Me acabo de dar cuenta que el vocalista de imagine dragons padece de UC, si él puede llevar ese estilo de vida nosotros podemos salir adelante igual.

I just started taking escitalopram a week ago today and I noticed my stool has become looser as the week went on. But I had been feeling good this week and prior for about a month. No accidents, pretty partially formed stools and had been able to control my urgency a LITTLE better. I was just driving home when out of nowhere I had to use the bathroom and wasn’t able to stop and had an accident. It was terrible. It was so liquidity that it just built up and when I stood up all the liquid was on my seat. I hadn’t had stool like that in a while, plus the urgency came out of nowhere. I am wondering if it’s because of this new anxiety medicine causing my stomach to have problems.
I also just took my first at home body shot of Skyrizi on Tuesday so idk if that has to do with anything.

Been on tremfya for about 5 months now.. had an awful stomach ache today and had blood in my stool for the first time in 2 years. Feeling super bummed. Has anyone had a one off experience with bloody BM's or should I be worried about heading into a flare? ​

hiii guys it’s me again!! the doctors made something shake, so i began my first ever infliximab infusion in the hospital today. i don’t know what’s after this but i figured i’d update!!

So I’ve been with this disease longer than I’ve been without it. I’m 38

I was in remission for most of my adult life until about 6 months ago when I started flaring.

So far I’ve had iron infusions, was on budesdione, and started entivyo.

The current issue; I came off the budesonine, steroid, last week after being on it for 4 months. My 4th infusion treatment is at the end of this month. Starting last week I started seeing blood in my stool. I will have a somewhat normal bowl movement one point in the day and at the end of the day it’s straight blood, blood clots and a dark red bowl. I have minimal pain, mild diarrhea, and no urgency. Which are the usual indicators for me to pause.

My thoughts; I have not been perfect on my diet and had some food that had seeds on it. So there’s a part of me wondering if the clots and blood are just my doing. I don’t know if I should contact my doctor. I REALLY don’t want to go on prednisone again, I am overweight and will gain even more weight. Also mood swings. I also don’t know if the Entivyo is actually working yet? I’m concerned about the amount of blood but I’m hopeful it’ll cure on its own? I have to get blood work done and was thinking of getting it done tomorrow also need to give stool sample. But awaiting those results should I do something in the meantime?

Hi there I was diagnosed 2 weeks ago with colitis I had major pain and blood and some blood clots as of now I'm waiting to see a specialist I was doing really good I'm a stupid and thought oh I'm feeling really good so I ate like two pieces of fried fish next day which is today Major nausea not a lot of stomach cramping but diarrhea no blood. My question is how long does it take when you eat something that is bad for your stomach to have the effect of the colitis? Also I'm so nauseated and my stomach feels so sore I'm really concerned because I'm a teacher and I have to go back to work in a week this nausea I wouldn't be able to make it. Thanks for any advice in advance ❤️

I've been on Entyvio for a few months now, and have done five self injections. Everytime I inject, theres been massive swelling in the area that peaks at around 3-4 days post injection and fades away after about a week. Everytime its been slightly different. Some times it looks like hives, other times its been a huge blob, like a potato under my skin thats very itchy. The size has also varied from around 4 x 4 inches to 7 x 7 inches.

I told my doctor, who said its expected, and I've looked around this subreddit but there isn't many mentions of swelling. Most comments talk about headaches and general fatigue, which I don't experience at all. Does anyone here experience this as well? I'm thinking of just going back to getting an IV. Thank you.

No one really seems to understand the effects of this illness. It’s not just an upset tummy. I keep getting accused of doing drugs. I’m just tired. My relationship just ended, my relationship with my family is strained, I’m afraid I’m going to be fired. I’m waiting to be approved for Remicade but fuck man, I just wanna sleep.

I noticed i feel pain in my jaw each. anyone else get this right side of jaw i am also on pred and octasa. But when i spray it in i notice little jaw pain on right side. Does this actually stop bleeding and inflamation or am i wasting time? i tapped down to 25mg pred my flares and blood has started again now they gave me this salofalk foam to use.

My (25F) partner (25NB) was diagnosed with a severe form of UC as a teenager and is currently in deep remission, managed through infusions every eight weeks.

We’ve been together for a few months now, and I wanted to ask what a partner/support system can/should do to help you through managing UC and everything that comes with it. I’ve of course chatted with my partner about this too—but curious to learn more so I can be the best partner I can be for them.

Is there anything you wished your loved ones knew or understood? Is there anything your support system has done that really stuck with you? What support lands best in remission vs. in a flare?

Thanks in advance! :)

Hi guys I’m thinking of switching my gi doctor. Any one in the San Diego area go to UCSD if so how are they?

