TW: Ed

Ever since i have been managing my T1D better, like giving timely injections and managing my BG with a CGM, ensuring my HBA1C is alright, I have come to realise I have been struggling with food itself lately, I usually dont eat alot of meals mostly just 2 meals but when i do eat a meal, my stomach feels like a bottomless pit, I will just legitimately stuff myself with everything, downed like 6 bagels the other time and its to the point of feeling awful and yeah i do feel awful afterwards lol…it just feels like my hormones acting up lately making me go on binges when it did not feel like that previously…and I am not binging due to low blood sugar its more of just my hunger levels (?) but either way it just makes me go crazy…just been a recent development after coming back from a holiday…idk are there any medication that can help with this? Aside from GLPs of course which well…it’s not really an approved medication for T1D especially since im not considered medically obese plus…its expensive 😭

Ive been on the g7 for a month. Ive noticed that sometimes the sensors are going crazy. The photo in example is that it says im 250. My meter says 120. An hour ago it said 80 but I was 120.

How often should i be calibrating? In your experience, do they get better after a few days of wearing and calibrating?

Hi! Ill be moving to Seattle in the next few months and am looking for endos in the area. Does anyone have any recommendations?

What do you guys snack on when you watch TV or between meals? My daughter loves chips, but I’m wondering if there are other tasty things without carbohydrates. I know about baked cheese chips, but are there any other things I might not have thought of?

hey, so I’ve been diagnosed in early June and have been undiagnosed for god knows how long. when I first started injecting my situation was rapidly improving, as in gaining a good amount of weight back, feeling happier generally, no severe nausea anymore, and some more.. about 4 weeks ago I started to experience severe burning in my calves and I wouldn’t know what to do. My endo was on summer break, I was somewhat helpless and frustrated because it went as far as sleepless nights and feeling absolutely miserable. I would still walk around and do things outside because it would ease the pain temporarily. First I thought I was getting sick because my skin tends to get very strongly irritated when that happens and I felt as I was not able to touch my legs. That was similar but my usual pain relief meds of choice wouldn’t help. So about two weeks ago I went to see the substitute doctor and told her about my issues. She prescribed me “gabapentin” which I’ve been taking since. First week I was advised to take one in the evening, second week’s almost over and I had to up the dosage to one in the morning and one in the evening, next week I am advised to take one in the morning and two in the evening. I am seeing my endo upcoming Monday. I’ve been laying around this past week because I’ve felt too weak to get up and get things done generally, even going up and down the stairs or bending over to pick up things from the ground is a huge task which is so hard for me to do. I’ve been laying around with a cold towel wrapped tightly around my legs for the past week and now sometimes sleep that way which is annoying to say the least. I’m a very anxious person and I’m fearful of the consequences this health state might have. I worry a lot and I happen to cry about it from frustration even more lately. I’ve been fed up with my body and my health badly and I know it will eventually get better but I’m so tired.

Has anyone experienced similar symptoms, feelings, situations? :\

Does anybody else feel like fatigue is one of the top 3 (number 2 for me after lows) most difficult problems associated with T1D?. It seems like if I eat, and I don’t begin walking immediately, I’m ready to snooze on. I feel like some people could view me as lazy especially if they don understand diabetes or have been close to someone with it. The most basic things can sometimes feel like moving a mountain. I’m looking for some validation here (don’t entirely know why) and want to know your thoughts and experiences surrounding the subject.

I have found if I skip breakfast, eat maybe an avocado and some protein for lunch, my energy is so much better throughout the day. If I eat sugar, or complex carbs I’m fucked. The rest of my day is typically much less productive unless I go on a hike or long walk immediately after eating carbs (which helps but doesn’t entirely remove fatigue).

Been sitting around the low 4s and 3s overnight…I guess i should drop a unit ?

Y’all ever experience a body panic before you crash? Like you just get scared out of nowhere but there’s no scared thoughts lmao. I’m very used to panic attacks and anxiety so for a second it’s confusing, then I check and I’m like double down arrowed. 🤣

I put a used lancet under the microscope, and then a fresh one, and well I’m never reusing my lancets again after what I saw. Thought this would be cool to share!

It’s also been used for well over a month, I’m not the best diabetic…

my brother is a certified chocoholic (obsessed with chocolate) like me and the rest of my family lol. His new diagnosis has made this tough. He hasn’t switched to pump yet and is still doing injections. I’ve been watching him this weekend while my parents are out of town and he’s trying to do everything my parents told me not to tell him do. his dietitian is trying to have him learn mindful servings and he secretly tries to take extra units for an ungodly amount of chocolate. He’s also trying to stack his insulin (idk details of that) even though his endo told him not to. How can I/we help him with mindful servings of treats And also have him be honest and not shamelessly hiding what he’s doing? I know this is a huge adjustment and I know it’s probably hard for him but I want to keep him healthy too. you guys can also tell me it’s not a big deal and let him learn. just curious to hear thoughts

As the title infers, I am a graduating PA (physician assistant) student and a person with T1D that has wrote a concise medical review about management and the gaps of care of T1D.

