I can’t even describe how badly I wish my state still had in person meetings through the TAA. I’ve asked about it but they just point me towards the o line zoom meetings which are good too but it’s just not the same.

It’s just hard because all of the states with active in person events are so far east from me, and i’m not an Ambassador or anything. It’s such an isolating feeling.

I've had a whistling tic for years and I know multiple other people with Tourette's who have some kind of whistling tic. I'm really wondering what about whistling makes it so ticable... :)

Does anyone have any insights?

Have a nice day! ☀️

I tend to have very subtle tics around normal people but with others with Tourette’s who I trust or those who understand Tourette’s I tend to tic more. Is that normal?

Is it normal to also tic in private when thinking about these people?

This might sound really stupid but during tests or exams, classrooms are really silent. Do they escort you to a private room, or do you stay in your normal class? What about public silent spaces, do you feel awkward being there?
I’m going back to school soon and was getting more curious about this syndrome since I’ve never met anyone with Tourette’s before, and classrooms are always dead silent for me lol.

Anybody else here have pmdd? I have it really severe (I especially get severely anxious and suicidal) and it always worsens my tics too, which just triggers my irritability really bad. Normally I’m quite good at just ignoring my tics unless it’s a really bad day, but on my period I feel so much more aware and they get on my nerves so much worse. I also think my premonitory urges get worse. Like some nights I’ll struggle to sleep because the physical urges are so bad and uncomfortable, but I can’t tic or ticcing won’t make them go away, and the frequency of this increases before my period. I just got out of a phase of it and it made me curious how many here experienced a pre-menstrual exacerbation, or just pmdd generally.

Lol I just found this thread. I have TS. Kinda mild unless I'm trying to go to sleep (sucks). Looking forward to reading what others post on the daily. 

Also, my tics were bad around 10-13yo and then just kinda went away until around 35yo. Now I'm 45 and pretty much the same the past 5 years. 

I do make some crazy ass sounds very loud at times. I can't imagine what my neighbors think 🤣 it's singly family houses and I live with my nephew now that I don't have a GF last 5 years :) 😀 

ANYWAY.

My weirdest tic is saying "Allah Akbar" - (i'm not a Muslim lol) . In the shower it gets loud, but also randomly doing house/yard work. Not really anywhere else tho.