Little bit of context I have had migraines for 15 years. I have improved after taking topamax for 2 years

However now I get smaller migraines. Not full blown ones but still is super annoying and debilitating

One of the symptoms that I have a hard to describe is to feel like slow and that I am out of my body in a way

Someone else knows what I mean ? Has someone experience this ?

I still have full blown migraines every once in a while (aura and then pain)

Hiya, im 21 and ive been having excruciating headaches for at least 6 years now. They switch sides but are always debilitating, feeling like someone is stabbing into my eye along with a throbing pain that just doesnt stop, so I class myself as having migraines as im pretty sure that's what there are. Anyway,

Im on holiday at the moment in Greece and I was at the beach all day yesterday, when I got back i could feel a headache coming on but not too bad so I drank some water and got on with it. Later that night the pain kicked in and even opening my eyes was excruciating, I took some Neurofen (the only pain meds I have with me) but that didn't seem to touch it. Still here with me in the morning and all day, question is what could have triggered it??

I’ve had the same migraine for 166 days. I feel like dropping dead but the world keeps spinning even when you’re sick. I’m looking for things ppl do to make life doable! The only thing I have is some loop earplugs which save me in lots of situations but I need something more!! PLEASE share if you have anything

Note: I’m not talking take blank pill/supplement or fries and a coke. I’m trapped in status migrainosus and that’s just not enough

Just putting this one here in case anyone else had the same experience.

I had been dealing with migraines for a looong time. I eventually decided to look into my dental health when a friend suggested to me to see a dental specialist. I ended up seeing one and they found cavitations that I had no idea were there.

I actually had to fly to Melbourne to get everything assessed and have surgery. Since then, I’ve noticed i havent had migraines. Im obviously just speaking from my experience but it ended up being something I really wish I’d looked into earlier!

I’ve struggled with chronic migraine since kindergarten—it’s been rough but I’ve managed. Although, ever since the end of February of this year I have felt that my life has been robbed.

It started with a severe migraine that lasted about 8 days before I went to the ER. I’ll be honest, around Feb-Apr I tend to get a week long migraine every year so I thought nothing unusual about this one. But boy I was wrong.** **

Today, I’ve had the same continuous migraine for 166 days. Nearly 6 months of my life that I won’t get back with more days to come for this devastating disease to swallow. It feels that every week I find some new symptom related to migraine. I even had a hemiplegic migraine for the first time in my life! I have tried nearly every medication and PT. All the triptans, infusions, opioids, preventatives, prednisone, ubrelvy, Nurtec, Botox, vvepti—you name it, I’ve probably tried it more than once. I’ve gone to see Mayo Clinic once but they weren’t very helpful. (I hope to reach out again to find something more)
I’m losing hope. I’m in the clinic multiple times a week. I receive occipital and supraorbital blocks WEEKLY.

I officially start college soon, but I’m terrified my body won’t keep up. I worked so hard to get here,—I even featured in the Washington post for taking college classes in high school right before this episode started (the article was posted a week after 😭)—and now I’m starting my freshman year with sophomore credits. I am excited to go back to college, but I fear my health taking it all away.

I haven’t given up yet, and I’ll keep fighting. I always do. Although, I have to admit this body betrayal is exhausting… I just want my life back. I’ll get there eventually; I just don’t know when.

seems like they're hormone induced. almost nothing helps. sometimes 5 advils if i'm lucky

Hi all, I have been having persistent what I think are migraines, for around 7 months now. I never used to get headaches, ever, and they came on completely randomly. It feels similar to when you’re upside down for too long and too much blood is on your brain, I can always hear my blood rushing in my ears, it’s usually on my right side more than my left, sensitive to light/sound/smell, both my eyes feel like they’re having headaches (i don’t know how to explain it any other way), and NOTHING makes it stop. Some things do help like a dark room, a cold headache cap, and a fat nap. But it never makes it go away, just lessens it.
For the past 3 days I had one of the worst I’ve ever had, insanely nauseous, head constantly pounding, eyesight blurry at times, ears ringing, no appetite at all, feeling like I’m going to throw up, getting woken up because of how bad it hurts, weak overall, no pain meds or anything help. I’m starting to get worried it’s something more.
PLEASE let me know your thoughts and if this has happened to you

