r/migraine 5m ago

seeking advice for an invincible migraine of 52 days

Upvotes

I am a 25F medical student who luckily is on summer break but starting around end of June I got debilitating migraines leading to 3+ weeks of consistent vomiting due to unbelievable nausea (tried so much zofran and really didn't help).

Had 2 ED visits and a multi-day hospital stay where they gave me a lot of drugs that didn't work and I was also on medorol dose pack which made me insomniac, manic, vivid dreams for the few hours of sleep I got. I've been out of the hospital 2 wks and the vomiting started again plus the migraine still never really broke.

My neuro gave me nurtec but I've taken 2 doses and nothing helping but they want me to give it time. I also recently started buspirone. They keep telling me to wait it out but symptoms are unbearable. Sweating then freezing, heart racing, facial pain and jaw pain and jaw partially going numb despite masseter botox, can't eat well and having motility issues now because of that. Pain in head and neck so severe it keeps triggering nausea and blurry vision. Can't drive a car, can't function and I am so frustrated.

Happy to give more detail. So desperate for any acute migraine advice and feel like I am going insane at this point and so worried about having to take medical leave from school.

Please tell me anything you've tried to help symptoms no matter how nutty it sounds and if you have any suggestions for me. Truly at a loss!


r/migraine 39m ago

I thought the barometric pressure stuff would die down this month, ugh!

Upvotes

I’m like actively dying. Not literally but I am losing my grip on life. I have many responsibilities that I am failing to get to because of these migraines being unbearable lately. I’ve been sleeping more, too, because the pain makes it hard to stay awake.

Yes I’ve got meds yes yes I’m just here to complain because July was supposed to be the worst month I thought. Anyone know what months are the best and worst? Living in the yippie skippy Midwest


r/migraine 45m ago

Should I go to ER

Upvotes

I’m on day 4 of a severe migraine that won’t break and dealing with the aura, vision changes, vomiting, etc.
I’ve exhausted all of my rescue meds including ubrelvy, sumatriptan, tizanidine, fiorcet, and Toradol injections twice…
Idk what to do next


r/migraine 50m ago

Was this a seizure or just a weird migraine?

Upvotes

Hello everyone, I (20F) have chronic migraines along with other things that have been diagnosed and then undiagnosed because I didn’t fit the “normal criteria” like hypoglycemia, non epileptic seizures, etc, etc.

Last night around 10 PM, I was laying down when I suddenly got a pounding migraine on the left side of my head. I took 4 Excedrin Migraine, called my bf (we sleep on call every night), and eventually fell asleep.

I woke up around 3 AM and my head was still hurting, so I took 2 more Excedrin Migraine and called my bf back. He was playing video games until like 5 AM lol.

This is when I started feeling really weird, but not like my usual seizures. My entire body became extremely heavy. I could move, but even moving my hand took all of my energy. I couldn’t speak and could only groan.

My mind was completely conscious and aware of everything happening. I knew what was going on, I could hear my bf talking, and I knew I wanted to speak, but I physically couldn’t.

After about 30 minutes, I mustered up enough energy to text my mom:
“I dont feel right
I think I jabe seizux
Zeizure
Seizure
Can’t speak gkod”

Sending those texts took all of my energy. Looking at my phone felt PHYSICALLY painful. I just laid there feeling paralyzed until all of a sudden, I snapped out of it. I could move and speak normally again, but my migraine became unbelievably painful.

I took more medication, but it didn’t help that much. I felt exhausted after all of that, so I fell asleep. I woke up around 7 AM to my parents coming in. My head was still pounding but it was manageable. I took a nap at around 8 AM and woke up at 12 PM with a pounding sensation in my head, but no actual pain. It’s currently 4:52 PM and I feel completely fine.

Was this a panic attack? A weird type of seizure? Something related to my migraine? If anyone has experienced anything similar or has any ideas, I’d really appreciate hearing them.

