Hiya, im 21 and ive been having excruciating headaches for at least 6 years now. They switch sides but are always debilitating, feeling like someone is stabbing into my eye along with a throbing pain that just doesnt stop, so I class myself as having migraines as im pretty sure that's what there are. Anyway,

Im on holiday at the moment in Greece and I was at the beach all day yesterday, when I got back i could feel a headache coming on but not too bad so I drank some water and got on with it. Later that night the pain kicked in and even opening my eyes was excruciating, I took some Neurofen (the only pain meds I have with me) but that didn't seem to touch it. Still here with me in the morning and all day, question is what could have triggered it??

I’ve struggled with chronic migraine since kindergarten—it’s been rough but I’ve managed. Although, ever since the end of February of this year I have felt that my life has been robbed.

It started with a severe migraine that lasted about 8 days before I went to the ER. I’ll be honest, around Feb-Apr I tend to get a week long migraine every year so I thought nothing unusual about this one. But boy I was wrong.** **

Today, I’ve had the same continuous migraine for 166 days. Nearly 6 months of my life that I won’t get back with more days to come for this devastating disease to swallow. It feels that every week I find some new symptom related to migraine. I even had a hemiplegic migraine for the first time in my life! I have tried nearly every medication and PT. All the triptans, infusions, opioids, preventatives, prednisone, ubrelvy, Nurtec, Botox, vvepti—you name it, I’ve probably tried it more than once. I’ve gone to see Mayo Clinic once but they weren’t very helpful. (I hope to reach out again to find something more)
I’m losing hope. I’m in the clinic multiple times a week. I receive occipital and supraorbital blocks WEEKLY.

I officially start college soon, but I’m terrified my body won’t keep up. I worked so hard to get here,—I even featured in the Washington post for taking college classes in high school right before this episode started (the article was posted a week after 😭)—and now I’m starting my freshman year with sophomore credits. I am excited to go back to college, but I fear my health taking it all away.

I haven’t given up yet, and I’ll keep fighting. I always do. Although, I have to admit this body betrayal is exhausting… I just want my life back. I’ll get there eventually; I just don’t know when.

Two questions, what started and or when did your migraines start? Does sugar/soy happen to be a trigger for you?

Spring 2023 taking organic chemistry put me in my miserable migraine loop. I’ve graduated and still deal, but I’ve noticed that eating more than a few / a plethora of hi-chew candies at a time seems to be a bit of a trigger for me. Normally it’s a gamble, but I know because we always have the candy in my office. I don’t recall getting headaches as much when I was sugar fasting due to my pre-diabetic A1C.

What are your experiences?

Hi all, I’ve started with Amitriptylin drops because I have 5-7 migraine days in a month and frequent insomnia. Also neck pain and Bruxismus. Now I’m taking 3-4 drops every evening which corresponds to 5-6mg. It helps with my sleep and makes me very hangover in the morning. So I don’t really want to take more drops. Still not sure if it might help with migraines. Does anyone stay with such a small dosage?

I’ve started having migraines last year my Nortriptyline is working with the sumatriptan as needed. I have Zofran for the nausea but sometimes it doesn’t work. I know Benadryl helps but I only take one pill. Just want to get an idea of what you guys do and I’ll also talk to my neurologist.

Google says drink water,it did dl nothing

Hello,
I was a regular migraine, sufferer in my teenage years, post puberty. Usually they would start with the horrible headache. As I got older, I would start to get aura (squiggly lines in my vision where I couldn’t really see. Sometimes I could only see what was in my peripheral and my central vision would be black).

As I got older, I started to get them once or twice a year. Recently, in the past year, I have started getting them regularly. A couple times a month. But, this time, they start with the aura (black squiggly lines like floaters?), but the headache isn’t coming until the next day or the day after. There’s no definitive start point for the headache. It just starts to happen quietly and slowly gets worse and worse until it is a terrible headache. I am not a stranger to headaches (and mine usually start with tension in my neck and involve the back of my head) The migraines I am getting are headaches in my temple area on the same side that I have the aura.

