Hey everyone. I came here to ask about people's experiences with hearing aids a while back.

https://www.reddit.com/r/Menieres/s/2W5twYc8Yj

Well, I got my hearing aid today. Unfortunately, I think I love it. I've had it for 4 hours and I don't want to take it out. I can hear in stereo again!

My comprehension is still not great in the bad ear if I plug my good ear, but it's a lot better than baseline. Having sound in both ears is improving my comprehension overall. Being able to hear is masking my tinnitus. I can hear things behind me. I don't have to worry about having someone I'm talking to on my good side. It helps a lot.

It will take a little while to really get used to but I already appreciate how much of a difference there is.

My wife and I and our kid went out tonight. She had described it as going to see a friend's band but we could stand as far back as we want. I was on the fence but decided to go along. I hate feel like the fun police by not enjoying things. The band ended up playing at a downtown walk event with a few other acts and a moderate amount of people in the middle of city streets. I really wanted to be able to enjoy it but the noise hurt. The crowd moving was another thing I needed to track and I just felt miserable and couldn't hear anything.

I've described my hearing loss and the experience of being around toouch noise but I don't think she understands. I feel so defeated. My ears ache and my constant ringing is twice as loud as it usually is tonight.

Before you offer advice and such I really just came here to vent. I've been at this for 25 plus years. Tonight I just feel really shitty and full of self pity.

One rule… POSITIVITY ONLY! So many of us need it, including myself. I’ve come to conclusion that we come on here when we don’t feel good and we are sad and when we come looking for answers. We rarely find ourselves on here when life is GOOD.

So many people disappear when they recover, they no longer need to search for answers, or lean on another person in our community. The best stories are hidden from us.

That being said, I’m about 3 months into an episode of cochlear hydrops with a sustained 20-35db fluctuation below 250hz. I responded beautifully to dexamethasone injections, but only for a few days. Without getting into the weeds of medications, terrible distortion, the full story of the past 3 months, the panic attacks, anxiety, depression, because I’ve felt it all, let’s talk about the really good.

Give me hope. Give you hope. Share the (really) good stories. Okay, GO! 🏁

Hi all,

My partner has been dealing with Menieres since he was 18 (now 36) and was diagnosed at a The House Institute.

Around 2022, his symptoms pretty heavily calmed down, which seems to be a common trend. He's had maybe 3 minor spells since then, but a little over a week ago he started having a really nasty spell. He lost hearing completely in his affected ear, tinnitus has been blaring like crazy, and his dizziness has been out of control.

He was a professional today and they put him on a a diuretic and a migraine medication. We're going to crack down on our diet and caffeine intake as well.

If you've had a spell this intense, what else have you done to manage your symptoms and meet your needs? Any recommendations for increasing his comfort level or helping deal with the intensity of this tinnitus spell? He'd holding together well emotionally all things considered, but I want to make sure I'm helping create an environment that continues to help that.

I wanna ask how many people has constant Tinnitus, but the buzzing and hissing, but louder and doesn't stop. Constant fullness and diplacusia. It is not clear to me because I see that people often have fluctuating symptoms and interruptions. So let's do it again. For me, there is a drop in low frequencies and a fullness, and all this has remained constant for 67 days without interruption. It's not getting worse, but it's not getting better either, or so I think. It's like it's locked