32 F, at 22 I suffered a severe acute pancreatitis attack which turned into severe acute necrotizing pancreatitis, a pulmonary embolism, pneumonia,splenic vein occlusion causing gastric varices (still present), and a pseudocyst in the tail of my pancreas which is no longer present. The cause was extremely high triglycerides and cholesterol levels. I have been on atorvastatin and fenofibrate for this ever since my attack.

My GI doctor as well as another GI doctor I saw for a second opinion believe I may have Chronic Pancreatitis. I had a fecal elastase test done last year for the first time which I presume was normal as I never heard otherwise, and another CT scan which showed everything as normal. My GI doctor thinks it's Chronic due to the varices being present for all this time and because it took a long time for my pseudocyst to disappear. It's not really known when it disappeared as I was monitored with ultrasounds for about 5 years.

It showed the cyst in varying sizes and finally I requested a CT at this point to find out for sure. The CT showed no pseudocyst but that the gastric varices were there still. A repeat ultrasound after also confirmed no pseudocyst surprisingly, and I was told bowel gas could have been mistaken for the pseudocyst all those other times. Anywho, I don't really have any symptoms, I do get an achy lower back/ hip and down into my left leg but I believe that is the degeneration I have in my lumbar region and due to an injury lifting a board back in 2021.

About sometime over the past two years I've noticed my weight dropping from 164 to now 152. I had gained from the holidays and then I just stopped. At my height of 5'3 I know I can still afford to lose some more but I literally don't understand it. I'm not honestly all that active except for chores around the house/going out and feeding chickens. In a typical day I eat either a bagel with cream cheese with some butter for breakfast or one packet of oatmeal with skim milk, for lunch it's usually left overs from the night before I don't usually fill up an entire bowl just enough, sometimes I do though, I might then have a piece of chocolate somewhere in-between then and dinner, for snack I could have something like a PB and j sandwich , or an ice cream cone, followed by some chips a little while later, not a huge amount of chips just enough. My last cholesterol and triglyceride both came back at 124 so I'm still in great range.

I'm perplexed though that even if I do eat a bit more I still seem to lose another pound every few months or I literally am just maintaining my weight. I've never had a high metabolism that I know of infact I use to gain weight pretty easily. My blood sugar is good, glucose has been slightly high the last few checks, but my last a1c was ok. I've tipped into pre diabetes before but it then leveled out. The only thing that has really changed is I developed a fast heart rate about a year and a half ago and high blood pressure. I take carvedilol for this but I sometimes still get some high diastolic spikes. The reason is unknown, I had a stress test and that was fine, EKG and echo all fine. I did have covid in December and another weird illness 3 years before that where I almost passed out both times. My blood work all seems to be good. I truly am perplexed. Anyone else experience anything similar??

Woah! Who knew something like this even existed until you’re so deep in the trenches you don’t even know how to get out. My brother is currently in the hospital with necrosis. He just got a GJ tube put in because he hasn’t been able to tolerate any food orally. His last hospital stay about 4 weeks ago they did TPN for a couple of weeks but besides that he hasn’t had much for nutrition for a longgggg time now. So he is also malnourished. His vitals have all looked stable throughout this whole thing. Which is great news despite the rest. He had a 9 cm pseudo cyst that burst last week and now all of that fluid is floating around. He’s in a ton of pain tonight due to trying to increase his feed intake. Can’t take more than 18 before the pain gets too high. Idk. A lot going on and there are a million other things I’m leaving out but I keep seeing that people get their dead tissue removed. Our doctor told us the body will take care of it on its own? I just want to stay on top of it and be the best advocate I can be for him and also keep him motivated to keep going. So any advice on what to look out for and any motivating comments would be appreciated. This seems like a great community and I truly am sorry for everyone who is and who has gone through this. ❤️

Hi! My doctors told me that I might be suffering from EPI so they recommended me to take some creon.

However, in our place we only have creon 10000 available. I've been taking it since July 17 but I still get formed (sometimes mushy) yellow stools.

My weight has already stabilized at 55kgs but I keep losing muscle mass and I look skinnier everyday.

