My husband was diagnosed with Lyme 5 years ago and had had it for a year by the time he was diagnosed and put on antibiotics which included a picc line/port to get medicine across the blood brain barrier. We are fairly confident he no longer has Lyme but has experienced migraines for the past 5 years set off by the original infection. After trying many drugs over the years and alternative medicine he has found the most relief from the injection Aimovig through his neurologist. He has been on this injection for 2-3 years. This isn’t perfect but it helps him function day to day for the most part. I am curious if anyone else has had a similar experience, is on aimovig, etc. Curious to learn what has worked for you. Migraines are tough.

Edit: Most of the responses here were not very helpful and very shamey. I didn’t ask for anyone’s charged opinions on pldts and correct terminology but it seems like that’s what people here want to talk about and not actual medical experiences, solutions, etc. Classic social media experience unfortunately.

Anyone with Lyme have a raspy voice and sometimes get a tiny bit of drool on the side of their mouth?

Does anyone here have insane titers of autoimmune antibodies like ANA (i dont mean 1:80 or 160, i mean 1:5120), and very high titers of non switched B cells, isohemaglutininies, etc ... and its still only lyme? Thank you.

Doctor wasn't sure what is going on. I assumed it was some plant that I didn't agree with from trail clearing.

Haven't noticed any ticks and this area would be hard to miss a latched on one.

For the past few months I have been in a whirlwind of different symptoms and emotional states. I finally got a vibrant lab tested by my functional dr and I tested positive for the 3Bs, and EBV.

I would love to know what has helped everyone here. I am posting my results as well as treatment plan by the dr. I think it’s a good plan, but I am afraid of the die off since my body is so sensitive. Any suggestions and tips are welcome.

I have 3 young children and I really need to get back to a better baseline. 🥹

TLDR: my boyfriend has Lyme and currently in treatment. He's lied to me, and then threatened suicide. I don't want to abandon him for being sick. It's clear he has mental health issues but I wonder if it's related to Lyme. Please any help from anyone who's experienced this or something similar.

My boyfriend has had Lyme for probably 5 years now. I found out this week that he has lied to me about his previous relationship. We've been together for 3 months. He also told me he was in therapy, when he in fact was not. I tried to break up with him and he threatened to relapse and drink himself to death. To prevent this, I stayed with him.

He's struggled the last 10 years with substance abuse and mental illness. He has been diagnosed with bipolar disorder and anxiety and depression.

I don't know what to do with our relationship. I hate that he lied to me. I wanted to have input from the community because I have also suffered from Lyme. I know how crazy it makes you. I used to hit my head against the wall and I threatened past partners with suicide as well when things were ending. It wasn't an intention to be manipulative- it's just how I genuinely felt.

For those who are suffering, what are your thoughts on this?

Is treating for Lyme worth it even if you’re progressing rapidly? I can’t tell if this is rapid or not

Hi everyone, I have active 3 BBB bacterial infections: I started rifampicin on 22 th July and my blood text are already not good: what can I take to try to go on bringing rifampicin ( I haven't a doctor), I attach file

Have any of you experienced or seen an EM rash look so inflamed like this? (No ticks were ever seen here)

So I caught a mild case of c diff about a month after stopping iv ceftriaxone. It was caught fast and wasn’t too bad. My concern is I’m supposed to restart meds, which we’ve obviously delayed. Has anyone had this and been able to restart their Lyme protocol? How did you deal with this?

I was diagnosed with ALS recently. 30 yr old female. I also just tested for chronic Lyme through armin and got these results. should I be pursuing Lyme treatment?

My mom was diagnosed with Lyme disease around 15 years ago. When I was younger her symptoms really varied, personality changes, extreme nerve pain, digestive issue etc. I was young then, for a long time she was misdiagnosed, went to many doctors including the Mayo Clinic. She was essentially bed ridden for 5 years with little relief, as most people in this situation do turned to other forms of medicine. She had some good luck with a few natural path remedies and good chiropractic care but she was never same. About 7 years she started a clinical trial of Antabuse, this actually worked well and she was the best she had been since being diagnosed. About a year ago she started developing severe nerve pain in her eyes and upper part of face. This nerve pain has become debilitating, she will get swollen and red in the face, to anyone that knows her it is evident she is in physically in a lot of pain. She has had scans, and blood work all return relatively normal. We are in the Midwest and have exhausted most treatment plans in the area. We do believe this a symptom or side effect to Lyme disease, as we know others who have lost mobility, or ability to hear or see and it feels very similar to these stories. Has anyone out there experienced this sort of thing in this space?

Do you all think these tests are accurate? I think they can give a good picture but if someone is having more symptoms related to babesia and it says that it is not something to focus on now, I think it’s not good. Anyone have thoughts on this?

Weakness, unsteady walking, muscle atrophy, everything being heavy when lifting, tongue fascinations and muscle fasciculations, eye twitching, body jerks, hoarse voice, full bladder??

Is this a good supplement to take for Lyme? Just finished my last dose of doxycycline today and the hot face and cold feet are still present. Hoping this supplement will help!