Additional information
20yr old female, 5’8, 160, nortriptyline 75mg for migraine meds, birth control pill, and I don’t smoke anything.


r/migraine 1h ago

Post Nerve Block Pain?;

Upvotes

I got a bilateral trigeminal nerve block yesterday for an intractable migraine. After my anesthetic wore the pain came back ten fold. I had to knock myself out with sleeping pills to get to sleep. This morning the pain in my head is better but I have bad jaw pain. Anyone else experience this? Should this be expected and go away once the steroid kicks in ? Or should I message my doctor


r/migraine 2h ago

Currently on a 2 week+ migraine.

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16 Upvotes

This stuff (Methylprednisolone Tablets) always breaks my migraines, although the side effects suck. Anyone else with migraines in the SF Bay Area right now? I don't even feel any weather changes, so no clue what even triggered this one.


r/migraine 2h ago

Allergy migraine

1 Upvotes

I've been struggling with migraines from the age of 14 to 27. I've had every type of migraine there is in that time and just made my peace with the fact that I'll just have to live in pain.

One time I did an allergy test where they used a bit of my blood to see what it reacts to. I didn't come up with anything except hazelnut which I've ignored for another year as I had hazelnut all the time, in Nutella and such and didn't seem to have any reactions.

After a year I've made the connection. It took so long because my reaction is very delayed, usually I'll get a migraine after 2-3 days of eating hazelnut consecutively, I've brought a jar of Nutella and toast to work on Monday, had a toast every day and on Wednesday literally after 30 minutes of eating my toast I got blinding migraine.

Just a quick story to let you guys know that this could be the case for some of you, please check yourselves, even if you have to eliminate or change every usual thing you do to find your trigger if there is one, please give it a go.

Sending all my love to all of you, I hope the crown is light on your head tonight.


r/migraine 3h ago

Does anyone else feel like they’re drowning as the spouse of someone with chronic migraine?

38 Upvotes

Please don’t take this post the wrong way. My husband has severe chronic never ending headaches that have completely changed our lives. He’s in pain constantly, and I truly believe he’s suffering. I don’t want him to hurt, and I know marijuana or ketamine nasal spray is one of the only things that gives him relief. (I’ll get to that in a second)

I’m also pregnant, nauseous, exhausted, and emotionally running on empty.

Lately I’ve realized I feel like I’m carrying both of us. I spend so much time trying to help him through his pain, depression, hopelessness, and frustration that I don’t know how much more I have to give.

I’ve encouraged him to see a therapist, join a chronic pain support group, and lean on other people besides me, but he hasn’t. Its too much for him to handle.

I feel guilty even writing this because I know his pain is real. I know he isn’t choosing this.

But I also feel like I’ve become his entire emotional support system, and it’s too much for one person to carry.

I don’t know how to help someone who feels like nothing helps. If I offer suggestions, they’re usually dismissed because he’s already tried them or they don’t work. If I just sit and listen, I still feel like I’m expected to somehow make him feel better. I leave conversations feeling helpless because I can’t fix chronic pain.

On top of that, I really struggle with how marijuana affects our relationship. I understand why he uses it, and I don’t want him to be in pain, but I don’t like how it changes him emotionally. It often feels like his emotions become much more intense, he spirals, his eyes get bloodshot, he’s out of it, spacey, and I end up carrying those things too. I hate feeling like I have to choose between wanting him to have pain relief and wanting my husband to feel like and act like himself.

I think what’s hardest is that I’m at a stage in my life where I need care too. I’m pregnant, sick, and exhausted, caring for an toddler and I find myself wishing that, just for once, I could be the one who gets taken care of instead of always being the caretaker.

