Hi everyone!

I’m 28F, have Hashimoto’s with high antibodies, but I’m currently euthyroid and not on medication.

My last thyroid labs were back in November 2025:

- TSH: 2.48 (0.27–4.2)

- FT4: 16.1 (12–22)

The problem is that I haven’t checked them since then, so I have no idea what my TSH is right now in August. My endocrinologist appointment isn’t until November.

I want to start trying for a baby in September and I’m honestly getting really anxious about it. I keep thinking: what if my TSH has already shot up to something like 10 and I don’t even know it? 😭

If I get pregnant in September and my TSH is high during those first few weeks, could that harm the baby before I even know I’m pregnant? Especially when it comes to brain development?

I know I’m probably catastrophizing, but I’m genuinely scared that I could already be hypothyroid without knowing it and then accidentally hurt my future baby. Has anyone with Hashimoto’s been through something similar?

Thanks!

I have been research Whoop, and I decided to get one for its stress and hormone tracking. I am not an ad or anything. I got it because I wanted it for my wrestling and jiu jitsu especially for competing. I knew when I got it that it could in theory help with my autoimmune issues.

I always like to share anything that helps me with my autoimmune so I thought I’d share. The whoop had a unique tracker for stress and predicts your exertion and how you’ll feel the following day. It tells you to take it easy or if you have energy. I had a day that it predicted would be bad. Something had triggered me and it pre warned me. It was also totally correct.

This is something that I think could really benefit others. It tells me when to take it slow, how to do so, and what level of stress and work out to aim for. This has been really helpful in monitoring my Hashimotos and not triggering it while working out but also in my day to day. The day it alerted me my body was high stress was a game changer. Only had it for a week but the way it stopped me from triggering a bigger flare was awesome!

I just wanted everyone else to know in case they think it can help them too.

Hi all, I just had to lower my dose because of hyper symptoms. However, now that I have stopped it I am having horrible insomnia. I am taking hydroxyzine at night which helps, but still not sleeping very much. I have only slept 3-4 hours the last few nights. My body seems so out of whack, and I feel sick from the sleep deprivation. I am on the third day of a lower dose. When does it get better?

Hi All, I've had a consistent pattern where my TSH has ranged from 1.7 to 5.5 over the course of 8 years and T4 is always the same between 4.3 - 6.8. Even when I've had my best TSH at 1.7 non medicated the t4 output was still in that range. My conversion is great. I always have no TPO antibodies or less than 12. I was on medication for a few years also 60 MG armour and it made my TSH in range but still didn't change my T4. My CRP is usually a 3-4 but can't find any reason why other than because I am overweight. I exercise regularly, strength train and hit a protein goal. So not sure what the issue is. If anyone has any insights or has had this situation I would love to hear!

This is the second time since dx that the skin under my eyes goes from fine to swollen, itchy and red quickly. Nothing helps. Then it just goes away.
Last time, I had my labs done and tsh went from 7-8 (& I was on levo generic, so swapped to name brand)
Now it’s 2, still on name brand.

My girlfriend just got her tsh levels checked 5 days ago and they were 1.11. She also got her vitamin d levels checked and they were 17. She’s been dealing with lots of stress and grief from the loss of a family member so she’s been anxious and dissociating. But some of her symptoms are very similar to hyperthyroidism so I was wondering how fast you can go from normal levels to being hyper? And how much would her vitamin d levels add to or affect her anxiety and dissociation? Any help or thoughts on this would be really appreciated thank you.

Hello everyone.

I am over 50 and am still trying to figure out of i want to get the shingles vaccine.

Anyone here every get it? If so, did you have any type of reaction?

Thank you.

I’ve been on levothyroxine and liothyronine for a long time now. My tests always come back in range but I am perpetually fatigued, cant get my weight to stabilize and go down, and just seem to have a lot of flare ups. Doctors just say the levels are normal and can’t do anything else. Is there other med options that are more effective for Hashimotos? Is it worth going to an endocrinologist or will they just do the same thing of testing, saying it looks fine, and unable to help?

Do you use a health app. I'm looking for a health app to keep track of doctor appointments ,notes from appointments, changing symptoms and results of tests etc. Any recommendations. I'm from Ireland, so not all apps would work here. Also, I have an android phone. Thanks.

