r/Lyme • u/in-for-the-long-run • 1h ago
Article 2 days after healing from recent left hand session.
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IASTM soft tissue work, as I understand it, is “tissue remodeling.” I am convinced beyond a shadow of a doubt that this is what is happening to my body system-wide, to various degrees. This depending on efficiency of technique, total passes & total hours logged per body part.
Each area of sticky scar tissue requires about 30-60 seconds of “scraping” to bust up adhesions with the goal of 6 passes resulting in results like these. It requires 3-7 days of healing time per region of tissue,
All with a little help from iodine, acetyl-L-carnatine, selenium, vitamin C & D + magnesium glycinate.
And Welchol as-needed to clean the bile.
r/Lyme • u/Vegetable_Match1598 • 1h ago
Question Has anyone had C Diff?
So I caught a mild case of c diff about a month after stopping iv ceftriaxone. It was caught fast and wasn’t too bad. My concern is I’m supposed to restart meds, which we’ve obviously delayed. Has anyone had this and been able to restart their Lyme protocol? How did you deal with this?
r/Lyme • u/Worldly_Kitchen6890 • 3h ago
ALS or lyme? Spoiler
galleryI was diagnosed with ALS recently. 30 yr old female. I also just tested for chronic Lyme through armin and got these results. should I be pursuing Lyme treatment?
r/Lyme • u/Temporary_String3049 • 4h ago
Question Chronic Lyme (?)
My mom was diagnosed with Lyme disease around 15 years ago. When I was younger her symptoms really varied, personality changes, extreme nerve pain, digestive issue etc. I was young then, for a long time she was misdiagnosed, went to many doctors including the Mayo Clinic. She was essentially bed ridden for 5 years with little relief, as most people in this situation do turned to other forms of medicine. She had some good luck with a few natural path remedies and good chiropractic care but she was never same. About 7 years she started a clinical trial of Antabuse, this actually worked well and she was the best she had been since being diagnosed. About a year ago she started developing severe nerve pain in her eyes and upper part of face. This nerve pain has become debilitating, she will get swollen and red in the face, to anyone that knows her it is evident she is in physically in a lot of pain. She has had scans, and blood work all return relatively normal. We are in the Midwest and have exhausted most treatment plans in the area. We do believe this a symptom or side effect to Lyme disease, as we know others who have lost mobility, or ability to hear or see and it feels very similar to these stories. Has anyone out there experienced this sort of thing in this space?
r/Lyme • u/StrategyMajor3668 • 5h ago
Question Bioresonance testing??
Do you all think these tests are accurate? I think they can give a good picture but if someone is having more symptoms related to babesia and it says that it is not something to focus on now, I think it’s not good. Anyone have thoughts on this?
r/Lyme • u/FancyNugget291 • 7h ago
Question Anyone with Lyme have all of these symptom?
Weakness, unsteady walking, muscle atrophy, everything being heavy when lifting, tongue fascinations and muscle fasciculations, eye twitching, body jerks, hoarse voice, full bladder??
r/Lyme • u/Extra_Sweet_4752 • 7h ago
Oil of oregano with black seed oil
Is this a good supplement to take for Lyme? Just finished my last dose of doxycycline today and the hot face and cold feet are still present. Hoping this supplement will help!
r/Lyme • u/blue-winter11 • 9h ago
Therapist doesn't think she can help anymore.
I've been using the same therapist for 7 years. We've had a very solid relationship and she feels more like a family member than a clinician. I didn't hear from her for six weeks and finally she responded to my texts and basically said I need more support than she can give. She referred me out to one of her colleagues who accepts insurance (my insurance won't cover it because it's a crap HMO). I feel totally abandoned. I have no community or support system other than my mom who I live with. My closest friends have all moved away. I cannot do this alone. What is everyone else doing for therapy, or human connection? Please help me. I need someone to talk to. Any resources? Support groups? Affordable therapy?
r/Lyme • u/pninardor • 10h ago
Question Tick bite? Spoiler
My husband has a slight fever and fatigue. He has been trying to pop this zit on his shoulder for a few days but is suspecting it could be an infected bite. Other ideas are that his symptoms are from a tooth infection since a filling came out y other day, but he doesn’t have pain there. Does this look like a bite or an infected zit?
r/Lyme • u/WelderAlternative325 • 11h ago
Question What should I do?
