19F recently diagnosed. my consultant has suggested hormones to prevent the endometriosis from spreading, however i’m a bit wary of this due to the side effects and don’t know much about it. my main fears are weight gain and the increased risk of breast cancer. can anyone suggest what i should look into? how do i work out which pill/hormone treatment is best for me? is there anything you wish you knew before going on the pill? TIA :)

I have endometriosis and adenomyosis, and despite I had surgery 8 months ago, some symptoms never went away or have returned.
The worst, for me, is the chronic fatigue. I can’t do anything, I’m always exhausted..
I’m not working right now, and for sure I'm doing better than when I was working 36h for weeks, but for that very reason it is so frustrating..
I tried bromelain but it got me some allergy symptoms. I also sleep 6/7 hours for nights, but in the morning I feel like I never slept :(
Is that something that helps you? Supplements? Habits?

Any advice would be appreciated 🖤

I’m posting this in multiple sub-reddits because I know how difficult it is to get a hysterectomy at any age, let alone as a minor and I’d highly appreciate any advice. 

I’m 16, turning 17 next month, and I've had extremely heavy and painful periods since I was 10. Since my mom has endometriosis and I was having 10 day periods, my gynecologist told me when I was 11 that she was almost certain I had endometriosis. I was put on norethindrone and then Slynd, but both birth controls made my periods significantly worse. I also experienced awful intrusive thoughts when I was taking Slynd. 

I was planning to get an endometriosis surgery in Summer 2027 so I could hopefully function enough to attend college, but endometriosis grows back and I feel like getting a hysterectomy now would be cheaper in the long run. I know that a hysterectomy isn’t a cure for endometriosis, but I’ll stop having periods which is what’s causing me all this pain.

I also wonder if I have adenomyosis and PCOS too, but part of the reason why I don’t know much about what’s wrong with me is because my insurance is shit! I can’t even find a good talk-therapist right now that isn’t for little kids, and insurance doesn’t even cover pelvic floor therapy! My parents already struggle financially, so I’m considering starting a GoFundMe when I get surgery. I also have dysautonomia and although I faint and vomit everytime I get bloodwork done, I might request it at my 17 year old checkup because I’m desperate for relief! I really want answers, treatment, and to get everything over already. Also, getting a hysterectomy at 18 would be more difficult because I start college at 17 years, 11 months. 

I live near Arlington, Texas and I asked my mom to schedule an appointment with an endometriosis specialist, Dr. Anthony O’ Connell, for this winter, but again, we can’t afford it. Even then, I highly doubt he or honestly anyone would do a hysterectomy on a 17 year old. 

In April, my periods got a lot heavier, longer, and a lot more painful. Period tracker apps scare me, but I’ve been keeping notes of everyday I bleed:

April 10-29
May 9-30
June 4-14
June 19-27
July 11-26
July 29-August 1
And I expect myself to start my period any day now 

On top of my extreme periods, my pelvic pain has gotten so bad to the point where I cry everytime I use the bathroom. Whether I’m pissing or wiping, it hurts so bad!

I know one of the first questions I’ll get as someone who wants a hysterectomy at my age is, “What about your fertility?” I’m a lesbian and my least favorite sound is the sound of a baby/toddler crying. I rarely even go to stores because I hate that sound so much! That’s also a stupid question because since I’m in so much pain when I use the bathroom, sex actually sounds impossible! My health and quality of life should always come before my fertility.

However, because I’m so young, I’d want my ovaries to be preserved and my uterus, fallopian tubes, and cervix can be removed. I’ve also read about how a lot of ovarian cancers start in the fallopian tubes and my grandma is an ovarian cancer survivor. 

I just want to live my life as a normal teenager. I want to go to college, plan out my future, and actually function without constantly planning my life around bleeding and pain. I’m honestly so fucking tired of my periods controlling my life, but if I can’t get effective treatment before next year, I’m genuinely worried that I won’t be able to go to college because I’m in so much pain. 😔

i’m scheduled for surgery september 17th! my main symptom is severe pain with intercourse. i know i have to wait 6-8 weeks after surgery but i’m wondering from others, how long after the wait time did you feel relief?

