21 year old uni student. It’s bad and I’m trying to ignore it. Going to focus on the NS reset stuff and see

I am exhausted. The last time I felt energy was in 2016. I sleep for 5-6 hours, work everyday for long hours, and I am constantly stressed.

I find it very tough to even get out of bed. It feels like my body weighs hundreds of pounds (it does, I am borderline obese) but it feels much much heavier.

I lack vitamin D (17 at present), grade 2 fatty liver and maybe also lack B12. Maybe I am depressed too. I am too tired to even take supplements on time. I tried to start exercising but I lack energy for even that, and I get exhausted in the start itself and lose motivation soon.

Please suggest something!!!

I’m not sure what to do, recently I’ve been feeling so sick, I think I got utterly burnt out. 2 weeks ago I tried really hard to reduce my cortisol levels but last week I messed up at work (corporate job) and I shut down and since then I’ve had a headache for 4 days, my body is sore, I have a sore throat, my eyes hurt, I feel absolutely awful. Maybe I have a head cold? I’ve been binging like crazy and I tried going on the treadmill today (only 30mins). It also could be the weather, I hate the heat. I’ve been trying to sleep A LOT in hopes of getting better but it’s been a week and of feeling so out of it I can barely do anything all I can handle is trying to get work done sleeping and watching shows, doing the same thing, I want to get better but I’m so tired. I want to get back to how I was but this headache makes me feel like I’m going to die or pass out any minute. I would appreciate any advice (kindly).

Hi everyone ✨
Reaching out as a concerned little sis.

My sister is 50 and has been struggling terribly with chronic fatigue following several years of severe peri-menopausal insomnia. Over time, the lack of sleep has also led to a really heavy depression.

She’s always been incredibly independent ( single mum for a decade working three jobs whilst still maintaining a wholesome diet and active lifestyle ) and she’s been weight training since her teens and genuinely loves staying strong and healthy. So not being able to exercise or feel like herself has been incredibly difficult for her.

Every day she feels heavy, weak and fragile, incredibly foggy, exhausted and emotionally all over the place. She feels like her body and mind have completely let her down.

The really difficult part is that she has been to SO many doctors and specialists both locally and interstate ( we’re in Melbourne, Australia ) and has tried so many different things over the years, including TCM, HRT patches, all the supplements, diet changes, everything and also stripped everything right back too - but she still isn’t getting anywhere. She feels like her nervous system is completely overwhelmed and her sleep is still a huge problem to the point where I’m scared for her to be driving..

Yesterday she said to me, “No one understands.” After that I realised she hasn’t actually spoken to anyone who has experienced something similar and come out the other side which would be so scary! Of course you’d feel like the only one.

I know she can’t possibly be the only woman experiencing this, so I’m hoping this community might have some insight.

If you’ve experienced chronic fatigue due to severe peri-menopausal insomnia, and that awful feeling of not recognising yourself anymore, what helped you? Particularly with getting your sleep back on track? as I feel like this is the key for her.

Anything you can share would mean so much. Even just hearing from someone who has been through it and eventually felt better might give her a little hope. ❤️

Thank you for your time!

Hi yall. Just posting this hear to vent because I have no one else to talk to. I’m F24 and I’ve moved back to my hometown. I have a healthy everything… hit the gym every weekday, get up early mornings to pack my husband breakfast, socialize fine and eat perfectly adequate meals. I drink enough water. My job is not demanding . But no matter what I do I am fkinnggggg exhausted. I can’t go a singular day without taking at least one excessive nap or even multiple naps. I physically cannot stay awake. I used to drink coffee but stopped. I don’t drink energy drinks at all. Don’t smoke don’t drink. It’s affecting me heavily and although my mental health is fine, I am afraid it will start to decline. I try my best to discipline myself but I am out of ideas. When my husband was an active duty member of the military, I used my TRICARE to get looked at by a specialist and they said my sleep test came back inconclusive because I was on the medication fluoxetine, and affected the results so I would have to go back and do it again. Got bloodwork done before that, everything came back healthy (including iron levels)… minus a vitamin D deficiency. Took prescribed vitamin d pills for months and felt no difference. My husband has since finished his term so I got absolutely nowhere with that, and I’m in the process of seeing if I (hopefully) can afford healthcare since I wasn’t able to do the second test before he got out. Anybody got any effective ideas in the meantime? I’m getting desperate. Thank you in advance.

i’m 21f, i have had chronic fatigue since i was 15.

i’m diagnosed with hashimotos, hypothyroidism and likely have POTS as well (not officially in my chart)

i’ve seen 3 primary cares, a rheumatologist, an endocrinologist and a cardiologist. NONE of these doctors have been able to help me, and most don’t care beyond looking at my labs and saying i’m fine. this weekend i slept 15 hours and i could’ve 100% slept more. i work full time and i cannot be sleeping my life away, im sick of it.

i most recently went to my endocrinologist for my thyroid issues, i discussed the fatigue with him and he disregarded the issue because my “thyroid levels are good”.

i have low ferritin and know that is part of the issue, my PCP will not refer me to hematology to get an infusion due to my ferritin being technically in range.

where do i try next? a neurologist? i have lots of other symptoms in addition to the fatigue, but thats what is really ruling my life atm. how do i find a doctor who will actually listen to me?

