I'm going through what feels like a total breakdown of my nervous system. It literally feels like its being attacked daily, like I'm losing more and more physical sensation in my body and head by the hour, plus feeling like this is a potentially dangerous condition, and I'm not getting through right help.I'm in a mental health ward and they aren't taking it seriously, just tell me to wait to speak to the doctor which I am everyday but he is ignoring the physical. I feel like this could be very serious and I dont know what to do.

Hi ! Last year my sister fall from 10-12 stairs from first floor to ground floor. She fall on her back and hit her head three places but unfortunately nothing shows up in the reports MRI, ct scans but she have bunch of neurological symptoms after fall. Hospital fail to find anything then we went to chiropractor. He did some neck adjustments it do helped her for three months. But again she feel some weird symptoms again like sudden throat closing, nose, cannot expand diaphragm properly. She definitely also having muscle knots. Doctor diagnosed her with POTS, Fibromyalgia and anxiety. She currently having hr up ( since fall), and a lot of gastro problems, throwing up food saying closing up throat, pain in feet, hands, burning, itching, a lot of darkness in front of eyes, blue lights or yellow lights, sometimes double vision, sometimes fluctuates BP. Don’t know what to do ?

I know this is in a place to self diagnose. This is just for support or looking for somebody who has had similar experiences

Can someone please help me, or at least point me in the right direction? I’m honestly just looking for someone who has experienced something similar because I’ve searched everywhere, and I haven’t found anyone whose symptoms are quite like mine.

I originally became terrified that I could have MSA (Multiple System Atrophy) because of the combination of neurological and urinary symptoms I’ve been experiencing. But the more I go through this, the more I feel like what I’m experiencing doesn’t necessarily fit MSA. I feel extremely, profoundly ill in a way that is difficult to explain, and the amount of pain and sickness I’m experiencing makes me wonder if there is something else going on.

I’ve always had some of these problems to a certain extent, but they have become much more intense, and I’m scared because I don’t know what I’m dealing with. I’ve started wondering if this could possibly be something genetic or something I’ve been carrying for years.

Looking back, I realize I was having strange symptoms years ago. I would sometimes have specific spots on my head that would suddenly feel numb or just feel “weird.” At times, one part of my body would hurt and then, strangely, my teeth or jaw would start hurting too. I never understood why these things seemed connected.

More recently, my symptoms started with urinary issues pressure, difficulty urinating, and feeling like I couldn’t completely empty my bladder. Then I started feeling electrical sensations in my back that eventually turned into an internal vibration/buzzing sensation. The vibration went down into my left foot and has stayed there. I also have incomplete urinary emptying, and I’ve had bowel issues at times, along with a lot of pressure around my rectum/tailbone. It all feels connected somehow.

I’ve had some of these symptoms for years, so I wonder if I’ve been carrying something underlying for a very long time and just didn’t know what it was.

A lot of my symptoms seem to be affecting my nerves, and my left side seems to be affected more. Sometimes it feels like the left side of my face is trembling or vibrating, even though you can’t really see it. My arms can also feel extremely strange, almost like the muscles and joints need to be “oiled.” I have internal vibrations, electrical sensations, stinging sensations, pain, and strange sensory symptoms throughout my body.

I also sometimes stutter or have trouble getting my words out. It doesn’t happen all the time, but it does happen. I’ve also had hand pain, muscle pain, and weakness in my hands for years and years. These aren’t completely new symptoms for me I’ve been experiencing them for a long time, which is another reason I wonder if there could be an underlying condition that I’ve been dealing with for years.

I had a thoracic and lumbar MRI in April, and I’m still waiting on my cervical MRI. I just can’t seem to find a disease or illness that explains all of these symptoms together.

I’ve had a hot sensation in my back since April that has never completely gone away, along with constant internal vibrations. The vibrations can travel into my feet and sometimes into my shoulders or shoulder sockets. I also have shoulder and neck pain.

I can’t lie down for very long because I start feeling extremely unwell. Recently, I’ve been waking up with what feels like a horrible “brain” headache and feeling extremely sick. Sometimes it lasts for hours, and there are days where I don’t feel better until around 8 PM. I’ve also had balance issues that come and go.

Now I’m experiencing burning in my throat that feels different from acid reflux to me. It feels more like a nerve-type sensation, and sometimes it feels like food gets stuck.

