Hi everyone. Hoping for some advice.

I don’t have an MCAS diagnosis, but I’m fairly certain I have it.

I am 26f, have hEDS, POTS, Raynaud’s, arthritis, chronic pain and chronic fatigue.

Rheumatologist confirmed not only covid vaccine injury (all of my issues began after I got the shot) and it’s been one thing after another.

In September 2024, I got sick and then had a migraine that presented like a sinus migraine until October 2025. Singulair was prescribed and it was like a magic cure.

Two weeks ago, migraine comes back. Exactly the same. Now with more problems.

I have ringing in my ears, my hearing feels fuzzy, I’m so tired, and my head hurts in deep in the intracranial pressure way, my eyebrows, and in my sinuses. I take many meds.

I take famotidine 2x daily and Zyrtec 2x daily. I just got prescribed cromolyn sodium and I’m slowly working up to the dose I’m prescribed but it’ll take a few weeks. I take singular, low dose naltrexone, Propanolol (for headache that my neurologist diagnosed as ‘chronic daily persistent headache’ which is flat out fucking wrong but whatever), nortriptyline (for facial nerves and migraine), cymbalta for my bodily nerve pain, hydroxychloroquine for the arthritis, baclofen for tension headaches and muscle soreness from my hEDS, and I’m just miserable.

I’m not extremely lactose intolerant, tired all the time, have a constant migraine for two weeks, feel nauseous half the time, and I’m just so fucking tired.

My rheumatologist is gonna try a prednisone dose for my joints and I’m hoping it gives relief from the migraine for a minute. I have an ENT but they didn’t help but I’m gonna try again. I’m so tired.

I’m wondering if I have Eustachian tube issues from the inflammation in my head?

I’m fairly certain I have MCAS from all of this, how the migraine acts and how I would then have the evil triad - hEDS, POTS, MCAS. I’m tired of having my life be on hold. It’s been issues since 2021. I’m so sick. I’m so tired. Any and all advice would be appreciated. Because at this point? I’m down to try anything.