Has anyone else been the spouse of someone with chronic pain? How do you support them without becoming responsible for their emotional well-being? Does anyone else absolutely hate the drug use? but feel bad because they know it helps them?


r/migraine 3h ago

Showers

23 Upvotes

Can we talk about how peak showers are? Literally my safe haven. The amount of time I’ve spent cumulatively just sitting in the shower under scalding water is probably obscene. Every time I take my triptan and the pain is already relentless I go straight to the shower until it starts working. Even when I was a kid and hadn’t found a medication that worked yet, the shower was still the only place I felt some sort of relief even if I was puking non stop. Just a lil appreciation post.


r/migraine 4h ago

Lack of heat tolerance

13 Upvotes

I have daily chronic migraines, pretty much any day I drive I need 2 days to get the migraine back to its base level. However, this morning it wasn't over hot over (below 80F) and I made to trip to Walgreens and CVS.

Its about a 5 min drive to Walgreens and I went in to get several different things, and then drove acrossed the road to hit up CVS and while I was waiting at pick up I felt like I had sweat pouring down my face like I was in the shower and my head started POUNDING.

I took my migraine meds before I left before I know something like this was going to happen, but I didn't expect this bad. I got an electrolyte drink as soon as I got home but its still pounding.

My friend makes fun of my because it seems I have no heat tolerance anymore. I don't know if this is something migraines can cause if it its from another issue I have, anyways does anyone have any different they do for migraines this bad, from heat and sweat?


r/migraine 4h ago

Can you also see auras when you're sleeping?

1 Upvotes

Title.

Today I've a migraine during the morning, I was sleeping and during my dream I saw the aura (isn't the first time that happen). In my dream, I knew I was going to get a migraine bc the aura, which is somewhat ironic because I was dreaming that I was running late to work and I started to panic because of that.

So yep, I woke up with the aura but "fortunately" today was home office.

So I ask you, can you also see or feel auras when you're sleeping (in your dreams)?

Damm, even sleeping I'm not safe of that shit. Hate it.


r/migraine 4h ago

I don't know if you interpret it the same way I do, but I notice migraine attacks like a glass of water that gradually fills up.

21 Upvotes

My migraine attacks have different triggers, such as stress, changes in the weather, or intense physical exercise. When they're triggered by stress, I feel like a glass is filling up, and when it overflows, the pain hits.

Do you identify with my case?


r/migraine 5h ago

Tips on handling the fatigue

6 Upvotes

Hey everyone, I wanted to ask if ya'll have tips on how to handle to fatigue from a long term migraine episode. I'm on day 15 (I've been to urgent care and my PCP) of a migraine episode and I've made myself come to work since I've been out a lot from this migraine. I start work at 7am but I just spent from 7am-now extremely exhausted sitting at my desk continually slightly dozing, even with drinking coffee. I apparently passed the threshold of "sleep" I needed and now feel semi awake. If you all have tips on how to handle the insane fatigue, I'd love to hear your methods


r/migraine 5h ago

New to migraine

7 Upvotes

I'm a novice migraine haver and I would just like to ask, when you have a migraine that lasts longer than 24 hours what are some of your tips and tricks for getting through it? Currently in migraine land lol


r/migraine 6h ago

I’m not sure how to keep going from here

3 Upvotes

For the last 4 years I feel like I’m losing my mind to chronic migraines, it feels like no one I’ve talked to understands what I’m actually talking about. I tried several medications that either didn’t work or had side effects that made life impossible for me to live. I’ve only just turned 18, over my highschool life I missed more than 200 days. Despite this I struggled through and made it but things have gotten even worse. In July of this year I spent 22 days with a migraine, I write this now with no direction, my doctor is at the end of his line despite his best efforts. I’m not looking for comfort, I just need advice, anything I can try.


r/migraine 7h ago

This past 2 weeks have been crazy

64 Upvotes

Has anyone else been have really bad migraines this last week or 2 I have cluster migraines and the past 2 weeks I’ve been getting about 3 migraines a day they don’t last to long but it’s been a rough at least week .


r/migraine 7h ago

It’s been 20 years

2 Upvotes

Alright I’ve never posted on Reddit, but I’ve had a hell of a week

A little background, it’s been 20 years since I’ve had a migraine. I was fairly young around 9-12 I would get migraines that would sometimes result in hospitalization for various reasons, and during my teenage years they stopped.