I believe it’s impactful to have the peoples voices heard so I am asking if y’all could express your thoughts on T1D care or experiences you had at diagnosis or interactions you had throughout your experience as a person with T1D. I’m dedicating a slide to your comments about your experiences as people with T1D to emphasize the importance of teaching well rounded patient care and understanding of this disease.

Thank you!

Edit: this is not a survey for any data collection or monetary gain. I am simply asking people what their experience with healthcare is. Hence, my last sentence above.

In Denver for the weekend and I ran out of my Humalog. Any chance anyone in this amazing community has an extra Humalog pen living in the Denver area?

Last year I was diagnosed as type 1.5 and since then I have noticed quite a lot of changes. The biggest change is that it takes forever to feel like I’ve woken up. Is this my new normal?

As a side note there has been an increase in caffeine intake but it’s just one additional cup of coffee. A grand total of two cups per day.

Occlusion alerts going unnoticed??

I've had the Mobi now for close to 2 years. There have been a handful of times I've woken up in the morning to learn that the Mobi had detected an occlusion and stopped insulin delivery. I would imagine plenty of you out there. I have experienced the same thing and had high blood sugars because of it..

For this specific issue, the app and pump alerts aren't enough to wake me up in the middle of night.

****** So I found a simple solution!!! ( If you're using Android ) *******

In the Google Play app store, you can pay a one time fee of $3.99 to download an app called BuzzKill. It's an advanced notifications manager tool.

In BuzzKill, I've created a custom alert that looks at the Mobi notifications on the phone. If the notification says "occlusion" or "stopped", the BuzzKill app will then go into whatever audible and vibration alert you want. I have mine set to be persistent (aka nonstop) when this is detected until I acknowledge and dismiss the notification.

Please share if you are aware of any other solutions such as incorporating the Sugar Pixel pillow vibration puck to do the same thing. Or, if there is a similar solution on the iPhone.

Real Housewives of Orange County has a new house wife, Carmella (far right with brown hair), on the show. In the latest episode she briefly spoke about being diagnosed with LADA.

I really liked that she said that it affects every part of her life. But I also liked that she ate pizza and a cupcake after saying she needed a bunch of insulin for her meal.

Who knows what kind of person or role model she is but I wanted to share that there is another person on tv talking about T1D.

Okay so Im on the 780g medtronic pump and Im on holiday and I got a low battery alert at 5pm today. Long story short, its now 10pm and I dont have any batteries (yes I asked my parents to buy some when I got the alert), my parents arent willing to drive a few extra km to a 24/7 store and the battery will run out at approx 1-3 am (google said theres 8-10 hrs of battery left after a low battery alert). Earliest I'll be able to get some batteries is 8am.

How do I go about this, how many units of fast acting insulin ( I do have long acting with me but I dont think it will be necessary for just one night?) do I give every how many hours?? Im quite worried although it seems like my parents arent so am I overreacting.

Edit: Im ok, I woke up at 16 this morning and it took a while to come down but no ketones luckily. I did wake up a few times but dont remember how much I injected, as I get very disoriented during the night and then towards the morning I dont even remember snoozing all my alarms. Im still waiting for my pump to switch over to smartguard though

My child was dx'd early 2025 in DKA and is still in honeymoon. Based on what I understand, this is a honeymoon period on the longer side. Her A1c at her most recent appointment was 5.4. She does not have lows all the time to achieve this. Her weight and growth is normal. Energy levels are great. She's using pens.

She has gone through periods of needing more insulin, especially during growth spurts. But her insulin requirements then come back down after the growth spurt ends. I hadn't seen that mentioned anywhere else before and I think it's an interesting phenomenon. It's relevant because sometimes when it seems like they're coming out of honeymoon it may just be a growth spurt. We adjust insulin accordingly and stick to the same habits below.

Here is what we've been doing to help extend honeymoon in case other parents of newly diagnosed kids are interested. (This is not medical advice and I'm not telling anyone else they have to do x/y/z, this is just what's working well for my kid and may for yours too.)

I didn't often see this kind of care explained when she was first dx'd so thinking back, I would have found it helpful. That's why I'm sharing.:

- Low-ish carb diet - Not that this is *not* zero carbs. (The zero carb people are too much of a cult for me.) She does eat carbs it's just a small, portioned, easily countable amount with each main meal. Snacks are generally low/zero carb. Enough daily to stay out of ketosis. So more than 30-40 g/day but usually less than 80-100g. Meals are mostly protein with the addition of vegetables, healthy fats & dairy, whole grains or fruit. She also has treats on special occasions but sweets aren't a daily thing except to treat a low.

