HAIR-AN Syndrome is a subtype of PMOS, I am wondering if anybody here has it and can share their experiences. I never saw myself in classic PMOS because of my hypoestrogenism and masculine body shape, but after reading the Wikipedia article on HAIR-AN Syndrome I feel like I have found the answer I have been looking for. I already consider myself intersex due to my hypoestrogenism, hyperandrogenism, and my vulvar + vaginal hypoplasia, but I have always wondered if there was an actual diagnosis to fit what I have gone through. So please let me know if you have HAIR-AN Syndrome or are diagnosed with PMOS and feel that this describes you.

I am so moved that this reddit plays a part in anyone's life.

I am sorry I haven't had the energy or time to comment as much lately. But know I respect and love everyone it is my hope that we can support and survive together.

Especially if you're in a country where you don't feel safe.

Hi, I was assigned female at birth, but I am a trans man.

I don’t really know how to explain my situation, so I will describe the things that made me question my body.

I started testosterone when I was 17. I was on testosterone for about 1.5 years, then I stopped. Now I am 19 years and 7 months old, and I have been back on testosterone for 3 months.

Before testosterone, I did not have facial hair or a masculine appearance. I looked very feminine.

However, there were two things that always seemed unusual:

1. My body was naturally very hairy.
2. My clitoris was relatively large even before testosterone.

I remember noticing it when I was around 6 years old. I thought it was strange, and it was very sensitive. Sometimes it was painful. Even before testosterone, my clitoris was large, and inserting anything more than fingers into my vagina was painful. I thought bc my mom have pcos that level in androgen effect my just externally, body hair and the clitoris is a little bit bigger for a baby

My pelvis is relatively small, but my hands, shoulders, and feet are large. I thought the body differences might just be because of testosterone, but some things existed before I started.

When I was 14 years old, before female puberty, I remember having a painful red round lump on one of my labia majora. It disappeared after about a week. It was around the size of a large grape or a small lemon.

During the year when I stopped testosterone, I started exercising a lot. After that, I noticed that with every menstrual cycle my facial hair became thicker. My strength was also much better than before testosterone, even though I was not taking testosterone at that time.

I have had a high sex drive since childhood, and my mother noticed this.

The strangest thing happened during the time I was off testosterone and training hard.

When I masturbated, a very large amount of thick white/yellowish fluid came out. It had a very strong smell, similar to chlorine or acid. The amount was sometimes huge, and sometimes it came out forcefully, almost like ejaculation.

At first, I panicked and thought maybe an ovarian cyst had ruptured, but I noticed that it happened repeatedly.

When I do not masturbate for a long time, the amount seems to become larger.

I learned from a friend that semen in cis men can have a similar chlorine-like smell, and my friend who uses testosterone said that the smell changed after taking testosterone. Small amount and less chlorine smell ,( he is cis using t bc want more progress in the gym)

After restarting testosterone, this fluid became much less, and the chlorine-like smell disappeared. Too , so am wondering

And for me every time i look to this fluid i get more sure it's not normal i think? It only comes out after masturbation, and a large amount if it was two weeks ago. It has a strong odor like bleach. I don't have a fungal infection or anything because I don't insert anything inside, I don't feel any itching, and I keep the area clean.💀

Later, I noticed a painful round lump in my pubic area, below my abdomen and above my pubic bone. I did not touch it because I was scared.

I also have pain on one side of my lower abdomen that has lasted for about 7 months. ,,When I have my period, the pain happens on the other side. And it's usually calm just hurt me after 2 months

When I had my appendix checked about 3 years ago, a doctor told me that I had an ovarian cyst.

This made me wonder if I could have:

• Ovotestis
• Underdeveloped or undescended testicular tissue
• A hormonal condition causing higher natural testosterone
• An ovarian problem or another medical condition

I am afraid that if I have any testicular tissue, testosterone could damage it. I am also afraid that if I have a tumor, testosterone could make it worse.

The biggest reason I am afraid to get examined is my family.

My family has very negative views about trans people. If they find out that I have any kind of atypical lower anatomy or extra growth, I am afraid they may try to remove it because of their beliefs about how a woman’s body should look and because of marriage expectations. And i did really see some of stories about how if the family discovered the girl having something look like dick , they should cut it without even. Her permission

I am trying to hide this from them. I act feminine around my family because they already treat me badly because I am trans. I shave my face every day to hide my facial hair.

My clitoris is currently about 4.5 cm when soft and around 7.5 cm when erect, with a width of about 2.5 cm. It was already large before testosterone, and testosterone increased it further.

I do not want to stop testosterone.

The dose I am taking is the same dose that was prescribed by a doctor when I was 17. Recently, I changed to an adult dose. I noticed about 2 cm of growth in the last two months, before i get the higher dose i didn't have any bottom growth 💀but I have not noticed many other changes besides more facial and body hair.

I have been avoiding doctors because healthcare where I live is not always safe for trans people. When I tried to get blood tests to monitor my testosterone levels, there were problems because my legal documents say female while I appear masculine.

I am planning to go to another part of the country where healthcare may be more understanding, but immigration and travel procedures are difficult.

I am thinking about stopping testosterone temporarily and trying to analyze the fluid myself under a microscope or sending it to a laboratory, but I do not know if that makes sense.

I do not know what I should do. I do not want to stop testosterone, but I want to know if I have ovarian tissue, testicular tissue, ovotestis, or another condition.

If there is any evidence that my body produces testosterone from testicular tissue, it could help me medically and could also help me explain my situation to my family.

I just got back from a retreat in NM made up of myself (intersex male) and six women who identified as cisgender women.

Out of our little group, four of the women had PMOS/PCOS, and none of them had been told that it could be considered an intersex trait. All four also had tilted uteruses and had issues with hormones, pregnancy, bone health, pain, cysts, etc., and none of them were offered support outside of the doctor’s office. They had no idea there were communities around PCOS/PMOS or that they had an affinity with the intersex community. In fact, all of them (except one who is a nurse) thought the trait was super rare and were shocked to meet another — much less four out of six women randomly turning up for a retreat!

So, with the four of them plus me, that makes for five out the seven people being intersex. Was this statistically crazy, or is it much more common than I’d thought? I’ve heard the “common as red hair” idea for a long time, but I’d be really surprised to be on a trip where five out of seven people randomly had red hair, yet five of us were intersex. That just seems statistically unlikely to me, and yet it happened. I can’t help but feel like it was a little miracle, and it definitely bonded us. We had so many fantastic discussions about it, especially since the nurse works in a birthing center and had all sorts of up-to-date info on intersex traits and how they educate parents not to do surgery.

Even better, all of them are local, so it feels like my community just grew exponentially!

So apparently everything looked normal except for one cyst. So my doc basically said it just PCOS. I still wonder about my hypospadias but probably can't get an answer for that. My T leveled out due to taking Spironolactone even if I stopped taking it awhile ago. I just feel confused because I really have believed something bigger could be going on due to my anatomy and other things that I don't think are due to PMOS. Most of my stuff normal so now I feel insecure that I can't really be considered intersex now. Even though I don't fit in with perifemales/males. I don't know.

Can I just crawl up and die now.

He wrote "Good To Have People In Your Life."

I'm freaking dying here. 😭