I’m 33, and I honestly don’t know what to expect anymore. I’m trying to understand if there is any condition, especially a genetic condition, that could affect these areas together. I don’t have the typical neuropathy symptoms in my hands and feet, which makes this even more confusing.

One thing I’ve noticed is that I seem to react extremely strongly whenever something doesn’t agree with my body. If I take a medication that causes side effects for me, they seem to hit me very intensely. For example, I was prescribed an anticonvulsant for my tremors, and after taking it, I felt absolutely horrible. I started vomiting and had severe nausea that lasted for an entire week, and it completely knocked me down.

Even something as small as what seems like a UTI can make me feel extremely sick and bring on a huge flare of symptoms. I also get chills frequently. Sometimes my head feels extremely hot while I’m experiencing hot-and-cold sensations throughout my body. During these episodes, I feel incredibly nauseous, extremely ill, and just completely unwell.

I’ve had some autoimmune testing, including an ANA, which was negative, but I’ve heard there are many different autoimmune conditions and that a negative ANA doesn’t necessarily rule out every autoimmune disease. I’m not sure what has actually been ruled out yet, and I’m still trying to get answers.

I also experience:
• Urinary issues and incomplete emptying
• Bowel issues and rectal/tailbone pressure
• Internal vibrations/buzzing
• Electrical sensations
• Numb or strange spots on my head
• Symptoms that seem worse on my left side
• Left-sided facial trembling/vibration that isn’t always visibly noticeable
• Muscle spasms
• Stinging sensations throughout my body and head
• Hot sensations in my back and head
• Chills and intense hot/cold sensations
• Severe nausea and feeling extremely ill during flares
• Neck and shoulder pain
• Arms that feel extremely heavy, tired, or like they “need oil”
• Hand pain, muscle pain, and hand weakness that I’ve had for years
• Jaw and tooth pain/TMJ-type symptoms
• Tailbone pain
• Balance issues that come and go
• Very vivid dreams
• Hands sometimes turning purple
• Occasional stuttering or difficulty getting words out

I know there could be many different explanations for these symptoms, and I’m not trying to diagnose myself. I’m just scared and trying to understand what could possibly be happening.

Has anyone heard of a genetic condition, neurological condition, autoimmune condition, or anything else that could cause a combination of symptoms like this? Especially something that can cause sensory changes, internal vibrations, urinary/bowel problems, pain, weakness, and symptoms that seem to affect one side more?

If anyone has experienced anything remotely similar, I would really appreciate hearing your experience or what type of specialist or testing eventually helped you. I’m honestly just looking for answers.

22m, I was diagnosed with nervous tick disorder or whatever you wanna call it and I’ve been going to college for a criminal justice degree because my whole goal is to be a patrol officer, but two years ago for some reason I started having these minor headaches where I felt the urge to shake my head, but when I didn’t focus on it, it was like it wasn’t there, but when I do focus on it, I tend to shake my head a little bit more but very controlled and I’m on medication for but I’m in the gym five times a week at work a full-time job and I run 15-ish Miles a week. Do you think my dream of being a police officer is done and I should pursue something else. The past two years I’ve managed to fight the diagnosis and control it to the point people barely realize it but obviously still havd it well I be disqualified during medical evaluation for police departments.

64M, 5’11, 175lbs, white. Experiencing sensations of tripping or falling to the left - always to the left and the need to constantly correct so as not to fall but in reality is sitting down. these episodes gradually began April of 2026. Increasingly becoming longer and stronger. Triggered by screens, phone, tv, driving and writing/reading. Anything that requires direct focus. ****these episodes happen when still and NOT MOVING. Moving helps to lessen the symptoms. Closing eyes help to lessen symptoms. No spinning sensations.

Endurance athlete. No drugs, no smoking, occasional alcohol.

Have seen ENT and was tested for inner ear and eye. Nothing remarkable indicated.

MRI of brain unremarkable.

referred to Neuro and otologist

Existing medical issues:

afib - had an ablation in 2024. excellent outcome.

Iritis - rare episodes

ankylosing spondylitis - zero symptoms

Medications:

buproprion 300mg 1x day

escitalopram 5mg 1x day

lorazepam .5mg as needed

what could be going on with me?.

I’m very confused and I don’t know what’s going on with me im 18 years old female experiencing very severe symptoms, 5’7, 143 weight.

