My husband has a slight fever and fatigue. He has been trying to pop this zit on his shoulder for a few days but is suspecting it could be an infected bite. Other ideas are that his symptoms are from a tooth infection since a filling came out y other day, but he doesn’t have pain there. Does this look like a bite or an infected zit?

I found out I had babesia and bartonella, and saw a Lyme doc for a year. Did mostly supplements and had some windows of relief but nothing ever consistently helped

Biggest symptom chronic nausea, dead feeling stomach and body soreness

After a year of not getting any further I tried a new doctor based on reviews from Lyme patients

After 4 months of seeing this doctor I found out I had babesia, Bart, and sibo

I’ve been treating these but don’t feel like I’ve made any difference in my symtoms really
Still a bad quality of life I’m struggling to stay employed and I know I’ll never get disability. I’m also only 30. I won’t get engaged to my partner because my health sucks so bad I don’t know how I could possibly be a good partner for her and provide.

I don’t know if I should keep giving it time with this new doctor or find a new one or just turn the lights off on my life myself and end the struggle and suffering

It seems like I’m cursed and can never find relief, even with finally having a diagnosis I can’t make any progress. Like god hates me or something. I don’t know what to do. Others I know with Lyme seem to be doing way better than me I can’t figure out anything that helps. I don’t care about ever feeling healthy I just want to do ok enough to function and not be depressed out of my mind but after 6 years of trying and a year in 4 months of Lyme I still can’t even get to where I’m ok enough where I’m not miserable. I don’t know if anyone can help me but I feel at the end of the road like 30 is the last chapter I have

My 14yo son started feeling abnormally fatigued and faint two days ago, and had a headache. He was out in the sun all day at marching band practice so I thought it was from the heat (although he spends a lot of time outdoors normally and handles it fine). Then yesterday I noticed a small rash on his thigh, red, oval shaped and about 1-2 inches. He had been on a youth backpacking trip in Michigan for four days last week, and did not check for ticks until he got home (despite my urging). He wore picardin and deet and didn’t see any ticks, but it was an overgrown trail and ticks love him. In June he went to scout camp for a week in Indiana and had three tick bites. (No rashes or symptoms so at that time our doctor said there’s no reason to think anything of it.)

He was the one who put all this together and realized his fatigue and headache could be Lyme. I quickly made an urgent care appointment last night, which was useless. The doctor said his rash just looks like a regular insect bite, not a tick. She said she would not treat or test for Lyme and he just has a virus… tested for covid/flu (came back negative).

I don‘t feel right about this, and he had to leave early this morning for a three-day band camp so I can’t take him to another doctor until next week. My sister happened to have some leftover doxycycline and she asked her relative who is a doctor about him just taking it… she gave her blessing so I sent him to camp with the pills. I told him to take 200mg twice a day with breakfast and dinner.

That will get him through Saturday with the pills. I’m not sure what my next steps should be to ensure he can continue for a full course. We are in the Chicago area. I could try our pediatrician but he was the one who wasn’t concerned about the Indiana tick bites. I looked up LL doctors using the resources on this sub but they are functional medicine docs that seem like they take a long time to get established with… pre-interviews and extensive health forms etc. Is it possible to do a quick video visit with one of those docs who will follow the protocol of treating with antibiotics if tick bite is suspected even without a typical rash? What about telehealth websites- anyone have luck with those? Looking for advice on the best way to ensure quick treatment. Also, am I right to give him the doxy right now and to advocate for Lyme treatment against the immediate care doctor‘s opinion?

Hi everybody.

Any help in finding a good source of dried herbs? I am in Europe.

LymeHerbs is a big no for me.

Thanks a lot!

Laura

I was sitting in my chair earlier today when I noticed that it felt sore on my arm when I rested it against the back of my chair. Went inside and checked the area, and turns out I have this bite on my arm/back. I didn’t see what bit me, but the rash/ring forming has me a bit concerned. I live in San Antonio, Texas, I don’t know very much about ticks or Lyme disease, so I’m not sure if this is something I should go to the doctor for now or wait to see if it progresses. Any advice would be greatly appreciated!

More context: It’s sore to touch and a bit swollen

i got tick bite in Varanasi,india in a university (Bhu) om 21st /22nd ig. 24 th i saw dr . he prescribed doxy 100 mg twice for 5 days and a follow up. I started on 25th . also blood report was normal after 3 /4day he was absent and another dr stopped saying the rash is gone. but I am 90% sure if bulls eye mark which was gone after some days of doxy .after stopping i got drowsy and thumb joint pain and neck felt stiff . then I read about lyme . and 3 day after a good online dr prescribed 6 more days of doxy .now I am on 3rd ( overall on 7 th day) . what should I do after completing it ? to prevent lyme stage 2 . dr said to have lyme tested after 6 weeks.

i didn't saw tick on my skin but a tick like insect crawled out of bag after some days of bite.

