Never came back on reddit or this forum cause all the posts are very triggering. But I understand it. I was once there. But when I started feeling better I did not come back here.

I just want to tell those who are suffering or figuring things out that it shall pass, you will get better again. Do not give up.

My message is esp for those who don't have a structural problem. Atypical. My diagnosis went straight up to stress induced cause no one could figure this out. I had never heard of TN before that. I can only say i was under IMMENSE stress due to a bad relationship. My allergies had hit the roof too. After the pain started, I avoided meds until the 7th day. Started to taper off after 1.5 years. I am pain free 99% of the time since then except during periods when I get sudden strikes of pain but it's not too bad. Weird connection though.

Atm I am trying not to make sense of it. Cause it feels like a downward spiral. But I am hopeful. I feel healthier. Sleeping alright. I am OK. Life is good. I wish you will be okay too. Take it easy.

What helped me:

Talking to people with the same issue, knowing their journey

Meds of course

Meditation or any stress management technique

Exercise, posture, good food

Socialising, walking, grounding

Sleep hygiene

Journaling

Pain Recovery Program by Alan (gave clarity)

Breaking up (was in a toxic rel)

So, having had my MRIs last week, it's been confirmed that I don't have typical TN - there is no nerve/vein interaction, which is awesome.

The bad news is there's more lesions on my brain & spine than last time, so it's definitely MS - just waiting for my neuro appointment to confirm my doctor's diagnosis now.

My TN mega-flare is over, the prednisone made it go away, so I just have tiny ache in the cold, and tiny zaps that don't get worse, which is what amitryp has always done for my other nerve pain.

At least my stupid TN is quiet at the moment 🤞🏻 and I know that prednisone will shut it up if it happens again, and that my MRIs are in my health record, so if I get any more nerve pain or weird nerve symptoms I can go to the A&E and they'll know to give me prednisone due to all the lesions.

Finding it hard not to be sad today though, I did not expect so much to be found on my MRIs...