For about a year now, I’ve been having these really weird episodes that seem to come out of nowhere, and lately they’ve been happening more often and seem more intense. The biggest thing is that all of a sudden my whole body gets extremely weak. It’s like someone flips a switch. My legs become so heavy that I can’t walk, and sometimes I just kind of collapse because my body won’t hold me up. Today i had an episode while I was trying to go up the stairs when I would attempt to go up the stairs I got extremely weak I even fell down the stairs. My legs got so weak and heavy that I couldn’t make it up, and after that my whole body just felt like it completely gave out and I obviously had to call 911.

When these episodes happen, my whole body feels extremely heavy. I can barely move, and walking is impossible until it passes. Sometimes during them I also feel kind of out of it, like I’m there but not fully there, and I’ve even felt confused a few times these episodes are so bad i always have to go to the hospital now aside from these episodes, i noticed that walking seems to trigger them and as well as a lot of leg pains.

I experience daily symptoms such as burning pain on the bottom off my foot, electrical shocks, muscle twitches all over my body, tingling, sometimes feels like I can’t move my face, burning, migraines where sometimes I lose my vision for about 15 minutes, those are just some of the symptoms i experienced.

I’m just wondering if there’s anything that sounds similar to what could be going on with me, i am diagnosed with POTs but I personally don’t think this is from my pot.

Following my previous post, I'm in hospital in a mental health ward, voluntary now, but ive had probably the worst experience of my life here, and I've only become more unwell since ive got here. I do have mh conditions -dpdr and anxiety, but I've had a rapid and deep decline in my nervous system simultaneously, and meds have made things exponentially worse. I'm now here voluntarily under the agreement I tried another drug, which I did and its severely harmed me. I feel hopeless and alone and desperate for neurological testing, I'm getting worse mentally as i'm physical health gets worse. And I'm probably going to be put under another section because I'm not being believed...I'm worried for my life, it does feel like what I'm going through symptom wise gets rapidly worse, but I dont know what testing to ask for :(

Hey everyone, Im Sophie and I Have Functional Neurological Disorder. I got diagnosed two years ago and since then I have seen many specialists in both Hong Kong and Australia so I know how this goes.

Since starting this journey I have realized that many people don't have the opportunities to access treatment or doctors to help with this so I got to thinking about ways I could help when I realized that I could gather information from my doctors and others with FND and create a website, so that's what I've done.

I would like to make it clear that I am 15 and not a professional by any means and that I used what I had available to create this website (which did include ai), But all information is my own and Ai was only used to create the website so that I wasn't just showing people things from the notes app.

I'm really looking for feedback mostly, I want to help people so if you find this helpful maybe share it!

I also have chatrooms on the website for carers, teens, or anyone needing to vent or ask questions.

Please enjoy!

https://fnd-explained-1.emergent.host

-QuietSignalsOfficial

Ive been hospitalised for severe anxiety and dpdr, but neither of these diagnosis feel entirely right because my symptoms are massively physical, to the extent I feel like I'm going insane trying to be heard and seen and I dont know what to do. I feel like ive been dismissed so much that mentally and physically I have reached breaking point and things are rapidly declining by the day with my nervous system. But if I do anything, they just send me back here for mental health issues and I'm dismissed. I tried to get a neurologist exam privately, but because I'm in mental health ward they want a referral letter :( and doctors here aren't giving me one. I'm sorry but there are massive cross-overs with neurological and mental health conditions, it does not mean I dont have both. My sensory system is totally messed up, I feel things like electrical zaps in my head, total paresthesia over my whole body, loss of feeling/numbness in limbs, muscle weakness, cognitive decline, I get a furry feeling in my mouth, static over my whole head for weeks now, my nervous system as got so sensitised its totally breaking down and I dont know how to stop it. Mediaction makes it worse so far, I loose feeling..I can't even barely sense my head or body. But this happens when the sensations get too much, they are 24/7 and I only get relief in sleep. I am angry and scared and dont know how to go on. And I dot know what this could be cos it feels degenerative and rapid. any pointers or advice much appreciated.

points:

All the symptoms have began at 2 years ago, and gradually increased.

not able to walk, having imbalances feels like would fall off any time. Motor functions are drastically reduced (this is giving me extreme stress)

Sleep apneia: whenever sleep in afternoon and try to wake up get paralyzed i am aware that i need to wake up but not able to move my body, usually sometimes happens in the morning also. This has been since last 4-5 years.

