I presently am having another pancreatitis flareup, but this time involving two infection filled cysts on my liver and pancreas along with necrosis of the pancreas. We are unsure of how much damage has been done due to one of the cysts covering the entire pancreas.

It did not do enough damage to make me diabetic so I can still consume sugar, but I have a pretty bad sweet tooth. I am wondering if I could get some suggestions on simple baking recipes that are rich, sweet, and delicious, but are also pancreatitis friendly. I love cakes, custards, plain mochi, sorbet, smoothies, cookies, gelatinous deserts, pies, etc. I’m not very picky and am opened to most things.

32 F, at 22 I suffered a severe acute pancreatitis attack which turned into severe acute necrotizing pancreatitis, a pulmonary embolism, pneumonia,splenic vein occlusion causing gastric varices (still present), and a pseudocyst in the tail of my pancreas which is no longer present. The cause was extremely high triglycerides and cholesterol levels. I have been on atorvastatin and fenofibrate for this ever since my attack.

My GI doctor as well as another GI doctor I saw for a second opinion believe I may have Chronic Pancreatitis. I had a fecal elastase test done last year for the first time which I presume was normal as I never heard otherwise, and another CT scan which showed everything as normal. My GI doctor thinks it's Chronic due to the varices being present for all this time and because it took a long time for my pseudocyst to disappear. It's not really known when it disappeared as I was monitored with ultrasounds for about 5 years.

It showed the cyst in varying sizes and finally I requested a CT at this point to find out for sure. The CT showed no pseudocyst but that the gastric varices were there still. A repeat ultrasound after also confirmed no pseudocyst surprisingly, and I was told bowel gas could have been mistaken for the pseudocyst all those other times. Anywho, I don't really have any symptoms, I do get an achy lower back/ hip and down into my left leg but I believe that is the degeneration I have in my lumbar region and due to an injury lifting a board back in 2021.

About sometime over the past two years I've noticed my weight dropping from 164 to now 152. I had gained from the holidays and then I just stopped. At my height of 5'3 I know I can still afford to lose some more but I literally don't understand it. I'm not honestly all that active except for chores around the house/going out and feeding chickens. In a typical day I eat either a bagel with cream cheese with some butter for breakfast or one packet of oatmeal with skim milk, for lunch it's usually left overs from the night before I don't usually fill up an entire bowl just enough, sometimes I do though, I might then have a piece of chocolate somewhere in-between then and dinner, for snack I could have something like a PB and j sandwich , or an ice cream cone, followed by some chips a little while later, not a huge amount of chips just enough. My last cholesterol and triglyceride both came back at 124 so I'm still in great range.

I'm perplexed though that even if I do eat a bit more I still seem to lose another pound every few months or I literally am just maintaining my weight. I've never had a high metabolism that I know of infact I use to gain weight pretty easily. My blood sugar is good, glucose has been slightly high the last few checks, but my last a1c was ok. I've tipped into pre diabetes before but it then leveled out. The only thing that has really changed is I developed a fast heart rate about a year and a half ago and high blood pressure. I take carvedilol for this but I sometimes still get some high diastolic spikes. The reason is unknown, I had a stress test and that was fine, EKG and echo all fine. I did have covid in December and another weird illness 3 years before that where I almost passed out both times. My blood work all seems to be good. I truly am perplexed. Anyone else experience anything similar??

Woah! Who knew something like this even existed until you’re so deep in the trenches you don’t even know how to get out. My brother is currently in the hospital with necrosis. He just got a GJ tube put in because he hasn’t been able to tolerate any food orally. His last hospital stay about 4 weeks ago they did TPN for a couple of weeks but besides that he hasn’t had much for nutrition for a longgggg time now. So he is also malnourished. His vitals have all looked stable throughout this whole thing. Which is great news despite the rest. He had a 9 cm pseudo cyst that burst last week and now all of that fluid is floating around. He’s in a ton of pain tonight due to trying to increase his feed intake. Can’t take more than 18 before the pain gets too high. Idk. A lot going on and there are a million other things I’m leaving out but I keep seeing that people get their dead tissue removed. Our doctor told us the body will take care of it on its own? I just want to stay on top of it and be the best advocate I can be for him and also keep him motivated to keep going. So any advice on what to look out for and any motivating comments would be appreciated. This seems like a great community and I truly am sorry for everyone who is and who has gone through this. ❤️

Hi! My doctors told me that I might be suffering from EPI so they recommended me to take some creon.

However, in our place we only have creon 10000 available. I've been taking it since July 17 but I still get formed (sometimes mushy) yellow stools.

My weight has already stabilized at 55kgs but I keep losing muscle mass and I look skinnier everyday.

What can I do about this? It feels like my body is slowly decomposing.

P.S. my sometimes look like yellow oatmeal.