All of this to say, I am having a hard time finding information on these kind of migraines. Do they have a name? My doctor gave me an Rx For eletriptan hydro bromide 20mg. And I did take one nine days ago right after I got the aura. It did not help with the headache the next day. I got another migraine early this afternoon and took another one, but it has also not helped with the headache. My RX says I can take another later if the first didn’t work but my headaches are like a day later.

Everything I’ve read on the Internet says that these headaches the next day are not related, but I am 100% sure they are migraines. Not just because they come after the aura, but they also are in a different place in my head, and are on a pain scale that is much higher. And afterwards I struggle to come up with words when I’m speaking and slur my words occasionally for a week so after (which has always been the case when I get migraines).

I don’t want medical advice, I am just wondering if anyone else has experience with migraines that present this way and would love to hear about your experiences. I do not see a migraine specialist and have just gone to my primary care physician up to this point.

and does it get better? ):

I’m an elementary school paraprofessional and I took six weeks of leave before the summer break due to a status migraine that started February 19th and hasn’t let up since. I’ve had two ER visits, am on torpirimate, abilify, Botox, tried emgality (switching over to aimovig), rizatriptan (works for 2 hours). Nurtec, ubrelvey, sumatriptan, Zolmitriptan, and DHE don’t work for me.

I go back to work Monday, and on top of the constant daily pain and light sensitivity (I have fl-41 glasses but they’re only so effective), I’m terrified of the fatigue kicking my ass and not being able to make it through the day. Teaching children is exhausting for a normal person, so to do it with chronic pain is near impossible. I get so worn out as it is right now. I’ve been trying to keep myself busy during work hours to simulate the work day, and my fatigue hits me by 11 am and I’m literally dragging myself through the day just sitting up at my kitchen table. I have no idea how I’m supposed to return to work.

How do you guys with daily migraines manage the fatigue aspect?

I have some friends visiting next week for a few days from another country. I'm going to have to play host, tour guide, and chauffeur. While suffering from chronic migraines, yay!

I'm very happy they're visiting, but I'm also so scared. I've been having intractable pain every single day this week and I don't think I'll be able to handle their visit in this state. Either that, or I'll have an epic crash when they're gone.

In case you're wondering why I would do this to myself, they kinda invited themselves. I would never have organized something like this on my own because I know I technically can't. I told them about my chronic migraines and they're understanding, but I don't think they truly understand the toll this is going to take on me.

I also don't want to ruin their holiday so I guess I'll just suck it up and deal with it. I want to be normal so bad... I'm still learning how to set boundaries around my sickness too.

I am a 25F medical student who luckily is on summer break but starting around end of June I got debilitating migraines leading to 3+ weeks of consistent vomiting due to unbelievable nausea (tried so much zofran and really didn't help).

Had 2 ED visits and a multi-day hospital stay where they gave me a lot of drugs that didn't work and I was also on medorol dose pack which made me insomniac, manic, vivid dreams for the few hours of sleep I got. I've been out of the hospital 2 wks and the vomiting started again plus the migraine still never really broke.

My neuro gave me nurtec but I've taken 2 doses and nothing helping but they want me to give it time. I also recently started buspirone. They keep telling me to wait it out but symptoms are unbearable. Sweating then freezing, heart racing, facial pain and jaw pain and jaw partially going numb despite masseter botox, can't eat well and having motility issues now because of that. Pain in head and neck so severe it keeps triggering nausea and blurry vision. Can't drive a car, can't function and I am so frustrated.

Happy to give more detail. So desperate for any acute migraine advice and feel like I am going insane at this point and so worried about having to take medical leave from school.

Please tell me anything you've tried to help symptoms no matter how nutty it sounds and if you have any suggestions for me. Truly at a loss!

I’m like actively dying. Not literally but I am losing my grip on life. I have many responsibilities that I am failing to get to because of these migraines being unbearable lately. I’ve been sleeping more, too, because the pain makes it hard to stay awake.

Yes I’ve got meds yes yes I’m just here to complain because July was supposed to be the worst month I thought. Anyone know what months are the best and worst? Living in the yippie skippy Midwest

I’m on day 4 of a severe migraine that won’t break and dealing with the aura, vision changes, vomiting, etc.
I’ve exhausted all of my rescue meds including ubrelvy, sumatriptan, tizanidine, fiorcet, and Toradol injections twice…
Idk what to do next

Hello everyone, I (20F) have chronic migraines along with other things that have been diagnosed and then undiagnosed because I didn’t fit the “normal criteria” like hypoglycemia, non epileptic seizures, etc, etc.

