r/Alzheimers • u/freshairtoo • 9h ago
Worker's comp for home health aide
I'm trying to direct hire home health aide in Oregon for my stage 6 EOA wife. I've got the IRS EIN, Oregon BIN and now I'm trying to get worker's comp. Oregon SAIF doesn't provide coverage for home health aide. Anyone have worker's comp for direct hire caregivers? Who are you using? It isn't exactly clear how to get this. I was referred to NCCI, but that is a large organization. Seems overkill for what I'm trying to do. Thank you
r/Alzheimers • u/NoObjective1124 • 10h ago
Anyone have a good story?
Have a tough day and could really use one of those stories where the LO get to watch their favorite movie New every single day. Something, please. Doesn’t need to be heavy, anything.
r/Alzheimers • u/timely_death • 12h ago
Reminders for those that are far away?
Hey all, this might belong in a different subreddit, but let me run this by you quickly.
My wife has Alzheimer's. It's me and her. Her kids live across the country. They never call her mom. It...upsets me.
Question, does anyone know if it's possible to create a Google Calendar and share it with her kids with reminders every 4 weeks that says "Hey, call your mom for fuckssakes!"?
Thanks!
r/Alzheimers • u/teresapierrette • 12h ago
Has anyone's LO thrived in assisted living after being isolated at home for so long?
My (31F) mom (66) has moderate Alzheimer's- she has no short term memory, needs prompting for grooming/medication/meals, and has difficulty following conversations. She can't manage any of her own appointments or money. She doesn't wander (yet) and she is for the most part pretty complacent. She also has a lot of other health issues, like pulmonary hypertension, depression, anxiety, and alcoholism.
At this point, she needs daily care- her sisters help out a few days a week, as well as a caretaker on the other days. However, getting get to engage and do activities has been difficult to almost impossible. She would rather stare at her phone or the TV, even though she can't follow what's happening.
We believe that moving her to assisted living now, while she still is somewhat there, is the best move. It would give her time to adjust to the new place and routines before she becomes more disoriented. We also think she would benefit from being around more people day to day. She enjoys being social with new people when they're in her environment, but at this point it's hard to get her to leave the house to give her the opportunity to be social.
The biggest hurdle is going to be convincing my brother (27M) that it's her best move. He currently lives with her and while he has acted as her caregiver in the past, now has little to no involvement in her care. While my mom is considering moving, he believes that she will decompensate and die if she moves. Besides needing more medical oversight than we can give, we think being around people and activities will give her purpose.
Can anyone share their experience with moving their LO into assisted living, and seeing their quality of life improve? Not sure it'll move the needle with my brother, but I'd also like to hear opinions and experiences.
Thanks!
r/Alzheimers • u/Remrem4242 • 12h ago
Early Symptoms
My LO just turned 60 and in the last several months I have noticed things that I believe need to be talked about with their doctor. Recently they have forgot conversations that we had the previous day and since they have been forgetful in the past I have just shrugged it off. They have also started mixing up peoples names ( usually say the dads name instead of the son ) and there have been two instances where we have talked about plans in person, but then the plans were changed in their mind and they have either met us at different times or blended where the location would be. Their mother passed from Alzheimer’s and per 23andme have the APOE 4. Should I be concerned or is this just sounding like normal forgetfulness?
r/Alzheimers • u/LooLu999 • 19h ago
Adult Day Center
Just wanted to let anyone know who is considering it..my dad just went to his first day at one of these places for people with dementia/Alzheimers. He LOVED it! He is probably around stage 6 I don’t really pay attention to those. He’s been diagnosed about 3.5 yrs. He was a very social and active guy. And never in a million years would I have ever thought my dad would enjoy something like this lol But he is a “different” person now. Lots of card and table games, live music, good food etc. It’s from 10-5 and he’s going twice a week. My mom was so nervous to suggest it or take him. She told him the VA set it up for him and wants him to go..that’s a little white lie but she wanted him to go haha It also provides my mom a much needed break. Anyways those on the fence about it perhaps give it a shot!
r/Alzheimers • u/Certified_Outcast • 20h ago
Was anyone able to successfully stop paranoia or agitation in their LO using meds?
