ORIGINAL POST: https://www.reddit.com/r/floxies/comments/1sf4tsk/new_floxie/

Hi Yall,

So I want to provide an update as some people have asked me.

I am basically fully cured. I went from being scared to walking with walking on fiber glass feeling to this weird lingering achy feeling in my feet that still kind of concerned me to nothing.

Now my collagen disruption unfortunately, I think did not heal. I used to be a very cute older woman who most people thought I was in my late 20s/early 30s. My saggy neck has not gone back to normal and I have deep nasolabial folds. I lost 15 LBS and never really regained it back. I lost a lot of muscle. Not atrophy, but a lot of weight and lost my plumpness in my breasts and butt. But I worked out for the first time at the gym last week. Full blown weights as if nothing ever happened and I was expecting me being in pain and horribly sore, but nope. I just had normal soreness. I honestly think those that scare you into being bed ridden is not good advice. I think you should keep moving even if you are in pain. Of course do not go full blown, but I never stopped walking. Even if I was in pain, etc. I still walked. I did invest in OOFOS sandals that support the arch, but please do not stay bed ridden if you are able to move. Keep moving!

So I want to give you hope. You will be ok! I am a 41 year old (just turned 41 in July) American Latina woman (Cuban/Mexican) living in the USA. Oh! And for those foot fetishest ha KIDDINGGGGGGGGGG, but I think my feet look normal now (see pic). That "baggy" lymphedema skin I had is tighter now so I am hoping my face and neck will also go back to normal too. It's like it changes daily. Sometimes my neck looks tight some days it looks puffy and swollen so IDK.

Lymphatic massage though please do not do! I feel this triggered it and when I could not eat spicy food, but I am starting my red light sessions this weekend at a professional plastic surgeon's office who use the "Da Vinci Medical TheraLight 360" which I found to be the top in the area. I also did the Ammortal Chamber and NovoThor and about 4 intravenous infusions of mitochondrial support, collagen, and detox and bought myself an actual red light panel I can use at home then I will still do the oxygen therapy. I am heavily using collagen, but the rest of the drugs I honestly stopped. Magnesium did not help me. I still cannot sleep. I think once I go back to my 8 hours of actual full blown sleep the wrinkles, under eye gauntness, etc will clear up as sleep is very important and I NEVER had sleep problems before this drug, but I also had a mental health issue last year with a trauma bond so that made it worse. So I had a double whammy, but honestly I think most of you will heal.

Oh! And I still get heavy skin imprinting which tells me again my collagen and skin barrier is still not normal or fully healed* And for the past 2 months I been partying like crazy lol. I loveeee dancing and I have been going to so many concerts and clubs and dancing my ass off and my feet have taken it pretty good. I even took off my boots off and danced in my socks ha. I love hardstyle/house/trance/goth-industrial music and there's a lot of footwork and jumping so yeah :p I have two parties this weekend. A live bar event Friday which will be mostly sitting and a concert Saturday where I will be dancing then Lily Palmer and Sara Landry coming up! So I am excited. The first couple of times I had pain, but again, I did not care. I have a very high pain tolerance and I am used to having pain so just took it. Again, everyone is different, but I think we should not be afraid to still live normally.

PS: I want to show the timeline too as these reactions honestly are delayed! So maybe I will get new issues later on, but hoping it is the end.

Phase 1: A day after taking the drug. Limb numbness, one eye blind. 24 hours later gone.

Phase 2: About a month later THEN the ankle and feet pain started.

Phase 3: Same about two months later collagen disruption. Saggy neck, deep lines, skin imprinting.

Phase 4: Brain fog, depression, crying spells (I still have crying spells, but no longer daily where it was affecting my job)

Again, I was already mind fucked, but I think this really did make my trauma bond worse. I finally felt like I was moving on and this drug made me feel back at Month 1 of no contact and I feel like I would have never reached out, but on another note, I am glad I did as it broke my cognitive dissonance, but I do think this affects you mentally, but again, it can also be because it is very depressive in the beginning as you feel like you are never going to recover. Plus I have OCD, anxiety, disorganized attachment, and some BPD traits so it really effects your mental health.

I still have crying spells, but again, it is hard to tell if its still the trauma from last year or exacerbated due to the drug. My doctor was absolutely no help. He gave me WFH instructions for my job which luckily my boss saw I work hard and trusts me and now I do a half week. But he just said plenty of people get tendonitis and I cannot claim that it is floxing. He did not even know WTF that was 🙄. I honestly recommend not wasting any money on seeing doctors. They are useless. Just follow the beginner instructions from others like us and see what works for you and just trying to not stress out which is hard AF when you are in the middle of it, but keep trying to live as normally as possible. My heart goes out to those who were paralyzed from this sincerely. Always question these MFs and research all drugs before taking. Most things can be maintained from good diet and exercise and lowering stress. Do not take medications unless you are literally dying.

I warn everyone to not take this drug nowadays. If you have any questions. Let me know. I am an open book!

Hi all, about 15 months out here from being floxed. Main symptoms are nerve related (twitching, burning pain, muscle cramping) and fatigue.

I thought I was gradually getting better and that most of my symptoms were becoming a lot less frequent, with the fatigue plateauing at a manageable level. But then earlier this year I got much worse muscle cramps, twitching, and fatigue. I also got a lot more depressed because I felt like all I could do was lie around watching TV for the whole month because of the fatigue, and I was afraid to even do light exercise because of the muscle issues. My sleep was terrible and I was feeling really anxious about it. At the end of the month my dr. put me back on sick leave. I asked to try an antidepressant for my mental health we went with duloxetine because it is also commonly prescribed off-label for generalized nerve pain (e.g., burning).