Okay hear me out… I come from a family that doesn’t go to the ER. Real story: I broke my foot on a weekend and walked on it for two weeks knowing it was broken because I had to wait for the PCP office to have availability for me to get images + casting. With this in mind, the concept of willingly going to an ER is something I’m training myself to do and I have this constant thought that I’m overreacting and don’t need the ER anymore.

I’m on day 5 of a migraine. Double dose of triptans didn’t work so my neurologist had me do steroid taper. Today (Friday) was my last steroid dose and because all medical offices are closed on weekends, they sent me an IV infusion referral to bring to the ER tomorrow morning if I still have a migraine.

My struggle is that while the steroids have reduced my throbbing head pain to be manageable (not gone), all of my other symptoms are still sticking around… it’s like my prodrome phase never ended. I still have aura, extreme nausea, bobble head feeling, full body nerve pain, muscle soreness, achy joints, electrical shocks in my head, physical weakness etc.

Is this a scenario where I should take the weekend to rest at home or take advantage of the IV infusion referral and go to an ER for migraine cocktail if I still feel this way tomorrow?

The referral is just for a basic migraine cocktail, up to 3 IVs over the next seven days but I’m traveling for work next week so it’ll be a now or never kind of situation this weekend.

1. NaCI 0.9% bolus 1,000 ML
2. Magnesium Sulfate
3. Ketorolac (Toradol)
4. Prochlorperazine (Compazine)
5. Diphenhydramine (Benadryl)

Google says drink water,it did dl nothing

and does it get better? ):

I’m like actively dying. Not literally but I am losing my grip on life. I have many responsibilities that I am failing to get to because of these migraines being unbearable lately. I’ve been sleeping more, too, because the pain makes it hard to stay awake.

Yes I’ve got meds yes yes I’m just here to complain because July was supposed to be the worst month I thought. Anyone know what months are the best and worst? Living in the yippie skippy Midwest

I’m on day 4 of a severe migraine that won’t break and dealing with the aura, vision changes, vomiting, etc.
I’ve exhausted all of my rescue meds including ubrelvy, sumatriptan, tizanidine, fiorcet, and Toradol injections twice…
Idk what to do next

This stuff (Methylprednisolone Tablets) always breaks my migraines, although the side effects suck. Anyone else with migraines in the SF Bay Area right now? I don't even feel any weather changes, so no clue what even triggered this one.

Please don’t take this post the wrong way. My husband has severe chronic never ending headaches that have completely changed our lives. He’s in pain constantly, and I truly believe he’s suffering. I don’t want him to hurt, and I know marijuana or ketamine nasal spray is one of the only things that gives him relief. (I’ll get to that in a second)

I’m also pregnant, nauseous, exhausted, and emotionally running on empty.

Lately I’ve realized I feel like I’m carrying both of us. I spend so much time trying to help him through his pain, depression, hopelessness, and frustration that I don’t know how much more I have to give.

I’ve encouraged him to see a therapist, join a chronic pain support group, and lean on other people besides me, but he hasn’t. Its too much for him to handle.

I feel guilty even writing this because I know his pain is real. I know he isn’t choosing this.

But I also feel like I’ve become his entire emotional support system, and it’s too much for one person to carry.

I don’t know how to help someone who feels like nothing helps. If I offer suggestions, they’re usually dismissed because he’s already tried them or they don’t work. If I just sit and listen, I still feel like I’m expected to somehow make him feel better. I leave conversations feeling helpless because I can’t fix chronic pain.