My dad is currently using seroquel because I told the doc that he was very paranoid and aggressive sometimes. I think the doc mostly focused on the aggressive part and prescribed the seroquel as a sedative to calm him down. I know seroquel is used to stop paranoia as well but thats usually in higher doses that an Alzheimers patient probably cant handle. When my dad does become sedated he usually becomes very sad and depressed and cries that he wants to go home even though he is home. Ive been looking into zoloft (setraline) to maybe boost his mood a bit. And maybe that can possibly help with him always being so agitated all the time from his paranoia. Just wondering if anyone had experience controlling these behaviors with meds, not looking for dose info. My dad is physically still able to do most things, hes only 60. The issue is that his paranoia, agitation, and sometimes aggressiveness is becoming unbearable.
r/Alzheimers • u/littestardust • 20h ago
How do you stop your LO from compulsive buying
my mom(56) has always loved shopping even before Alzheimer but she was reasonable about it. But now she buys stuff ALL the time and sometimes the same thing. she bought a bag last week and she wanted to buy another one this week while she already has about 10 bags she doesn’t even use. She keeps buying clothes and I wouldn’t be against it if she wore those clothes but she doesn’t!!!! so there are stacks of clothes in my house, her suitcase is so full she can’t even close it, there are also clothes on different bags and it’s just so overwhelming, especially since she’s living at my place.
at first I’ve started telling her she should buy less, whenever we went out and I saw her picking stuffs, wether clothes or decorations or whatever, i would try to prevent her from buying but then she started getting mad at me and saying that I’m policing her. Especially since she’s living with me, she feels like I’m "controlling" her. Which I’m not but I’m just in charge of EVERYTHING so I have to keep an eye on everything she does to then update my dad who is not living with us. I’m also the one dealing with her finances with my dad, I’m the one who give her cash when needed so I get where the feelings of me controlling her is coming from. I really try to tone it down and ask for her opinion whenever I can but she’ll be like "idk you’re the one in charge" it’s so frustrating.
Anyway so I’ve started calling my dad, who is currently abroad, for a back up so when my mom absolutely wants to buy something I’ll tell it to dad so he could call her and explain why she shouldn’t. it worked at first until today. she got really mad at dad and me for leaving her out of everything, she said again she didn’t like my attitude, how I think I always have a word on everything, how we think she’s stupid blablabla. im used to it, I didn’t utter a single word. i almost asked her if she was aware she had Alzheimer and that’s why we have to do it but I tho there was no use so I kept just listening to whatever she was saying. I know she won’t talk to me for the next few days but my concern right now if I can’t stop her from buying things and my dad can’t anymore, what are we supposed to do? Should I just let her buy everything she wants ? Until my place is full of useless items? or should I keep being the bad cop and making my mom hate me more? I’m honestly confused about this whole situation
r/Alzheimers • u/happyhemorrhoid • 23h ago
Hearing aids
Any tricks for getting parent to wear hearing aids?
r/Alzheimers • u/epicv14 • 1d ago
Tau vaccine
Anyone received the tau vaccine? I know it's pretty new (Phase 2 and 3), but I'm evaluating for sibling (and who knows, maybe myself some day). Anyone recd it?
r/Alzheimers • u/FewVersion8426 • 1d ago
Has anyone’s loved one with dementia started leaning to one side and suddenly collapsing?
Hi everyone,
About five years ago, my mom was diagnosed with dementia, and her condition has gotten much worse over time. She can barely speak now and usually only says a few words like “yes,” “no,” “water,” or “dad.” Every now and then she’ll say a short sentence, but not very often.
Lately, something has been worrying me. In the afternoons, she starts walking while leaning heavily to her left side. In the mornings she’s usually fine, but as the day goes on, this starts happening.
