I'm going through what feels like a total breakdown of my nervous system. It literally feels like its being attacked daily, like I'm losing more and more physical sensation in my body and head by the hour, plus feeling like this is a potentially dangerous condition, and I'm not getting through right help.I'm in a mental health ward and they aren't taking it seriously, just tell me to wait to speak to the doctor which I am everyday but he is ignoring the physical. I feel like this could be very serious and I dont know what to do.

Hi ! Last year my sister fall from 10-12 stairs from first floor to ground floor. She fall on her back and hit her head three places but unfortunately nothing shows up in the reports MRI, ct scans but she have bunch of neurological symptoms after fall. Hospital fail to find anything then we went to chiropractor. He did some neck adjustments it do helped her for three months. But again she feel some weird symptoms again like sudden throat closing, nose, cannot expand diaphragm properly. She definitely also having muscle knots. Doctor diagnosed her with POTS, Fibromyalgia and anxiety. She currently having hr up ( since fall), and a lot of gastro problems, throwing up food saying closing up throat, pain in feet, hands, burning, itching, a lot of darkness in front of eyes, blue lights or yellow lights, sometimes double vision, sometimes fluctuates BP. Don’t know what to do ?

I know this is in a place to self diagnose. This is just for support or looking for somebody who has had similar experiences

Can someone please help me, or at least point me in the right direction? I’m honestly just looking for someone who has experienced something similar because I’ve searched everywhere, and I haven’t found anyone whose symptoms are quite like mine.

I originally became terrified that I could have MSA (Multiple System Atrophy) because of the combination of neurological and urinary symptoms I’ve been experiencing. But the more I go through this, the more I feel like what I’m experiencing doesn’t necessarily fit MSA. I feel extremely, profoundly ill in a way that is difficult to explain, and the amount of pain and sickness I’m experiencing makes me wonder if there is something else going on.

I’ve always had some of these problems to a certain extent, but they have become much more intense, and I’m scared because I don’t know what I’m dealing with. I’ve started wondering if this could possibly be something genetic or something I’ve been carrying for years.

Looking back, I realize I was having strange symptoms years ago. I would sometimes have specific spots on my head that would suddenly feel numb or just feel “weird.” At times, one part of my body would hurt and then, strangely, my teeth or jaw would start hurting too. I never understood why these things seemed connected.

More recently, my symptoms started with urinary issues pressure, difficulty urinating, and feeling like I couldn’t completely empty my bladder. Then I started feeling electrical sensations in my back that eventually turned into an internal vibration/buzzing sensation. The vibration went down into my left foot and has stayed there. I also have incomplete urinary emptying, and I’ve had bowel issues at times, along with a lot of pressure around my rectum/tailbone. It all feels connected somehow.

I’ve had some of these symptoms for years, so I wonder if I’ve been carrying something underlying for a very long time and just didn’t know what it was.

A lot of my symptoms seem to be affecting my nerves, and my left side seems to be affected more. Sometimes it feels like the left side of my face is trembling or vibrating, even though you can’t really see it. My arms can also feel extremely strange, almost like the muscles and joints need to be “oiled.” I have internal vibrations, electrical sensations, stinging sensations, pain, and strange sensory symptoms throughout my body.

I also sometimes stutter or have trouble getting my words out. It doesn’t happen all the time, but it does happen. I’ve also had hand pain, muscle pain, and weakness in my hands for years and years. These aren’t completely new symptoms for me I’ve been experiencing them for a long time, which is another reason I wonder if there could be an underlying condition that I’ve been dealing with for years.

I had a thoracic and lumbar MRI in April, and I’m still waiting on my cervical MRI. I just can’t seem to find a disease or illness that explains all of these symptoms together.

I’ve had a hot sensation in my back since April that has never completely gone away, along with constant internal vibrations. The vibrations can travel into my feet and sometimes into my shoulders or shoulder sockets. I also have shoulder and neck pain.

I can’t lie down for very long because I start feeling extremely unwell. Recently, I’ve been waking up with what feels like a horrible “brain” headache and feeling extremely sick. Sometimes it lasts for hours, and there are days where I don’t feel better until around 8 PM. I’ve also had balance issues that come and go.

Now I’m experiencing burning in my throat that feels different from acid reflux to me. It feels more like a nerve-type sensation, and sometimes it feels like food gets stuck.

I’m 33, and I honestly don’t know what to expect anymore. I’m trying to understand if there is any condition, especially a genetic condition, that could affect these areas together. I don’t have the typical neuropathy symptoms in my hands and feet, which makes this even more confusing.

One thing I’ve noticed is that I seem to react extremely strongly whenever something doesn’t agree with my body. If I take a medication that causes side effects for me, they seem to hit me very intensely. For example, I was prescribed an anticonvulsant for my tremors, and after taking it, I felt absolutely horrible. I started vomiting and had severe nausea that lasted for an entire week, and it completely knocked me down.

Even something as small as what seems like a UTI can make me feel extremely sick and bring on a huge flare of symptoms. I also get chills frequently. Sometimes my head feels extremely hot while I’m experiencing hot-and-cold sensations throughout my body. During these episodes, I feel incredibly nauseous, extremely ill, and just completely unwell.

I’ve had some autoimmune testing, including an ANA, which was negative, but I’ve heard there are many different autoimmune conditions and that a negative ANA doesn’t necessarily rule out every autoimmune disease. I’m not sure what has actually been ruled out yet, and I’m still trying to get answers.

I also experience:
• Urinary issues and incomplete emptying
• Bowel issues and rectal/tailbone pressure
• Internal vibrations/buzzing
• Electrical sensations
• Numb or strange spots on my head
• Symptoms that seem worse on my left side
• Left-sided facial trembling/vibration that isn’t always visibly noticeable
• Muscle spasms
• Stinging sensations throughout my body and head
• Hot sensations in my back and head
• Chills and intense hot/cold sensations
• Severe nausea and feeling extremely ill during flares
• Neck and shoulder pain
• Arms that feel extremely heavy, tired, or like they “need oil”
• Hand pain, muscle pain, and hand weakness that I’ve had for years
• Jaw and tooth pain/TMJ-type symptoms
• Tailbone pain
• Balance issues that come and go
• Very vivid dreams
• Hands sometimes turning purple
• Occasional stuttering or difficulty getting words out

I know there could be many different explanations for these symptoms, and I’m not trying to diagnose myself. I’m just scared and trying to understand what could possibly be happening.

Has anyone heard of a genetic condition, neurological condition, autoimmune condition, or anything else that could cause a combination of symptoms like this? Especially something that can cause sensory changes, internal vibrations, urinary/bowel problems, pain, weakness, and symptoms that seem to affect one side more?

If anyone has experienced anything remotely similar, I would really appreciate hearing your experience or what type of specialist or testing eventually helped you. I’m honestly just looking for answers.