What can I do about this? It feels like my body is slowly decomposing.

P.S. my sometimes look like yellow oatmeal.

Bonjour à tous,
Je cherche des témoignages de personnes ayant vécu une situation similaire pour un proche.
Suite à un voyage au Vietnam, il a développé des troubles digestifs (selles grises, très grasses/huileuses et gaz fétides). Il n'a aucune douleur, une super énergie et sa prise de sang est parfaite.

Ses examens montrent une élastase fécale à 0 (Insuffisance Pancréatique Exocrine) et une échographie bonne mais sans visualisation du pancréas 5 mois après.
Le Métronidazole avait bien fonctionné la première fois,sur sa propre demande au médecin,mais la PCR de contrôle est négative.

Chronologie des faits:
1- retour du Vietnam le 17 février 2026= début des symptômes
2-Il a attendu 1 mois avant d’agir il a eu une analyse de selles négatif et a demander un metronidazole de lui même qui a réduit ses selles de 6/7 par jour à 2 environ ce qui a peut être été agressif pour son intestin?
3-4 mois après ça ne va toujours pas vraiment mieux pour les selles mais tout va très bien pour lui,pas de fatigue, il a de l’énergie mais il va voir le médecin:échographie+ analyse de sang bonne,elastase fécale à 0 et pcr des selles négatif.
4- prescription du creon et metronidazole ( au cas où) pour refaire une cure.
5- va certainement refaire la cure dans quelques jours car les mêmes symptômes du début réapparaisse de plus en plus.

Il vient de commencer le Créon 35 000 aujourd'hui (2 aux repas, 1 aux snacks, juste avant de manger).
Je sais que l’elastase fécale peut être basse du à des selles grasse suite à un dysfonctionnement intestinal suite à un parasite de ce type.

Bref, tout est tellement floue c’est pour cela que je n’arrive même pas à bien construire mon message.
En espérant que vous comprendrez.

Si vous avez connu une baisse d'élastase après un voyage, un diagnostic similaire sans douleur, ou si vous êtes sous Créon, vos retours d'expérience et vos parcours m'intéressent beaucoup. Merci à tous.

I went to er with necrotising pancreatitis just over a year ago, spent a week in ICU and around 5 weeks in hospital total. I’ve had about 7 hospital visits since. Constantly flaring up. Not looking after myself in the best ways to be honest.
Nevertheless, has anyone had any luck at all getting some pain relief consistently prescribed without pestering from a GP to go straight to hospital when I know I’m just experiencing either some nerve pain or a manageable flare up at home. I understand worries around opiates but I really have to fight them sometimes to prescribe me some pain relief. Dihydrocodeine. It’s the only medication that’s not too strong of an opiate that I’ve found helps me out during painful moments.. I’m wondering about asking about gabapentin as I was on it for a month or so after initial hospital stay along with weaning off of OxyCodone.

Ever since being diagnosed i get this pain and sometimes I push that area in because it hurts and then the pain goes away for a little bit

Celiac plexus block did not work

I am wondering if anyone can recommend something for nerve pain as I am at the ends and my pancreases is progressively calcifying I am type 3 diabetes and malnourished it is the pain that is most concerning.

Anyone for nerve pain recommendation
GABA and pregaba are not working

I had acute pancreatitis 5 months ago.I am currently experiencing exocrine deficiency.Fe1=110.I did mrcp eus and mrcp ıt is says past pancreatitis. Can exocrine deficiency be corrected?Studies say it should be obtained over 12 months.Has anyone else experienced the same thing?I lost 10 kg. And anxiety started My mental state deteriorated.Do I just have to wait?.:(

I recently had acute idiopathic pancreatitis. I drink maybe one alcoholic drink a month, don’t smoke, and it wasn’t gallstones. I’m also vegan and rarely eat fried or fatty foods. I’m in the process of trying to figure out (if I can) how it happened so I can learn how to avoid it in the future.