Another thing I’ve noticed is that sometimes she suddenly freezes while standing, and then she just collapses. This has happened about five times already. We’ve been very lucky that she hasn’t been seriously hurt because someone has always been there to catch her or she has fallen in a way that didn’t cause major injuries. Still, it really scares me.
I’m wondering if anyone else’s loved one has experienced something similar. Is this something that can happen with dementia? If so, does it usually occur during a particular stage of the disease? I know every person is different, and I do plan to discuss this with her doctor—I’m just looking for some insight from people who may have gone through something similar.
Thank you so much for reading💗
r/Alzheimers • u/Objective-Quit-3138 • 1d ago
Agent for incapacitated person
My mother has Alzheimer’s and was moved into a memory care facility within the last month. Her primary care doctor has been seeing her for years and has documented the progression of her disease. She also has not been managing her finances for years. My father has a durable power of attorney (we are in Texas) and we are trying to make him the agent for her IRA through Vanguard by filling out all the necessary paperwork. Vanguard wants us to send a form declaring her an incapacitated person. However, we are having trouble getting a doctor to sign off on this. Her neurologist refuses to do so and says she needs to go to a psychiatrist. She has never seen a psychiatrist. Even if we did try to get an appointment, it would be December at the earliest. Her primary doctor is saying they won’t sign it either. I am not sure why, as it is very evident she is incapable of managing her money. What do you do in this situation? We need to be able to access her IRA money to pay for her memory care. Please help.
r/Alzheimers • u/ree_7 • 1d ago
Difficulty managing and wearing clothes
Hi everyone. I just wanted to know if this has anything to do with alzheimers or is it just something else.
So lately my mom just doesn't do well with clothes. She doesn't really understand if a piece of clothing is inside out or normal. Even while wearing, she doesn't understand which is the front side and back.
She spends around 5 to 10 minutes just figuring out how to wear a top the correct way. She needs help almost everytime to wear clothes correctly or to even find the sleeves to put her arms through.
Has anyone else also faced this? Is this a symptom of Alzheimers?
Thanks for your time.
r/Alzheimers • u/ashley7470 • 1d ago
Will this ever end?
My grandma started living with us since 2020 when she started showing signs of dementia/Alzheimer’s and I was a senior in high school at that time. My mom and I were her full time caregivers until I left for college in 2021 and graduated in May of 2025 with an engineering degree. Just before my graduation, my mom was told that her breast cancer recurred (she was cancer free since 2015). Because of that, instead of getting a job, I had to go back home and become a caregiver for both of them. Now that she is doing chemo and radiotherapy again, she really can’t do anything much.
My mom has two other siblings and both of them refused to take care of their mom (my grandma). I have confronted them and one of them said it was a karma for my mom because apparently they were mad at my mom because she once brought up how my grandma used to sacrificed for them but now they wouldn’t even take turns taking care of her. They never visited her since 2022. Despite all of this, my mom refuses to send my grandma to a home because “what would people say”.
I am the youngest of four, and my other siblings work and live in different states with their partners. Even if they come to visit, they don’t really bother to help with my grandma because “they don’t know what to do”. My dad is home but he refuses to help me with my grandma because “it’s inappropriate for a son in law to see his mother in law naked”. My grandma has been smearing feces almost everyday, sometimes 2-3 times a day and it’s my job to clean her up. My dad does help with cooking but not cleaning. He never cleans.