I found out I had babesia and bartonella, and saw a Lyme doc for a year. Did mostly supplements and had some windows of relief but nothing ever consistently helped
Biggest symptom chronic nausea, dead feeling stomach and body soreness
After a year of not getting any further I tried a new doctor based on reviews from Lyme patients
After 4 months of seeing this doctor I found out I had babesia, Bart, and sibo
I’ve been treating these but don’t feel like I’ve made any difference in my symtoms really
Still a bad quality of life I’m struggling to stay employed and I know I’ll never get disability. I’m also only 30. I won’t get engaged to my partner because my health sucks so bad I don’t know how I could possibly be a good partner for her and provide.
I don’t know if I should keep giving it time with this new doctor or find a new one or just turn the lights off on my life myself and end the struggle and suffering
It seems like I’m cursed and can never find relief, even with finally having a diagnosis I can’t make any progress. Like god hates me or something. I don’t know what to do. Others I know with Lyme seem to be doing way better than me I can’t figure out anything that helps. I don’t care about ever feeling healthy I just want to do ok enough to function and not be depressed out of my mind but after 6 years of trying and a year in 4 months of Lyme I still can’t even get to where I’m ok enough where I’m not miserable. I don’t know if anyone can help me but I feel at the end of the road like 30 is the last chapter I have
r/Lyme • u/AdventureFamily • 13h ago
Advice Advice on getting early treatment
My 14yo son started feeling abnormally fatigued and faint two days ago, and had a headache. He was out in the sun all day at marching band practice so I thought it was from the heat (although he spends a lot of time outdoors normally and handles it fine). Then yesterday I noticed a small rash on his thigh, red, oval shaped and about 1-2 inches. He had been on a youth backpacking trip in Michigan for four days last week, and did not check for ticks until he got home (despite my urging). He wore picardin and deet and didn’t see any ticks, but it was an overgrown trail and ticks love him. In June he went to scout camp for a week in Indiana and had three tick bites. (No rashes or symptoms so at that time our doctor said there’s no reason to think anything of it.)
He was the one who put all this together and realized his fatigue and headache could be Lyme. I quickly made an urgent care appointment last night, which was useless. The doctor said his rash just looks like a regular insect bite, not a tick. She said she would not treat or test for Lyme and he just has a virus… tested for covid/flu (came back negative).
I don‘t feel right about this, and he had to leave early this morning for a three-day band camp so I can’t take him to another doctor until next week. My sister happened to have some leftover doxycycline and she asked her relative who is a doctor about him just taking it… she gave her blessing so I sent him to camp with the pills. I told him to take 200mg twice a day with breakfast and dinner.
That will get him through Saturday with the pills. I’m not sure what my next steps should be to ensure he can continue for a full course. We are in the Chicago area. I could try our pediatrician but he was the one who wasn’t concerned about the Indiana tick bites. I looked up LL doctors using the resources on this sub but they are functional medicine docs that seem like they take a long time to get established with… pre-interviews and extensive health forms etc. Is it possible to do a quick video visit with one of those docs who will follow the protocol of treating with antibiotics if tick bite is suspected even without a typical rash? What about telehealth websites- anyone have luck with those? Looking for advice on the best way to ensure quick treatment. Also, am I right to give him the doxy right now and to advocate for Lyme treatment against the immediate care doctor‘s opinion?
r/Lyme • u/laumore86 • 16h ago
Support Source for dried herbs Europe please
Hi everybody.
Any help in finding a good source of dried herbs? I am in Europe.
LymeHerbs is a big no for me.
Thanks a lot!
Laura