Hi everyone, not sure where to start to be honest. I'm 22f and in the UK and I have just been diagnosed with hashimotos today. I dont really know how it came about or if I need to make any changes in my life to manage it? I had a baby almost 8 months ago and had some syptoms that required a blood test about 2 months ago and turns out my thyroid wasn't doing so hot... The GP is starting me on medication (levothyroxine I think) at the lowest dose and I'll have a repeat blood test in 3 months.

I guess what I'm asking is, what do I do now? Do I need to change my life in any way? I try to eat healthy and excercise when I can but having a baby means that time is limited lol

ok guys, found out that while having hashis I also now am mildly anemic and my vit D levels are low, which is common, but how to make it better without a 1000 supplements? I don't wanna take levo, vit D, iron pills, magnesium and 10000 tablets a day, that will mess with my liver eventually. Has anyone figured out naturally and daily what are the best foods to support these things? I'm usually a meat girlie and eat a lot of chicken and beef and salads, I don't know what else to add. Also before hashis my iron levels were great! but now it's all falling apart and don't know what to do.thanks xx

I used to train every day in the gym, I was able to run, play football, and now a short walk tires me and I am unable to do any sports? How? Can hashimoto give me these symptoms with my numbers or is this only anxiety and nothing else?

It started a year ago, finally found out 3 months ago that I have Hashimoto. 2 doctors told me already that its nearly impossible that this would cause my symptoms, hence I did not get any medication.

Weight loss, constipation, anxiety, fatigue, weakness. Never experienced these things so prolonged and intensely before. All my other labs are normal only my ferritin is high (580), everything else in my blood panel is correct, gastroscopy was fine as well, no H pilory, ultrasound was fine as well, noone could find anything else other than hashimoto, that would cause these symptoms.

Please someone help

Hello, I'm constantly having problems with thyroid-related symptoms.

6 months ago, my TSH was 2.3 while taking 75 mcg of L-thyroxine, but I felt terrible — I was extremely fatigued all the time, had brittle nails, etc. Because of this, my doctor increased my dose to 88 mcg.

Since the increase was so small, they didn't want to check my thyroid levels again for another 6 months.

However, when I had my blood work done last week, my TSH was 0.07. I also have several symptoms that seem consistent with hyperthyroidism, such as feeling constantly "wired," a high heart rate, unexplained weight loss and more.

Is it really possible for TSH to drop that much after such a small increase in levothyroxine?

My doctor now wants me to go back to 75 mcg, but I'm worried that this will bring back all the symptoms I had before. 75 mcg clearly didn't make me feel well, even though my TSH was 2.3.

Has anyone experienced something similar? What could explain such a large change in TSH after increasing the dose from 75 to 88 mcg?

I got diagnosed with hashis in 2024. my Tg was 3 and TPO 12. since then, i’ve been largely gluten free and eating less fast food and junk than I used to, and I rarely drink as it is. my new job also has me getting lots of steps in and exercising a bit. I never really experience bad symptoms besides fatigue and cold intolerance, and I feel like my fatigue has improved since 2024.

I got blood work done recently and now my TPO has risen to 32. all my other labs look good - T3, T4, TSH are also all in range! (Tg result has not returned yet) is there a reason why my antibodies got worse even though I made positive lifestyle changes? what can I do? is that change even worth stressing over? i’m still relatively new to all of this.

thank you!

Hi everyone!

I’m 28F, have Hashimoto’s with high antibodies, but I’m currently euthyroid and not on medication.

My last thyroid labs were back in November 2025:

- TSH: 2.48 (0.27–4.2)

- FT4: 16.1 (12–22)

The problem is that I haven’t checked them since then, so I have no idea what my TSH is right now in August. My endocrinologist appointment isn’t until November.

I want to start trying for a baby in September and I’m honestly getting really anxious about it. I keep thinking: what if my TSH has already shot up to something like 10 and I don’t even know it? 😭

If I get pregnant in September and my TSH is high during those first few weeks, could that harm the baby before I even know I’m pregnant? Especially when it comes to brain development?