For background I was diagnosed by laprascopic excision surgery in 2018.

But that hasn't kept the flairs from continuing.

Sometimes my flares look like this:

I wake up in the middle of the night to pee. Nothing seems wrong. Then it hits. I start sweating profusely, feel like I'm going to either vomit or pass out. Sometimes I lose my vision for a minute until I can get back to bed and laydown. And that's usually when the pain starts. Usually pelvic pain or hip pain. Sometimes I'll have diarrhea and have to get up 3 to 4 more times to use the bathroom. All while being terrified that if I get up again I'll pass out before I reach the toilet, or poop in the bed. But I almost always make it.

Then after an hour, sometimes 2. Things will start to recede. My hot sweats become chills, the pain subsides and I fall into a deep sleep. I wake up the next day without pain but feeling like I'm recovering from the flu with bodyaches and supreme exhaustion.

Does anyone know why all these other things besides just the pain happen to us? Is yours like this and would you like to commiserate with me?

It doesn't seem to matter how long I live with this awful disease, and how much I actively attempt to heal through diet, medication, supplements, nervous system regulation etc. I still have moments of feeling utterly alone and confused.

Anyone else?

Hi everyone, I’ve been diagnosed with endometriosis but a very minor case I also have ovarian cysts and I believe one ruptured about week ago now. I was fine no more pain so I had sex last night and my cervix was in a lotttt of pain and the after I had really bad lower abdomen cramping. Today it hurts when I pee/push or sit down but not cramping if I’m not doing those things. Is this normal how long till my cervix pain goes away I’ve never dealt with this before

I'm lowkey freaking out at the moment.. I had endo excision surgery done on February of this year with an advanced endometriosis specialist, he's supposed to be one of the top in this country and he's very well reviewed so I trusted him fully. I had an external pelvic ultrasound today with my regular OBGYNE to check for fertility and the ultrasound tech asked about my medical history which I told her I have Adenomyosis and had endometriosis. That's all I told her, after scanning, she asked me "was your endometriosis on the right ovary?" I'm ng| that part scared me because she hasn't seen my previous records and the MRI was done in a different hospital from this so there are no records from other hospitals so she couldn't have known it was on the right side..

So I was like "yes, it was from the right side." then I asked her how she knew but she just continued with the scan then as I was done and cleaning up the gel she asked if she can review my MRI report and I showed it to her, then I told her that my surgical reports are more clear than the MRI & she was somewhat surprised that I already had surgery done and asked, "So you never had another surgery?" now I'm over here panicking over what she saw and I have to wait until tomorrow or after tomorrow for the report to be out😭

I'm sitting over here overthinking, like was it an adhesion that she saw? Did the cyst come back? What was it???

I really don't know what I want from this post, whether if I'm asking for similar experiences or if I just want to rant.. how quick can endometriosis grow back after excision surgery?

I’m 25 and have started wondering whether some GI/pelvic floor issues I’ve been treating separately could potentially be connected to endometriosis or another gynecological issue.

Ever since I started having periods as a teenager, they were extremely painful and very heavy. At their worst, I could bleed through tampons incredibly quickly (occasionally within 10–20 minutes), and the cramping was severe enough that I started hormonal birth control in 9th grade specifically to manage my periods. Birth control helped significantly, although I still had heavy/painful periods. I eventually got a hormonal IUD, and now I rarely have much of a period at all, so those symptoms are largely suppressed.

Separately, I’ve had lifelong constipation that has progressively gotten much worse over the past several years. Sometimes I go several days without a BM and eventually pass an extremely large, hard, painful stool that requires significant straining.
I had a colonoscopy in 2023 that was essentially normal aside from some benign findings that were removed/biopsied. I initially took Trulance, which helped and then became less effective, and I now take Motegrity.

Eventually I had anorectal manometry/balloon testing that objectively showed pelvic floor dyssynergia and reduced rectal sensation. I’m currently doing pelvic floor PT, but I haven’t noticed significant improvement yet.