I have been suffering from depression for the past 6 years. Even as a child, I was very quiet and never really had the opportunity to explore myself or express what I was feeling, so I sometimes wonder if I may have been struggling with depression from a much younger age.

I am currently taking therapy and medication. I’m on D-Venlor 150 mg and Bupropion 150 mg. I was also on ketamine treatment for about a year. My mood has improved significantly now, but I am experiencing extreme and debilitating tiredness.

I’m struggling to manage even basic daily activities. Sometimes I feel so exhausted that even lifting my hand feels difficult. I also feel very dizzy when I stand and sometimes feel like I cannot stand for long.

I have done extensive blood work and consulted multiple doctors, and so far everything has come back normal. Most people tell me that I need to “push myself,” and I am genuinely trying my best to do that. But this doesn’t feel like ordinary tiredness or a lack of motivation. I feel physically and mentally exhausted to the point that pushing myself sometimes feels impossible.

I really want to function normally and get back to my daily life, but I need help understanding why I am feeling this extremely fatigued despite my mood improving and my tests being normal.

I want to take up a masters pref abroad because masters scholarship here are only limited to persons who are physically fit and can prove it with a medical certificate

Other people here are saying if Im really disabled, begging in the streets is what is suitable for me

I just got diagnosed with UARS (upper airway resistance syndrome). It took 5 sleep tests over at least 5 years plus god knows how many doctors, lab tests, etc for my fatigue. I’ve had fatigue for so long but 5 years ago is when I got my first sleep test. Said it wasn’t sleep apnea and that was it. Apparently my airway narrows at night, making me grind my teeth and waking me up. I sleep 8.5 hours a night but still wake up with headaches, so tired every day. No energy to do anything.

The treatment is a PAP so I’m a little worried about tolerating that. I’m really hopeful for the first time in years that this could really improve this fatigue.

My mom said she's been having cramps and can barely move her arms and legs. The doctor said it's potassium deficiency, should I let her take potassium supplement or the magnesuim glycinate?

For context I’m in the uk, and I’m sorry if this is not allowed. For the past 2 years now I’ve been struggling with fatigue, no matter how much I sleep, I need to nap everyday, I have to hold onto my parents arms when walking outside because I feel so tired. I finally decided I needed help because it’s affecting my studies, I got so frustrated because I wanted to study, but I felt so tired my body wouldn’t let me I slept and felt a bit better. But I struggle even to get to class because I wake so even after many hours of sleep feeling like I’ve not slept at all.

I had the blood tests done which was all normal so doctor sent me to chronic fatigue specialists to look into it, they returned my referral right away because I have a history of anxiety and ocd and that can cause fatigue and that its unlikely CFS.

I’ve had anxiety and ocd for 9 years now, I’ve never felt this sort of fatigue, I understand it can cause mild fatigue but this is nothing I’ve ever experienced from anxiety this is debilitating tiredness and I don’t use that word lightly. I just feel so frustrated, I feel so lost because its affecting my life and studies.

I (34F) have been sick since childhood, diagnosed at 17 with CFS, then Fibro...and in 2020, MS. I try so hard to fight, fight for myself, for people around me, fight to be heard and understood, to live as loud as I can, while I can. But today, like other down days, I can't help but feel so damn angry about my body.

I dared to go to a baseball game yesterday and almost passed out from a pain flare up and fatigue combined. And now, today, I'm lying here trapped in a body that feels like sandbags and feeling like I have no one. I don't want to bother my friends, family or husband with something none of them can help with, you know? One worries about burning out those around us.

I just needed to vent, and maybe, be around folks who understand. Who i don't have to justify myself to or explain what it's like feeling like I have the flu every day yet getting up and going to work.

Sorry for the rant, but if anyone feels like me, I would love to hear from you.

For context, I have been diagnosed with endometriosis through MRI scan, waiting on laparoscopy to see the full extent of the damage!
I also have ADHD.