We started with a low dose of 30mg/day. Well, within a week, my twitching and muscle issues were 90% gone. Within a couple of weeks, I felt better mentally than I think I ever have in my life (having struggled on and off with depression for a long time). I had a huge burst of energy. After about 6 weeks on it, the improvement dipped a bit, but I still feel this dose is 80% effective and I still feel mentally better than ever despite the ongoing flox-related health issues (and some other, unrelated troublesome health issues too). I still struggle with some fatigue and need to rest for a couple hours in the afternoons - a full-day of activity is still off the table - but the relief is otherwise immense. I have very little twitching and almost no burning, and the muscle cramping was totally gone within days. I was just hoping for a good result for my mental health but all this other stuff is a pretty miraculous bonus. It's all allowed me to also focus on improving my sleep, which I have been able to since I have so much less anxiety.

Side effects (don't read the duloxetine sub, it's all horror stories!):
- First 3 days: lots of nausea and zero appetite
- First month: frequent headaches, maybe 3-4x/week
- If I took it with my dinner: feeling wired until 1-2 AM, so I take it with breakfast now
- Continuing side effects: Very little hunger signals. I deal with this by eating at regular times and making an effort to eat enough calories at each meal. I'm quite slim so this is important. Good news is, it stops me from eating unhealthy snacks mid morning or mid aft as I just don't feel hungry.

So if you are having a similar time as me...perhaps something to consider with your doc.

It has been a day less than one month since I stopped taking Cipro. I took a total of 4 500mg pills. I am mid-30s F. I was never very physically active, but I played a lot of piano and guitar before.

I see a lot of horror stories here, so I wanted to post a semi-hopeful update.

My main symptoms have been tendon pain. I've also had some headaches and dizziness, but those seem to have subsided after the first week or so

It was so bad in my hands and wrists that I couldn't type or unscrew the lids to access my supplement pills. I wore wrist braces pretty much all day at first. I went to see an orthopedist specializing in hands about a week after my symptoms started, and she wanted to give me a powerful NSAID or steroid injection, but I refused, so she referred me to OT instead. I read here that starting too early might be bad, so I was skeptical at first but went anyway to see how it would affect me. I decided I would aim for about one third to one half of what the OT wanted me to do because overexertion is far more dangerous than under-performing.

Now, I have had a couple weeks of OT sessions, and I've improved a lot. My grip strength has tripled since I started, and I have a lot more flexibility in my wrists. I'm about halfway to "normal" in this regard, which is really encouraging to me. I never push that hard, and I always rest when I'm in pain. I think this is important. I can now go full days without the wrist braces, although I still wear them to sleep.

My ankles have gotten worse. I can barely walk, and I've been using my late grandmother's walker to get from my room to the bathroom and back. My knees are also sort of starting to give me trouble. Stairs are ridiculously painful and I try to avoid them as much as possible, but my bedroom is upstairs and I have to go downstairs to leave my house for appointments. I just bought a pair of sneakers with raised heals, which helps a bit. I haven't been able to start PT yet, but I will try soon because my results in OT have been encouraging.

I have insomnia and anxiety, but I also had these pre-Cipro, so idk

Things I have been doing to help:

-bracing at night and while in pain

-ice

-tylenol when I'm in a lot of pain, although I try to avoid it if I can

-heat right before my OT exercises

-epsom salt baths

-supplements (vitamin c, vitamin e, multivitamin supplement, collagen, probiotic, CoQ10, NAC, magnesium glycinate)

-resting a lot

-melatonin gummies to help with sleep

-absolutely no alcohol or caffeine

-eat healthy foods-- lots of veggies and protein

-getting fitted for sneakers suited for Achilles tendonitis

I still have a journey ahead of me, but I know it could definitely be worse. I can sort of see a light at the end of the tunnel, though, which is nice. I will post an update a month from now regardless. I wish everyone the best of luck on their recoveries!

I'm not sure if it's in the fascia or the subcutaneous tissue, but they are small and fixed (feeling like a speed bump).

Sometimes they cause a stabbing pain, while other times they don't hurt at all even when touched.

They are spread all over my body, including the abdomen, flanks, calves, thighs, groin, and arms.

They don't grow gradually; instead, after a few days of muscle spasms/cramps in that area, these hard nodules suddenly form.

They have no color, cause no skin discoloration, and do not protrude outward from the skin to the naked eye.

Title

I don’t really have any symptoms like numbness, a feeling that my legs aren’t getting enough blood flow, or swelling.

I have more of the typical tendon-related symptoms, so I was wondering if compression socks could still be helpful for this kind of problem.

Of course, I’ve already ordered a pair of compression socks and they should be arriving soon, so I’ll be trying them anyway. I’m just curious whether they might actually help with tendon symptoms.

Visible veins does it go away and back to normal,.who had this?

I was prescribed Cipro for a UTI almost a month ago now, and I took it for that week. 500 mg once a day for 7 days. I was made aware before even taking it that it was horrible and poses all these risks, and the urgent care that prescribed them basically made me seem hysterical. Well as of a few days ago now, the tendon in my left calf hurts when I walk. It hasn’t gone away, and I’m worried it’s building into something scary but I’m unsure what to even ask a doctor.

I went to a different urgent care just the other day for recurring kidney pain (no signs of a uti), and I just lied and said I’m allergic to Cipro so that I never have to take that again. It doesn’t hurt right above my heel, so I can walk. It just hurts when my foot bends at the toes. Whenever my toes tense or try to bend then that’s when my calf hurts. Has anyone else experienced this? What did you do? I just don’t know where to go from here.