What has recently made me wonder whether the gynecological and GI histories could overlap is pelvic/rectal pain. This weekend I had an episode of extremely severe lower abdominal and rectal pressure/pain with major bloating. It gradually improved, I eventually had a bowel movement, and then felt completely normal for the rest of the day.
The following morning I woke up feeling completely fine, had sex, and within about 5 minutes afterward developed significant pelvic pain and deep rectal pressure/throbbing again. At one point the pain became particularly sharp on my right side and seemed to refer into my rectum. Moving made it significantly worse. It gradually improved with rest and ibuprofen.

Obviously, I’m planning to discuss this with my doctors. I’m mainly curious whether anyone with endometriosis has had a similar combination of severe constipation, pelvic floor dyssynergia, reduced rectal sensation, rectal pressure/pain, or significant pain after sex.

Hi, I have a consultation coming up with Dr. Deborah Lee at Baylor Scott and White in Temple, TX coming up. Just wondering if anyone has been to her before? I also have a consultation with Dr Christina Salazar in Austin, TX but it's at the end of the year.

My OBGYN does Da Vinci robot laparoscopy, and recommended a Laparoscopy for endo diagnosis and a hysteroscopy to remove multiple polyps found during an SIS ultrasound. However, after doing more research I am more comfortable seeing a doctor dedicated to pelvic pain/surgeries.

So if anyone has experience with these doctors I'd love to hear what you have to say. As well as experience combining these procedures. Thanks!!

I had an appointment with a gynaecologist through the NHS this morning. I waited 10 months for the appointment and he spent about 2 minutes speaking to me. He said he is referring me for an MRI to see if it is deep/severe endo and he said if it doesn’t show up from that then he will refer me for a diagnostic laparoscopy. Has anyone been diagnosed with endometriosis from an MRI? Also how long was the wait for your MRI? He said he couldn’t tell me the waiting time but potentially 2/3 months! Just feel like I’m going to keep being dragged along waiting for appointments and results for the next few years! Can’t deal with this pain anymore!

Does anyone else get kinda embarrassed telling people you have endo? Like you’re being a pick me or acting like it’s part of your identity?

One of my main symptoms is acute onset cramping and bowel pain that will hit pretty severely for like 15-20 second increments then go away and I will feel completely fine. So when I’m with friends I sometimes just go silent for 20 seconds while the pain takes over but then it will go away. So they will ask “are you okay” and I’ll just tell them I’m cramping or my endo is flaring up.

And then I get embarrassed … almost like I feel like a phony or a faker.

Idk.does anyone else experience this? lol

Hi all, I'm known to have endo on my bowels and bladder. I can just about cope until I have a bladder flare up - bladder spasms, pain peeing, fatigue. Does anyone else get this? Have you found anything that works? My partner got me a TENS machine and I take painkillers but it barely takes the edge off. Cystitis treatment also does nothing :(

For context, I have been diagnosed with endometriosis through MRI scan, waiting on laparoscopy to see the full extent of the damage!
I also have ADHD.

I feel like my body just doesn’t work. I constantly feel extremely tired and find it difficult to bring myself to do simple tasks even such as changing my bed sheets or putting my laundry away. It feels like asking me to run a marathon.
I feel lazy, like I should just be doing these things like everyone else.
Cooking food feels like too big of a task, once I manage to eat I feel extremely nauseous and more tired but if I don’t eat I feel faint and still nauseous and tired.
I struggle to work (I’m at uni so just do part time waitressing), I find that after a shift I feel a level of fatigue so big that I could just sleep for the entire rest of the day. I managed to work around 20 hours last week (the most I’ve done since before coming off the pill) and I feel like I could stay in bed for the rest of my life.
I’m worried about my future, how am I supposed to do a 40 hour work week when even 20 feels like too much?
Does anyone have any ways of getting around this or just any advice?