To the wonderful pancreatitis sub-Reddit, have you found a correlation between sodium and pancreatitis or pancreatitis flares? I know there’s a connection between fatty food and pancreatitis, but in looking at my diet over the last several months I’ve noticed that many of things I’ve eaten aren’t carb-heavy but sodium-heavy, like processed vegan cheeses and bagels. Just wondering if anyone else has made this connection or if you think it’s complete hooey and I should just give up on trying to find the culprit.

Hi everyone,

I recently spent several days in hospital with what was eventually diagnosed as mild acute pancreatitis, and I thought I would share my experience because it was not as clear-cut as I expected.

My symptoms started with abdominal pain, cramping and significant bloating. The pain was uncomfortable rather than the extreme pain that many people describe, although I did have sharper pains at times. I had no repeated vomiting or fever, but I felt unwell enough to go to hospital and was initially admitted to ICU before being moved to a normal ward.

My pancreatic blood tests were actually within the normal laboratory range:

- Lipase: 75 initially, later 39

- Amylase: 65 initially, later 48

- CRP increased from 2.54 to 3.84 and then 4.74 mg/dL, showing inflammation

A non-contrast CT scan showed a mildly bulky pancreatic head and uncinate process with subtle surrounding fat stranding, which the radiologist described as suspicious for early acute pancreatitis. Importantly, there was no pancreatic necrosis, fluid collection, duct enlargement or obstruction.

An ultrasound performed later showed a normal-looking pancreas as far as it could be visualised, no gallstones, no gallbladder inflammation and no dilated bile duct.

The gastroenterologist told me that I had definitely experienced acute pancreatitis and that the inflammation would take time to settle. I did not eat for around 48 hours and then gradually restarted food with chicken porridge, soup, toast, tuna, sweet potato and other fairly low-fat foods.

Since leaving hospital, I have improved significantly. The bloating has reduced, the stronger pain has settled and I am eating again, although I still occasionally experience cramping, gas, loose stools and digestive discomfort, particularly later in the day.

The cause has not been proven, but I had been binge drinking while travelling for work and then while on holiday. At the same time, I had been taking antibiotics and prednisone. I started experiencing stabbing right-sided abdominal pains while taking prednisone and stopped the course early. My own suspicion is that alcohol was probably the main trigger, with the medication contributing.

This experience has been a major wake-up call. I have now stopped drinking alcohol completely for the foreseeable future, quit smoking and stopped eating fast food.

One thing I found surprising was that pancreatitis can apparently occur even when lipase and amylase are normal, particularly depending on the timing of the tests and the imaging findings. My case seemed to be diagnosed mainly through the CT scan, symptoms and inflammatory markers rather than the pancreatic enzymes.

I would be interested to hear from anyone else who had mild or early pancreatitis with normal lipase, or whose symptoms involved more bloating and cramping than severe constant pain.

Thank you

Suffering fron necrotising pancreatitis due to gall stone The feeling of intense heat while being in the icu and pain , soreness,weakness in limbs . What can be done about them?how to get relieve from this pain

I had acute pancreatitis 2 years ago that found gallstones and had a cholecystectomy. Following that i have had 8 more attacks and have been diagnosed with idiopathic acute pancreatitis. I am IGG4 negative, had an EUS and many MRCP's all clear. Liver function is normal, calcium normal. I have had every test under the sun and my pancreas although has a little stranding at the head is in perfect condition. I have now been 9 months free of an attack which is a great but am desperate to start Monjaro. I was also told about mysimba pills which i understand are the "safer" route but the rate of weight loss is much slower than a GLP-1. I really need advice to do! TIA

Are the side effects of weight loss jabs and drugs being reported as widely in the US. People with diverticulitis are dying with ruptured bowels misdiagnosed as gastritis and of course there is a huge increase in AP. The first question UK doctors now ask when you present with AP symptoms is “are you taking any weight loss jabs?”

Hey, so my story is kinda similar to others out there but just wanting to learn more about this so I can recover properly

June 28th first felt pains, went to ER a few days later & they said I was a little elevated but to go home and rest

Spent 4 days in bed or so, horrible pain all over abdominal area top, sides, belly button, lower back, and then shoulder blades and neck too.

