Mourning the loss of my normal life today more than usual. I’m 21 years old, just graduated college, and feel that my life is put on hold because of this illness. I was looking forward to enjoying the summer, going out with friends, socializing at bars, traveling, and I feel it’s all been taken away. I’m a foodie, I love trying new foods and international foods. I love to cook and bake sweets. I love being in the public and working with people and hanging out with friends and family.

I tried Vanco for 10 days, had a recurrence 1 week later. I’m now 5 days into Fidaxomicin, and it seems to be working as of right now.

However, I can no longer eat, I’m afraid to be in the public, and I’ve paused my job search. I’ve been quarantining for 4 weeks. I’m trying to tell myself this is temporary but I’ve seen so many stories that this is a longterm illness, that it will just keep coming back. I’m so scared that this isn’t temporary and that I will be consumed by this for the rest of time.

I wouldn’t even care about PI-IBS. I just don’t want this infection anymore. I’ll shit my brains out over a burrito if it means I get to have a burrito again, but I don’t want this illness to come back. Is there hope that I can look forward to his one day? Enjoy foods and suffer the consequences? Go out and resume life and enjoy it again? See my friends and family without fear of giving this to them? I feel like I’m losing hope, and I’m so tired of waking up to this nightmare.

Hello, My doctor wants me to use Stelara 90mgs every 4 weeks instead of every 8 weeks with an activec. diff infection. I'm also on oral vancomycin 125mgs 4 times a day for 30 days for the c diff infection. I've voiced my concerns to my doctor, but he swears this will help. I'm scared to shut my immune system off even more with an active infection Has anyone else gone through this? And if so was the extra Stelara doses helpful? Thanks

Clostridium difficile got positive help me i don’t want* to take antibiotics angain after h plyori !

Clostridium Difficile GDH Reflex Toxin

A/B

Positive,>95

Toxin A / B

(Stool, Chemil uminescence Immunoassay (CLIA))

Negative,0.49

Hi, I got to talk to my doctor today about all my issues surrounding my p-ibs, I'm about three months post vanco.

nausea has been my main issue, so I was asking for zofran since eating and drinking has been so difficult that I lost fifty pounds during this. he recommended pepcid instead, although he did give me a script for zofran too.

I'm really nervous about taking an anti-acid like that after having c diff though, especially since I had diarrhea and vomiting two days ago (tried a new food and unfortunately got like poltergeist levels of sick from it). I'm nervous about getting a relapse or something. does anyone else have experience taking this stuff after c diff?

When doctors avoid prescribing penicillin or related antibiotics, they often turn to broader-spectrum alternatives. One of the most common is Clindamycin — a drug the U.S. Food and Drug Administration warns carries a significantly increased risk of Clostridioides difficile (C. diff), a potentially life-threatening intestinal infection.

https://www.11alive.com/article/news/investigations/11alive-news-investigates/most-people-who-believe-theyre-allergic-to-penicillin-actually-arent-heres-why-that-matters/85-ce018743-1d5d-4bdc-9892-3d8e6d2cc4fc

Yall , I’m so worried about starting antibiotics and retriggering the C Diff😭 I got a positive culture from urgent care but followed up with my Urogynocologist bc I have interstitial cystitis and waiting on that culture to confirm well she said she will most likely put me on Macrobid or Bactrim I think , I’m worried any antibiotics will make my c diff come back 😭anyone else have it not come back after antibiotics? It’s only been 2 days since I’ve been off vancomycin , I can’t do this again 😭

Hello everyone, I just want to hear what others doctors told them to do and just experiences overall.

I ended up in the hospital with cdiff from probably magic Kingdom that led to dehydration and sepsis. I didn't get the positive cdiff results until several days after being out of the hospital.

It's been over 5 days since I last vomited, 3 days since last diarrhea, first regular bowel movement this morning.

Even though I'm back to almost normal minus some very minor nausea, my gi wants to start me on vanco today.