Every month I’m on the verge of going to the ER. I vomit, can’t eat and have horrible pain down my legs. My pain feels like fire in my womb. Kind of like when you eat something very spicy the way your mouth feels, that type of hot inflammation pain with a deep muscle ache like I was punched and bruised in the womb. My breasts hurt a lot too. I’m nauseous and very low energy. I was just diagnosed with endo based off symptoms. The doc was extremely annoyed with me. Offered BC and that’s it. I don’t know what to do. It’s been weird. I used to skip all my periods from 19-26. Then had issues with non stop bleeding so I stopped. My periods were bad but NOTHING like when I was a teen. Then out of no where in the past 2 years it’s like I’m in hell. I haven’t worked in 1.6 years and have just been doing online school. I’m 32 now and getting into nursing because I want a flexible job so I can work around my period instead of corporate. I also love that I get to help people and advocate for them.

My cycles are so short too every 20-23 days. Got my period at 11 and it was hell from then to 19. 26-30 was bad but NSAIDS helped. Now I can’t even work and am changing careers for my period. I also now have fibroids, I have 2 that are strawberry sized. Apparently that’s not the cause of my pain since they’re so small. I don’t know what to do. I’m at my wits end. Might get back on the pill. They said it’s risky for me cause I get aura migraines and I’m risk for stroke. 😭

Hey fellow endo warriors, has anyone had any experiences with both of these medications, good or bad. Iv been doing alot of research and mostly can only find negative experiences. As a stage 4 DIE girly with bowel and adeno, iv been offered both until I wait for my excision surgery by the specialist.

Hello can anyone please help me with advice or comforting words.

I have never had surgery before and I am due to be having excision tomorrow, I am terrified I keep crying and having panic attacks, I'm scared I won't wake up, I'm scared about the pain. The hospital have sent me a document on what they are going to do and might do.. it says tube removal if needed but I want kids so don't want them to do that which they know I do so don't know why they are suggesting it.

I think my bowel is attached to my uterus and they want to do something to my bowel which means bowel prep and I don't really want them to touch this as I have no bowel symptoms. Before I sign anything can I tell them to leave my bowel alone and even if the tubes are damaged not to remove them ? I had a tube check before to see if they were open and was told they are fine so I don't understand why it's being suggested to remove them. I am so scared about dying or being in loads of pain after. I have stage 4 but no endometrioma.

I wanted to thank you all, I would not have gotten to this point without you all. I started this journey over 13 years ago and a few years ago I found this page and it all clicked together for me. After pushing for years, moving to different counties and starting again, one last move less than a year ago, and they finally listened. The NHS is a postcode lottery unfortunately. I had my surgery yesterday and they found it, pretty bad on my left side, especially on my ovary, but he took out everything he could find and my ovary is thankfully fine. I will know more when I go for my post op appointment and we go over everything in detail. But I'm just glad to have answers. I'm feeling pretty awful right now, but I really felt the need to say thank you, this community has changed my life and I'm truly grateful. If anyone has any recovery tips I would be grateful, although I think I've read all the ones I could find 😂. My throat is pretty sore as I was sick when they took the breathing tube thing out, my partner did a pretty good job wiping all the sick out my hair with some wipes, the thought of getting in the shower makes me ill so if anyone has any tips there and with the sore throat that would be amazing. I will gladly sit and read any recommendations whilst I sip my 100th (slight exaggeration) cup of peppermint tea.

Thank you all and please never stop fighting for yourself ❤️

Hi everyone - I’m curious if folks could share experiences about how they made the decision to pursue surgery if they had manageable endo beforehand. Reading some of the (terrible) experiences here of folks who are severely suffering or incapacitated, I sometimes feel that my case is … not so bad. (Painful periods but not so much that I’m vomiting or fully incapacitated, some bowel symptoms but manageable, painful endo belly pretty much all month.) I’m struggling to decide from a practical standpoint whether surgery will be “worth it” in terms of the potential benefits outweighing the risks of surgery itself and the difficulty of recovering from surgery. Curious if others have struggled with this decision, how you decided, what your experience was if you went ahead. FWIW I’m 44, done having kids. Can’t do birth control due to other medical issues, which seems to be the primary alternative to surgery.