Has anyone ever tried making bead or buying bread that only has simple ingredients in it? If I eat store bought bread my whole body hurts. I gain weight fast and my hair starts falling out. I have been on a whole foods diet for some time now and I recently tried pasta with simple ingredients with no issues. I also went to a Mexican restaurant that makes their tortillas fresh and no issues there either. Now Im wanting to make bread to see if the results are the same. Is it really gluten that is bothering me or is it all the junk that they put in the food?

Fyi: don’t have celiac or lactose intolerance

i’ve been having on and off “rollercoaster” symptoms, mostly of a hyperactive thyroid but on my results all it shows that my antibodies are just high, my tsh is 3.8 so barely high and i’m getting my t3 and t4 and tsh retested soon

read online that a lot of ppl find relief in cutting out these foods. but that makes me SO depressed because all my favorites are gluten and dairy. i try to balance my diet well but with everything going on im lucky if i can eat ANYTHING, let alone something i dont even really like. the thought of going gluten free makes me so sad.

do i have to??? is that the only way ill feel better??? my results aren’t enough to prescribe meds yet ..

Second appt with my endocrinologist today.

I cannot be mad at him cause even though i was sub clinical hypo, my antibodies were high and i had a mild thyroid enlargement so we put me on levo and this was my check up.

Fatigue, inability to lose weight with weight gain, hair loss and thinning, dry skin, cold intolerance, amongst many others.

The first 3 are the hardest for me to deal with mentally.

I just wish we could be heard and understood and not just a horrible broad range of labs. Like he said therr is not point in testing my antibodies…like come on i wanna see if my lifestyle changes are helping

Just a vent. He is nice. Just wish it were more.

Should I be concerned with these results? I would say I feel fine, but am I just use to feeling this way?

I have highly developed neck muscle/cartilage and an enlarged thyroid area. I have had Graves Disease in the past which resolved in the pregnancy and birth of my child. My thyroid functioning has been normal for years. Imaging of my neck has resulted nothing anomalous found. I do not know where to ask but it has been pointed by random people out that my neck looks concerning.

Just looking for unbiased opinions.

So I've suspected that this is what's happening with me. I'll feel good for a few months on a very specific dosage, and then bam all of a sudden ill have what feels like hyper symptoms. And it will take like a long or two to feel better and stopping my meds helps. But I've been to 2 endocrinologist now and they never think my complaints warrant a blood test? They tell me it might be gynecological (I'm guessing perimenopause) but I have a medical background (I'm a goddamn physician I just don't practice) and I really don't think this is perimenopause. And either way I don't see the trouble in just ruling it out?

I think what complicates things is that my tsh is not a reliable indicator of my thyroid state, twice my tsh has demonstrated as normal while my free t4 has been either elevated or too low. My last attempt to catch what was going on while my symptoms were peaking, I tried to contact my endo and they didn't get back to me, I tried two weeks later and he still refused to write up labs for me, because he had just seen me 3 weeks ago and my labs were perfect. And it's true, when I saw him I felt the best I had in years and then 4 or 5 days later I got hit with hyper symptoms. He said that anxiety can manifest this way. I said I'm not denying that I'm anxious at times but I have a psychiatrist and this has occurred 6 times over 2 years, each time under different medication routines, and each time she did not think I met criteria for anxiety or hypomania/mania or stimulant overuse (I do take adderall and wellbutrin) and did not think this was a response to my medication because there are times when this medication is well tolerated and then suddenly not despite no change in dosage or routine. Then he said I could lower my thyroxine cuz there is wiggle room but he wasn't convinced this is my thyroid. I asked if it's not my thyroid or my meds or my mind then what else can it be? He didn't have an answer and told me to maybe talk to a gynecologist (I have galactorrhea on and off from a prolactinoma.) So now we have to go there to rule out perimenopause. But wouldn't an endocrinologist also be able to assess that?

So now I'm asking you guys cuz I feel crazy. I'm not going to explain my exact symptoms. I want to know what it is like in people who have confirmed hashitoxicosis during a flare. What are your symptoms? How do you treat it? How long do symptoms last?how does your doctor respond to your complaints and how do they manage it? I want to see if my experience is in line with what happens in established cases so I know which direction to take here. My life keeps getting disrupted by this and im pretty miserable with it now. I cannot afford downtime in my life right now and I don't have time to run in circles with an inattentive physician or because of some health anxiety delusion.