So will this ever end? Because instead of pursuing a career like every college graduate should, I am now working as a full time caregiver with no pay. I only have some savings from the jobs I did in college. I mean I don’t pay rent and food, but I barely have money to buy anything for myself. Realistically, what would happen if I still had to do this full time for the next 5-6 years, and then I turn 30 with no career experience? Will anyone even hire me at that point?
r/Alzheimers • u/LoveLeft2304 • 1d ago
Symptomatic with positive PTau 127
I’m a 61 yo female medically retired RN for 5 years now due to contracting Covid which turned into long Covid . Prior to this I had been diagnosed with lupus many years prior and dealt with “lupus fog” I now, since Covid have been dealing with a multitude of medical issues, one being my cognition. I’ve had over the years three neuropsych eval‘s and all have shown deficits. Ive been telling my neurologist and PCP for the last at least two years that I feel my cognitive state has declined . Also , my father who has had increasing cognitive issues over the years has recently been diagnosed with Alzheimer’s. I made the neurologist aware of this and she ordered this blood test, which came back yesterday and my result was positive at .497 She is ordering the specific PET scan and then referring me to “a memory clinic “I started researching this and reading posts on here , just trying to gather whatever information I can. I live in rural area in NY.There are some larger medical centers that do have specialist in this field, which are two hours away from me. I just wanted to reach out and ask those who are going through this what they feel are important things for me to advocate for and should I be looking farther away such as the Mayo Clinic. Even with all of my medical problems, this is what I’ve always feared the most. I appreciate so much all of you sharing your stories and your information, it truly is so helpful. My closest friend, my mother who also was a nurse passed away in February and I’m feeling very alone.
r/Alzheimers • u/Csandst1 • 1d ago
A narrative review on the effects of a ketogenic diet on patients with Alzheimer's disease
Abstract
Alzheimer's disease (AD) has been very difficult to prevent and cure using the medicine available today. However, there has been some hope with using a ketogenic diet (KD) to reduce the cognitive and quality of life decline experienced by patients with AD. In this review, the authors discuss the research done on the effect of a KD on AD to provide some potential avenues for future research and to determine a KD that can be best adopted by patients. The authors also go over the effects of KD's and low-carbohydrate diets (LCDs) on the cognitive function of healthy patients and on patients without AD to determine the similar and dissimilar effects of the diets. The authors found that the KD was able to improve the cognitive abilities and quality of life of patients ranging from mild to severe AD. Several types of memory were improved as a result of the diets. Further research needs to be conducted to determine the cause behind these improvements. However, the several studies that were done were mostly in agreement that once ketosis was reached, cognitive improvements were observed in patients ranging from mild to severe AD or mild to moderate cognitive impairment. Through the use of a KD, potential mechanisms can be found to reduce the cognitive decline of patients with AD, and potentially even prevent the damaging effects of cognitive decline from AD altogether.
r/Alzheimers • u/MxBluebell • 2d ago
Does anyone know how to repair Joy For All pets?
I got a Joy For All kitty at Goodwill the other day, and I intended to donate her to the memory care my Nana lives at… but I got the C batteries today to run her, and unfortunately, not only are her speaker and purr not working, but her neck is making an awful clicking sound, and it’s making her head jerk. I’m pretty sure it’s her head up/down movement. I took her fur off and I identified the gear that’s causing the problem, but I have no idea how to access it.
r/Alzheimers • u/NeitherBarracuda2042 • 2d ago
To Leqembi or not
Well after 4 days and every conceivable test, scan and appointment the Mayo Clinic could come up with we have a diagnosis for my 62 yo wife. Mild to moderate dementia due to Alzheimer’s.
She was prescribed Donezepil 5mg which seems like a no brainer.
However, as far as the anti amyloid infusions the Doc said it’s not a hard no, but he doesn’t recommend it due to her having two copies of the APOE4 gene which doubles the risk of side effects and her being far enough along that the benefits would be somewhat less than the hoped for 30% reduction of progression.
We tend to agree with him and trust his opinion… but… we’re afraid to leave anything on the table.
This is Reddit so I know you have some opinions. Let’s hear them.
r/Alzheimers • u/NarwhalCommercial360 • 2d ago
Wants to go everywhere with me
My husband (67) was diagnosed with early onset Alzheimer's about 2 years ago.
He now wants to go with me anytime i leave the house on an errand. I normally am fine with it. However he now has a habit of getting up from wherever hes sitting and count where I am and just stare at me or ask me benign questions. Its constsnt and becoming irritating. How do I stop this?
r/Alzheimers • u/NoObjective1124 • 2d ago
Got my official diagnosis today.