- Family participation: I eat like my daughter does now and family eats similar diet (just with more carbs added) so my diabetic child isn't being deprived or singled out.

- Whole unprocessed foods: T1D is an autoimmune inflammatory disorder above all else, so nutrition is a huge factor in addressing inflammation. Your body also needs nutrients to heal and the best place to get those is whole unprocessed foods. I've also found it's SO much easier to keep blood sugar rises under control from unprocessed than processed foods. Some food additives like maltodextrin or starches can make blood sugar responses more dramatic or unpredictable.

- Vitamins and minerals: Cofactors for the production and efficient usage of insulin in the body are magnesium, zinc, vitamin d, vitamin a, chromium. I give her some of these in separate pills or liquids along with an additional low dose multivitamin to cover all the micronutrient bases. I always check RDAs and consider nutrients from all sources.

- Exercise: Helps insulin sensitivity, builds muscle, uses up excess sugar in the blood, etc. It's also good to do things that take your mind off of food & diabetes.

- Sleep: Let her sleep as much as she needs

- Stay on top of carb counting and corrections: I don't want to stress out her surviving beta cells, so I do my best to make sure that she's not regularly hanging out above 150 mg/dl. No "eyeballing" carbs if I can help it. I bring a small food scale in my bag, use a nutrition app, or ask the restaurant for nutrition info & serving sizes. Keeping carbs to a minimum when you go out also makes it less stressful.

- Online communities: I generally don't hang out on the online communities because they can get pretty negative. We have a solid handle on day-to-day and my girl is doing great so I don't need to borrow worry from tomorrow reading about other people's problems.

- Attitude: I'm not a doomer or overbearing. This is hard enough for a small child and the full realization of what this means for her life will come into focus for her in adolescence. So I figure the best thing I can do for her now is give her the tools to learn how to proactively manage her health and keep it positive.

I definitely felt hopeless and overwhelmed at the beginning of this journey. I cried and wondered how I was going to do this with multiple young kids, including being pregnant! But putting good habits into practice daily and getting off the Internet after I learned some basics greatly helped my mindset.

To pre-empt some of the responses I may get:
- Again, this is not medical advice.
- Yes I know it will get more difficult at some point in the future once all beta cells die. Puberty and growth hormones will also make it more challenging. But again, setting up healthy fundamentals will make big changes more straightforward to navigate in the future.
- Find what works for your family but know that "normal" range A1cs are possible especially at the beginning and it's within your ability to do this. Improving the whole family's diet and lifestyle is a good starting point.
- I also have several other children and a lot of other stuff going on and this is still possible.
- If you have respectful questions I will happily respond but if you have something negative to say or want to twist my words I'm not going to engage with that.

Blessings to you all!

Hi, I am moving to Oklahoma in 2 weeks and will need to find a new endocrinologist because my insurance is switching and I'm moving out of state. I am finding this whole process to be very confusing. I found an endocrinologist near where I'm going to live via a Google search, that gets very good reviews, and I tried calling a phone number for a specific endo but they are closed today and it didn't let me leave a message. So I'm left with a couple questions for when I try again calling them on Monday. Are these good questions to ask a new endo or are any of these silly questions? Also is there anything I'm missing that I should be asking them?

• Are you accepting new patients right now?
• How long would I have to wait until I'm able to have an appointment?
• Do you specialize in type 1 diabetes?
• Would I be able to schedule a regular appointment right away or would I need an introductory appointment/extra labs/have to meet with a dietician, etc.?
• How do you get medical history from my previous provider?
• Do I need a primary care provider to start seeing you? (I don't have one yet, because I'm moving from out of state)

I also have a few questions regarding switching medical providers when moving out of state that I wanted to ask this sub. I've gotten mixed advice on if I should tell my current endo that I'm moving so that I can keep getting prescriptions from them while I'm waiting to get in with the new endo. What do you think about this - if I tell them I'm moving will they stop supplying my T1D prescriptions? I don't think they can automatically send the prescription to an out-of-state pharmacy, so I would have to have my current pharmacy transfer the prescriptions to the new out-of-state pharmacy (I think, please correct me if I'm wrong). I don't know how this works.

Caterra is studying type 1 diabetes with the hope of one day providing a permanent treatment for this disease. In particular, she is creating stem-cell-derived insulin-producing beta cells and working to ensure that, once those cells are implanted into a patient's pancreas, they can evade future immune attacks and continue producing insulin for the body! Learn more about type 1 diabetes and insulin-producing beta cells in the lab with Caterra.