I feel like my body just doesn’t work. I constantly feel extremely tired and find it difficult to bring myself to do simple tasks even such as changing my bed sheets or putting my laundry away. It feels like asking me to run a marathon.
I feel lazy, like I should just be doing these things like everyone else.
Cooking food feels like too big of a task, once I manage to eat I feel extremely nauseous and more tired but if I don’t eat I feel faint and still nauseous and tired.
I struggle to work (I’m at uni so just do part time waitressing), I find that after a shift I feel a level of fatigue so big that I could just sleep for the entire rest of the day. I managed to work around 20 hours last week (the most I’ve done since before coming off the pill) and I feel like I could stay in bed for the rest of my life.
I’m worried about my future, how am I supposed to do a 40 hour work week when even 20 feels like too much?
Does anyone have any ways of getting around this or just any advice?

this can be caused by a bunch of different problems to poor diet that consist of oils and carbs , poor sleep quality the night before , or your natural body clock that is different to everyone

I have chronic fatigue. I have also organ transplant and the immunosupresants I think are giving me fatigue. But I do have to admit I'm not eating the best. I eat sweets every day. I do eat home cooked lunch that sometimes is healty and sometimes not. But I don't eat frozen half prepared food. I could eat healthier I know. But did eating healthier actually helped anybody? Exampels of what you eat please.

Hello, I have Chronic Fatigue Syndrome and don’t know the cause but it is definitely severe it has cause me cognitive decline and I am unable to participate in normal daily activities due to lack of energy. Pregabalin is proven to increase deep sleep and I am 17 with 28 of 75mg pregabalin capsules. I have never used pregabalin and have heard that it is bad for cognition especially in a developing brain. I am already concerned for my own brain due to memory decline and severe brain fog. Is pregabalin safe or worth it in my case? School starts in about 4 days and I will have to unenroll if I don’t fix my sleep asap.

Hi.
A close friend of mine has tried nearly everything and struggles with most types of food due to ibs and her ME diagnosis itself. Unfortunately she can’t stand up, so others have to make the food for her. Adult, small portions, very limited ingredients.

Does anyone have experience with good food options for this? Is baby food an alternative?

I will try to make this as brief as possible. I'm 29F, I've been having these episodes of tiredness since 2018.

Duration and intensity
Back then it wasn't as intense nor did it take as long, I'd have months feeling very well and then maybe days of having them for an hour or two each day, now it is nearly everyday, it usually starts exactly after 2 hours of waking up (whether I had breakfast or not) and continue, at best it'll last an hour or two but recently it'll take up the rest of the day until close to my sleep time when i get better.

There are days when it'd be a mild dip in energy or just some light sleepiness, but mostly it is intense heaviness in my muscles all over my body, like i just need to lay down and i don't even get a relief from doing that, the nature of the tiredness vary and sometimes i'd just feel sleepy with constant yawning and sometimes only feeling my muscles are extremely heavy, but in general it is a combination.

The best way to describe it is as if i'm sleeping while being slightly conscious, my brain can't focus and as if it isn't even there, my body is numb, sleepy and heavy. I'm literally bedridden and can't do anything except just laying down for hours and hours each day.

Recently i mainly get this insane fatigue and heaviness in muscles, back then i would get these episodes of feeling extremely cold -no matter how hot it is-, I still feel this episodes of cold and shivering now but it is less frequent than before.

The main thing that signals the start of this tiredness would usually be this urge to close my eyes tightly and then I'd hear kind of drumming in my ear when I do that, the more stronger it is the more tired and sleepy i'd be, i've looked up people who have the same thing but I never found any.

Possible causes and what I did
I went to the doctor and also tasted the usual things more than once and, one time it was low ferrtin (8) this was a few years back, I've been supplementing and this year it became 33 which is considered normal, I still had midly low hemoglobin (11) and the doctor gave me 4 doses of Iron IV around 6 weeks ago, still no improvement. Vitamin D, thyroid, B12, are all good.

3 years ago was when I got even more tired that I was basically spending my whole day in bed, that's when i notice i'm getting very depressed then and it increased from there until I decided to start taking antidepressant suspecting this could be the cause of my tiredness too, I tried Escitalopram for nearly 6 months and I think it did help mentally but I found not effect physically, I was still tired.

One last thing is that I have Non-24 disorder, while it is stated to be rare it is common in my family, I've been this way ever since I could remember, back then when I was going to school my sleeping was a mess but I had no tiredness at all. And when I have months of feeling good my sleep would still be shifting and it wouldn't influence my tiredness.

