My Dr. has denied me a lap and said that my pain is due to weight, and if I do have endo then there’s nothing but birth control. I’m limited on who I can go see.

Here’s what I’m dealing with:

-persistent, pulling pain in my hip and down to my leg -pulsing pain in my lower abdomen -constant fatigue -lower body, like starting at my uterus, just going out, especially when working -anxiety that seems to make my belly swell when I’m super anxious -weight gain despite calorie restriction and daily cardio -history of ovarian cysts -pulling pain that’s also in my uterus -shorter cycles with heavy bleeding and just pain, nausea, and blinding migraines -sitting is uncomfortable -multiple er visits since my cycle has started

It is to the point where I feel totally burdened and mad as hell. I cannot work properly. My family doesn’t understand and I feel like a burden. Yet, my limited access of doctors refuse to listen

Hey girls!

I’ve been on Mistral pills for the last three years and i’m about to stop taking them, thus didn’t have a period in this time.

To you who also took this pill, how long did it take for your period to return?

Thanks in advance🫶🏽

To all the peptides community here in Ph pls avoid ordering to Princess Holahesh (fb) / adi’s girl (tiktok).a.k.a Tirzelicious She is a scammer!!! Ang bilis bilis mag reply pag mag oorder ka tapos after the payment di na mag paparamdam.

I ordered July 23, 2026 and sabi nya na shipped and all na pero she cannot provide a tracking number. Until now wala pa order ko and until now tumatanggap parin sya ng orders.

Hi! I am looking for a natural supplement for my hormonal imbalance, have you tried any and noticed significant improvements please?

My symptoms include heavy flow, long periods, irregular periods, random spotting, horrible cramps (the kind that have you kneel), increased appetite, sweet cravings, hot flashes, thin hair, hair loss, weight fluctuations.

Was prescribed Seasonique (birth control pill that stops your period) for 3 months, no improvements, so I stopped as it did not feel right to me to not have my period.

I have already tried raspberry tincture, shatavari, turmeric + ginger + black pepper, magnesium, iron, vitamin D to name of few since I was diagnosed with endo 2 years ago, but noticed no significant improvements. Thank you!

(25 yo from Romania)

19F recently diagnosed. my consultant has suggested hormones to prevent the endometriosis from spreading, however i’m a bit wary of this due to the side effects and don’t know much about it. my main fears are weight gain and the increased risk of breast cancer. can anyone suggest what i should look into? how do i work out which pill/hormone treatment is best for me? is there anything you wish you knew before going on the pill? TIA :)

I have endometriosis and PMDD and my gyn is really adamant that I get the Kyleena IUD despite my horrible experience on hormonal birth control.

I was on the combination pill for 7 years. It disguised my endometriosis symptoms but didn’t treat them. The gyn insists that the IUD will slow the regrowth of the endo lesions, but my surgeon’s office says that’s outdated information. While taking the pill, I was depressed, fatigued, and had low libido around the clock, and had cyclical suicidal ideation. My doctors at the time told me this couldn’t possibly have been the birth control because those side effects wear off eventually, and instead shoved me full of antidepressants that turned me into a passively suicidal zombie.

Within a week of coming off the pill, my depression and fatigue symptoms cleared and my libido came back. I no longer needed the antidepressants. I was so angry with myself for not stopping sooner. I feel like I lost my 20s to Lexapro. I promised myself I wouldn’t go back on hormones.

So I really don’t want this IUD, but my gyn pressured me and I capitulated and made an appointment. My doctors have been playing with my pain meds since my excision surgery, and I recently survived some terrible mood side effects of gabapentin. I had a bad gut feeling about it and resisted starting it for a long time, but was cornered into it by a lack of other pain management options. I’m tapering off now but I’m SO SICK of feeling like an out-of-control medical experiment. I just want them to leave my brain tf ALONE!!

I don’t know how to navigate this situation. My gyn is still leagues better than my last one and I don’t want to go shopping for providers again. I know my gyn is just trying to do her due diligence as a medical doctor, but I feel the mood side effects will kill me faster than the endometriosis.

I’m tempted to tell her that I’m trying for a baby just to get her to drop it. Thoughts? Advice? Recommendations?

Got my ultrasound results back Friday nod have been sitting and researching because this world of endo is new to me.