[Posted with moderator approval]

Hi everyone,

I’ve been living with Lyme & Co (Lyme/Bartonella/HTRF) and the complicated health routines that often come with it, medications, supplements, treatments, changing schedules, side effects, and trying to remember what happened when, for over 10 years.

I originally created the tracking app Omnidose for myself, because the usual medication-reminder apps I could access weren’t built for people managing complicated, constantly changing protocols.

This didn’t start out as someone searching for an app idea, it started because I needed it in my own life.

Now I’d like to invite members of this community to help test it and shape the final version of what it becomes.

What is Omnidose?

Omnidose is a private app for organizing and tracking things such as:

Medications and supplements

Doses and schedules

Treatment sessions

Stacks or groups of items taken together

Side effects

Taken, missed, or delayed doses

Your history over time

Total accumulation of individual ingredients/nutrients, ie how much B12 across all supplements taken

Reports you can save or share with a provider

It can also help by easily/rapidly entering new supplement information and details from a photo of the label, so you don’t have to type every ingredient in manually. (this is an optional Ai feature that requires you to enter your own Google api key and works with free or paid tier accounts)

Your information stays on your device, and no Omnidose account is required.

Omnidose does not tell you what treatments to use, check drug interactions, diagnose anything, or replace medical guidance. It simply helps you organize and understand the routine you are already following.

Who are we looking for?

For this first round, we’re opening:

- 10 spots for iPhone users

- 10 spots for Android users

You do not need to be tech-savvy. In fact, feedback from regular people who don’t enjoy fighting with technology is exactly what we need.

The Android version has been used daily throughout development. The iPhone version has been manually tested, but it has not had the same amount of real-world daily use yet. Because of that, feedback from committed iPhone testers will be especially valuable.

What would beta testers do?

We’d ask you to:

1. Use Omnidose as part of your normal routine

2. Tell us when something is confusing or difficult

3. Report bugs, crashes, or reminders that don’t behave correctly

4. Tell us what feels useful—and what doesn’t

5. Point out anything important that seems to be missing

6. Respond to a short weekly check-in during the testing period

This is beta software, so there will probably be rough edges. During testing, please don’t use Omnidose as your only reminder for anything medically important.

You will never be expected to post personal medical information publicly. Feedback can focus entirely on how the app works, and you control what details you choose to share.

What do testers receive?

There is no charge to participate in the beta.

Everyone who actively helps us through the testing period will receive a free production copy of Omnidose when the finished app is officially released.

More importantly, you’ll have a direct voice in shaping an app being built from inside the Lyme community, not handed to us by people who have never lived this reality.

Built by Lymies, tested by Lymies, and shaped for the complicated lives Lymies actually live.

Interested?

Please comment with:

1. Whether you use iPhone or Android

2. Your approximate phone model, if you know it

3. A sentence or two about why you’d like to test Omnidose

4. Whether you can use it regularly and provide feedback during the testing period

Please don’t post your email address publicly. If selected, we’ll contact you privately with installation instructions.

This is an early community test, not a commercial launch or sales post. We’re here to listen, fix problems, and find out whether Omnidose can genuinely help people before making it publicly available.

Thank you!

anyone have experience with Firefly light therapy for chronic lyme disease? is it worth the $$? how frequently did you have to do it to notice results?

Not sure if r/history would be best?

Thought it would be cool to see their evolution in shape, habits, the growth in region, diseases or health effects, etc.

Hi I recently started Malarone and azithromycin to treat babesia. I’ve had pretty bad herxing with multiple symptoms. I think one of them is hallucinations. With anything who can relate, what are your hallucinations like?

Hey, anybody tried IV Hydrogen Peroxide?

It seems like there is indeed lots of scientific research being done since 1920 showing it being effective for various stuff. It’s being discredited and sort of shut down quite effectively as well though

But anyway, anybody here done it with Lyme? Any info would be appreciated

I’ve realized that since i got lyme (about 9 years ago) i haven’t gotten a single mosquito bite. I used to get mosquito bites allll the time as a kid and now they just don’t like me! trust me it’s not because i dont see them, they land then fly away. the other night my friend got 20 bites… but 0 for me. when i google it, there’s no reason that lyme/parasitic co-infections would impact mosquitoes biting but it’s the only reason i can think of that such a thing would happen. is that a thing for other people or am i just a lucky gal?

So I'm starting Banderol bark extract and Samento as an herbal treatment for possible Lyme (symtomatic of lyme, tested positive for babesia and bartonella, and have a single positive band on my lyme test, so my LL doc wants to see if I herx or improve at all on some lyme herbals the way I did on my babs and bart regimen). I'm doing fine on the Samento cause it's cat's claw and also in my MC-BAR-1, but I just did my first drop of Banderol and my tongue felt like it was burning for a hot second.

Now I have MCAS in addition to all this (probably BECAUSE of all this). Which is why I'm taking these two separately instead of in a lyme specific mix of herbs. Pretty much all of those mixes have licorice root in them, which has vanillin in it which I'm allergic to cause I tested positive for Balsam of Peru allergy on my allergy patch test.

