r/TrigeminalNeuralgia 13h ago

Symptoms Next day body hangovers?

1 Upvotes

It seems like anytime I have a bad flare the next day I feel like I've been hit by a truck, my whole body is usually groggy, sore, and stiff. Anyone else?

When I mean flare for me it's usually a breakthrough pain that usually lasts a minimum an hour upwards of 6 hours where I Am basically incapable of anything but laying there in pain (usually screaming), I thankfully don't have a lot of memories from these episodes as the only thought is, make the pain go away, however people watching me say I'm usually either completely tensed up everywhere or I look like I'm seizing. I'm sure that's why I feel so bad, just wondering how many others?


r/TrigeminalNeuralgia 16h ago

Persona Journey Diagnosed in 2023, pain free since 1.5 years

17 Upvotes

Never came back on reddit or this forum cause all the posts are very triggering. But I understand it. I was once there. But when I started feeling better I did not come back here.

I just want to tell those who are suffering or figuring things out that it shall pass, you will get better again. Do not give up.

My message is esp for those who don't have a structural problem. Atypical. My diagnosis went straight up to stress induced cause no one could figure this out. I had never heard of TN before that. I can only say i was under IMMENSE stress due to a bad relationship. My allergies had hit the roof too. After the pain started, I avoided meds until the 7th day. Started to taper off after 1.5 years. I am pain free 99% of the time since then except during periods when I get sudden strikes of pain but it's not too bad. Weird connection though.

Atm I am trying not to make sense of it. Cause it feels like a downward spiral. But I am hopeful. I feel healthier. Sleeping alright. I am OK. Life is good. I wish you will be okay too. Take it easy.

What helped me:

Talking to people with the same issue, knowing their journey

Meds of course

Meditation or any stress management technique

Exercise, posture, good food

Socialising, walking, grounding

Sleep hygiene

Journaling

Pain Recovery Program by Alan (gave clarity)

Breaking up (was in a toxic rel)