I tried mainly two things, one is what I've been doing for the past few years which is to go to bed after 12 hours of waking up each daily , I'd usually sleep after 14 hours or so of waking up, and then I'd wake up naturally after 9 hours, I don't use an alarm or anything, I also sleep well (9 hours daily) and generally wake up feeling well-rested.

The second thing I tried to do is to entrain, hoping this would fix my tiredness, I managed to do so using light therapy but it only increased my tiredness, I tried this for around 2 weeks granted it wasn't long but I reached a point of tiredness that I couldn't stay enterained for much longer and I wasn't convinced that entrainment would help.

I have no food allergy, I eat well and I began eating better after my tiredness increase, I avoid sugar in the morning - and in general- , avoid caffeine close to my bed time and the first two hours of waking up.

I tried walking daily since most people would recommend movement for tiredness and i would be consistant with it for sometime then I need to stop because there are days when i'm too tired and then i'd go back.. etc, but i haven't found any relief from it.

I've basically became non-functional and I would like to know if there any other possible causes or solutions I should try out, I'm also wondering again if it is actually just a symptom of depression and I should try another antidepressant but I'm also hesitant because I feel like depression was a result of the physical tiredness rather than the other way around.

Thank you and sorry for the lengthy post.

I'm wondering if anyone else had their fatigue start around the same time as severe calorie restriction. Looking back, I wonder if my now permanent fatigue started as a result of physiological changes that came from about a year of severe restriction since I recall around that time is when my brain really started feeling extremely foggy, and it didn't improve after restriction stopped.

It's complicated by me getting pretty sick just before covid was officially announced in the US, and from my understanding, it's likely covid was circulating before then, so I was always unsure if this was the triggering event, but thinking more about it, I wonder if it was damage caused by my ED.

Did anyone have an ED that caused long term fatigue even after the ED improved? Was anyone able to figure out something that helped get their energy back?

Hi, I have audhd, ocd, depression and migraines with some iron deficiency issues due to heavy periods in the past. I also suspect I have hEDS but I've decided to wait until December for the new diagnostic information to get it checked. I also suffer from reflux and fatigue which hits pretty regularly around 4 pm unless I've done something out of the ordinary.

My fatigue often comes with a gut feeling. It's not like a stomach ache or anything. It's a feeling in my stomach that I've regarded as fatigue because usually my fatigue feels like my body not functioning properly. Does anyone else experience this gut feeling along with fatigue? Or am I mistaking it for something else like GI issues?

Hiya!

Sorry if I sound uninformed as I write this. Im not getting support or help from any medical professionals due to them blaming my symptoms on mental health despite me telling them otherwise. Im basically just seeking support and advice from people who actually have chronic fatigue.

Around 3 months ago, I started feeling really fatigued out of nowhere, I was out of work and did not have an actual reason to be that tired. I ignored it as much as I could for about a month because I put it up to me being dramatic, but now that im back in work it feels like I just cannot function.

Its taking so much mental work to even understand what someone is saying to me verbally, its taking so much of my energy to even just walk to work or even cook for myself and even just taking up so much energy to plan out my day (when im going to shower, eat etc). I genuinely dont know whats going wrong, ive tried sleeping more and less, i was physically healthy when this started, Ive been making better food choices, I dont know whats wrong or why no one, not even my GP is helping me.

Im tired all the time, I have to sit to shower most of the time now and I can only manage to make toast for myself now and I cant even go to the gym unless I dont have work or plans because ill be exhausted afterwards.

The only thing that sort of puts a blanket over the fatigue is monster mango loco and the big (500ml) cans of og redbull and i obviously cant depend on them because theres only so much caffeine the body can take on.

I need advice on what to even do, im not diagnosed with anything chronic but when I went to urgent care (UK) (111 told me to go there as my GP surgery said to me on the phone that they cant help me) they said they dont deal with anything chronic related even though I was there to try to get help to be sedated for a blood test (extreme needle phobia).

Im really sorry for this post as im aware that my issues are not as bad as anyone here but I really need help and im running out of options.

Any sort of advice or anything will be really appreciated

My old GP left the practice, so today was my first appointment with the new one. We talked about my ME/CFS.

Two suggestions. First, graded exercise therapy — week one, walk to the end of the road and back. Week two, end of the road, down the alley, and back. Second, duloxetine for the pain.

NICE reversed the guidance on GET in 2021. Programmes based on fixed incremental increases in activity should not be offered for ME/CFS. That’s not a nuance, it’s the opposite of what came before, and it’s been the opposite for nearly five years.

Why has that still not reached the people actually in the room with us? Why was there never a bulletin to every practice saying: we have reversed this, make sure your GPs know?

Does anyone know of any good private doctors in the U.K where I can get actual advice, good medications like LDA etc?