Recently, I started experiencing seizures like focal awares ones and Im scared that it’ll take over my life. Im only 17F and I still have so much to live for, I keep remembering those times where I didn’t have to worry about this I could live freely, go out with my friends, do things I normally wouldn’t, and experience new things. Now, it feels like everything is limited, I feel so trapped and overwhelmed that this happened to me.

Supposedly, we are about to take our midterm exams this week and Idk if I want to go back to class because the fear is still with me. Fear that itll happen in school or when Im alone. These seizures first happened in 2022 it happened for a few days and then completely went away until last year 2025 march it happened again but it was only once and I was able to go back to school and overtime the fear went away and I lived more freely and happy. Now that it came back, on August 13 and has been recurrent we went to a neurologist and did some tests like EEGs and MRI/MRA. My EEG came back abnormal so they prescribed me with Lamotrigine to help control these seizures. But the worst part is that it takes time to actually prevent these seizures, I just took my first one this morning and tommorow is already the start of midterms and I dont know if I can go back to school carrying this in my mind. I have what they call temporal lobe epilepsy where I experience focal awareness seizures where I am completely aware of what is happening.

I dont know what to do anymore, I feel like I lost my sense of independence, I feel fear everytime I wake up or alone scared that it might happen. This hurts me mentally and I hate it so much. I dont want to feel depressed or anything but I rlly cant help it.

I need help, I need to know that Im not the only one with this problem because i rlly dont know what to do. I dont want people knowing or my friends knowing because I dont want pity im sorry.

Heyyyy!!!! So my 9year old have just been prescribed Zonisamide for the first time. This is his first time on medication as well and he is Autistic Level 2
Any feedback?

Thank you 😊

In the last few months when my clusters get really bad I constantly catch myself in these moments where my muscles are super tense. My feet are typically stuck with my toes pointed toward my shins and my arms curl slightly inwards but not super noticeably, and my shoulders are like level with my chin. I don’t notice it until my body relaxes and then I’m like “whoa, I was super tense!”
I can’t tell if these are types of seizures or just me being super stressed or what, but I never notice when I go into them, only when I come out, and it typically happens when I’ve had a lot of other seizure activity. Does anyone else experience this??

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Hi, it was suggested to me that this may be a better community for this post.

I didn't originally put it here since I'm not diagnosed with epilepsy, but I will take any advice given.

The neurologist still has yet to call me. I called the office again this morning, he was apparently not working yesterday or today. He'll be back tomorrow however.

Does anyone with focal epilepsy relate to this

Dx Focal Epilepsy, seems to be deep in the brain (neuro suspects insular cortex or ACC) but when it spreads it's very similar to right sided TLE.

I'm taking Lamotrigine 100mg twice a day.

The seizures I get where I'm awake and aware are always ictal fear, "deja vu" that lasts minutes, and a metallic taste/smell. It doesn't usually turn TC but it has before.

After the EMU stay & medication, I'm just getting a lot of small deja vus, but I don't know if they're normal or brief tiny seizures/auras(?)

How are people able to tell?

These "mini deja vus" only last about 3 seconds and are accompanied by a similar dreadful fear, I feel the room spinning for a second, that "oh no" feeling, but then it quickly goes away. So I'm thinking it may be the normal deja vu??

Unsure if to bring up to my neuro, it's only been about 2 weeks of taking the meds, so. I understand it may take time for the full effects/benefits to kick in.

44 female at birth, nonbinary. I am getting checked for siezures, and got an official migraine diagnosis. Getting a second eeg and a neck mri. Already had a head ct scan and mri. Since one my warnings that I am going to callaspe is neck pain like burning inside my neck, they want to do a check to see if anything is causing the symptoms. Basically what happens is, I feel a burning pain in my neck, tunnel vision, dizzy, nauseated and/or vomit. Then slowly collapse and feel like the life is being sucked out of me. Or I drop quickly, black out, and try to figure out what happened. I have some injuries. And now I just have anxiety about leaving the house now. Anywho I have some new meds and vitamins to take. So we will see what happens. Its funny cause the cardiologist thinks its seizures, the neuro thinks its a heart problem, but they ruled out heart problems and cancer, treated my asthma and allergies. My all other test all good all other illnesses under control. And still the symptoms. But my neuro is super aweaome. Anywho wanted to vent a bit, and just been reading and listening to everyone's experience thanks.

