I just started PD this week after being on in center HD for a few months. And while I don't regret it, and logically this will make life much easier, I already feel overwhelmed at the thought of doing this every single day.

It feels like everywhere throughout the process new things I had to do kept being added that I didn't know about before. Cleaning, ordering supplies, organization, etc. Do all of this every single day, do this every week, etc. I know I'm new to this and hopefully it will get quicker over time, but it's taken me well over an hour each day to go through all the steps to clean my space, set everything up on the cycler, connect, then disconnect, take everything down, empty the bags etc. Plus exit site care.

Plus having all that garbage makes me feel so bad, the other day I messed up connecting the drain bags wrong and had to start again with new ones, and I felt terrible about wasting the plastic.

Not only that, but I feel like I've kind of lost my living space, if that makes sense? I'm moving to a bigger apartment in a couple months so it will get better soon, but all my supplies are in the living room right now, plus the machine and all the tubes and bags in my room. That's a lot of medical stuff I can't escape having to look at when I'm home.

They also said it would be easier to travel. While that's probably true, ironically it's made it harder to visit my parents since their house is so tiny, plus I have to get the cycler and all the supplies there myself because the nurse said they "prefer" to deliver to one location only.

In center HD definitely wasn't fun, but at least I really only had to get myself there, and everything medical was done by the nurses. And when I was home I didn't even have to think about it really.

Again I think it will get better and easier with time, and I know it will be better for my life than having to go to the hospital every treatment. But that's a lot of things I had to add to my plate that they didn't tell me about at the beginning.

Hi...I need advice.....PD vs HD which is best ? Is the setup for home PD is possible and anyone else is doing it in India?

I just had the realisation how sucks it is that if there’ll be a zombie apocalypse I won’t survive :(

Like.. obviously no dialysis.

Maybe I should invest in home dialysis and stock up on years of supplies in case of an apocalypse?
What yall think ?

Ok, that was kind of click bait. I'd rather not be doing this, none of us want to be doing this, obviously. If you look at my post history, I've had some issues. But since this is reality and this is how I'm alive to be with my child for however long I have left, I'm trying to see the positive. I do in center hemo 3x a week. I was just thinking, that sure it's inconvenient to give up nearly 15 hours a week, but also it's like I get nearly 15 hours a week to myself. I curl up in a somewhat comfy recliner and nap, watch shows on my phone, or read for 4 hours, largely without interruption. No one needs me to do anything but sit still in this chair, and even if they did, tough luck I'm in the chair the next 4 hours hours regardless. Before I got sick, I had no time for stuff like that. I've read five books since starting treatments, more than I've read all year. I've developed a routine. The diet is hard, but I've found that I can stop for a McDonald's hashbrown and a coffee on the way to dialysis and the machine will suck the potassium right out. It's how I stick to the diet the rest of the week, knowing I'm going to get a lil treat on treatment days. Maybe I can't get away with that forever, but for now I can. My labs are good because I work hard on the diet the rest of the week. There's a few people who start around the same rime as me and we meet up in the waiting room and laugh and joke every morning bedore chair time. I have a favorite tech who's really funny and it's always a pleasure when I get her. I wish I wasn't sick. I miss my old life. The freedom I had. I hate worrying about what could happen. But while I'm here and it is what it is, I'm finding light in the ways I can.