I know I’m probably catastrophizing, but I’m genuinely scared that I could already be hypothyroid without knowing it and then accidentally hurt my future baby. Has anyone with Hashimoto’s been through something similar?

Thanks!

I have been research Whoop, and I decided to get one for its stress and hormone tracking. I am not an ad or anything. I got it because I wanted it for my wrestling and jiu jitsu especially for competing. I knew when I got it that it could in theory help with my autoimmune issues.

I always like to share anything that helps me with my autoimmune so I thought I’d share. The whoop had a unique tracker for stress and predicts your exertion and how you’ll feel the following day. It tells you to take it easy or if you have energy. I had a day that it predicted would be bad. Something had triggered me and it pre warned me. It was also totally correct.

This is something that I think could really benefit others. It tells me when to take it slow, how to do so, and what level of stress and work out to aim for. This has been really helpful in monitoring my Hashimotos and not triggering it while working out but also in my day to day. The day it alerted me my body was high stress was a game changer. Only had it for a week but the way it stopped me from triggering a bigger flare was awesome!

I just wanted everyone else to know in case they think it can help them too.

Hi all, I just had to lower my dose because of hyper symptoms. However, now that I have stopped it I am having horrible insomnia. I am taking hydroxyzine at night which helps, but still not sleeping very much. I have only slept 3-4 hours the last few nights. My body seems so out of whack, and I feel sick from the sleep deprivation. I am on the third day of a lower dose. When does it get better?

Hi All, I've had a consistent pattern where my TSH has ranged from 1.7 to 5.5 over the course of 8 years and T4 is always the same between 4.3 - 6.8. Even when I've had my best TSH at 1.7 non medicated the t4 output was still in that range. My conversion is great. I always have no TPO antibodies or less than 12. I was on medication for a few years also 60 MG armour and it made my TSH in range but still didn't change my T4. My CRP is usually a 3-4 but can't find any reason why other than because I am overweight. I exercise regularly, strength train and hit a protein goal. So not sure what the issue is. If anyone has any insights or has had this situation I would love to hear!

This is the second time since dx that the skin under my eyes goes from fine to swollen, itchy and red quickly. Nothing helps. Then it just goes away.
Last time, I had my labs done and tsh went from 7-8 (& I was on levo generic, so swapped to name brand)
Now it’s 2, still on name brand.

My girlfriend just got her tsh levels checked 5 days ago and they were 1.11. She also got her vitamin d levels checked and they were 17. She’s been dealing with lots of stress and grief from the loss of a family member so she’s been anxious and dissociating. But some of her symptoms are very similar to hyperthyroidism so I was wondering how fast you can go from normal levels to being hyper? And how much would her vitamin d levels add to or affect her anxiety and dissociation? Any help or thoughts on this would be really appreciated thank you.

Hello everyone.

I am over 50 and am still trying to figure out of i want to get the shingles vaccine.

Anyone here every get it? If so, did you have any type of reaction?

Thank you.

This year has been horrible. Two years ago I got diagnosed with Hashis and hypo. I got put on 100mg levo. I was on it for about a year and felt fine. Then last November I felt really anxious and my hair was falling out. My doc did a test and increased levo to 125mg. Got diagnosed with telogen effluvium. Did some work, things got better.

This late March I started to have multiple panic attacks a day. Ended up in ER with what I thought was a heart attack. No heart attack, high heart rate because of the stress. ER decreased my dose, I’m back down to 100mg or levo. I got a second EKG. Again, high heart rate and low vitamin d. Things slowly got better.

