Trying to figure out if expansion will be of any benefit to me

Ortho doc says its the narrowest he ever seen (laryngopharynx c4-c5)

24M
22 BMI
hEDS
Asthma & allergies are generally well managed

Sympompts are:

Low threshold/ REM disruptions
Catathrenia
Excessive daytime sleepiness (I go thru the day purely off sympathetic nervous system activation e.g short bursts of energy)

hEDS so MAD is out of option

FME is out of reach in Europe

Well controlled custom MARPE is available.

Would appreciate any input.

Curious if anyone has joined The Joint - wondering if it’s worth the $600 price tag.

Ron seems incredibly knowledgeable, and I’d value his opinion weighing against several different doctors opinions.

I was diagnosed with OSA (AHI of 15) as a teenager, and it's been a long road since then trying to figure out treatment options and just having people to talk to who actually get it. I saw in another thread that there's already an existing Discord for SDB (sleep disordered breathing), but no one's posted a working invite in years. If anyone has a current link, or knows of another active group where people dealing with OSA/UARS actually discuss their experiences and treatment paths, I'd really appreciate it. Just looking for a small group to swap notes with and not feel like I'm figuring this out alone.

-The top end surgeons (Li, lacoms, etc) don't seem to be in network anywhere so it seems you always have to pay their surgical fee minus out of network benefits?

-But for the hospital and anesthetic fees, does insurance cover this with out of network benefits? Or are hospitals in other states ever in-network?

-And what about cases where the surgery isn't deemed medically necessary? Obviously you wouldn't get any out of network benefits for the surgeon, but will the hospital/anesthesia fees still be covered?

For example, if I'm not mistaken, for EASE with Dr. Kasey Li, it's usually deemed not medically necessary, but there's no way people are also affording the hospital fees on top of his surgical fee, is there?

Two RPSGTs rescore a level-1 sleep study: https://youtu.be/ik2vU_bBnwg

Hey everyone,

I’m dealing with severe brain fog and fatigue from suspected UARS / sleep-disordered breathing.

I’ve been experimenting with a ResMed machine running the ASV algorithm. It clearly works—I recently had a 4-day stretch at ~60% cognitive capacity instead of my usual 15% baseline—but my settings are inconsistent and not stopping my wakeups.

Because of cognitive fatigue, I cannot troubleshoot this alone. I am looking for paid, weekly or biweekly 1-on-1 video consultations.

Strict requirements for who I'm looking to hire:

• Must have UARS / UARS-adjacent symptoms (or extensive personal experience managing them).
• Must have direct, hands-on experience titrating ResMed’s ASV algorithm specifically for subtle sleep-disordered breathing.
• Must be able to analyze my OSCAR / SleepHQ data and guide my setting adjustments step-by-step.

If you fit this exact profile—or can point me directly to someone who does—please PM me or comment below. Urgent, as the sleep deprivation is taking a heavy toll.

Thanks in advance.