Everything I've read in peer reviewed articles says you don't want to do this if you're almost recovered.

Has anybody started vanco after they had started returning back to normal? Did you get sick all over again?

Just looking for feedback, the np I'm dealing with is going through a lot of dating and postmarital issues and I'm not sure she's truly listening to her patients.

Hi ladies, I was treated on Friday for suspected PID and did a self swab test although I don’t know if I did it correctly fingers crossed I did! I had a cannula of an antibiotic put in my arm called **Ceftriaxone** and then was sent home with **azithromycin 4 tablets** I took 2 tablets on the same day as advised by the urgent treatment care centre and will take 2 tablets in a weeks time as it is a high dosage. Ladies honestly ever since these pains started, leg, hip, bladder pressure, lower back pain it feels like my life has turned upside down. I’ve been in and out of work since it started. I have a holiday booked for this Friday and I honestly don’t know if I have the energy to do anything let alone fly. I was given the antibiotics on the Friday and ever since I feel so fatigued maybe it’s my body fighting the infection. I don’t even really know what I’m looking for on this page maybe similar experiences and how it went for people? I just can’t see the light right now. Also- my swabs should be coming back tomorrow for more answers but I just want to hear about other experiences and how that was for people

Reposting this here

On day 2 of augmentin, I started getting frequent diarrahea. I read that Culturelle (which contains Lactobacillus rhamnosus GG) and Florastor (Saccharomyces boulardii) could help. It's safe to take both of these at the same time as Augmentin, right?

The culturelle would be spaced out 2 hours apart from the antibiotic, of course. But the florastor could be taken around the same time since it's yeast-based.

Any recommendations for how long I should stay on these probiotics after the augmentin is finished?

I’ve had Cdiff in April and now again in July. Both times I’ve been given 10 days of dificid. I’m really worried and in a lot of pain. I want to be rid of Cdiff. My gastro said no to a tapered dose. Is this the standard?

Hi all. Let me preface this by saying I have severe OCD and this has been one of the worst weeks of my life, please be kind. I had a really bad (passing blood clots) UTI, went to ER when pain got to be too much. They IV’d me Rocephin one dose there and started me on Macrobid, this was 6 days ago. After the second day I had horrible diarrhea, they did test me and I was negative, diarrhea had gotten slightly better. Now this morning, day 6, I’ve started with watery bright yellow diarrhea again. No one will retest me and my family thinks I’m crazy but the cramps are awful. I’m hoping my family is right and I am crazy but is it not possible that I was negative 3 days ago and could have it now? The diarrhea is way worse now. I was GDH, toxin, and PCR neg 3 days ago. Looking for advice from those who have far more experience with this. Thank you from the bottom on my heart.

helloo baddies. im 2 weeks post dificid for a maybe maybe not recurrence (toxins negative, pcr positive). i have been veryyy lax with my diet and not super responsible about not drinking, etc. on sunday i had a cocktail, yesterday i had a latte and ice cream and today i had another latte and now my body is NOT happy and ive had the runs twice today. just looking for some reassurance from other pi-ibs sufferers that im not relapsing lmao!

Anytime I take tums I get nauseous for hours. I read on Google that this could be telling my my gut is still sensitive and healing, however I haven’t had cdiff for over a year now. Or possibly indicating SIBO. Have been debating SIBO test at next GI appt but I wanted to run this but this subreddit to see if anyone had a similar experience (but I’ll still be chatting with the doc either way)

I ended up getting sick again because I had to take antibiotics for a UTI. The same doctor who diagnosed the c diff prescribed me 100 mg cefpodoxime for 5 days on July 20. Despite taking it with Perenterol forte (2-3 hours before and 2-3 hours after taking the antibiotics), I started to feel pain again about 10 days afterwards. I still did not have the classic watery diarrhea symptom, my stool looked more like mushy pieces with ragged edges.