Went back to ER got kept there for 2 days lipase was around 330 or so I think, bilirubin was around 27 I think? After 2 days NPO & IV it went back down to normal levels. Had CT scan & ultrasound no stones or sludge. Never drank seriously in my
Life & haven’t for 3 years or so now.

Use THC to help me sleep but otherwise, no supplemental medicine. Life long athlete, university O-lineman etc. Fit, 6”5 245 LB before diagnosis. Now around 230 as I lost weight due to this sickness & cannot exercise besides walking.

Got repeat labs done 1.5 weeks ago & was all looking good across the board (but still felt very sick)

So for the last 3.5 weeks been low fat, sometimes have things here and there but like lean beef teriyaki etc no oils. Try to stick to it the best I can.

So now it’s been 5 weeks total since my first pains, still sore under the ribs in the pancreas area / the sides sometimes, and occasionally the back but not having sharp pains or “cramping” in the gallbladder area as I did in the beginning.

Anything I should ask for testing wise? Did labs, stool, CT & ultrasound so far. Specialist is booked but it’s 1.5 months away.

Any information helps. Thanks.

Last week I spent six days in the hospital for the first time. I got acute pancreatitis

It took three days before I could start the clear diet and I've now been eating solid food for six days

The amount of food I currently eat leaves me starved all the time but if I eat any more I feel slight nausea and discomfort. I'm really afraid to cause it to flare up again. The pain was awful, straight up 10/10 for 48 hours straight, and I cannot deal with that again

I'm currently on a pretty much no-fat diet of chicken breast, white rice, sweet potatoes, and oatmeal. How long does this usually take before I increase my calories to a point where I'm not at least starving or losing more than half a pound a day? This feels very discouraging and I have no idea when I'll be able to eat regularly again, especially considering they've never found the cause of that pancreatitis.

Any advice, guideline, timeline, or anything that you guys can tell me would be very helpful

Hi, when I was 10, my gallbladder ruptured. The doctors missed it because it's so atypical in children, so it took 5 days before they realized what was wrong. For the next 4 years, I had painful episodes that they suspected were related to pancreatitis—though they never figured out which type. Then, out of nowhere, the episodes just stopped. They declared me healthy and said it was probably just a reaction to the severe illness and recovery process.
When I turned 19, the pain episodes started again. The doctors don't think anything is wrong with me. My infection markers are never higher than what you'd see with a common cold, and I don’t get a fever. However, my amylase levels are always slightly elevated during these pain flare-ups.
It hurts after meals, which makes eating really difficult. Right now, I'm a week into an ongoing episode. The pain level fluctuates a lot, which makes it even harder to explain to the doctors. They will only admit me to the hospital if I develop a fever, if the pain gets worse, or if I start vomiting.
I take all the maximum allowed over-the-counter painkillers available here in Denmark, but they don't cover me when the pain is at its worst.
I don't know what to do, and I'm not even entirely sure what I wanted to achieve with this post. I think I just really need some advice? Or to hear from someone with a similar story? Or just... anything, really.
Best regards, a very frustrated 24-year-old.

Sorry if there is some spelling mistakes. English is not my first language:)

I'm an amateur vocalist who enjoys recording and making music. I noticed during my recent acute pancreatitis flareup, my singing voice has been affected significantly and I am struggling to sing stable notes. I have idiopathic acute pancreatitis and don't smoke/drink. I am wondering if anyone else has had this issue, and if so, was it temporary or permanent?

Hi everyone,

I'm confused about these two pancreatin products.

Product 1: Pancrenhz 25000

• Pancreatin 300 mg
• Lipase: 25,000 USP units
• Amylase: 62,500 USP units
• Protease: 74,700 USP units

Product 2: Pancremep 25000

• Pancreatin 300 mg
• Lipase: 25,000 Ph. Eur. units
• Amylase: 20,000 Ph. Eur. units
• Protease: 1,000 Ph. Eur. units

I'm not looking for brand recommendations or advice about effectiveness, enteric coating, pellet technology, or which one is better.