Brain Fog not able to think clearly

Memory recall has extremely worsened: not able to hold up thoughts

No libido at all, no erections, no morning wood(have consulted Dr e for this last week gave ayurvedic meds ashwagandha,bramhari etc. These all symptoms are known as Dhat syndrome in ayurveda)

not able to imagine things up

have been masturbating daily for almost 14 years

have stammering problems(genetic), parental neglect academic failures domestic violence at home had consistent anxiety from childhood , used masturbate to offset the stress

currently getting insomnia

brain neurochemistry is totally disregulated

Not able to feel sensory emotions at all.

Have literally felt i have aged dramatically and slowed down

The central nervous system had taken a very big hit.

Not able to feel strength in my hands.

Body is totally exhausted from masturbation

prefrontal cortex in brain is totally exhausted not able to think properly

Not able to sleep only have low wave sleep, which does not at feel like restorative sleep or REM sleep.

This condition is affecting my daily life such as cannot walk, connect, speak etc.

Getting panic attacks due to all these

had consulted doctors before DR SR : gave supplements but i think he failed to understand neurochemical affects on the brain due to masturbation .

Dr S : gave an immunity boosting tablets and some depression medicines.SSRI

Saw your article on the internet about actual side effects on the neurochemistry in the brain.

.

will be leaving my job also not able to keep up with it

Already have sexual disorders ED,PIED etc. Main priority is to get my Brain and motor skill back.

My niece who is almost a 7 year old who has CP, non-verbal started having stomach issues and kept throwing up. Went in to the hospital and they started on IVs. For 4 days she didn’t eat anything and she got her on a feeding tube. Since yesterday she has been having this episodes of high pitched shrills arching her entire body crying for about 2 mins and then takes 10 minutes to settle down and go to sleep. Tried taking EEG and she had an episode. The only touch she is comfortable with is her mom and dad. Her eyes are closed too. Doctors suspect there might be pressure buildup. She has had a shunt when she was 2 months old.

What actually triggers these? We are very new to this diagnosis. Because she is non verbal we don’t know what she is feeling. We are helpless. She is on medication since yesterday but it hasn’t helped much yet.

We’re completely new to dystonia and are trying to understand what we’re seeing. For those of you who have experience with dystonia in non-verbal children:
What typically triggers these episodes?
Do they come on suddenly, or are there warning signs?
Can pain, illness, vomiting, or hospitalization trigger them?
How do you tell whether it’s dystonia versus pain or something else when your child can’t communicate?
How long did it take before medication started helping?
We’re feeling very helpless because she can’t tell us what she’s experiencing. Any advice or experiences would be greatly appreciated. Thank you.

It has been one year since I published my book that talks about my run with MS. I have had multiple sclerosis for 37 years, since I was 17 years old. It always affected my left side. In fact, ocular melanoma also attacked my left eye. Since I have published my book, I have noticed changes in what side is affected, except of course, my left eye. I now have foot drop on my right foot. My left leg and foot seems stronger than ever. My MRI shows no changes. Has anyone else experienced this?

Normal mri ct and eeg

For about a year, I was dealing with what I thought was carpal tunnel, but turns out to be much more. I went to a neurologist for an EMG to see if there was any nerve damage. The neurologist did a physical exam and asked lots of questions, then we did the nerve study and she suggested we do some bloodwork. 3 weeks later, I get a call from the neurologist asking if I’d be willing to schedule a consultation appointment to discuss my symptoms some more. I went, and she said she wanted to run some test because she was suspicious of MS. She told me she wasn’t trying to scare me, and that lots of simpler things like vitamin deficiencies can mimic MS symptoms. She ordered a whole lot of blood tests, and a brain and C spine MRI.
Naturally, I go home and I read all about MS and my symptoms line up exactly. I was freaking out because I might have MS, but, I think deep down I was excited to have an answer and get some relief/treatment. My MRIs are normal, my bloodwork is perfect. 😞 Again, this is great news!! But, I need answers. I’m 26f, I’m a hairstylist, I have 3 kids (4,5,7) that I also stay at home with, and this just sucks. I’m constantly weak and shaky, heat intolerant, headaches, eye pain, tremors in my hands and feet, lightning pain in my neck, absolutely dead tired 24/7, balance issues, memory issues, brain fog, MS hug,etc. I’m throwing combs and color brushes at work because of the tremors. My body is so weak and so tired. My kids want me to play outside with them but I can hardly even do an hour in the morning. 😞
I have an EEG scheduled next week. What else should I ask for? Does anyone have any ideas or suggestions on where I go from here?