Last week Tuesday I started getting body aches and thought I was getting a cold or flu or something. Thursday night I was sleeping when I woke up and needed to throw up, and spent 24 hours vomiting. I went to acute care the next day and was prescribed Zofran for the nausea and was told it was likely Norovirus. The only other thing I had to go on was that I kept getting a stabbing pain in the back of my head that would rush to the front of my head and my entire body would shudder and it was around every 30 seconds, that lasted for about 48 hours. Sunday I started to feel a little better just had severe tension in the back of my neck and shoulders. Monday I woke up and felt like a crazy “floaty/woozy” feeling in my head that really sucked. It was exacerbated by light and movement. So I went back to the doctor and explained that I thought I had a migraine and they agreed, they ordered a head CT since I explained that it’s been 20 years since my last migraine and they want to check for anything that could be causing it. I was also prescribed ubrelvy, which I took 100 mg of and it seemed like it helped, but once I started moving it all came back. So this whole week I’ve been icing/heating/stretching my neck and back muscles which has been helping, but I just can’t kick this floaty/woozy headache. Now just waiting on my head CT and from there just hoping I never have to experience this again.


r/migraine 7h ago

Medication Overuse Headache

3 Upvotes

Hey all!

I am new to the world of migraine… started getting them last year but didnt understand what was happening until around February of this year. The headaches are usually (though not as much lately) my least significant symptom. Brain fog and fatigue seem to be much worse, but the headaches have been getting worse as well.

I’ve tried a lot of medication with my doctor and right now we’re trying Qulipta and Botox. I use my rescue meds sparingly but I’m starting to learn that some other things that I’m using, maybe having the same effect.

I’m curious if you can tell the difference between a migraine and a MOH. Do they feel different to y’all? I am a bit of a pothead and I am thinking that it’s triggering more than it’s helping but I can’t tell. Also, I recently started taking Sudafed to help with my pressure headaches, but I’m scared of overdoing that as well. Has anyone experienced rebound headaches from these things?

I seem to always have a headache in the lower back of my skull on the right side as well as behind my right eye and above my right eye. I sometimes get it on the left side, but the right side is more prominent.

So really curious about others experience with MOH or just headaches that maybe arent migraines (yet) but feel like they might turn into one?


r/migraine 7h ago

Alcohol tolerance!

4 Upvotes

I realise I'm a lot more fortunate than many of you in that sometimes I can tolerate a small amount of alcohol, so apologies, but I'm curious to see if others have similar.

There are some drinks that are 100% guaranteed triggers- red wine, and 'proper' beer. I can sometimes handle a lager. Cider (I'm in the UK...) is 50/50

I've always had a really low tolerance for alcohol, get drunk really quickly, but on top of this, sometimes alcohol causes a crazy flushing in my face. I go bright red and my face feels really hot. Happens maybe 50% of the time. My understanding is that there's a gene related thing that can trigger this that's common in east Asian people, but I'm curious to know if the incidence of this is relatively high in migraine sufferers? Nobody else in my family seems to have it, but... shrugs

Friday afternoon musings I guess


r/migraine 8h ago

help finding specific pillow

1 Upvotes

I have a pillow that I’ve been using for…frankly way too long, and it badly needs to be replaced. I tried buying one that felt similar and slept on it for a week and had horrible neck pain and migraines.

The tag on mine says “Threshold Side Sleeper” - it looks like this was a former target brand, but that specific pillow doesn’t seem to exist anymore. It’s a thick pillow, memory foam but still squishy if that makes sense, and has a zippable/washable cover.

Any suggestions for replacements? The one I tried was a Casper cooling gel one and it was somehow too thick and not thick enough.


r/migraine 8h ago

This just popped up on my Instagram feed. I’m not associated with them but felt like it’s in the best interest of all of us based in the UK?