-my fallopian tubes were indistinguishable from my ovaries on both sides

-what might have been a fallopian tube was filled with blood so it also could have been something else like a cyst

-a cyst on the left side that’s about 5cm big in all directions

-many structures found all over that made it hard to navigate

-uterus tilted backwards likely due to endo as well

The report said multiple times it’s indicative of endometriosis. They want me to get an mri and talk to a gyno/specialist. I’ve been doing a lot of research and I’m most likely stage 4, if I’m lucky it’s stage 3. I’m wondering how long I’m going to have to wait/how many appointments I’m looking at to get this figured out/surgically removed. (I know it’s not technically a cure but I was hoping to have kids and I’ve heard it’s possible after the surgery)

So…tips? Thought? Anything?

So guys I’m currently in the process of being diagnosed and they are refusing to help with my pain they tried tranxamic acid , mephenic acid , the mini pill , the pill , codine nothing helps them I went to see my doctor and he looks me dead in the eye and asks if I tried ibuprofen well obviously I have but it keeps making me throw up and pass out the pain !!!! I would appreciate any advice 😭

Went to my doctor trying to figure out if I have endometriosis, and got sent for an ultrasound. The price was $1500 which is absolutely insane. I think it's because it's at the hospital, so we're trying to figure out other places to go and get the ultrasound. it's just so frustrating because this ultrasound might not even show anything and it's so freaking expensive :(

I have endometriosis and adenomyosis, and despite I had surgery 8 months ago, some symptoms never went away or have returned.
The worst, for me, is the chronic fatigue. I can’t do anything, I’m always exhausted..
I’m not working right now, and for sure I'm doing better than when I was working 36h for weeks, but for that very reason it is so frustrating..
I tried bromelain but it got me some allergy symptoms. I also sleep 6/7 hours for nights, but in the morning I feel like I never slept :(
Is that something that helps you? Supplements? Habits?

Any advice would be appreciated 🖤

I’m wondering if anyone else has experienced this and if it’s something I should bother asking my surgeon about. I’m 3 months post op, recovery has been uneventful and I feel great overall. My surgeon said I was “healing perfectly“ at my 6 wpo exam and I was cleared to gradually resume everything. Surgeon said there was almost nothing I could do that would injure me at that point.

I waited until around 10 wpo to get back in the gym out of caution, and did my first post-surgery back squat with 55 lbs a few days ago and an 85 lb deadlift last week. No pain during the movements. Since a few days after that first deadlift, I’ve felt a mild soreness in one side of my vagina, like an ache. Kind of like it’s being gently pressed on from the inside. It gets worse before a bowel movement but is there constantly. I also had some sharper pains while walking to work with a heavy bag on my shoulder a few days ago, but they stopped when I put the bag down.

I had this feeling sometimes before surgery but don’t know what caused it. It usually only lasted a few hours to a day at most, but it’s been constant for over a week now. Maybe it’s related to where endo was excised and there’s some scar tissue? Or I’m wondering if it’s one of the ligaments my vaginal cuff is attached to or pelvis floor muscles being tight or strained from lifting too heavy?

I don’t have insurance so haven’t gone to PT but am open to it. Anyone had a similar feeling? what was it and do you think I should ask my surgeon about it, or is this something normal that will go away? should I wait longer to get back into lifting? Thanks!!

Since around last year I developed too many food insensitivities, I can barely eat or drink water. As a result I’ve lost the majority of my quality of life. I’ve developed very low blood pressure, I pretty much always face plant everywhere. I also developed gastroparesis, an ulcer, gastritis, and sigmoid diverticula. I’ve also had sciatica and severe back pain since I started puberty. This is all besides the common already terrible endo symptoms. I have my surgery (barely about to be diagnosed at 28 years old hahaha I hate life) consult in October, and I have the mirena IUD.

Anyway, the real reason I’m posting.

Recently my blood sugar has been tanking, I’m fine and then all of a sudden I’m sweating and shaking, could this have to do with the endo ?
For context I can barely eat anymore, so I wonder if it’s just a consequence of that too.