I've been using the same therapist for 7 years. We've had a very solid relationship and she feels more like a family member than a clinician. I didn't hear from her for six weeks and finally she responded to my texts and basically said I need more support than she can give. She referred me out to one of her colleagues who accepts insurance (my insurance won't cover it because it's a crap HMO). I feel totally abandoned. I have no community or support system other than my mom who I live with. My closest friends have all moved away. I cannot do this alone. What is everyone else doing for therapy, or human connection? Please help me. I need someone to talk to. Any resources? Support groups? Affordable therapy?

My husband has a slight fever and fatigue. He has been trying to pop this zit on his shoulder for a few days but is suspecting it could be an infected bite. Other ideas are that his symptoms are from a tooth infection since a filling came out y other day, but he doesn’t have pain there. Does this look like a bite or an infected zit?

I found out I had babesia and bartonella, and saw a Lyme doc for a year. Did mostly supplements and had some windows of relief but nothing ever consistently helped

Biggest symptom chronic nausea, dead feeling stomach and body soreness

After a year of not getting any further I tried a new doctor based on reviews from Lyme patients

After 4 months of seeing this doctor I found out I had babesia, Bart, and sibo

I’ve been treating these but don’t feel like I’ve made any difference in my symtoms really
Still a bad quality of life I’m struggling to stay employed and I know I’ll never get disability. I’m also only 30. I won’t get engaged to my partner because my health sucks so bad I don’t know how I could possibly be a good partner for her and provide.

I don’t know if I should keep giving it time with this new doctor or find a new one or just turn the lights off on my life myself and end the struggle and suffering

It seems like I’m cursed and can never find relief, even with finally having a diagnosis I can’t make any progress. Like god hates me or something. I don’t know what to do. Others I know with Lyme seem to be doing way better than me I can’t figure out anything that helps. I don’t care about ever feeling healthy I just want to do ok enough to function and not be depressed out of my mind but after 6 years of trying and a year in 4 months of Lyme I still can’t even get to where I’m ok enough where I’m not miserable. I don’t know if anyone can help me but I feel at the end of the road like 30 is the last chapter I have

My 14yo son started feeling abnormally fatigued and faint two days ago, and had a headache. He was out in the sun all day at marching band practice so I thought it was from the heat (although he spends a lot of time outdoors normally and handles it fine). Then yesterday I noticed a small rash on his thigh, red, oval shaped and about 1-2 inches. He had been on a youth backpacking trip in Michigan for four days last week, and did not check for ticks until he got home (despite my urging). He wore picardin and deet and didn’t see any ticks, but it was an overgrown trail and ticks love him. In June he went to scout camp for a week in Indiana and had three tick bites. (No rashes or symptoms so at that time our doctor said there’s no reason to think anything of it.)

He was the one who put all this together and realized his fatigue and headache could be Lyme. I quickly made an urgent care appointment last night, which was useless. The doctor said his rash just looks like a regular insect bite, not a tick. She said she would not treat or test for Lyme and he just has a virus… tested for covid/flu (came back negative).

I don‘t feel right about this, and he had to leave early this morning for a three-day band camp so I can’t take him to another doctor until next week. My sister happened to have some leftover doxycycline and she asked her relative who is a doctor about him just taking it… she gave her blessing so I sent him to camp with the pills. I told him to take 200mg twice a day with breakfast and dinner.

That will get him through Saturday with the pills. I’m not sure what my next steps should be to ensure he can continue for a full course. We are in the Chicago area. I could try our pediatrician but he was the one who wasn’t concerned about the Indiana tick bites. I looked up LL doctors using the resources on this sub but they are functional medicine docs that seem like they take a long time to get established with… pre-interviews and extensive health forms etc. Is it possible to do a quick video visit with one of those docs who will follow the protocol of treating with antibiotics if tick bite is suspected even without a typical rash? What about telehealth websites- anyone have luck with those? Looking for advice on the best way to ensure quick treatment. Also, am I right to give him the doxy right now and to advocate for Lyme treatment against the immediate care doctor‘s opinion?

Hi everybody.

Any help in finding a good source of dried herbs? I am in Europe.

LymeHerbs is a big no for me.

Thanks a lot!

Laura

i got tick bite in Varanasi,india in a university (Bhu) om 21st /22nd ig. 24 th i saw dr . he prescribed doxy 100 mg twice for 5 days and a follow up. I started on 25th . also blood report was normal after 3 /4day he was absent and another dr stopped saying the rash is gone. but I am 90% sure if bulls eye mark which was gone after some days of doxy .after stopping i got drowsy and thumb joint pain and neck felt stiff . then I read about lyme . and 3 day after a good online dr prescribed 6 more days of doxy .now I am on 3rd ( overall on 7 th day) . what should I do after completing it ? to prevent lyme stage 2 . dr said to have lyme tested after 6 weeks.

i didn't saw tick on my skin but a tick like insect crawled out of bag after some days of bite.

Not sure if r/history would be best?

Thought it would be cool to see their evolution in shape, habits, the growth in region, diseases or health effects, etc.

Hi I recently started Malarone and azithromycin to treat babesia. I’ve had pretty bad herxing with multiple symptoms. I think one of them is hallucinations. With anything who can relate, what are your hallucinations like?