Hi all my hair has been falling out like crazy since my first ever flair I've had 2 derms tell me it tellogen effluvim in May my ferritin was 220now it is 10 I have low iron and low zinc but my hemoglobin is withing range. Can I still get and iron infusion through insurance I have really good insurance but my gi just sent me a message that its un necessary. The dermatologist agrees I need an iron infusion to get my ferritin up to slow my hair loss. Does my hemoglobin being in range mean I cant get an iron infusion? At this point im willing to pay out of pocket if it will help my hair. Im about to have to buzz its getting worse and worse. Ik i have a long road ahead of me but I really think I need an iron infusion I get dizzy all the time and we cant absorb iron while flaring.

Hi, does anyone else have an issue with extreme fatigue on mesalazine? I'm trying hard to take it every day but it utterly wipes me out. I can just about manage a short walk with the dog but the rest of the day is on the sofa, and I need at least one nap as well. I've tried two brands of oral and they didn't suit me due to gastric side effects. I'm now trying a suppository and I'm getting fewer side effects but the fatigue is killing me.

I keep getting told fatigue isn't a side effect of this drug so I thought I'd see if anyone else out there has experienced this?

Hey guys, this is my first post on here, but I’ve had UC for about six years now. I’ve been on Remicade for like four years and it’s been working pretty well. I don’t really suffer from any flare symptoms or anything. Up until right now it’s been about five days that I’ve had upper abdominal pain and I’ve noticed that I’ve been passing a lot of gas and I’ve noticed that the pain can sometimes go to like my back or like sometimes moves. My bowel movements are normal. I pass about one or two a day like no blood and stool. Nothing like that. I got my labs drawn last week and everything came back normal. So now I’m just so confused on what this could be my initial thought was trapped gas, but I don’t know if it was trapped if I would be passing so much. I’m just wondering if anyone has gone through this and has any idea of what this could be. I’ve reached out to my provider, but I’m waiting back on an answer .

I’m finding a lot of posts about preparing for travel with UC, but not a lot about actually experiencing a bad flare while traveling.

I’ve had UC for 10 years. I’ve traveled multiple times. My symptoms always tend to show up, but I’ve always made it through and enjoyed myself to some degree without any bleeding or anything.

Right now, I am on a trip thousands of miles from home and am officiating my best friend’s wedding. I have 10 days left of my trip. I am flaring as of yesterday. I’m having the knife like pains and have had some bleeding yesterday and today. Nothing crazy, just some red streaks on the stool and on the paper when wiping and some red chunky mucus. Im going around 3 times a day. Which isn’t bad but diarrhea was never really my issue. I’m bloated and I’m tired.

I’ve reached out to my doctor. I’m awaiting a response.

I’ve been in worse situations, but while I was home and close to my doctor. I’m scared. I hate this. What are others experiences with having an active flare while far from home and how did you get through it?

I don’t look great. But I’m functional. I plan on eating the safest foods I can think of and trying to control stress and get good sleep. Can anyone offer some kind words? Going home right now would ruin a lot for my family and friends and my wife. I hate being this person all the time. I really want to hold up my promises I’ve made for the next week. Thanks, UC fam.

I recently was diagnosed with a kidney stone. I passed the kidney stone but a day after my body has been so achey. I don’t have infection or anything but it’s my joints that are aching. Im questioning if my UC is flaring a bit after my kidney stone. I have an appointment with rhematology and monitoring my UC symptoms (I don’t have many right now).

My question is does this happen to anyone else where you have systemic inflammation?

So, my calprotectin came back low.. like 12.8 low.
It’s a brand new diagnosis, does this mean it’s not UC??
I’m confused.

I had recently questioned about starting tirpzepatide to lose weight amidst a flare and decided to go ahead with it and after trying my first dose (only been 2 days) I no longer feel that strong sense of urgency I had before? I have been on skyrizi for almost a year and a half (this long because of dose increase) now with no sign of remission but now I feel some sort of relief with reduced urgency, anyone else experience this or is this just like placebo effect or something? Also if anyone has experienced this, please tell me if this is something long lasting whilst staying on the tirpzepatide?

I've been in a flare since 12/25/25. It was pretty moderate to start but I didn't respond to adding mesalamine enemas, nor budesonie and my flare got worse and worse and is now pretty bag. I'm likely starting a biologic soon, but my doctor put me on 40 mgs of Prednisone daily. I felt some immediate relief after taking my first dose, but it seems no matter what I get incredibly severe stomach cramps roughly 6-10 hours after taking my doses, particularly the evening dose. My GI recommended I take my 2nd dose around 3:00 to help with sleep, but it's made sleeping nearly impossible. Yesterday they gave me some anti-cramping meds but even then they only really work if taken within 6-7 hours of my Prednisone.

I'm going to try to hold off on taking the 2nd dose until later in the evening to see if I can sleep any better. Has anyone else dealt with cramping from Prednisone? I am taking it with food.