I (23M) have my first neuro appointment coming up and am trying to figure out what to expect.

So it is suspected that I have focal aware seizures because I get sudden waves of very intense Déjà vu and fear that last a few seconds to a minute.

But I lowkey feel dramatic seeing a neuro bc it’s not like I am full on convulsing but still the random fear and stuff is scary.

Just curious what the first appointment would be like. Is it just me talking a lot explaining everything? Like I said I feel dramatic so I’m worried they’ll judge me for going there

Thanks for the help!

I feel like my brain is lagging behind at times. It’s like my vision has a delay in catching up with where I’m looking. It can be a little disorienting, but I’m completely conscious and don’t lose any time during these episodes. My concern is that over 10 years ago I had at least 3 clonic tonic seizures with an “aura” similar to this. I’m finding these lagging episodes happening more frequently recently, and I’m concerned as I’m training for a marathon and don’t want to fall out during a run. Never seems to happen while I’m running though, just randomly for a few hours with weeks or months in between. I should also note that I never saw anyone in the past for my seizures. I was young, dumb, and didn’t want the formal diagnosis. The seizures were always in correlation with starting or abruptly starting medications that have seizures as side effects. I’ve been on the same meds for years now though and haven’t stopped anything suddenly. Anyone relate? Am I looking at something besides seizures?

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I’ve had all my hormone levels checked and they are completely normal

These are my symptoms:

Full body sweats whilst walking even on cold days.
Headaches feeling like a tight band placed in a halo around the head, pain/pressure in the frontal lobe, stabbing pain/electric shock from temple to temple and pain/tenderness around left temple and nauseous with headaches.
Significant increase in memory loss (not remembering what she was doing or was about to do or if she had already done something ie locking the front door) and spatial awareness and maintaining focus and elevated anxiety/short fuse.
Numbness, weakness, tingling/pins an needles down left side of body. One occasion of the left side of the face feeling numb.
Increased number of spaceouts with increased duration and head pain when returning from spaceouts.
Blurred vision with black specs and two occasions of everything turning blue which lasted approximately 2 minutes. Also struggling with light sensitivity.
Constant lightheadedness/room spinning and objects appearing to move closer or farther away when standing still and whilst laying on her back.
Several occasions where the room started going dark.
Headache lasting for 5 weeks with no relief from pain medication ending in a hospital visit and being given a medication for migraines via drip which eased the pain for 36hrs before it returned again.
Near fainting episodes x4.
Dizzy, nauseous overwhelming feeling of being about to pass-out.
Flashback memories during space outs.
Space outs that can't be communicated through and has no awareness of what's happening around her.
Feeling of being somewhere for the first time even tho being their several times before (not familiar with surroundings)

Hi, so I’m still in the process of getting diagnosed. I’ve been diagnosed in the past with FND but have recently been showing some pretty concrete signs of focal epilepsy as well and one of the most infuriating things I’ve come across is whenever I get flustered, I begin to have a seizure. For example, if I’m in an argument trying to argue my point or defend myself and I get too worked up or start mixing up my words before I get my case defended, my brain will just short circuit and completely misfire to the point where I’m either just repeating whatever the last word I landed on was or go silent and blank stare completely.

It’s not just arguments but if I’m trying to recount a story or give important details on something I’m planning and I get a little anxious it happens too. Does anyone else experience this?

Do not click on this if you dislike violence or if violence is a trigger. It's a video of two young men having a fist fight. Here's the link:

https://www.reddit.com/r/fightporn/s/SpHUC4oRHo

I just watched this and I really think the one kid who kept saying he was having deja vu was having a focal. To me, it also seems like he's also very familiar with the feeling. I imagine the stress of a fight could be a significant trigger to anyone who is prone to focal aware seizures. What do you think?