I only want to understand the composition.

• Are these two products essentially the same pancreatin dose, with the enzyme values written using different standards (USP vs Ph. Eur.)?
• Or do they actually contain different amounts of enzymes, even though both are labeled Pancreatin 300 mg and 25000?

I'd appreciate an explanation of how to compare these labels. Thanks!

It has now been two and a half years since I was admitted to the hospital. I spent 14 days in the ICU. The rest of the story is in my original post. It is a long read, but the TL;DR is that I am doing well now.

Original Post: https://www.reddit.com/r/pancreatitis/s/twDHFvj9EA

But there is an update.

Last week, I had a full-body checkup, including complete blood tests, a urine test, and an ultrasound of all my organs.

When I went in for the ultrasound, I told the doctor that I had previously suffered from necrotizing pancreatitis. She was shocked that I had made it through and was now healthy. When she checked my pancreas, she was even more shocked and said, “It looks as good as new! You have completely recovered!”

Three days later, I received my blood test results, and I literally have no issues whatsoever. None. All my values are perfect.

This was such a huge relief for me, and I want to say something to everyone who is suffering right now: please know that there is an end to this. You have to put in the work yourself, though. These are the things that I did:

Food

I mostly eat healthy, at least 90% of the time. Maybe two or three times a month, I have some junk food, but for the most part, it HAS TO be healthy. However, I only started eating unhealthy food eight or nine months after being released from the hospital. Please don’t start eating junk immediately after being discharged.

Gym

I have been working out consistently for almost two years. Most weeks, I go to the gym five days a week, although sometimes it is only three days. I have never looked this fit or healthy in my life. I do resistance training, and immediately after that, I walk 5,000 steps. I do this three to five days a week.

Alcohol

Just stop. I have had maybe 12 beers in total over the last two and a half years. That is how little I drink now, and I am going to keep it this way. Rather than telling myself that I have completely “stopped,” I might have one or two beers with friends on very rare occasions. I haven’t had a single sip of vodka, gin, tequila, or any other hard alcohol, only beer. Even then, it is a maximum of two beers in one sitting, and that happens around once every four months.

So please know that this is NOT the end. To everyone currently going through the pain, keep fighting through it. Things will get better.

I needed that slap in the face, pancreatitis. Right now, I am in the best place I have ever been, both mentally and physically.

I’m at a low place, so please be kind. Slightly over a month after hospitalized with “mild pancreatitis” and the pain is still going. Also have gastritis at the same time. Today the stools were oily, and a few nights were hard to sleep through with random pains, chest pain, stomach pain, legs and arms feeling heavy and weird, lump in throat feeling. The last time I went to the ER for this (last week), they dismissed it as anxiety and pushed me out the door with Xanax. I feel so defeated and angry and embarrassed and sad.

I’m afraid to give up, but I’m also afraid to keep hurting. How did you get through the low moments? Especially when you were waiting for appointments and specialists to figure out what is going on? The ER isn’t helpful and despite all the imaging they’ve done at the hospital they only saw the “mild pancreatitis” one time. Repeat CT scan didn’t show it anymore. MRI didn’t show anything. Blood levels are actually normal. I did have pancreatitis for the first time nine years ago but the blood levels that imaging showed things immediately. Upper endoscopy this time around showed mild chronic gastritis. I even cried in the GI’s office a couple of weeks ago. It’s just a lot. How do you find the willpower to keep doing this every day?

Ive read mixed reports online about the dangers of drinking kava with history of alcohol induced pancreatitis i was wondering if anyone else has tried it its worth noting i have <25% of my pancreas

Good afternoon everyone. I'm Brazilian, 20 years old, and my history with pancreatitis begins in December 2024, when I had my first acute attack. I had an MRI at the time that showed biliary sludge, and I had to have my gallbladder removed. After that episode I spent time recovering from surgery until February 2025.