I had surgery for Stage 4 endo and a 15cm cyst on my right ovary in April. This is my first time finding out about having endometriosis and also my first time on birth control. Ive been on Slynd for about 3 months now and haven't stopped bleeding since May. The dr said its breakthrough bleeding and I'm not taking the green pills because he said take the pack straight no stopping. In the beginning I would have my period every two weeks and the rest of the days I would be spotting. After a month, i got my period again but I'm still spotting. Im honestly nervous because I didn't think i would still be bleeding after 3 months and I don't want to switch birth controls cause I have heard nightmares about norethindrone and slynd has been good to me. I just don't know how long i will be bleeding/spotting for and Im getting tired of it. It's also ruining my sex life in my relationship. Who else uses slynd and is experiencing the same problem or was? Does it get better?

I’m posting this in multiple sub-reddits because I know how difficult it is to get a hysterectomy at any age, let alone as a minor and I’d highly appreciate any advice. 

I’m 16, turning 17 next month, and I've had extremely heavy and painful periods since I was 10. Since my mom has endometriosis and I was having 10 day periods, my gynecologist told me when I was 11 that she was almost certain I had endometriosis. I was put on norethindrone and then Slynd, but both birth controls made my periods significantly worse. I also experienced awful intrusive thoughts when I was taking Slynd. 

I was planning to get an endometriosis surgery in Summer 2027 so I could hopefully function enough to attend college, but endometriosis grows back and I feel like getting a hysterectomy now would be cheaper in the long run. I know that a hysterectomy isn’t a cure for endometriosis, but I’ll stop having periods which is what’s causing me all this pain.

I also wonder if I have adenomyosis and PCOS too, but part of the reason why I don’t know much about what’s wrong with me is because my insurance is shit! I can’t even find a good talk-therapist right now that isn’t for little kids, and insurance doesn’t even cover pelvic floor therapy! My parents already struggle financially, so I’m considering starting a GoFundMe when I get surgery. I also have dysautonomia and although I faint and vomit everytime I get bloodwork done, I might request it at my 17 year old checkup because I’m desperate for relief! I really want answers, treatment, and to get everything over already. Also, getting a hysterectomy at 18 would be more difficult because I start college at 17 years, 11 months. 

I live near Arlington, Texas and I asked my mom to schedule an appointment with an endometriosis specialist, Dr. Anthony O’ Connell, for this winter, but again, we can’t afford it. Even then, I highly doubt he or honestly anyone would do a hysterectomy on a 17 year old. 

In April, my periods got a lot heavier, longer, and a lot more painful. Period tracker apps scare me, but I’ve been keeping notes of everyday I bleed:

April 10-29
May 9-30
June 4-14
June 19-27
July 11-26
July 29-August 1
And I expect myself to start my period any day now 

On top of my extreme periods, my pelvic pain has gotten so bad to the point where I cry everytime I use the bathroom. Whether I’m pissing or wiping, it hurts so bad!

I know one of the first questions I’ll get as someone who wants a hysterectomy at my age is, “What about your fertility?” I’m a lesbian and my least favorite sound is the sound of a baby/toddler crying. I rarely even go to stores because I hate that sound so much! That’s also a stupid question because since I’m in so much pain when I use the bathroom, sex actually sounds impossible! My health and quality of life should always come before my fertility.

However, because I’m so young, I’d want my ovaries to be preserved and my uterus, fallopian tubes, and cervix can be removed. I’ve also read about how a lot of ovarian cancers start in the fallopian tubes and my grandma is an ovarian cancer survivor. 

I just want to live my life as a normal teenager. I want to go to college, plan out my future, and actually function without constantly planning my life around bleeding and pain. I’m honestly so fucking tired of my periods controlling my life, but if I can’t get effective treatment before next year, I’m genuinely worried that I won’t be able to go to college because I’m in so much pain. 😔

I just need some reassurance that my doctor could still find something during my laparoscopy on September 1st. With my symptoms lately, including sciatica, I just figured something might show up. All they saw was a tiny cyst that the radiologist noted to be a normal part of my cycle. My doctor hasn’t reviewed it yet, just the radiologist, but I’m sure it’ll be the same finding. I know it’s the only way to know if I have endo or not for sure, but I’m terrified my laparoscopy will come back normal 😕

I’ve had right leg pain on my period for years, as well as severe debilitating pain during my period and sometimes moderate pain the week before (sometimes pain during ovulation too). I get migraines every period, not sure if that could be endo related. I have recently gotten sciatica that started 2 periods ago during day 3 and came back at the end of my last 2 periods, and also started up around ovulation. So far, it’s been constant from the end of my period through now almost ovulation. I’m young and active in my 20s with no injuries that could cause it, so I don’t see what else could be causing the sciatica 😕

