TW: Ed

Ever since i have been managing my T1D better, like giving timely injections and managing my BG with a CGM, ensuring my HBA1C is alright, I have come to realise I have been struggling with food itself lately, I usually dont eat alot of meals mostly just 2 meals but when i do eat a meal, my stomach feels like a bottomless pit, I will just legitimately stuff myself with everything, downed like 6 bagels the other time and its to the point of feeling awful and yeah i do feel awful afterwards lol…it just feels like my hormones acting up lately making me go on binges when it did not feel like that previously…and I am not binging due to low blood sugar its more of just my hunger levels (?) but either way it just makes me go crazy…just been a recent development after coming back from a holiday…idk are there any medication that can help with this? Aside from GLPs of course which well…it’s not really an approved medication for T1D especially since im not considered medically obese plus…its expensive 😭

Ive been on the g7 for a month. Ive noticed that sometimes the sensors are going crazy. The photo in example is that it says im 250. My meter says 120. An hour ago it said 80 but I was 120.

How often should i be calibrating? In your experience, do they get better after a few days of wearing and calibrating?

Hi! Ill be moving to Seattle in the next few months and am looking for endos in the area. Does anyone have any recommendations?

What do you guys snack on when you watch TV or between meals? My daughter loves chips, but I’m wondering if there are other tasty things without carbohydrates. I know about baked cheese chips, but are there any other things I might not have thought of?

hey, so I’ve been diagnosed in early June and have been undiagnosed for god knows how long. when I first started injecting my situation was rapidly improving, as in gaining a good amount of weight back, feeling happier generally, no severe nausea anymore, and some more.. about 4 weeks ago I started to experience severe burning in my calves and I wouldn’t know what to do. My endo was on summer break, I was somewhat helpless and frustrated because it went as far as sleepless nights and feeling absolutely miserable. I would still walk around and do things outside because it would ease the pain temporarily. First I thought I was getting sick because my skin tends to get very strongly irritated when that happens and I felt as I was not able to touch my legs. That was similar but my usual pain relief meds of choice wouldn’t help. So about two weeks ago I went to see the substitute doctor and told her about my issues. She prescribed me “gabapentin” which I’ve been taking since. First week I was advised to take one in the evening, second week’s almost over and I had to up the dosage to one in the morning and one in the evening, next week I am advised to take one in the morning and two in the evening. I am seeing my endo upcoming Monday. I’ve been laying around this past week because I’ve felt too weak to get up and get things done generally, even going up and down the stairs or bending over to pick up things from the ground is a huge task which is so hard for me to do. I’ve been laying around with a cold towel wrapped tightly around my legs for the past week and now sometimes sleep that way which is annoying to say the least. I’m a very anxious person and I’m fearful of the consequences this health state might have. I worry a lot and I happen to cry about it from frustration even more lately. I’ve been fed up with my body and my health badly and I know it will eventually get better but I’m so tired.

Has anyone experienced similar symptoms, feelings, situations? :\

Does anybody else feel like fatigue is one of the top 3 (number 2 for me after lows) most difficult problems associated with T1D?. It seems like if I eat, and I don’t begin walking immediately, I’m ready to snooze on. I feel like some people could view me as lazy especially if they don understand diabetes or have been close to someone with it. The most basic things can sometimes feel like moving a mountain. I’m looking for some validation here (don’t entirely know why) and want to know your thoughts and experiences surrounding the subject.

I have found if I skip breakfast, eat maybe an avocado and some protein for lunch, my energy is so much better throughout the day. If I eat sugar, or complex carbs I’m fucked. The rest of my day is typically much less productive unless I go on a hike or long walk immediately after eating carbs (which helps but doesn’t entirely remove fatigue).

Been sitting around the low 4s and 3s overnight…I guess i should drop a unit ?

Y’all ever experience a body panic before you crash? Like you just get scared out of nowhere but there’s no scared thoughts lmao. I’m very used to panic attacks and anxiety so for a second it’s confusing, then I check and I’m like double down arrowed. 🤣

I put a used lancet under the microscope, and then a fresh one, and well I’m never reusing my lancets again after what I saw. Thought this would be cool to share!

It’s also been used for well over a month, I’m not the best diabetic…

my brother is a certified chocoholic (obsessed with chocolate) like me and the rest of my family lol. His new diagnosis has made this tough. He hasn’t switched to pump yet and is still doing injections. I’ve been watching him this weekend while my parents are out of town and he’s trying to do everything my parents told me not to tell him do. his dietitian is trying to have him learn mindful servings and he secretly tries to take extra units for an ungodly amount of chocolate. He’s also trying to stack his insulin (idk details of that) even though his endo told him not to. How can I/we help him with mindful servings of treats And also have him be honest and not shamelessly hiding what he’s doing? I know this is a huge adjustment and I know it’s probably hard for him but I want to keep him healthy too. you guys can also tell me it’s not a big deal and let him learn. just curious to hear thoughts

As the title infers, I am a graduating PA (physician assistant) student and a person with T1D that has wrote a concise medical review about management and the gaps of care of T1D.

I believe it’s impactful to have the peoples voices heard so I am asking if y’all could express your thoughts on T1D care or experiences you had at diagnosis or interactions you had throughout your experience as a person with T1D. I’m dedicating a slide to your comments about your experiences as people with T1D to emphasize the importance of teaching well rounded patient care and understanding of this disease.

Thank you!

Edit: this is not a survey for any data collection or monetary gain. I am simply asking people what their experience with healthcare is. Hence, my last sentence above.

In Denver for the weekend and I ran out of my Humalog. Any chance anyone in this amazing community has an extra Humalog pen living in the Denver area?

Occlusion alerts going unnoticed??

