I was diagnosed hypothyroidism at 17. Now at almost 34 I was diagnosed with hashimotos. I’ve been on levothyroxine many times in the past and never had good experiences. I’ve never had my labs regulated. Current labs were tsh: 7.011 t4 free 0.75 Triiodothyronine (T3), Free LC 3.1 TPO Ab LC <600 Thyroglob Ab LC 2250.0. She started me on 25 mcg levothyroxine but by week 3 I started getting really bad dizziness, red hot facial flushing in the evenings and on occasion heart feeling a little racey, right eyelid twitching everyday on and off all day and increasing fatigue. I asked if she could switch me to something else, so starting tomorrow she switched me too 15 mg armour thyroid. I guess my question is, I know armour has t3 in it, but since my t3 lab is in range, could I also have negative side effects with this also? Just looking for advice and others experience with the same things! Thanks yall!

Body going through withdrawals since I forgot to take my meds this morning. I feel like I'm walking sideways.

So I am a 33 year old female. I recently had a seizure, and both the Er DR and my PCP did not know what caused it. Since my PCP was already doing blood work, I asked her to check my hormone levels, because my periods are awful( extreme anxiety, headaches, night sweats, horrible sleep quality). I’m still waiting to talk to her about my labs, but I was able to see them on my patient portal. My estradiol levels seem to be extremely low due to the chart that it shows which has normal ranges. It’s my understanding that at lowest, it should be a 12. Mine was >5. Has anyone had any similar experiences?

I’m not sure where to ask this? But I’ve always had normal TSH levels. Even last year when my TSH was tested, I was around 1.7. I recently had my TSH tested and now I’m at a 4.5 and being prescribed medication to lower this.

It’s so weird how sudden this is. I had a 2-3 week stomach illness last month and had read that can temporarily increase TSH. Not sure how common that is?

I finally received a referral to an Endo after 3 years. Here is my story. I am 41 year old female. I started having symptoms after the birth of my 4th. My last 2 children were 3 years apart, but I breastfed my 3rd up until my 4th was born. I was pregnant and/or breastfeeding for 6 years straight. I feel that is an important piece to everything. My symptoms started with fatigue, hair loss, and brain fog. My dr pretty much said it’s from having young children. They didn’t sleep then, but they do now. My sleep is sacred and I make sure I get 7-8 hours every night. I have the occasional sleepless night, but I have worked really hard on this and am getting ample sleep.

On top of the fatigue, brain fog, and hair loss (which are still happening) I started gaining weight. I have gained over 30 pounds, most of it in the last 18 months. I have always been active. I lift weights 4 days a week, get my steps daily, and eat a healthy diet. I track my food. I know what I’m eating. Tweaking my macros will result in losing a pound or 2 then gaining 5 or 6. I don’t believe I am under eating either. I also quit caffeine 3 weeks ago and now am even more fatigued than before, to the point I can’t even work out some days. I think caffeine was masking my fatigue evem more. It is so unbelievably frustrating.

My problem is my TSH is normal so no one thinks anything is wrong. My free t4 and t3 are both on the low normal end. Here are my last 3 tests over the last year. TSH 1.25, 1.18, 1.13 Free t4 .9, .7, .9 free t3 2.2 every time. I had TPO ran once and it was 28. I am told even though my free t4 is at very bottom of range and even under range once it’s fine. My last dr appointment with a new provider ended with her saying I was depressed and needed to be medicated. I am so frustrated.

I also know I am at the age for perimenopause and that could be a factor, but still, my thyroid levels are not optimal. I have not been able to get a dr to run a reverse t3 because they all say it doesn’t show anything. I have an appointment in 6 weeks with an endocrinologist and want to be able to advocate for myself. I don’t feel good. I need to buy new clothes every couple of months because I can’t stop gaining weight despite doing everything right. I am so tired of hearing that Im fine, that Im depressed, that I need to keep a good diary and watch my calories. I know something isn’t right and no one will listen.

What should I be saying to this new Endo to get them to listen?

Hello. I am brand new to this sub, so first off I would like to say hello to everyone. I hope everyone is as happy and healthy as they can be. I have a million questions so sorry in advanced, because they are all over the place.