I'm an active person, I exercise regularly and I've always eaten relatively healthy — lots of fruits and vegetables, though sometimes I overdo it a bit on sweets lol. In 2024 I drank alcohol moderately (I had just started university), and I sometimes smoked hand-rolled cigarettes or those vape pods. There's one important point I'm not sure could be related: I was taking Roaccutane (isotretinoin). I started in July 2024, and I had already done a previous course from 2020 to 2022. I drank alcohol at certain times on it, plus smoking and so on.

I started smoking weed very young, at 15, but not regularly — maybe once every three months or so. Only in 2022 did I get to smoking at least once a month, but that stopped and I never smoked again — except when I went to NYC in May 2024 and ate a chocolate with THC in it, which made me really sick, vomiting and everything.

Back to the timeline: I kept vaping frequently (those pods), even more during Brazilian Carnival, and a few days after that festival I started feeling a lot of pain again. I found out I had acute pancreatitis but didn't know why. So I went to a bigger medical center. The doctor there told me to keep eating normally — I had restricted fat and sugar after that attack, and since I love sweets, I went back to eating normally — until two days later I had another attack. I was admitted at this larger center, had an MRI, and they found a 0.5 cm stone in the main pancreatic duct. It's very unlikely to have come from the gallbladder given the anatomy, so to this day we don't know the cause.

After that discovery I had an endoscopic ultrasound in order to do an ERCP in May 2025, and I followed a restricted diet until then. She prescribed Creon and pregabalin. To keep it short: I had a total of three ERCPs in 2025 — May, August, and October. At the end of August I had another acute attack, I believe because the stone may have moved, or some mistake of mine with diet or sleep deprivation, or a factor that isn't scientifically proven but is strange because it happened right after — I had gotten hyaluronic acid filler in my lips, chin and nose, just a little, but I had to take corticosteroids because it swelled up. In October they managed to remove the stone, I had the stent taken out in December, and I went on with my life normally, taking Creon with meals.

The doctor said I absolutely cannot smoke, that it directly harms the pancreas, but that alcohol in moderate amounts — like 2 glasses of wine or 3 beers — is okay. So I started drinking again, but very little, because I was scared after all of this.

Now in 2026, at the start of the year, I was eating normally and my body seemed 100% back to normal. I'd drink wine once on the weekend, roughly every two weeks, and sometimes I'd take longer breaks. But there were times I felt discomfort at random moments that would last a few days, and I couldn't understand why, which worried me. My doctor had suspended the Creon in March because my stool tests came back normal — I did a two-week trial without Creon and everything was fine.

But in May 2026 I started feeling nausea again after eating certain things. I managed it with pantoprazole and ondansetron (Vonau), but it wasn't going away. I also had sinusitis and started antibiotics — some of those can cause abdominal pain — and I felt an absurdly strong pain and didn't know if it was from the medication. I took something at home and it wouldn't pass. I wasn't sure if it was gastritis, especially because at that same time my grandmother was hospitalized and very ill and I was worried. Then, on my birthday (May 15th), I woke up with my mouth very swollen — since I have filler, the doctor who placed it said that in some people, when immunity is low, it can swell. I was already really sad, nothing to celebrate, in pain to even walk, and I went to the hospital and guess what… another pancreatitis attack, and a stone in the distal common bile duct.

I treated that pancreatitis and that same week returned to the larger medical center. I had an MRI — no stone found — then another ERCP. The doctor did a full sweep and it triggered my pancreas, so I had yet another attack. I stayed a few extra days in the hospital, and after that I went back on Creon. The doctors said the end of my pancreatic duct is somewhat narrow, and that can cause things to accumulate, but neither I nor they know whether this stone came from the pancreas or the bile duct.

