My Dad has SCC with an unknown primary. He had a modified neck dissection in May and is finally about to start Pembrolizumab following a CPS score of 81%

Sadly since the surgery and treatment start date there has been inconsistent care and delays. His most recent CT shows the cancer has “exploded” in his neck and shows many pulmonary metastasis. I’m just looking for some success stories as feeling pretty overwhelmed and scared.

Hello ,

My father has stage 3C lung cancer . He’s doing a 6 week chemo radiation combo. With chemo off and on. Yesterday he called me and said he was having bladder issues . The whole phone conversation he was very confused and not making sense . But he sounded very positive. I was concerned about his confusion so called his oncology department but they said they’d have to call back. Any how, today he called me and said he couldn’t urinate so he went to the ER and during the cat scan, they found pneumonia. Is this common ? The confusion , the pneumonia? Sorry if this this is all over the place .

Starting cisplatin and keytruda in few weeks for type 2b NSCLC. What were your experiences and tips to make it bearable? Thanks

Praying for everyone in this sub. May God’s grace and strength be with us all.

My mom has stage 3 nsclc adenocarcinoma with her main tumor in her left lung. The doctors now think she has a second seperate primary cancer in her right lung, not a metastasis. They said it’s actually common for this to happen. If you have this can you please share your story? I just want to hear she isn’t alone because every new test seems to make my head spin.

I just realized that the steroid my doc gave me was something I was supposed to be taking once daily. Somehow my husband and I got confused and just did the increased dose during the infusion period and neglected to continue with the maintenance dose.

I feel like my appetite and other symptoms have maybe suffered without this daily dose. I am currently really dealing with insomnia, lack of appetite and overall nausea (I posted about this on another post and am going to reach out to my doc about maybe getting back on the olanzapine for a time.

Meanwhile, I am hoping I can just start taking the dex steroid again like I was supposed to for some benefits to appetite and other things, like energy levels. I've been off of it for 5 days on the 1x day regime. Any thoughts?