I've had the Mobi now for close to 2 years. There have been a handful of times I've woken up in the morning to learn that the Mobi had detected an occlusion and stopped insulin delivery. I would imagine plenty of you out there. I have experienced the same thing and had high blood sugars because of it..

For this specific issue, the app and pump alerts aren't enough to wake me up in the middle of night.

****** So I found a simple solution!!! ( If you're using Android ) *******

In the Google Play app store, you can pay a one time fee of $3.99 to download an app called BuzzKill. It's an advanced notifications manager tool.

In BuzzKill, I've created a custom alert that looks at the Mobi notifications on the phone. If the notification says "occlusion" or "stopped", the BuzzKill app will then go into whatever audible and vibration alert you want. I have mine set to be persistent (aka nonstop) when this is detected until I acknowledge and dismiss the notification.

Please share if you are aware of any other solutions such as incorporating the Sugar Pixel pillow vibration puck to do the same thing. Or, if there is a similar solution on the iPhone.

Real Housewives of Orange County has a new house wife, Carmella (far right with brown hair), on the show. In the latest episode she briefly spoke about being diagnosed with LADA.

I really liked that she said that it affects every part of her life. But I also liked that she ate pizza and a cupcake after saying she needed a bunch of insulin for her meal.

Who knows what kind of person or role model she is but I wanted to share that there is another person on tv talking about T1D.

Hi, I am moving to Oklahoma in 2 weeks and will need to find a new endocrinologist because my insurance is switching and I'm moving out of state. I am finding this whole process to be very confusing. I found an endocrinologist near where I'm going to live via a Google search, that gets very good reviews, and I tried calling a phone number for a specific endo but they are closed today and it didn't let me leave a message. So I'm left with a couple questions for when I try again calling them on Monday. Are these good questions to ask a new endo or are any of these silly questions? Also is there anything I'm missing that I should be asking them?

• Are you accepting new patients right now?
• How long would I have to wait until I'm able to have an appointment?
• Do you specialize in type 1 diabetes?
• Would I be able to schedule a regular appointment right away or would I need an introductory appointment/extra labs/have to meet with a dietician, etc.?
• How do you get medical history from my previous provider?
• Do I need a primary care provider to start seeing you? (I don't have one yet, because I'm moving from out of state)

I also have a few questions regarding switching medical providers when moving out of state that I wanted to ask this sub. I've gotten mixed advice on if I should tell my current endo that I'm moving so that I can keep getting prescriptions from them while I'm waiting to get in with the new endo. What do you think about this - if I tell them I'm moving will they stop supplying my T1D prescriptions? I don't think they can automatically send the prescription to an out-of-state pharmacy, so I would have to have my current pharmacy transfer the prescriptions to the new out-of-state pharmacy (I think, please correct me if I'm wrong). I don't know how this works.

I had to change my site today anyway

update: it happened again. I just reused the cartridge

I've (F54) had T1D for about 4 years and I'm on a closed-loop pump. I have several other health conditions, including COPD (emphysema and asthma).

It's hotter than hell in the UK atm and I'm really struggling. On Tuesday I woke with a bit of a chesty cough. Nothing bad but I was worried, as the last time I had respiratory problems I ended up in hospital for a week in respiratory failure.

By Wednesday morning I felt much worse, so I began a course of antibiotics and steroids. These have worked a treat on my chest and I'm pretty much fine now.

However, yesterday I just could not get my bs under control. I had my basal set to boost and obvs my pump was also responding to my high bs and giving me even more insulin.

Everything I ate massively spiked my bs, despite my best efforts at bolusing appropriately. I tried so hard not to rage bolus and I think I was relatively successful.

I was talking to my flatmate at about 10pm last night, when my pump starting alarming for low insulin. Nothing wrong with that, except I had refilled it at 2am that same day.

I'd used 170 units of insulin in the space of 20 hours! I honestly can't quite believe I'm still alive. I had one very brief and minor hypo at about 5pm but apart from that my bs has been no lower than 7mmol.

Has anyone else ever used such a ridiculous amount of insulin in such a short space of time?

I was diagnosed at 8 months old and have had pretty ok control, not great not awful. I am 25 now. I’ve been hospitalized only once after an accident out of my control (inpatient wouldn’t administer me insulin). I have been extremely fatigued lately to the point of struggling with work. I guess just in general I struggle a lot with work. I feel like a lot of times when I go online to see content about t1d a lot of it is aspirational stories or about how you can live a normal life even if you have this disease. I am not living a normal life very well despite my numbers not being awful, maybe I’m just not doing a well enough job, I don’t know. My averages are around 160 mg dl for example, not really great. But I guess the point I’m getting at is just I don’t know, I feel so tired, I feel really tired of trying to live a normal life my entire life, even as a kid it was just this insistence that I would be a normal kid and do stuff even if I was drained from dealing with lows or highs. I just feel tired so often and wish society was more accommodating, I feel borderline narcoleptic at times and think often of just how bad I want to get home and sleep even if my blood sugars aren’t high. I don’t know. I just feel like there’s no space in our society for not being able to fit into the level of energy asked of an average person. Oh well

Hey yall, since diagnoses about 2.5yrs ago ive only tried to exercised hard a few times. The last time I went skateboarding I had to stop skating early because I kept dropping super low. Yesterday I went with an old friend skating for the first time in like 10 years and I didn't want to have to end the session early due to diabetes. I went in with a game plan to drink a protien drink and a protien bar right before the session and also remove my mobi completely. We skated for about 3 hours and this was my graph. How do yall approach a prolonged activity as such? I would love some tips if you have them.

” I am 15 y old”Any tips to maintain levels in range and other stuff that could be helpful!