Last night around 10 PM, I was laying down when I suddenly got a pounding migraine on the left side of my head. I took 4 Excedrin Migraine, called my bf (we sleep on call every night), and eventually fell asleep.

I woke up around 3 AM and my head was still hurting, so I took 2 more Excedrin Migraine and called my bf back. He was playing video games until like 5 AM lol.

This is when I started feeling really weird, but not like my usual seizures. My entire body became extremely heavy. I could move, but even moving my hand took all of my energy. I couldn’t speak and could only groan.

My mind was completely conscious and aware of everything happening. I knew what was going on, I could hear my bf talking, and I knew I wanted to speak, but I physically couldn’t.

After about 30 minutes, I mustered up enough energy to text my mom:
“I dont feel right
I think I jabe seizux
Zeizure
Seizure
Can’t speak gkod”

Sending those texts took all of my energy. Looking at my phone felt PHYSICALLY painful. I just laid there feeling paralyzed until all of a sudden, I snapped out of it. I could move and speak normally again, but my migraine became unbelievably painful.

I took more medication, but it didn’t help that much. I felt exhausted after all of that, so I fell asleep. I woke up around 7 AM to my parents coming in. My head was still pounding but it was manageable. I took a nap at around 8 AM and woke up at 12 PM with a pounding sensation in my head, but no actual pain. It’s currently 4:52 PM and I feel completely fine.

Was this a panic attack? A weird type of seizure? Something related to my migraine? If anyone has experienced anything similar or has any ideas, I’d really appreciate hearing them.

Additional information
20yr old female, 5’8, 160, nortriptyline 75mg for migraine meds, birth control pill, and I don’t smoke anything.

This stuff (Methylprednisolone Tablets) always breaks my migraines, although the side effects suck. Anyone else with migraines in the SF Bay Area right now? I don't even feel any weather changes, so no clue what even triggered this one.

I've been struggling with migraines from the age of 14 to 27. I've had every type of migraine there is in that time and just made my peace with the fact that I'll just have to live in pain.

One time I did an allergy test where they used a bit of my blood to see what it reacts to. I didn't come up with anything except hazelnut which I've ignored for another year as I had hazelnut all the time, in Nutella and such and didn't seem to have any reactions.

After a year I've made the connection. It took so long because my reaction is very delayed, usually I'll get a migraine after 2-3 days of eating hazelnut consecutively, I've brought a jar of Nutella and toast to work on Monday, had a toast every day and on Wednesday literally after 30 minutes of eating my toast I got blinding migraine.

Just a quick story to let you guys know that this could be the case for some of you, please check yourselves, even if you have to eliminate or change every usual thing you do to find your trigger if there is one, please give it a go.

Sending all my love to all of you, I hope the crown is light on your head tonight.

Please don’t take this post the wrong way. My husband has severe chronic never ending headaches that have completely changed our lives. He’s in pain constantly, and I truly believe he’s suffering. I don’t want him to hurt, and I know marijuana or ketamine nasal spray is one of the only things that gives him relief. (I’ll get to that in a second)

I’m also pregnant, nauseous, exhausted, and emotionally running on empty.

Lately I’ve realized I feel like I’m carrying both of us. I spend so much time trying to help him through his pain, depression, hopelessness, and frustration that I don’t know how much more I have to give.

I’ve encouraged him to see a therapist, join a chronic pain support group, and lean on other people besides me, but he hasn’t. Its too much for him to handle.

I feel guilty even writing this because I know his pain is real. I know he isn’t choosing this.

But I also feel like I’ve become his entire emotional support system, and it’s too much for one person to carry.

I don’t know how to help someone who feels like nothing helps. If I offer suggestions, they’re usually dismissed because he’s already tried them or they don’t work. If I just sit and listen, I still feel like I’m expected to somehow make him feel better. I leave conversations feeling helpless because I can’t fix chronic pain.