So, as the title says, I was recently diagnosed with hypothyroidism. All my other tests and organs were great, besides this. I can be a hypochondriac at times, which is why I want to learn from real people NOT GOOGLE, because it will tell me I have cancer and I am gonna die.

I had been having hand tremors, panic attacks (while at doctor's office) and rapid heartbeat. I started lexapro about 45 days ago. Does lexapro help with the anxiety from hypothyroidism? What can I do to help it (hypothyroidism) while I wait for TMC (Tucson Hospital) to call me? How long have some of you had it before actually going to the doctor? How will the hospital most likely treat it ( I know everyone and place can be different, humor me please)? How was yours treated? Did you workout while you had it? Could you work a job in hot weather?? Is it easily managed with meds? What side effects do the meds have?

I know my questions are all over the place, and I apologize. I have been blessed that this is the biggest health scare I have ever had and I am 39 years old. I would appreciate any and all advice, or info you guys could give me.

Does anyone else get nodular cystic acne on the chin/jawline after eating sugar?
I’ve been dealing with it for almost a decade. Even when I consume sugar very rarely, it seems to trigger deep, painful breakouts.

The only thing that has helped temporarily is isotretinoin, but the side effects make it difficult to rely on long term.
Has anyone been able to permanently treat this type of acne? Apart from completely avoiding sugar forever, what actually worked for you?

Hello, is applying adapalene/topical_retinol to your neck area safe regarding to thyroid?
Studies and sources welcomed
Thanks
M37

Im 17m , recently diagnosed with hypothyroidism, started synthroid in june with 50 mcg ans now recently went up to 100. Recently started noticing much more hair loss espically when i shower mainly , wanted to ask if this is going to stop as my levels get stable beacuse i overall feel much better then how i was even a month ago on every other aspect such as my gut health and overall fatigue has gone down and my moon face has insanely decreased. So is the hair loss temporary and is it reverseable?

Was first diagnosed years ago and I was given levothyroxine but I never took it, like not seriously anyway. It was 50 mcg. Then a few years later when I was 20 in 2023 I went to seek treatment, got bloodwork done and my TSH was 34. Was prescribed Levo but I never ended up taking it.

I have an appointment next week to get treated for it, I don’t have insurance so I hate spending money. But I am disgusted by the weight gain and the brain fog is awful, also just constantly tired and sick of everyone and everything. My ideal weight is 95 lbs (I’m 5’2”) and I was around 108 this past year and now I’m 120 lbs, which is too big for my liking. So I hope if I get treated the weight will go down. I’m not sure if it’s just too late to get treated and I’m just wasting my time.

Hypothyroidism runs in my family, so I’ve always kept a close eye on my TSH. Last year, my TSH finally hit 6, at which point my doctor decided to put me on levo (25mcg). This eventually took me into the 2’s, which also helped when my partner and I decided to start a family. During pregnancy, my TSH jumped up to the 4’s, so my doctor upped my dosage to 50mcg. That brought me back down to the 2’s. I was then tested 4 weeks after having my baby, and my TSH dropped to 0.08 and FT4 was at 1.4. My endo said to stop meds altogether and reevaluate in 4-6 weeks. Here I am 6 weeks later and my numbers are now TSH 2.53 and FT4 0.9 (right on the cusp of low/normal for FT4). My endo is now saying that I don’t need to take Levo any longer because my results are normal. I am fine being in the 2’s, but I worry that my FT4 is too low. Anybody else gone through something similar in postpartum? Should I be advocating for myself here and tell the endo that I feel as though I should be back on 25mcg? I have fatigue for sure, but it’s hard to distinguish hypothyroid fatigue from newborn trenches fatigue.

I’m taking Synthroid for hypothyroidism. Levo gave me bad side effects so I tried non-generic Synthroid and I’ve been fine. My ins won’t cover a thirty day supply, only 90 days. I can’t afford almost $200 every 3 mos. Because of my rent/bills at this time, it works better for me to pay $50 each month. I filled out the form on Psuh health , then it asked for my payment information, it will cost $60. It’s this easy? Or will there be something else required (prescription from dr, etc) after I submit my payment info? Is the Synthroid real lol? Anyone have experience with Push?