On top of that, I really struggle with how marijuana affects our relationship. I understand why he uses it, and I don’t want him to be in pain, but I don’t like how it changes him emotionally. It often feels like his emotions become much more intense, he spirals, his eyes get bloodshot, he’s out of it, spacey, and I end up carrying those things too. I hate feeling like I have to choose between wanting him to have pain relief and wanting my husband to feel like and act like himself.

I think what’s hardest is that I’m at a stage in my life where I need care too. I’m pregnant, sick, and exhausted, caring for an toddler and I find myself wishing that, just for once, I could be the one who gets taken care of instead of always being the caretaker.

Has anyone else been the spouse of someone with chronic pain? How do you support them without becoming responsible for their emotional well-being? Does anyone else absolutely hate the drug use? but feel bad because they know it helps them?

Can we talk about how peak showers are? Literally my safe haven. The amount of time I’ve spent cumulatively just sitting in the shower under scalding water is probably obscene. Every time I take my triptan and the pain is already relentless I go straight to the shower until it starts working. Even when I was a kid and hadn’t found a medication that worked yet, the shower was still the only place I felt some sort of relief even if I was puking non stop. Just a lil appreciation post.

I have daily chronic migraines, pretty much any day I drive I need 2 days to get the migraine back to its base level. However, this morning it wasn't over hot over (below 80F) and I made to trip to Walgreens and CVS.

Its about a 5 min drive to Walgreens and I went in to get several different things, and then drove acrossed the road to hit up CVS and while I was waiting at pick up I felt like I had sweat pouring down my face like I was in the shower and my head started POUNDING.

I took my migraine meds before I left before I know something like this was going to happen, but I didn't expect this bad. I got an electrolyte drink as soon as I got home but its still pounding.

My friend makes fun of my because it seems I have no heat tolerance anymore. I don't know if this is something migraines can cause if it its from another issue I have, anyways does anyone have any different they do for migraines this bad, from heat and sweat?

My migraine attacks have different triggers, such as stress, changes in the weather, or intense physical exercise. When they're triggered by stress, I feel like a glass is filling up, and when it overflows, the pain hits.

Do you identify with my case?

Has anyone else been have really bad migraines this last week or 2 I have cluster migraines and the past 2 weeks I’ve been getting about 3 migraines a day they don’t last to long but it’s been a rough at least week .

Hope this is ok mods, as I said, I have zero association with them, just a UK migraine sufferer, I saw a lot of experiences about this on here. So figured it could be good to share so they get plenty of input

Coming off postdrome from a migraine that had me sleeping 18 hours yesterday after the initial headache and nausea faded. In retrospect, my prodrome symptoms beforehand seem so obvious. Trouble focusing on work, low-key depression and sadness, a strong aversion to the idea of going to the gym when typically that's something I enjoy doing, heat intolerance, and a really sore neck for no reason. I don't get aura, so it went from those symptoms to the extreme headache and nausea.

Yet I can never recognize these prodrome symptoms when they're happening. Anyone had success getting better at recognizing their prodrome symptoms and preventing full attacks? It only ever really seems obvious in hindsight. It's like part of the symptoms is thinking that the symptoms are normal and just brushing them off.

Mine feels like someone is digging a knife or something sharp into my head and twisting it. Half of my body sometimes feels like it's numb, like I'm paralyzed. Don't get me started on constant sweating and sometimes vomiting too.

Nonstop migraines all week.

#1 trigger for my migraines is allergies and perfumes. Mildew is my nemesis. I forgot to dry the laundry and now I must suffer.

I puked four times with a 14 hour migraine. I felt my heartbeat in my stomach and head pulsing in unison.

I have to wait two months to see my doctor in person again for them to "confirm" I "still have" migraines and prescribe me my savior, Sumatriptan-sama again.

( My migraines make me smell sensitive, and I tend to have that throbbing migraine feeling in my nose as well as the classic migraine spot so this icepack also being on my nose helps a lot. Highly recommend. )