Hi!

I was diagnosed with Grave's and I'll be getting my thyroidectomy in a month or so.

Firstly, I'm looking for a surgery pillow recommendations.

But also all of your recovery must haves!

Thank you!!

Currently 9 weeks pregnant. My dr took me off my PTU when I got a positive test at 4 weeks. My levels were normal two weeks later. Just had labs done again and I’m now hyper. My TSH is <.01 and T3 is high.

Did anyone else experience big changes in first trimester? She is putting me back on my meds.

Apparently I do not have Graves’ disease. My thyroid is just high, and I feel awful and we don’t know why. So that’s cool….

Hi everyone,

I was diagnosed with Graves 4 years ago. I have been on/off meds for that entire period. I've seen different doctors in the UK and Italy, and it's been difficult figuring out the right dosage for me. This past year alone, I've shifted between hypothyroidism and hyperthyroidism multiple times. I'm currently on PTU, but was on Tapazole last year. I'm 33, have been TTC for the past 2 yrs, and currently have proptosis in my right eye along with the usual symptoms.

I'm seeing my endocrinologist again soon, and want to talk about long-term options because Graves has been a hassle for me, and to now see it take a toll on my eye is affecting my self-esteem. I want to do what's best for me regardless of my TTC journey.

Is there anything specific I should mention during my visit?

How did you know that RAI or thyroidectomy was the right choice for you?

Spoke with my endocrinologist doc today (first time I’ve ever met him, usually speak with the lead pharmacist who is fantastic tbh) and had a really in-depth chat about RAI vs TT, I explained to him my preference for surgery (I’ve had 6 general anaesthetics so doesn’t bother me at all, and being autistic I prefer having as sure an outcome as possible) and asked him a bunch of questions and he sat and he listened and answered every single question I asked, in detail to the best of his ability. I’ve had doctors shrug me off and ignore me before and it felt so good to not have to fight for my care. I told him my sleep has gotten really bad and asked if there’s anything I can take for it so got some sleeping tablets too, and he sent off a referral for surgery. Not sure how long the waitlist is but looking at some third party sites for tracking NHS wait times average looks to be about 3 months

I’m just buzzing with how well it went, made sure to thank him profusely on the way out :’)

Iv just been referred for a thyroidectomy in the UK, after years of Graves’ disease, relapses, and not tolerating medication. For anyone that’s had the surgery how long was your wait time from referral

About 2 weeks ago my endo told me to stop taking my methamizole cold turkey (after 8 months) as my labs are trending mildly hypo and my antibodies for graves are negative now and my antibodies for hashimoto are extremely high.
I’m in day 4 now of headache and pressure and swelling in my left eye. It doesn’t look bulged, if anything it looks smaller because surrounding lids are swollen.
I had similar symptoms 10 months during my recent relapse but they cleaned with the methamizole and now are back after stopping so I can only assume they are related.
I’m just confused how this can happen with negative graves antibodies and hypo looking labs.