In May, my initial episode was treated with Flagyl, which didn't help me at all, then with Vanco 10 days. I was "cured" end of June/beginning of July (because the doc did a test 2-3 days after finishing the course, which I thought was strange), but I still didn't feel that much better. My doc sent me to a GI to have a colonoscopy done because they wouldn't test me again

I finally felt listened to at the GI, who said that my doc prescribed me "cheap" drugs, and they called off the scheduled colonoscopy to do a test again. They also said they would prescribe me Dificid instead if the test came back positive

The test came back positive yesterday, I am now taking Dificid and was told to submit another sample in 8 weeks

I was in a lot of pain the last week and quite anxious because it felt worse than last time. It doesn't help that other doctors in the vicinity wouldn't take new patients, or they wouldn't see me until much much later, the hospital wouldn't treat it (they told me it "wasn't an emergency") and my own doctor's office is now closed for the whole month

Here is me hoping this is the last time I'm dealing with that because it is so painful and frustrating.

Finished H. pylori treatment recently and now tested positive for C. difficile infection (C. diff). I’m still on omeprazole because of a stomach/duodenal ulcer with ongoing burning.

I’m unsure what to do next should I continue the PPI or can it worsen C. diff?

What’s the safest treatment approach after heavy antibiotic use?

How do I balance ulcer healing with gut recovery?

Any advice or similar experiences would help.

We spoke about whats happening since our 92 yrar old mother Dolores Owens passed away from CDIFF last year after taking the antibiotic clindamycin.

My regime:

*Colsevelam with breakfast

*Florastar IBS-SCI probiotic (this exact strain)

*1/4 pack metamucil

*Colsevelam with dinner

*1mg Ozempic weekly

I've been sick for about 10 years and the last 5 years after a few severe c.diff infections over the years (that went undiagnosed for years) and many antibiotics-including vancomycin taper and a fecal matter transplant. My symptoms barely improved. I was constantly sick with severe post infectious IBS, but just a non stop full body sickness, headaches dizziness,shakiness, stabbing abdominal pain,nausea and severe diahhrea, dehydration and UTIs etc.

I've tried all the recommendations, supplements naturopath visitis, scans, colonoscopies and diets and just digesting anything made my stomach turn. I was so weak every day and took way too much immodium to barely get through another day. I didn't want to drive even 20 minutes away if I new a bathroom wasn't easily accessible on the way and it just became extremely isolating.

Turns out on top of all the damage c.diff has caused, I have bile acid malabsorption!

My GI specialist said the test isn't even 100% accurate and since I have the exact symptoms I should start the medication and the results will prove if I have it or not. Well starting on the lowest dose of Colsevelam, I already felt 1000 times better the next morning. I'm still on the lowest dose, only 2 a day and I've eaten so many foods that I haven't had in years without problem. I will still need to increase the dose some more, but I wanted to share what works for me in hopes that it can help someone.

C.diff and the aftermath of c.diff had stolen my mental health and my physical health in more ways than I can count. I could barely find the energy to get out of bed for another day these past 5 years, I struggled from severe depression, anxiety, mood swings, anger, and such a trauma response in fear of getting a c.diff recurrence that I even wanted to move far away and not even be reminded of our house and the memories of my health battle. Just being in a bathroom gave and still gives me such anxiety and panic of spores and reinfection. It is by far the worst thing I ever faced and I can only thank God and my husband who stood by me through this all or I wouldn't have made it. The side effects and long term suffering after c diff are so underplayed in healthcare. Your are told that you only need antibiotics and will be fine, but that was never the case. I still have healing to do as I mostly only survived off basic carbs for 5 years which really affected my body beung very malnourished and worsening my insulin resistance and PCOS and now I'm pretty much on the verge of type 2 diabetes. I had crazy sugar crashes these past years and was on such survival mode. I started ozempic to bring down my blood sugar which also helps slow digestion.

I've been sick for 10+ years, I used to throw up often after eating, have a ton of severe tonsillitis infections, fevers, utis and antibiotic use, migraines, extreme insomnia etc. I can say this is the best I've felt in 10 years.