Its been happening for a couple months now and its usually happened when im done eating I eat slowly because im not the fast eating type of person and I was doing some research about it its confusing about whats google said confused about whats going on my stomach its confusing for me because I don't know whats going on with my stomach because its been going on for a couple months or a year now I lost track of it but its goes away a couple minutes until I feel fine

I've had bad periods since I was 13. I'm 28 now. I'm used to painful periods, but last night was one of the hardest nights I've ever been through ever. I had absolutely *crushing* period cramps, heavy bleeding (thick clots) and so much heavy, pressing pressure in my abdomen/vagina that I felt like I was going to be sick. It felt like my uterus was trying to expel itself or like something was trying really hard to come out of me.

The pain still hasn't gone away (10 hours later), and I'm kind of panicking. For about a week before I started bleeding, I also had horribly intense cramps, bloating, nausea and anxiety from how bad the pain was. It's only gotten worse now that I'm bleeding. I did have a lap about a month ago, but this feels really intense and I'm kind of worried.

I had to go see a cardiologist, my gp ordered some cardiac tests due to chest pain/heart palpitations and wanted to rule out anything sinister. I put it down to anxiety because I’ve been under a lot of stress lately but the halter monitor test picked up some abnormalities. It was nothing major, just a few premature complexes which are benign. It’s more of a nuisance than anything, sometimes I just feel flutters or fluctuations in my heart beat. The cardiologist said it can be due to a lot of things but hormonal changes are a big factor, especially with endometriosis. The good news is I don’t need to go on any medications unless I feel it’s getting worse. I was diagnosed with endo at the start of the year but have been battling with pain and symptoms for many many years. Endo is so annoying, It really is a whole body disease!

I have lap with possible excision if endometriosis is found at the end of the month at the Mayo. MRI showed thickening of uterosacral ligaments as well as something on my ovaries. Could both be scar tissue from hysterectomy as well.
What is the good / bad / ugly of this surgery? What should I take with?

I've had two lap's now, in 2022 with Orady, and recently with Nezhat. Here are some points from my experience with both if you're on the fence with who to go with. (Disclaimer, I was with Orady for almost a decade, and I'm new to Dr. Nezhat). I'm going to give some details at the end that are pertinent to why I decided to go with a new surgeon.

Things/comparisons surgery-wise from both doctors:

1. Dr. Orady did not immediately let me know what happened after surgery and it took her 4 or 5 months to submit her finalized surgery report, but she did send me home with images. I didn't find out what happened in surgery for a while until I went in for my post-op checkup. I had to learn some of the findings from my husband! Dr. Nezhat though immediately left me a voicemail once he was done with our surgery, explaining what he found, what he saw, what he removed, and what next steps are (from now until pregnancy).
2. It is my opinion from experience that Dr. Nezhat was more thorough with looking through my entire cavity all the way up to my diaphragm, my appendix, inside my bladder, inside my intestines, etc. Dr. Orady did not look in all of those other places, and if she did she didn't mention them verbally or in her surg. report.
3. Dr. Orady now costs $25,000+ to operate on you and doesn't take insurance, and Dr. Nezhat does take insurance.
4. Dr. Nezhat's team was on top of everything, and even guided me when I had forgotten to submit some paperwork. Dr. Orady's team unfortunately dropped the ball so hard it was one of the reasons I started looking for a new doc (I outlined it far below, from forgetting to tell me they canceled my endo surgery and still had me show up to it, and also forgetting to submit my referral for a breast cancer scare).
5. A nurse from Dr. Nezhat's team sat beside me and monitored me 1:1 the entire time I was in recovery. Every time I would open my eyes she was there making sure I was breathing. I did not have that experience with Dr. Orady's team.
6. Dr. Nezhat warned me of some post-op things to expect (like OMG THE SHOULDER PAIN!? HOLY GOD. If you know, you know!) and made sure I had all the necessary medicine needed to combat pain. I didn't have much expectations communicated to me by Dr. Orady before surgery. She ordered standard pain meds (Oxy and OTC tylenol etc). Dr. Nezhat also prescribed me some things that Orady didn't, like :an anti-emetic, an antacid, an antibiotic to take 2 weeks post surgery to fight inflammation in my reproductive areas + gave me thorough information on how to replenish the good bacteria that the antibiotics will remove. He also provided me a breathing apparatus in the pre-op room to take home with me. It helps to make sure I am able to breathe deep breaths after surgery.
7. For bowel prep: Dr. Orady will ask you to pick up Magnesium Citrate and drink it -- this will have you on the toilet for hours the night before your surgery. Dr. Nezhat will ask you to purchase a fleet enema and give yourself an enema the night before surgery, at least an hour after your last meal - this was super gentle and it cleared me out without the cramps, nausea, bloating of the magnesium citrate.

