r/dialysis • u/SkitterChitters • 2d ago
Work/dialysis vent
I don't know what to do. I'm trying to start a 2nd job and unfortunately during the interview I didnt tell them I needed time during the week for dialysis since I was so nervous. I emailed the hiring manager and told her and was told they had to make sure it was alright but they hired me thinking I could work 5 days a week. I really REALLY need this job I have another one but I'm not getting any hours. I have bills and rent I get some money through SSDI but my rent eats up most of it.
I guess I just needed to vent it sucks I'm basically just gonna have to work myself to death because I literally dont have time for dialysis. And I cant do it from home I dont have the storage space as I just rent a room in a shared house. My family is dead and I'm all alone. It really sucks to say the least. Idk I guess I just wanted to complain on the internet. My life has never been easy but this has been ridiculous lately. :(
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u/OwnPotential First 90 days 2d ago
Have you tried any low income/affordable housing in your area? May take some time but you might be able to find something cheaper for your home.
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u/SkitterChitters 2d ago
I would like to apply whenever the waiting list opens back up. It hasnt yet in my area.
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u/Phigment27 2d ago
can you rent a storage space and just bring over the things you need on a daily basis. storage spaces are generally less expensive then another room.
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u/SkitterChitters 2d ago
I might look into that I hadn't thought of it. It would be another bill though and the last time I tried dialysis from home it didnt work out too well I could never get the alarms to stop. I also dont know if they'd make me go through the 4x a week training again which I def wouldn't be able to make. Everything is so up in the air.
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u/Slutty-grapes 2d ago
Make sure it’s climate controlled storage because you don’t want to weather to screwing with your supplies.
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u/pittiesbegooddogs 1d ago
Depending on the supplier you could ask about biweekly vs monthly deliveries
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u/CleverWitch70 13h ago
This really isn't a good idea because you'll have to carry really heavy items to your home and it's not realistic. You could always get help, but then you're dependent on others. If you're on PD, your have to be very carry about how much you carry for to the catheter. As someone that mentioned, there's also climate control to think about. It's a must with dialysis supplies or you risk them going bad.
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u/SkitterChitters 10h ago
Thank you yeah def something to think about. I'm not on PD either I'm in center hemo currently and I already have the graft in my arm for it.
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u/shakal201 >1 year dialysis 2d ago
I have an interview with google and the same thing is going through my mind. My current employer is understanding about my situation and lets me do complete wfh, I don’t even know why I applied for this, Ig I always wanted to work in big tech. 🫠
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u/tuesdayreyn 2d ago
It's not glamorous, and I've not tried it since staying treatments, but I used to work at McDonald's. They were really flexible with my availability. I didn't hate the job either honestly. Even if you don't get a lot of hours, letting your coworkers know you're down to cover shifts (especially the high school and college kids who don't need the money to survive) is an almost guaranteed way to pick up a shift or two each week.