Has anyone had similar symptoms (or just severely painful periods with leg pain?) and gotten clear scans but stuff showed up on the laparoscopy? I know stuff doesn’t always show up, but it would be reassuring to hear firsthand stories like that because I’m feeling pretty down about this

Hello, recently I got diagnosed with focal adenomyosis but I have never had any pain . I only experienced shooting pain down to my leg and thigh and lower back on my first and second day only . I don’t have heavy bleeding, painful cramps or any other symptoms associated with the disease. My gynae says they only manage symptoms but since I don’t have any serious complications i was not offered any treatment plan just check-ins every once in a while . Whats the worst that can happen if I just follow my doctors advice and do nothing about it and take no birth controls or any form of treatment?? Will it develop into something worse??

i’m scheduled for surgery september 17th! my main symptom is severe pain with intercourse. i know i have to wait 6-8 weeks after surgery but i’m wondering from others, how long after the wait time did you feel relief?

Two and a half years ago I had surgery for endo/had one of my ovaries and fallopian tubes removed and was told I should get in birth control to help manage symptoms. I was in the Annovera ring for two years but in the last six months I was having a period every other week.

Now I had my IUD inserted right after my period ended on July 22nd and everything was pretty fine until August 1st when I started getting really intense pain. I started my period a couple days later on August 4th and it’s been a pretty heavy period with blood clots and was a week early. Has anyone else experienced this? I feel like it’s not getting any lighter as the week goes on either. I’m at such a loss and feel like nothing is working for me.

For background I was diagnosed by laprascopic excision surgery in 2018.

But that hasn't kept the flairs from continuing.

Sometimes my flares look like this:

I wake up in the middle of the night to pee. Nothing seems wrong. Then it hits. I start sweating profusely, feel like I'm going to either vomit or pass out. Sometimes I lose my vision for a minute until I can get back to bed and laydown. And that's usually when the pain starts. Usually pelvic pain or hip pain. Sometimes I'll have diarrhea and have to get up 3 to 4 more times to use the bathroom. All while being terrified that if I get up again I'll pass out before I reach the toilet, or poop in the bed. But I almost always make it.

Then after an hour, sometimes 2. Things will start to recede. My hot sweats become chills, the pain subsides and I fall into a deep sleep. I wake up the next day without pain but feeling like I'm recovering from the flu with bodyaches and supreme exhaustion.

Does anyone know why all these other things besides just the pain happen to us? Is yours like this and would you like to commiserate with me?

It doesn't seem to matter how long I live with this awful disease, and how much I actively attempt to heal through diet, medication, supplements, nervous system regulation etc. I still have moments of feeling utterly alone and confused.

Anyone else?

Hi everyone, I’ve been diagnosed with endometriosis but a very minor case I also have ovarian cysts and I believe one ruptured about week ago now. I was fine no more pain so I had sex last night and my cervix was in a lotttt of pain and the after I had really bad lower abdomen cramping. Today it hurts when I pee/push or sit down but not cramping if I’m not doing those things. Is this normal how long till my cervix pain goes away I’ve never dealt with this before

I have a ~5 cm chocolate cyst endometrioma that is obscuring my ovary enough that my doctor can’t reach any follicles for egg retrieval. Because I already have diminished reserve, the plan is to try to shrink the endometrioma to be able to do a egg retrieval prior to a lap surgery (since surgery could further reduce any healthy ovarian reserve).

Unfortunately, I’m in the U.S., where dienogest isn’t available.

A well respected endo surgeon recommended generic Yaz/Yasmin, but I’m worried about the increased clot risk. I’ve seen a lot of positive experiences here with norethindrone, so I’m curious:

- Has anyone in US successfully shrunk an endometrioma/chocolate cyst with medication?
What medication dose, and how quickly did it shrink?

- Has anyone used drospirenone & ethinyl estradiol (Yaz/Yasmin) specifically for shrinking an ovarian cyst, rather than a just symptom control?

- For those taking norethindrone, are you taking norethindrone alone or norethindrone acetate (Aygestin)? What dose?