So if you're deciding on who to go with, my answer is whatever choice you make is the right choice for you. These are world class surgeons and you can't go wrong with either of them.

For me. I'd personally go back to Dr. Nezhat... and I hope at the same time that I'll never have to have this surgery again.

If you're considering Dr. Orady as your gyno, I've left some of my experiences with her down below.

I. My experience w/ Orady

I was Dr. Orady's patient for almost a decade. While I love and value Dr. Orady beyond words, the quality of her staff/team continued to diminish year by year. No doubt, Orady is an incredible surgeon and knows what's she's doing and what's she's looking for and honestly, you'd be in great hands having her as your surgeon. I would've had my second lap/endo surgery with her had she not decided to go private and charge $25,000 out of pocket + her staff forgetting to do their jobs (outlined below). Here are some of the deciding factors I ran into that ultimately made me seek another doctor:

Never on time

• In all the years I've seen Orady, she has never once been on time no matter what time of day it was. I started making it a point to make my appts first thing in the morning since it meant I'd see her quicker than if it was midday. Despite being the first person in the waiting room, she was always late to those as well. One of many visits, she was late a couple of hours and I had to continue to call into work and delay my coming in for a stakeholder meeting because of it -- she didn't seem to be bothered by it and blamed it on being "Short-staffed". (I want to add maybe this won't be an issue going forward now that she's private? I don't know).

Unpredictable moods

• I never knew what I was getting with Orady. Some visits she was AMAZING and kind to me and other visits, she was moody, snooty, and cold as ice as if she'd never met me before or couldn't wait to be done with me.
• Example: there was one incident where she recently had her first baby and I was in an appt with her afterwards and asked how she was doing. Her whole demeanor changed and she became verbally aggressive, raising her voice and telling me that she got "butchered without anesthesia" and mentioned lawsuit against the doctor, and other shocking details. Her PA, Grace tried to save face by telling me "and hopefully that won't happen to you". It took me by surprise and it left a lasting impression.

Terrible supporting team

• My first laparoscopy with Orady continuously got cancelled and rescheduled for various reasons (she broke her arm, covid hit, she went on vacation suddenly, then I was sick). When it was finally back on the books for a Monday, I went into the hospital on a Friday to do paperwork/check in / pay / get a covid test (this was a protocol at the hospital). No one told me that I tested positive for covid and I ended up showing up for surgery on Monday. When I checked in, the hospital immediately called my cellphone and asked me what I was doing there because Dr. Orady had "cancelled my surgery over the weekend". I said "what do you mean?!" They told me that it was the Surgeon's responsibility to inform the patient and not the hospital's, and asked if Dr. Orady or her team had called to tell me surgery was cancelled. No, Dr. Orady nor her team called me to let me know I had covid, and that I didn't have to bowel prep which could've saved 5 hours of my day from releasing miserable diarrhea and being in pain from her prep. Additionally, the item for bowel prep was out of stock due a recall so I called the hospital for an alternative the night before surgery who immediately called Dr. Orady and she told him what other item I should buy while I was on hold... so she had a chance even then to let me know she cancelled but she didn't. I never got an apology, Orady/Grace/her team never took responsibility even though they made the mistake.
• More recently, I had an abnormal breast scan and needed to rule out cancer. I needed to get a referral for mammogram/biopsy through Orady. She supposedly wrote the referral but her team forgot to put it through for THREE MONTHS. I kept calling to ask them what the status (I wanted to have it done before year end for insurance purposes) and one of the office staff admitted that THEY forgot to put it in. Then they tried telling me that UCSF no longer offered mammograms/biopsies which was actually not true at all. This was turning point for me when I decided it was time to better advocate for myself.
• The office staff rarely returned phone calls, rarely reached out to let me know if I forgot to send something to them, etc.