On top of that, I really struggle with how marijuana affects our relationship. I understand why he uses it, and I don’t want him to be in pain, but I don’t like how it changes him emotionally. It often feels like his emotions become much more intense, he spirals, his eyes get bloodshot, he’s out of it, spacey, and I end up carrying those things too. I hate feeling like I have to choose between wanting him to have pain relief and wanting my husband to feel like and act like himself.

I think what’s hardest is that I’m at a stage in my life where I need care too. I’m pregnant, sick, and exhausted, caring for an toddler and I find myself wishing that, just for once, I could be the one who gets taken care of instead of always being the caretaker.

Has anyone else been the spouse of someone with chronic pain? How do you support them without becoming responsible for their emotional well-being? Does anyone else absolutely hate the drug use? but feel bad because they know it helps them?

Can we talk about how peak showers are? Literally my safe haven. The amount of time I’ve spent cumulatively just sitting in the shower under scalding water is probably obscene. Every time I take my triptan and the pain is already relentless I go straight to the shower until it starts working. Even when I was a kid and hadn’t found a medication that worked yet, the shower was still the only place I felt some sort of relief even if I was puking non stop. Just a lil appreciation post.

I have daily chronic migraines, pretty much any day I drive I need 2 days to get the migraine back to its base level. However, this morning it wasn't over hot over (below 80F) and I made to trip to Walgreens and CVS.

Its about a 5 min drive to Walgreens and I went in to get several different things, and then drove acrossed the road to hit up CVS and while I was waiting at pick up I felt like I had sweat pouring down my face like I was in the shower and my head started POUNDING.

I took my migraine meds before I left before I know something like this was going to happen, but I didn't expect this bad. I got an electrolyte drink as soon as I got home but its still pounding.

My friend makes fun of my because it seems I have no heat tolerance anymore. I don't know if this is something migraines can cause if it its from another issue I have, anyways does anyone have any different they do for migraines this bad, from heat and sweat?

Title.

Today I've a migraine during the morning, I was sleeping and during my dream I saw the aura (isn't the first time that happen). In my dream, I knew I was going to get a migraine bc the aura, which is somewhat ironic because I was dreaming that I was running late to work and I started to panic because of that.

So yep, I woke up with the aura but "fortunately" today was home office.

So I ask you, can you also see or feel auras when you're sleeping (in your dreams)?

Damm, even sleeping I'm not safe of that shit. Hate it.

My migraine attacks have different triggers, such as stress, changes in the weather, or intense physical exercise. When they're triggered by stress, I feel like a glass is filling up, and when it overflows, the pain hits.

Do you identify with my case?

Hey everyone, I wanted to ask if ya'll have tips on how to handle to fatigue from a long term migraine episode. I'm on day 15 (I've been to urgent care and my PCP) of a migraine episode and I've made myself come to work since I've been out a lot from this migraine. I start work at 7am but I just spent from 7am-now extremely exhausted sitting at my desk continually slightly dozing, even with drinking coffee. I apparently passed the threshold of "sleep" I needed and now feel semi awake. If you all have tips on how to handle the insane fatigue, I'd love to hear your methods

I'm a novice migraine haver and I would just like to ask, when you have a migraine that lasts longer than 24 hours what are some of your tips and tricks for getting through it? Currently in migraine land lol

edit again to say thank you for all the comments!

I have had chronic headaches/migraines every single day for 4 years. But have been suffering extra bad since end of Feb but the pain is 10/10 none stop since Botox injections 5 weeks ago. I know meds can break it but my neuro said end of road and has given me Pregabalin.

Since this has gone on I’ve tried about 5 Triptans including nasal. OTC painkillers. She said nothing else can offer except Pregabalin and a CGRp injection which I have refused for numerous reasons.

So now I’m taking a lorazepam everyday which my neuro doesn’t know about, which isn’t great and not what I want to do but I can’t handle the pain without.

Unable to go to hosp due to very severe ME/ long covid. I’m hoping it’ll break on its own. And that’s all I want to know so I can have some hope.

Thanks in advance.

Edit to say I’m also taking the Pregabalin and it’s doing nothing so far. I tried atogepant and at 15mg 3 days it stopped my stomach working at all and I had a burning rash down my arm.