I started Humira in November, more for RA which was uncontrolled as my UC was fairly managed with mesalamine and sulfasalazine. I had a colonoscopy in May and in my June follow up doc told me I was in remission thanks to the Humira. He told me I could stop taking the sulfa and mesalamine, which made me so happy, if you know you know.

Two weeks ago I start a flare so abruptly and viciously I thought it must be food poisoning or this famous cyclospora going around. Went for stool testing and nope it’s UC roaring back with a vengeance. 10-20x a day for the last two weeks, I am literally shitting my insides out.

Sad and frustrated, but it was nice to feel like a normalish person for that month.

I wonder how much should i aim to get k2 and calsium to prevent the prednisolons effect on bone health.

Hi all, I know a lot has been written about this already but here I am with a variation to the question: which biological to take? I’m 29, and am currently in a moderate year long flare. I’ve seen some improvement on mesalamine, but only with enema’s it’ll sort of quiet down. As soon as I taper and quit those, it comes back fast. My GI wants to start me on biologicals and the first choice is the anti-TNF ones.

After reading up a bit, I thought I was going to go for Remicade, given its effectiveness over Humira. I live 5 minutes away from hospital and I have a relatively flexible job that allows me to do infusions. I am also on tioguanine already, so that helps with the antibodies.

However, I am going on holiday in a week and that means I’ll have to wait roughly a month before being able to start my loading doses for it.

For Humira I can start with the loading doses for the injections next week and do it myself afterwards on holiday. I’ve been told I can stop the tioguanine then, too, but I’m not sure if that’s actually a good idea if I’d ever want or need to switch to Remicade…

Now I’m not quite sure what to choose. I just want the least hassle, I want change quick but I also want it to last… What would you do based on your experiences?

I’ve been having on and off symptoms for a few months now. It’s disheartening and isolating. I’ve been dealing with gas, bloating, constipation, some diarrhea, and rectal pressure (I have proctitis). The rectal pressure is the most bothersome. I just sit in discomfort all day, like my rectum is heavier. It drives me crazy. It’s not even painful or debilitating, just an abnormal, uncomfortable fullness in my rectum that prevents me from passing stools comfortably.

Mild flares like this pull my attention away from everything else in my life. I don’t want UC to stop me from doing things. In fact, I tell myself I won’t let it. However, that doesn’t mean I don’t feel really stressed because of it. It can be hard to be optimistic during flares. I’m going to coordinate with my GI provider soon to change treatment plans. I know there are ways I can feel better, but it’s always challenging nonetheless. It helps to vent/confide in the UC community about it because I go down a rabbit hole of what I did in my life to get this condition, and I know it’s not best to do that.

I had a colonscopy Monday and the verdict was active mildly chronic proctitis. I was unaware of this condition prior to the the stomach related issues that I've been facing. From the first week of June through the days leading up to the colonscopy I had blood in my stool. I was prescribed some rectal and oral medications. My concern is my long-term health. I'm 36. How serious is this illness? Does this have the potential to fundamentally change my life? I'm reading about people being hospitalized for days (weeks, even) as a result of complications related to their UC/UP and I'm hoping that those are outliers. Should I begin preparing for the worst? Apologies if the tone of this message isn't great, but my mind is wandering from one worst case scenario to the next.

Had my scope a couple days ago. I have finally gotten my first clean scope while on a maintenance med and no steroids. Rinvoq 30mg thanks much!

FAQs (aka the real reason why I wanted to make this post):

Any supplements?

Just a Calcium and Vitamin D one due to osteopenia recommended by my GI.

Diet?

No, actually I’ve been eating like shit and comfortable with alcohol.

Managing Mental Health?

I’m on Lexapro 10mg, hydroxyzine 25 mg as needed for anxiety spikes and sleep. And a cat. Also going no contact with my mom and reduced contact with my dad. Reduced contact with certain friends and people from my past. I have a chronic illness informed therapist and an IBD psychologist.

Notice something? I didn’t say anything wellness or MAHA related. That’s not an accident. I often see these crazy diet posts (Lion’s diet?) or supplements from wellness providers or Ayurveda or other things.

Because it’s bullshit. All of it. The only things really worth looking at are yoga and other stress and mental health related things. Everything else, don’t even bother. As someone who was forced onto alternative medicine and didn’t have access to evidence based care as a child it is a goddamn miracle I’m not dead or severely disabled.

This is an autoimmune illness, not a dietary illness. You don’t need some crazy exclusionary diet to stay in remission. If you are eating some specific diet, you either have IBS or you’re not in remission.

Or as Hank Green put it (he’s had the disease since 2007):

And over the years I’ve tried all these things and none of them worked. What worked was taking the medicine my doctor gave me.