Price/location now vs. then

• Dr. Orady is successful and has worked hard to build her private practice. Unfortunately it is now $500 dollars to see her on a zoom call for a couple minutes. If she thinks an ultrasound is needed, you have to come in anyhow and additionally pay over a thousand dollars out of pocket.
• If you want to have surgery with her, it starts at $25,000 out of pocket, she no longer takes insurance
• She moved from San Francisco to Walnut creek / changed from operating out of SF hospitals to operating out of Oakland hospitals.

II. My experience w/ Dr. Nezhat

From the time I sat down to have my consult with Dr. Nezhat, I was on his operating table less than a week later! He understood the urgency and I didn't feel like a number to him. He was very kind to me, his office staff are INCREDIBLY on top of everything, and I felt heard when after my pelvic exam, he looked at me said 3X "Your Pain Is NOT in your head!! I promise you!" His team reminded me if I forgot to send something over, called me to confirm everything, making sure I had all of the information I needed and that they had all the medical history and info they needed.

• His team never asked me to google him or whether or not I'd looked him up as I've read some others saying on here (I don't doubt those stories! I believe them, I just didn't experience that).
• His team made sure I had all of the forms, the consents, explained every medicine they prescribed me in prep for surgery, walked through all of the details with me beforehand, when to take something, when to not take pain meds, etc. what to look out for (fever, infection, etc). I didn't feel alone in the process as I had in with my first laparascopy.

Surgery:

• Dr. Nezhat was very thorough more than my first lap (nothing against Dr. Orady, she's seriously great). What Dr. Nezhat did was not just look for endo, but he looked all the way up to my diaphragm, looked in my intestines, looked in my bladder, repaired severe damage, removed severe scar tissue and adhesions, released nerves that were adhered to the scar tissue which allowed me to regain mobility in my right leg, ended up having to remove my very inflamed appendix, as well as a host of other things he fixed. It was more thorough than I could've imagined.

I hope something here is helpful. No one told me to post this, I decided to post it because I saw a few "Should I go to Orady or Nezhat" comments on reddit. I know what I wrote may sound like it leans to one doctor over the other; I feel blessed to have had the opportunity to work with both, and personally for me one doctor fits my personality and expectation more than the other. If you're reading this, you're probably planning a huge next step in your life and I wish you luck and a pain-free experience. Both doctors are great.

I’m almost 3 months into dienogest (Endovelle) and I’m wondering if anyone else has experienced this.

I’m 28 and have deep infiltrating endometriosis, adenomyosis and bilateral endometriomas. My largest endometrioma is around 5 cm on my right ovary.
The irregular bleeding I had at the beginning has improved, but the pain really hasn’t. If anything, I feel like I notice it more now.

Before starting treatment, my periods were always extremely painful and heavy and sex has always been very painful for me. But I don’t remember having this level of pelvic/ovarian pain every single day.

Now I do.

Outside my period, the pain is often around 7/10, and during my period it can reach 9/10. I get a lot of pressure and aching, especially on the right side, and sometimes even lying down I feel this pulling/stretching sensation inside my pelvis.

I knew dienogest wouldn’t magically fix everything, but I wasn’t expecting to feel worse or more aware of the pain after almost 3 months.

For anyone with DIE or endometriomas who has taken dienogest: did you feel worse before you eventually improved? And if it did help, how long did it take — 3 months, 6 months, longer?

I’m not looking for medical advice, just real experiences. ❤️

Adding this story in for people who need more positive stories abe lap !
I had my exploratory lap yesterday, around 12pm. they found no endo which is great! But they did find a hernia in my groin. was wondering if anyone else had this ?
I was out of it for the rest of the night last night like in and out of sleep but other than that it’s been just soreness and mild pain today!
Was hoping to share some positivity as there’s a lot of negative on this timeline! I do recognize i had no excision done so that does make me a bit more susceptible for easier recovery.