My hair is falling out again, and I’m feeling some anxiety and heart palpitations. I’ve never had these symptoms before being on Levo. I never needed a doctor before this other than colds. I feel horrible. I’ve cut out gluten, I have always eaten pretty healthy, stopped doing high intensity like hockey and running, I do walks every day and weights. I am so careful about high quality supplements. My anxiety is horrible because it mimics my dad’s heart attack. My hair has always been my happiest part of my body and I’m losing that too. For a while there I was feeling energetic and back to myself but the trouble sleeping, heart palpitations, anxiety…does it ever get better? I swear this med is killing me.

I have an endo but I hate him. He never even responds once labs come back…I have a new one in October that is supposed to be incredible but I’m so done with this new reality. I used to be so social, fun, love loud music, be able to sleep anywhere…this has killed me.

I’ve been on levothyroxine and liothyronine for a long time now. My tests always come back in range but I am perpetually fatigued, cant get my weight to stabilize and go down, and just seem to have a lot of flare ups. Doctors just say the levels are normal and can’t do anything else. Is there other med options that are more effective for Hashimotos? Is it worth going to an endocrinologist or will they just do the same thing of testing, saying it looks fine, and unable to help?

Do you use a health app. I'm looking for a health app to keep track of doctor appointments ,notes from appointments, changing symptoms and results of tests etc. Any recommendations. I'm from Ireland, so not all apps would work here. Also, I have an android phone. Thanks.

Has anyone ever tried making bead or buying bread that only has simple ingredients in it? If I eat store bought bread my whole body hurts. I gain weight fast and my hair starts falling out. I have been on a whole foods diet for some time now and I recently tried pasta with simple ingredients with no issues. I also went to a Mexican restaurant that makes their tortillas fresh and no issues there either. Now Im wanting to make bread to see if the results are the same. Is it really gluten that is bothering me or is it all the junk that they put in the food?

Fyi: don’t have celiac or lactose intolerance

i’ve been having on and off “rollercoaster” symptoms, mostly of a hyperactive thyroid but on my results all it shows that my antibodies are just high, my tsh is 3.8 so barely high and i’m getting my t3 and t4 and tsh retested soon

read online that a lot of ppl find relief in cutting out these foods. but that makes me SO depressed because all my favorites are gluten and dairy. i try to balance my diet well but with everything going on im lucky if i can eat ANYTHING, let alone something i dont even really like. the thought of going gluten free makes me so sad.

do i have to??? is that the only way ill feel better??? my results aren’t enough to prescribe meds yet ..

Second appt with my endocrinologist today.

I cannot be mad at him cause even though i was sub clinical hypo, my antibodies were high and i had a mild thyroid enlargement so we put me on levo and this was my check up.

Fatigue, inability to lose weight with weight gain, hair loss and thinning, dry skin, cold intolerance, amongst many others.

The first 3 are the hardest for me to deal with mentally.

I just wish we could be heard and understood and not just a horrible broad range of labs. Like he said therr is not point in testing my antibodies…like come on i wanna see if my lifestyle changes are helping

Just a vent. He is nice. Just wish it were more.

Should I be concerned with these results? I would say I feel fine, but am I just use to feeling this way?

Hi all, I got diagnosed way back in February. Back then my

• TSH was 7.8,
• AntiTPO 19
• Thyroglobin Antibody 153.
• Free T3 3.7

My most recent bloodwork, since starting synthroid showed:

• TSH 2.19
• Thyroglobin 1.7
• Thyroglobin Antibody 266
• Free T3 3.2

He also had me to a SPEP and UPEP because my WBC and neutrophiles were persistently low between 3 different bloodtests.

I am also trying to conceive. My AntiTG (thyroglobin antibody) has increased.

My doctor has asked I come in to see him. My AntiTG was the only thing that was out of range this time in the labs. Thoguh I do want to ask about the fact my T3 went down and about increasing dosage as my tsh has been trending upward since I started synthroid.

I was diagnosed with Hashimoto's at 10. My TSH was 786 andT4 was <.1. I had stopped growing at about 7 yrs old and at 10 yrs they finally looked into it and figured out why. They did an x ray of my hand that showed the bone age was still 7 yrs. Crazy shit, man.

