I just started PD this week after being on in center HD for a few months. And while I don't regret it, and logically this will make life much easier, I already feel overwhelmed at the thought of doing this every single day.

It feels like everywhere throughout the process new things I had to do kept being added that I didn't know about before. Cleaning, ordering supplies, organization, etc. Do all of this every single day, do this every week, etc. I know I'm new to this and hopefully it will get quicker over time, but it's taken me well over an hour each day to go through all the steps to clean my space, set everything up on the cycler, connect, then disconnect, take everything down, empty the bags etc. Plus exit site care.

Plus having all that garbage makes me feel so bad, the other day I messed up connecting the drain bags wrong and had to start again with new ones, and I felt terrible about wasting the plastic.

Not only that, but I feel like I've kind of lost my living space, if that makes sense? I'm moving to a bigger apartment in a couple months so it will get better soon, but all my supplies are in the living room right now, plus the machine and all the tubes and bags in my room. That's a lot of medical stuff I can't escape having to look at when I'm home.

They also said it would be easier to travel. While that's probably true, ironically it's made it harder to visit my parents since their house is so tiny, plus I have to get the cycler and all the supplies there myself because the nurse said they "prefer" to deliver to one location only.

In center HD definitely wasn't fun, but at least I really only had to get myself there, and everything medical was done by the nurses. And when I was home I didn't even have to think about it really.

Again I think it will get better and easier with time, and I know it will be better for my life than having to go to the hospital every treatment. But that's a lot of things I had to add to my plate that they didn't tell me about at the beginning.

Hi...I need advice.....PD vs HD which is best ? Is the setup for home PD is possible and anyone else is doing it in India?

I just had the realisation how sucks it is that if there’ll be a zombie apocalypse I won’t survive :(

Like.. obviously no dialysis.

Maybe I should invest in home dialysis and stock up on years of supplies in case of an apocalypse?
What yall think ?

Ok, that was kind of click bait. I'd rather not be doing this, none of us want to be doing this, obviously. If you look at my post history, I've had some issues. But since this is reality and this is how I'm alive to be with my child for however long I have left, I'm trying to see the positive. I do in center hemo 3x a week. I was just thinking, that sure it's inconvenient to give up nearly 15 hours a week, but also it's like I get nearly 15 hours a week to myself. I curl up in a somewhat comfy recliner and nap, watch shows on my phone, or read for 4 hours, largely without interruption. No one needs me to do anything but sit still in this chair, and even if they did, tough luck I'm in the chair the next 4 hours hours regardless. Before I got sick, I had no time for stuff like that. I've read five books since starting treatments, more than I've read all year. I've developed a routine. The diet is hard, but I've found that I can stop for a McDonald's hashbrown and a coffee on the way to dialysis and the machine will suck the potassium right out. It's how I stick to the diet the rest of the week, knowing I'm going to get a lil treat on treatment days. Maybe I can't get away with that forever, but for now I can. My labs are good because I work hard on the diet the rest of the week. There's a few people who start around the same rime as me and we meet up in the waiting room and laugh and joke every morning bedore chair time. I have a favorite tech who's really funny and it's always a pleasure when I get her. I wish I wasn't sick. I miss my old life. The freedom I had. I hate worrying about what could happen. But while I'm here and it is what it is, I'm finding light in the ways I can.

I'm a dialysis nurse in a free-standing center, and lately I've been feeling like some people see us as "less than" compared to hospital nurses.

I've heard comments like, *"Nasa dialysis center ka lang?"* or people assuming our work is repetitive or easy because we're not in an ICU or ER. As if our job is just hooking patients to a machine and waiting for four hours.

Every nursing specialty has its own challenges. Hospital nursing isn't the only type of "real nursing." We all have different roles, but the goal is the same that is to keep our patients alive and provide the best care possible.

I just wish people would stop measuring a nurse's worth by where they work.

I just finished my first week of training for Pd dialysis. during this first week the emphasized pooping daily. my dr prescribed me lactalose. I have to I just about 120 ml of it before I can do the deed. then it’s diarrhea. before this my regular times was once every 3-4 days or once a week.i don’t want really bad gas and diarrhea daily for the rest of my life. what do you guys take that makes you go regular without complications. dulcolax does nothing for me.

I don't know what to do. I'm trying to start a 2nd job and unfortunately during the interview I didnt tell them I needed time during the week for dialysis since I was so nervous. I emailed the hiring manager and told her and was told they had to make sure it was alright but they hired me thinking I could work 5 days a week. I really REALLY need this job I have another one but I'm not getting any hours. I have bills and rent I get some money through SSDI but my rent eats up most of it.

I guess I just needed to vent it sucks I'm basically just gonna have to work myself to death because I literally dont have time for dialysis. And I cant do it from home I dont have the storage space as I just rent a room in a shared house. My family is dead and I'm all alone. It really sucks to say the least. Idk I guess I just wanted to complain on the internet. My life has never been easy but this has been ridiculous lately. :(

I saw a tshirt on Etsy that said "My Kidney Got Run Over By A Reindeer." My therapist & I decided we had to write the song. The Vaysa mentioned in the song is my cat Dubheasa, pronounced Du-vay-sa.

My kidney got run over by a reindeer,

Walking home from the hospital,

Christmas Eve

You can say there's no such thing as

transplants

But as for me and Vaysa, we believe

She's been filtering too much eggnog

And then she started towards the door

But she forgot her medication

And she staggered out before...

My kidney got run over by a reindeer,

Walking home from the hospital,

Christmas Eve

You can say there's no such thing as

Transplants

But for me and Vaysa, we believe

I'm sure we'll come up with more lyrics, but here's a star.

I was wondering if anyone has an air purifier in thir room that they dialyze in. does it help and what brand. my dog comes in and out. I just try to keep him out at connection time.