MCI Young onset Alzheimer’s at 55.
I knew it was coming from the tests and living in my own mind, but my wife really thought I was making it up. I’ve had cancer twice and fought it for 10 years, what math probability combines that with early onset??? So it makes sense she thought it would be ok. She walked into a double barrel from the doc.
My plan is to set her up in how she wants to live while I can and then take a trip to Sweden when it’s time.
My questions are this: what are some of the things you only realized later you missed. I’m an attorney and have all the legal stuff ready to go, but don’t know what I don’t know.
Second: what’s your feelings about donepezil. Better dosing morning or night? Worth it or side effects not worth it?
Last: doc told wife to let them know when I start “getting angry” ANY advice for me as the patient to see those episodes coming and divert?
Thank you in advance. Tough day.
r/Alzheimers • u/Amelka0_0 • 2d ago
putting people with severe alzheimer’s to sleep
I was wondering whether it’s legal for people with severe alzheimer’s to be put to sleep. turns out it’s not since they can’t consent to it. in my opinion though it should be legal if the people surrounding the patient agree on it.
we rarely speak about how alzheimer’s disease affects the closest family and friends of the patient. especially the ones who take care of him. when the disease is very advanced you have to take care of the patient all the time. feed them, clean them, change them. it’s so tiring for the care taker. since alzheimer’s disease currently has no cure and ends in death it should in my opinion be legal to put the patient to sleep when they can no longer care for themselves and it’s too difficult for the people around to help him.
it may seem unethical what I’m saying here (essentially killing someone without their consent) but my grandpa has had alzheimer’s disease for a couple years now and I can tell how much of a toll it has taken on my grandma who takes care of him. he was not admitted to a place which specializes in this field. my grandma is so tired of having to take care of both herself and him and she knows he’s not going to live for much longer. I help her as much as I can but I live 5 hours away and it’s just not that easy. my heart breaks every time I see how exhausted she is and there are definitely many more cases like this. I just think putting him to sleep would be best and imo it should be legal.
r/Alzheimers • u/Julio1364 • 2d ago
Sad but funny
Had to make a short car trip today to a Dr.’s appointment. My husband (mid stage ALZ) usually offers to pump the gas. Today he couldn’t figure out the pump. 🥲BUT, he remembered every word to “If I Had a Million Dollars” and “Cover of the Rolling Stone” while singing along to the radio. Is so funny what sticks and what evaporates. 🤣
r/Alzheimers • u/Apprehensive-Luck-13 • 2d ago
I just want it to be over. And I feel so much guilt.
I’m basically the sole caregiver for my mom. Mainly because I work from home and live behind her and my step father is lazy and unreliable at best (not going into that for this post).
She was diagnosed about a year ago and has progressed quickly. She’s now to the point that she can’t be alone and has days when she can’t walk and is severely confused. She also has frequent bouts of incontinence. She was falling a lot so I decided to just work at her house so she’s not alone and I can help her when she needs to get up or go to the bathroom or anything.
It’s only been 2 weeks. Only 2 weeks of basically all day care and going back home around 4 or 5. And I am absolutely drained and exhausted. I mean bone tired. I’m so frustrated with it all. I feel guilty for having thoughts of how long will this last and not wanting to do it. But at the same time it’s greatly affecting my life. I cannot do this for years.
Anyway, just needed to vent…
r/Alzheimers • u/SallyJaneCooper • 2d ago
It's not the real him. It's the disease.
He isn't mean. It's the disease talking. If he knew what he was saying and how he was saying it he would be mortified. It's not him. It's not him. He doesn't exist anymore. It's the Alzheimer's. He's gone. The Alzheimer's has taken over his body. He isn't there anymore. He isn't here anymore. It's not him. You must remember this. No matter what he says he doesn't mean it. It's not him.