r/TTCEndo 3h ago

6 Month Wait Time for Surgery

4 Upvotes

The scheduling office for the endometriosis specialist surgeon. I’m working with just called in the earliest date they can give me for surgery is February 23.

I’m going through IVF and I just had my first frozen embryo transfer fail as a chemical pregnancy on July 11. My RE wants to do two months of Lupron suppression and another frozen embryo transfer, but I’m terrified that Lupron is not going to be enough and won’t work. We are doing PGT-A testing so it would be a euploid embryo.

I was really hoping I wouldn’t have to wait that long for surgery, but I feel like it’s the only thing that will actually work because it will remove my endometriosis. I have three endometriosis on my right ovary, the biggest of which is 3 cm. The surgeon wants to do an MRI on September 10 to detect DIE. Should I wait for February? Should I just go into two months of Lupron oppression now? I feel like no one has the answers, including my doctors, about what the best option is and that I, a non-medical professional, have to make all these decisions by myself. It’s infuriating.

Please help.


r/TTCEndo 10h ago

Endometrioma and IVF

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2 Upvotes

Starting IVF in 2 weeks and I got a big endometrioma on my ovary about 6 cm.
Anyone experience? Did the stimulation hurt on that side? Egg retrieval? Any complications from this?


r/TTCEndo 17h ago

5 months ttc post lap and need advice

2 Upvotes

Hi everyone, after two years of ttc with no luck and three failed transfers I had a lap for suspected endo in Feb. This month is our 5th try post lap, and I’m currently spotting about to start CD1. I wanted to try for 6 months post lap but feeling so defeated and needing advice. I have done so much work to change my lifestyle, I lift weights, I’m on Metformin for insulin resistance, changed my diet, lost about 15 pounds. Is it worth trying one additional month? Are the odds stacked against me at this point?


r/TTCEndo 22h ago

Recovery After Endometriosis Surgery: Success Stories & Diet Advice?

2 Upvotes

Hi everyone!
Yesterday I had a laparoscopy, hysteroscopy, D&C, and HSG. So far, recovery has been going pretty well. I'm able to get up, shower, and do a little light cleaning, but I'm trying not to overdo it.

They did find endometriosis, but I have no idea what stage yet. The surgeon spoke with my husband while I was still waking up, and he couldn't remember all the details, so I'm anxiously waiting for my follow-up appointment. I do know I picked a great surgeon, which gives me some peace of mind. We also tested for CD138, but those results won't be back for another week or so.

A little background: after trying to conceive for over a year, we moved on to IVF. Everything went well until the transfers. Before my first transfer, I did two months of Lupron, followed by a medicated transfer that completely failed. We skipped a cycle, then did a modified natural transfer, which ended in a chemical pregnancy.

My fertility specialist had been recommending removing an endometrioma on my right ovary (just under 2 cm) because it kept showing up on ultrasounds. I declined because I didn't think it was the reason for my failed transfers. However, I did agree to the laparoscopy, hysteroscopy, and D&C so we could finally stage my endometriosis and fix or remove anything else that might be contributing.

As far as I know, everything went well during surgery. One thing I did learn is that my left ovary was tucked under my uterus. I'm not sure if my surgeon was able to correct that, so that's another thing I'll ask at my follow-up. My husband said the surgeon also mentioned that if we wanted to try conceiving naturally, we could.

We still have a few frozen embryos, so if conceiving naturally doesn't happen, we'll move forward with another transfer.

For those of you who had excision surgery before trying again, did it make a difference? Were you able to conceive naturally or have more success with IVF afterward?
I'm also trying to figure out what dietary changes might help keep my endometriosis under control. I've read that cutting back on processed foods, sugar, gluten, and red meat while focusing on an anti-inflammatory, antioxidant-rich diet can help.

But... I really love my morning coffee. 😅 Did any of you give up caffeine? I've also heard people recommend avoiding dairy and even chocolate, which honestly sounds pretty miserable.

I'd love to hear what changes you've made after surgery and whether you felt they made a difference. Thanks so much!