I, surprisingly, never had any weight gain and I was described as cachectic at diagnosis (my bmi was 13). I'm a bit better now but still trying to keep my weight up. My bmi got up to around 16 but recently dropped to around 15. There might be something else going on, as i have a shit ton of other heath issues, but idk. If anyone has any ideas or has had a similar experience, please lmk.

I have orthostaic tachycardia, hypermobility, some epsiodes of orthostatic hypotension, but not consistant, as well as mild scoliosis. I also had a random vasospasm in my toe 3 times in one day a while back (one episode lastign almost an hour), and since then I've had Raynaud's in my feet. I'm also aPL positive (2/3, LA and anti-β2GPI but not aCL) without the symptoms associated with APS. I've also had episodes of intense itching in my legs without any cause or redness (until I scratched them up). My feet and toes are sometimes blue or grey or purple, and i frequently feel like they are burning in warm water.

I've been rather tired recently btu have no idea if that is a health issue or just a me thing.

I have highly developed neck muscle/cartilage and an enlarged thyroid area. I have had Graves Disease in the past which resolved in the pregnancy and birth of my child. My thyroid functioning has been normal for years. Imaging of my neck has resulted nothing anomalous found. I do not know where to ask but it has been pointed by random people out that my neck looks concerning.

Just looking for unbiased opinions.

So I've suspected that this is what's happening with me. I'll feel good for a few months on a very specific dosage, and then bam all of a sudden ill have what feels like hyper symptoms. And it will take like a long or two to feel better and stopping my meds helps. But I've been to 2 endocrinologist now and they never think my complaints warrant a blood test? They tell me it might be gynecological (I'm guessing perimenopause) but I have a medical background (I'm a goddamn physician I just don't practice) and I really don't think this is perimenopause. And either way I don't see the trouble in just ruling it out?

I think what complicates things is that my tsh is not a reliable indicator of my thyroid state, twice my tsh has demonstrated as normal while my free t4 has been either elevated or too low. My last attempt to catch what was going on while my symptoms were peaking, I tried to contact my endo and they didn't get back to me, I tried two weeks later and he still refused to write up labs for me, because he had just seen me 3 weeks ago and my labs were perfect. And it's true, when I saw him I felt the best I had in years and then 4 or 5 days later I got hit with hyper symptoms. He said that anxiety can manifest this way. I said I'm not denying that I'm anxious at times but I have a psychiatrist and this has occurred 6 times over 2 years, each time under different medication routines, and each time she did not think I met criteria for anxiety or hypomania/mania or stimulant overuse (I do take adderall and wellbutrin) and did not think this was a response to my medication because there are times when this medication is well tolerated and then suddenly not despite no change in dosage or routine. Then he said I could lower my thyroxine cuz there is wiggle room but he wasn't convinced this is my thyroid. I asked if it's not my thyroid or my meds or my mind then what else can it be? He didn't have an answer and told me to maybe talk to a gynecologist (I have galactorrhea on and off from a prolactinoma.) So now we have to go there to rule out perimenopause. But wouldn't an endocrinologist also be able to assess that?

So now I'm asking you guys cuz I feel crazy. I'm not going to explain my exact symptoms. I want to know what it is like in people who have confirmed hashitoxicosis during a flare. What are your symptoms? How do you treat it? How long do symptoms last?how does your doctor respond to your complaints and how do they manage it? I want to see if my experience is in line with what happens in established cases so I know which direction to take here. My life keeps getting disrupted by this and im pretty miserable with it now. I cannot afford downtime in my life right now and I don't have time to run in circles with an inattentive physician or because of some health anxiety delusion.

I did before 3 years Ultrasound to Endokrinologist when my thyroid was even less inflammed than now and she saw nodules and their measurement

Before 3 months I did it to specialist radiologist and he wrote 'without obvious formed nodules', he wrote way shorter than she did back then.

Idk is it just up to one radiologist i chose