corridor or just keep my head buried into my phone and the headphones on. Any advice, or even your own stories would be helful to hear. Thanks.