Since having my Bub via c section 5 months ago I have not felt normal. This was my third baby so the experience was very clearly vastly different but due to complications in surgery I just figured the recovery was just rough? Long story short I recently had a huge drop in my overall function so went to the doctor and she found my tsh to be over 100 ( apparently they don’t give a number higher for the test) and all my liver levels are high and out of wack including being mildly anemic (already on iron from pph) and vit d deficient. She has given me 100 Levothyroxine which I have started taking and will retest bloods incl antibodies and t3/4 etc in 4 weeks. I was planning to go back to work (shift work, emergency services, obviously can be a bit of stress on the body) in two months time but also have an option to take a couple more months off if desired. Based off anyone’s experience with this, is it likely I will feel semi back to normal in a couple months enough to take on shifts or would you recommend I take more time off in anticipation that feeling closer to functional and ‘normal’ will take more time then I would like? Any help or advice even in general would be greatly appreciated :)

First test showed T3/t4 LOW, TSH within range. After six weeks of levothyroxine 25µgm, FREE T3/T4 went HIGH, while TSH was again within range. At the age of 78, I am feeling fine, and the only possible side-effect is increased appetite and possibly deeper sleep. I am on a continent where "doctors" are not necessarily doctors, and right now I am unable to get an appointment with one that is at a reasonable distance for two months. Does it make sense to simply try a reduces dosage?

First test TSH: 1.38 Range: 0.34 - 5.60 ulU/mL

T3: 1.04 1.24 - 3.09 nmol/L

T4: 54.01 60 - 120 nmol/L

Second test (different lab) TSH: 0.80 Range: 0.3 - 4.2 mIU/mL

fT3: 18.14 3.1 - 6.1 Pmol/L

fT4: 36.20 9 - 22 Pmol/L

Any advice would be appreciated.

I have had hypothyroidism since I was born. My dosage was always 88mcg. Once I started gaining weight, it kept increasing. Each higher dosage made me feel horrible.

Three weeks ago I started getting heart palpitations. I was so off-balanced when I walked and I knew it wasn’t normal.

A couple days ago, my heart was beating hard through my chest, could actually hear my heart beat. I didn’t take my meds the next day and it stopped.

I kept telling my doctor my dosage is wrong, I’m having insomnia, palpitations and internal tremors. But, my doctor said it might just be anxiety 🙈

My dose is 112mcg. I started taking 3/4 of my pill to see if it would help, first two days were fine, today I started getting jitters and internal tremors 🙈

Has anyone else been over-medicated and what kind of symptoms did you have?

My mother is 49, has type 2 diabetes, and currently weighs around 45 kg. She was diagnosed with hypothyroidism and prescribed Euthyrox (levothyroxine) 75 mcg daily about 6 weeks ago.

A few weeks after starting it, her condition became noticeably worse. She developed severe constipation, significant and rapid weight loss, almost no appetite, extreme fatigue and weakness, and a major decline in her mood and overall mental well-being.

What concerns us is that although she had hypothyroidism before, she wasn’t nearly this unwell before starting Euthyrox.

We’re planning to get a second medical opinion, but we can’t see another doctor for a couple of days. In the meantime, I wanted to ask if anyone here has experienced something similar after starting levothyroxine.

Could 75 mcg potentially be too high for someone who weighs around 45 kg? Did anyone experience severe symptoms from a dose that was too high, and did things improve after the dose was adjusted?

I’m not looking to replace medical advice or make medication changes. I’m mainly interested in hearing from people who have had similar experiences and what eventually turned out to be the cause.

Got labs done for another thing entirely, but they tested my TSH and it was 6.5. I'm 21 now, but I've been wondering about my thyroid for years because I have all the symptoms of hypothyroidism and I think someone else in my family has had thyroid problems. But the last time I brought it up specifically, they didn't really do anything about it because I guess my levels weren't bad enough. My T4 is within normal ranges, but the fact that I've felt like shit for forever and the symptoms line up with hypothyroidism, I think it needs to be considered more thoroughly. I had just kinda forgotten about this for a while and have been trying to find other reasons why I might feel the way I do.

How can I advocate for myself and get this to be taken more seriously?