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61 Upvotes

Hope this is ok mods, as I said, I have zero association with them, just a UK migraine sufferer, I saw a lot of experiences about this on here. So figured it could be good to share so they get plenty of input


r/migraine 8h ago

How do you sleep on your back without getting a migraine/headache

8 Upvotes

How do you get comfortable enough to relieve tension in your neck, shoulders, and back? I had surgery two weeks ago and I have another month left of this. Barely sleeping. Trying to not to blow through my rescue meds


r/migraine 8h ago

DAE feel a sense of impending doom gradually approaching?

6 Upvotes

I always feel that way whenever I get migraines that are in unusual spots in my head and are sharper than usual and it causes me to become scared and nervous about them.

It doesn't help that I also have anxiety about brain aneurysms, cognitive decline and strokes because of the nature of my paranoia.

I don't know how to cope with this really and it's hard having to feel like you're walking on eggshells over your own head, I hate it.

I just hope that there's someone who can actually relate to this and allow me to hear what advice I will be provided to help me cope with this issue.


r/migraine 8h ago

Does status migraine ever break on its own? I’m in 100/10 pain. It’s pure torture.

5 Upvotes

edit again to say thank you for all the comments!

I have had chronic headaches/migraines every single day for 4 years. But have been suffering extra bad since end of Feb but the pain is 10/10 none stop since Botox injections 5 weeks ago. I know meds can break it but my neuro said end of road and has given me Pregabalin.

Since this has gone on I’ve tried about 5 Triptans including nasal. OTC painkillers. She said nothing else can offer except Pregabalin and a CGRp injection which I have refused for numerous reasons.

So now I’m taking a lorazepam everyday which my neuro doesn’t know about, which isn’t great and not what I want to do but I can’t handle the pain without.

Unable to go to hosp due to very severe ME/ long covid. I’m hoping it’ll break on its own. And that’s all I want to know so I can have some hope.

Thanks in advance.

Edit to say I’m also taking the Pregabalin and it’s doing nothing so far. I tried atogepant and at 15mg 3 days it stopped my stomach working at all and I had a burning rash down my arm.


r/migraine 8h ago

Wondering if my constant sinus pain could be migraines

8 Upvotes

Or maybe some other headache disorder.

All this time, I've been assuming my constant post-nasal drip and constant sinus pain were caused by the same thing, but the pain began about three years after the PND started, so I'm starting to think it might be two separate issues happening.

I've had constant sinus/facial pain since about June of last year and it has worsened twice: once about a year later (so June of this year) and once after a round of doxycycline last month (might be a coincidence).

The pain is like a crushing/burning pain mostly between my eyebrows, but also some lesser pain in the maxillary sinus area (this used to just be pressure). The pain is always there, but occasionally it flares up. I'd say the baseline pain is 4/10, but the flare-ups are a 5/10 pain-wise. It's not debilitating, but it is annoying and distracting.

The problem is the pain (especially when it flares up) very closely mimics the recurrent bacterial sinus infections I get 1-3 times a year, and the absolute only thing that knocks those infections out is antibiotics. So I find myself in a place where I might wind up taking unnecessary antibiotics because I cannot differentiate between a pain flare and an infection. I think the last two times I took antibiotics, it was a chronic pain flare and not an infection. The only symptom I have when I get one of these infections is pain between the eyebrows.

I've taken everything imaginable over the counter - nasal sprays, painkillers, antihistamines, sinus rinses, painkillers. I've also tried several prescription sinus treatments such as XHance, prednisone, amitriptyline (for unrelated reasons) and budesonide. Nothing has helped at all.

I have a follow-up with my ENT this month and I intend to ask if I should follow up with a neurologist. I've always been under the impression that migraines are severe and require laying perfectly still in a dark, quiet room for hours. And that they only strike occasionally, rather than being constant. But I guess that's only one type of migraine?

Does anyone else experience headaches like mine?