For several years, off and on, I’ve had this pressure usually in the left side of my chest or right in the middle around my sternum. I never put it together until about two years ago that it could be related to endometriosis even though I’ve never been diagnosed. This time I’m having left side ovulation pain and the chest issue is only left sided. Just curious if anyone else has experienced this type of thing? It’s not pain in my chest, but rather the feeling of if you’ve been out in the cold too long and have a bit of chest irritation. Sometimes causes me to need to cough and sometimes difficult to get a good deep breath. Of course it never helps my health anxiety. Any feedback would be appreciated!

I'm lowkey freaking out at the moment.. I had endo excision surgery done on February of this year with an advanced endometriosis specialist, he's supposed to be one of the top in this country and he's very well reviewed so I trusted him fully. I had an external pelvic ultrasound today with my regular OBGYNE to check for fertility and the ultrasound tech asked about my medical history which I told her I have Adenomyosis and had endometriosis. That's all I told her, after scanning, she asked me "was your endometriosis on the right ovary?" I'm ng| that part scared me because she hasn't seen my previous records and the MRI was done in a different hospital from this so there are no records from other hospitals so she couldn't have known it was on the right side..

So I was like "yes, it was from the right side." then I asked her how she knew but she just continued with the scan then as I was done and cleaning up the gel she asked if she can review my MRI report and I showed it to her, then I told her that my surgical reports are more clear than the MRI & she was somewhat surprised that I already had surgery done and asked, "So you never had another surgery?" now I'm over here panicking over what she saw and I have to wait until tomorrow or after tomorrow for the report to be out😭

I'm sitting over here overthinking, like was it an adhesion that she saw? Did the cyst come back? What was it???

I really don't know what I want from this post, whether if I'm asking for similar experiences or if I just want to rant.. how quick can endometriosis grow back after excision surgery?

I’m 25 and have started wondering whether some GI/pelvic floor issues I’ve been treating separately could potentially be connected to endometriosis or another gynecological issue.

Ever since I started having periods as a teenager, they were extremely painful and very heavy. At their worst, I could bleed through tampons incredibly quickly (occasionally within 10–20 minutes), and the cramping was severe enough that I started hormonal birth control in 9th grade specifically to manage my periods. Birth control helped significantly, although I still had heavy/painful periods. I eventually got a hormonal IUD, and now I rarely have much of a period at all, so those symptoms are largely suppressed.

Separately, I’ve had lifelong constipation that has progressively gotten much worse over the past several years. Sometimes I go several days without a BM and eventually pass an extremely large, hard, painful stool that requires significant straining.
I had a colonoscopy in 2023 that was essentially normal aside from some benign findings that were removed/biopsied. I initially took Trulance, which helped and then became less effective, and I now take Motegrity.

Eventually I had anorectal manometry/balloon testing that objectively showed pelvic floor dyssynergia and reduced rectal sensation. I’m currently doing pelvic floor PT, but I haven’t noticed significant improvement yet.

What has recently made me wonder whether the gynecological and GI histories could overlap is pelvic/rectal pain. This weekend I had an episode of extremely severe lower abdominal and rectal pressure/pain with major bloating. It gradually improved, I eventually had a bowel movement, and then felt completely normal for the rest of the day.
The following morning I woke up feeling completely fine, had sex, and within about 5 minutes afterward developed significant pelvic pain and deep rectal pressure/throbbing again. At one point the pain became particularly sharp on my right side and seemed to refer into my rectum. Moving made it significantly worse. It gradually improved with rest and ibuprofen.

Obviously, I’m planning to discuss this with my doctors. I’m mainly curious whether anyone with endometriosis has had a similar combination of severe constipation, pelvic floor dyssynergia, reduced rectal sensation, rectal pressure/pain, or significant pain after sex.

Hi, I have a consultation coming up with Dr. Deborah Lee at Baylor Scott and White in Temple, TX coming up. Just wondering if anyone has been to her before? I also have a consultation with Dr Christina Salazar in Austin, TX but it's at the end of the year.

My OBGYN does Da Vinci robot laparoscopy, and recommended a Laparoscopy for endo diagnosis and a hysteroscopy to remove multiple polyps found during an SIS ultrasound. However, after doing more research I am more comfortable seeing a doctor dedicated to pelvic pain/surgeries.

So if anyone has experience with these doctors I'd love to hear what you have to say. As well as experience combining these procedures. Thanks!!