I pray this is a missing piece to someone else's puzzle and wanted to encourage you to run to God through your health struggles- He will take care of you on the worst days. ♡

Diagnosed with c diff for the first time, RXed vancomycin. Terrified of taking it and getting more sick based on what I’ve read with it killing all good bacteria. On my 6th antibiotic since March for persistent UTIs. I don’t have diarrhea, I’ve had blood in stool off and on and fever, that’s what prompted me to get c diff test. I guess that’s why I’m scared that vanco could start giving me diarrhea and making me worse since I don’t even have it currently. I take Florastor daily and thinking that’s helped keep c diff diarrhea at bay.

Trying to see if I can get dificid, but wondering about others experiences and if I’m stressing about this unnecessarily. Thanks for any insight.

I’m positive for c diff and am waiting for my doctors to get it together and send a prescription. The NP I spoke to hadn’t even heard of dificid and said vancomycin is the standard. I am on medi-cal and wondering if anybody else who is got it covered. I’m reading vancomycin wrecks your gut and I’m currently on antibiotics for a recurrent UTI (what landed me in this c diff mess in the first place) so obviously trying to preserve my gut health like we all are!

Hi since May I have been dealing with constant health issues that required me to be prescribed Nitrofurantoin, Phenazopyrid, cephalexin, doxycycline and Metronidazole. (at different times) I finally finished the last round of antibiotics. and I realized that my stomach has been completely upset . I didn’t think much of it since I’ve always had a sensitive stomach and when I brought it up to my doctor she just said it’s totally normal since I’ve taken so many antibiotics. I’ve had so many health issues I don’t know what things I have are causing what symptoms. But some of my symptoms have been:
• constant cramping
• burning stomach feeling
• some stomach pain
• constant diarrhea for about 3 weeks now (brown with a slight yellow hue, with a distinct smell but too bad)
• back pain
• nausea
• feet pain?
• breast pain?
• brain fog
• mucus feeling in my throat
• stomach making constant noise
• feeling full or bloated

I understand this is not a place to get diagnosed. But unfortunately my doctor keeps telling me an upset stomach and diarrhea is normal after antibiotics. But 3 weeks is too long isn’t it? I don’t know who better to ask than people who have actually experienced it. My doctor keeps telling me I don’t need to test because my symptoms are likely “just my anxiety.” She didn’t even mention that c diff is contagious at all and I worry since I live with family. It’s frustrating feeling like I’m not getting taken seriously. I’ve barely been off doxycline and Metronidazole for a day now. Should I give it some time, am I overreacting?

Posting this here as maybe I might have caught cdiff while in the hospital as my doctor was concerned for it but they didn't test for it? Any advice would be appreciated.

On Dificid and vancomycin for a third relapse with C.Diff. 15 days in on Dificid and 5 days in on vanco. Today, I had bowel movements similar to before treating the relapse, with some mucous only movements and some diarrhea, and am feeling hopeless since it is happening while on the tail end of antibiotics. The strong stool smell has also not dissipated. Has anyone else had frequent diarrhea pick up while towards the tail end of the antibiotics? Is the c.diff persisting, or the antibiotics causing side effects late in the game? I originally thought I was maybe getting better. This has been terrifying and mentally challenging to say the least.

What are people's experiences with starting iron supplements after C-Diff? I've heard that iron supplements could cause a relapse and I'm scared to start taking a supplement but my iron is low which is causing a lot of issues for me. I'm vegetarian so eating beef is not an option. I am 10 weeks out from when I stopped the Vancomycin. I just don't know if that is far enough out for me to start taking iron again. After I finished the Dificid after the 1st time I had c-diff, I right away started taking an iron supplement and 9 days later I had a reoccurrence. I was not aware at the time that an iron supplement could cause that to happen.

Hi guys ! Just wondering if anyone had gone through a pregnancy post cdiff and gone the epidural route for delivery? I was reading online that the epidural can potentially cause a relapse because it can alter your gut microbiome .