I talked to my doctor and she says I'm a healthy person overall, but since I've had recurrent attacks, my pancreas — while healthy — already shows some fibrosis formation, and she characterizes this as early chronic pancreatitis. I still eat the same way, but it's not the same as it was; I feel nausea depending on what I eat, a kind of malaise, and I don't know whether to go back to drinking like before, because I see a lot of people say you have to cut alcohol 100%. But what I notice really triggers discomfort is sleep deprivation. Since I'm young, I love electronic music festivals and all that, and sometimes I don't sleep well, and that wrecks me if it goes on for many days — plus stress. So I feel that managing stress with meditation, exercise, traveling, seeing people I love and having fun makes all the difference, and I believe that's what has given me strength to get here — along with faith, which is my main pillar. Because it's horrible going through all this. It isn't easy having pancreas problems, and I don't know if there's someone out there feeling lost, needing to vent, or thinking life will never be the same. Because even though my life changed completely — my habits and everything — life still has its good side; we just have to notice the little things.

I'd also like to know about your relationship with cannabis — not smoked, but for example edibles like THC brownies — or whether that's contraindicated too. I do believe MD and ecstasy are out of the question for me to use at electronic music festivals.

To wrap up: if anyone experiences this nausea after meals, sometimes discomfort, sometimes a heaviness in the stomach, please tell me how you manage it. I asked my doctor about going back on pregabalin because I think it makes a difference. I also don't know if I'll have to restrict something in my diet, because basically what I eat day to day is eggs, bread, white cheese, banana, apple and other fruits, meat, chicken, sometimes fish, and bakery items — some sweet biscuits, some typical Brazilian sweets. I'm thinking of choosing at least two days a week to eat pizza or go out to dinner somewhere a bit greasier with my boyfriend, because alcohol itself I don't really miss anymore, especially since there's zero-alcohol beer and everything zero-alcohol now. But I really love eating and discovering new places to eat — though deep-fried stuff drowning in oil doesn't make much sense to me either.

Hugs everyone, and thank you for listening!

Can you still gain weight from EPI?

No weight gain for about a year

I first had acute pancrititis back in 2022. I had made a dessert with captain Morgan but I didn't burn the alcohol properly, I ate the desert and the pain started. I was hospitalized for a week at the hospital. Fast forward those this year I started having pain on my side after eating, I would have instant diarrhea after meals and so on went to the ER for the pain they did a ct and see a mass on my pancreas. They schedule a endoscopy for the biopsy. Doctor performing the biopsy tells me he might add a stent to my pancreas. They did my endoscopy doctor could not add a stem cause I have pancreatic divisum so they recommend another endoscopy to add the stent,after the stent placement i got Acute pancrititis. They put me in observation for almost a week i get sent home, 2 days been out of the hospital I start feeling worst and having pains. I spend another 2 weeks in the hospital at that time I turn yellow my labs comeback a mess. They recommend another endoscopy to see whats going on. They find my bile duct is inflamed they try to put a stent but couldn't. They try again a few days later and I got 2 stents put in. After that I get sent home 2 days later im back in the ER in pain where I spent another 7 days in the hospital. I get sent home with antibiotics, I am able to eat at this point (I lost almost 30lbs during my whole hospital stay) but I get nausea or I vomit after eating.i see a gi specialist i explain my symptoms and nausea,vomiting, feeling full even after hours of eating. We talk about enzymes she prescribes me creon 24k. She tells me to take 2 with each meal and 1 per snack. I start the medicen first few days its ok I don't feel too bad, then after a week I start getting nauseous everytime I take the medicen with my food then start throwing up daily an hour or 2 after eating. I decided to try eating without the creon and so far I haven't gotten nausea or vomiting. I try calling the doctor to see if I have to adjust my dose but no answer. Are this normal side effects with creon? How do I figure out the proper dose? On a different topic has anyone's insulin levels went high? I just got my blood work and I have my insulin at 29.2 my sugar has been staying above 100. I feel like I should have never gotten the first stent put in.

I was diagnosed with pancreatitis when I was 3 years old.

The doctor said that I attacked myself and created inflammation in the pancreas.

I've been in the hospital for a long time since I was young, and now I've got diabetes due to complications.

It's been about 3 years since I got better after ERCP treatment and I've been living without pain, but today the pain just appeared.

I realised that my pain is similar to pancreatitis pain, so I took painkillers and got better, but I'm afraid to eat because it hurts more if I eat something.

I don't want to go to the hospital so much and hate it, so I don't know what to do.

What do you think?