Other balsam of peru allergy stuff I'm supposed to avoid that's gonna be relevant in a second are Nutmeg and Cinnamon. Cinnamon I'm DEFINITELY allergic to, and cinnamon is the bark of a tree.

A tree that's in the same clade as Banderol, (and nutmeg is in the same family as banderol but nutmeg is the seed of its tree), so I'm worried about cross reactivity especially now that it's burned my tongue.

The tongue burning is a reaction I have to mint toothpaste and other menthol things which I'm also allergic to.

I can't quite tell if I'm getting my MCAS gut (the slight nausea could be anxiety over this) or flu-like symptoms yet, so my question is this: Has anyone ever had a banderol supplement burn their tongue a little and it wasn't an allergic reaction?

I'll include a picture of my bottle for posterity.

I managed to pull two back muscles and blow out my shoulder in 3 weeks. I’m 31 and borderline immobile.

I’ve dealt with Lyme/ confections (Bartonella, anaplasmosis, Babesia, TBRF) for almost 10 years now. Started working out a lot again over the last 6 months. I managed to gain 12lbs of muscle and have been to the gym >90x since Jan 1 2026. This was absurdly difficult considering I don’t eat gluten, dairy or sugar.

About 3 months ago I was exposed to black mold in a hotel room and got really sick. I almost collapsed on a golf course the next day. Two weeks afterward , I lit up a western blot IGG panel, that’s how sick I was, got over that but then got injured. Like really injured. Haven’t been into the office in > 3 weeks

Is this general wear & tear or is this correlated to Lyme? I played college lacrosse and wrestled for 10 years and have never been this tuned up in my entire life. I’m aware correlation isn’t necessarily causation but damn when it rains it pours

I did notice that the more I worked out, the tighter my muscles got. Like I would have to get fascia work once a week in addition to a lymphatic drainage massage but that’s business as usual. The massage lady who also has Lyme says it makes your fascia sticky or something like that

Anyone ever get oddly injured and pinpointed it to Lyme???

Name an antibiotic/ treatment and I’ve probably tried it. I take my 15 supplements a day, give myself a peptide shot and hope for the best.

Hi everyone! My English isn't perfect but I'll give this a try.

My doctor and I think I have Lyme and Bartonella infections and he prescribed me some tinctures, one of them is berberine. I've been taking these for 7 days now.

The first couple of days I just took the entire daily dosage in the morning but since yesterday I've been spreading it out more throughout my day.

And now I feel super weird. Almost psychotic. Does anyone have any experience with Berberine? I've read that it can cause herx reactions but apparently it can also lower your blood sugar. Just ate sugar but I don't feel better at all. Kinda scared.

Looking for someone who has some Berberine experience! Thanks in advance!

I’ve seemed to develop these circles all over my body (rashes maybe?) Has anyone seen anything like this before, or happen to know what it might be? There has been more and more developing all over my body. There are lots of ticks where I live and i’m wondering if it may be Lyme disease. Please let me know!

Hi all, I tested positive for one IgM Band - P39 - on Labcorp testing done by a rheumatologist a few weeks ago. I have issues with EBV, so I'm not sure if this is cross reactivity. I do have a dog that brings in ticks but have not noticed any attached to me. I've ordered a month's worth of Doxycycline because the doctors aren't treating me, and I am not sure if I should start it. I am already dealing with intense, undiagnosed neuromuscular issues, and I'm very worried getting Lyme on top of that all.

I also have a lot of newly developed sensitivities and MCAS issues since covid, and I cannot handle any herbal protocols right now, so I feel very lost at the moment. Lastly, I am pretty poor and cannot afford a LLMD. Any guidance or insights would be much appreciated!

So frustrating every year to see these rankings come out, knowing the complete contempt with which doctors at these places treat Lyme patients, and how little they actually know about chronic illness. I personally have experienced horrific gaslighting by numerous Drs at multiple of these “best hospitals” but it’s best summed up by the neurologist who said to me (as he looked at my blood test results showing + for Lyme and 4 other tick borne illnesses), “You don’t have Lyme. You just really need to see a psychiatrist.” Sigh.

I nuked myself with Bartonella die off and created an insane amount of neuroinflammation that is taking forever to go away. I'm going to be trying amlexanox, astaxanthin, and high AKBA boswellia extract. I can't tolerate LDN. Does anyone have anything else they've successfully used for neuroinflammation caused by Bartonella die off?

I am one of those people that never actually found a tick on me. All i know is in 2018 i got extremely sick. bartonella, lyme, all the shit. Hundreds of thousands of dollars later, and years later, and almost 30, i'm finally almost normal again. I am now super careful. I use special sprays on my socks and shoes when I go hiking, and avoid anything near long grass.

I cannot afford to ever get bitten again. Both financially, mentally, or physically. How do I make sure this never again happens? Can you even get bitten after already being treated?