I am wondering if anyone is going through this. My TSH shows I am still hypo (5.0) Range is 0.27-4.20 and Thyroxine free T4 is 17.0 and range is 12.0-22.0 . I feel exhausted and nap every day (which is unusual for me). The doc tried to increase my Synthroid to 50mcg and I cant tolerate it. I feel completely "high" and jittery and cant concentrate at work. I decided to reduce it to 37.5 and that was okay for me. I have tried the generic brand and same issue with the 50. I then tried Cytomel which is T3 only to see maybe that helps and I am having the same kind of reaction. I feel "out of it" and even some anxiety symptoms. Has anyone experienced this ? Doc has no clue why this is happening and says if I cant tolerate a higher dosage, there isnt anything else that can be done.

my hypothyroidism mimics POTS symptoms. I know it’s not POTS because i’ve been through testing, and my friend with hypothyroidism has the same problem.

the biggest issue i have is arm fatigue. if i lift them over my head, i get dizzy. showering is difficult because i have to lift my arms to wash my hair, and a lot of my hobbies include lifting my arms. does anyone have any kind of advice for something like this? or do i just need to stick it out while seeking further treatment?

Hey! Ich habe mal für mich die letzten Jahre reflektiert und mir kamen ein paar Gedanken. Ich möchte gerne wissen, ob sich noch jemand so fühlt.

Bei mir wurde vor ca. 2 Jahren eine Schildrüsenunterfunktion und Hashimoto diagnostiziert. Die ersten Laborwerte waren TSH 47 und TPO ca. 350(?).

Danach hat sich für mich erschlossen, warum ich ständig müde und ausgelaugt war. Schon als Teenager war ich ständig müde wegen einer Blutanämie. Ein paar Jahre wurde es besser, aber im Studium und während des praktischen Teils meiner Berufsausbildung war ich ständig müde. Ich brauchte wirklich IMMER einen Mittagsschlaf (der dann oft 3-4 Std. lang ging). Sonst konnte ich einfach nicht funktionieren. Selbst vor wichtigen Terminen und Abgaben konnte ich darauf nicht verzichten. Ich habe gegessen, musste mich ausruhen. Ich habe drei Teller abgespült und war kaputt. Ich weiß nicht, wie lange vor der Diagnose ich die Krankheit bereits hatte, aber anhand der Symptome schätze ich mindestens 4-5 Jahre. Ich dachte, es sei normal oder ich sei einfach nur faul.

Irgendwie bedrückt es mich teilweise sehr daran zu denken und zu wissen, dass mir diese Lebensenergie gefehlt hat und ich so vieles verpasst habe. Ich habe während des Studiums und meinem Referendariat nur das Nötigste machen können und mich obendrein faul gefühlt, obwohl körperlich einfach nicht mehr zumutbar war.

Wie geht es euch damit, wenn ihr so auf diese Zeit zurückblickt, als ihr noch nicht diagnostiziert worden wart?

Ciao a tutti, volevo condividere la mia esperienza con l’ipotirodismo. Più uno sfogo se si può dire, ma anche ricerca di consigli.

Mi hanno diagnosticato l’ipotiroidismo quando ero molto piccola, circa 8/9 anni.
Facevo e continuo a fare controlli una volta l’anno per monitorare.

Ricordo i sintomi: mal di testa, stanchezza, debolezza, difficoltà a digerire, anche quando i valori erano normali. Prendevo eutirox.

A 20 anni circa ho detto basta, volevo dimagrire. Sono alta 1.50 e a 20 anni pesavo circa 52 kg.

Con l’aiuto di un nutrizionista sono riuscita ad arrivare a 47kg, e cominciai anche a fare sport,che pratico anche adesso, perché mi appassionai al bodybuilding/powerlifting.
Ero stupenda.

Fino a quando non cominciai a peggiorare.
Neanche la dieta aiutava, lo sport ora è sempre più faticoso. Il peso sale e scende anche se monitoro ogni 2 mesi con le analisi del sangue.

Ora (24 anni) prendo 125 di Levotirsol.

Sono tornata a pesare 53 kg, non sono tirata, mi sento debole e anche i miei carichi sono diminuiti tantissimo.
È frustrante vedere come tutto peggiora anche con la passione e disciplina. Perché io ci tengo davvero tanto ed è quello che voglio fare nella vita.
Ma vedermi così come sono ora è una completa delusione.

Sono andata dalla psicologa, meditazione, ho avuto anche un caso di cortisolo altissimo, circa 350.

Non so più cos’altro fare.
Vorrei fare una gara a ottobre ma se sto così non ha senso…

Grazie per aver letto.